Andy

We came back from South Beach this past Tuesday and reviewed the latest toxic challenge urine test and it appears mercury is no longer detectable. According to the DAN treatments this would mean that we have taken out most if not all of the mercury that was in my sons organs and soft tissues. However, since the lead has reappeared we will delay Stage 2 of the detox by a couple of months till that is resolved again. In stage 2 ALA will be added to the DMPS/NAC/Glututhione IV to hopefully cross the blood brain barrier and pull out any mercury that may be deposited in there. We have done stage 1 detoxing for a year. Stage 2 detoxing on average from what I have read is usually much less time wise. We have made some changes in the chelation treatments as well. We stopped the DMSA weekend treatments and are replacing it with TTFD Cream to be applied 1 to 2 times daily. The problem is the smell so on school days we most likely will only be giving 1 treatment. I am a big fan of the chelation treatments but I must remind everyone who has read my posts or any new comer who is reading my posts that it is the second to last step in my son's treatment program. The other steps were all based on tests as well and included 1. Supplements of vitamins, minerals and amino acids. Also included is fish oil. 2. Restricted diet due to delayed food allergies or intolerance. 3. Epsolm salt baths 4. Probiotics and now included is nystatin to kill yeast and fungus overgrowth in the gut. 5. DMPS, NAC, Gluthione IV/DMSA supposortories with gluthione lotion. 6. DMPS, NAC, GLuthione IV/with gluthione lotion and TTFD lotion. 7. Will try enzymes when detoxing and fungus treatments are done to help enhance gut repair and hopefully reduce number of food allegries My son has overcome a host of issues since we started the treatments. Things that have ended were: 1. Not being able to sleep at night.-Changed with supplements and chelation. 2. When finally falling asleep having night terrors.-Changed with supplements and chelation 3. Having behavior that was unpredicatable.- Change with diet. 4. Having Obessive Behaviors- Changed with diet and behavior modification at home. 5. Having severe tics- 95% seem to be gone as of now-changed with chelation. There are other issues resolved as well which I will not post for now but the main thing is that all of the treatments of supplements, restricted diet, epsolm salt baths and fish oil, lotions, and chelation had improved my son's condition. Remember this was a kid who doctors were trying to direct towards meds. and were stating options like special education or home schooling as future options. He is currently in a gifted program and has won a few art rewards. Not bad for a kid who at one time couldn't keep his head straight never mind focus his eyes on anything. Now this is my kid's story and it will most likely be an ongoing story for damage was done and that damage will need to be regulated and treated but he is successful with alternative medicine/treatments and there is no reason why other kids out there can not also have their ranges of success as well.

I am happy to see that you have a doctor that is testing your blood to make sure that the chelation is not taking a toll on your body. Hope only the best continues for you. Andy

I think you should know that a teacher or school can not recommend medication for they are not doctors and they can be sued for such. Second a school can not force a child to take medication or force a parent to give their children medication to control behaviors. Third most schools I find are more understanding when a diagnoise is explained to them, you would be suprised on how many people do not understand or know what TS really is. I myself am not a fan of medicating kids to supress behaviors. I always thought that should be the last choice. Feed the brain, heal the body is the way I would look at a child first. Questions you may ask yourself What is causing the TS? Is it a family trait and if so, what supplements could treat the condition better then meds. Is it out of the blue and if so, what may be in your child's body that is causing it and what other damage might have been done that needs to be address as well. I was wondering if your child has had a flu shot or any other shot before you saw a change or if you live near any coal burning industry such as power plants or auto-factories? This may not be a clue or it may help looking at environmental factors that can be addressed the easiest. In anycase there is a ton of information on this site as well as a book that is offered for sale by one of the experts who created this site some time back. I recommend that if time permits that you read thru the threads page by page to get background information and an understanding of what we talk about here if you don't know already. I would start with Chemar's "Treatments that have helped my son", Claires thread on "Getting Started.." and then Kim's "Articles". My past threads on testing, heavy metals, and chelation may also be of interest. But diet, supplements, and probiotics is where I started my son's own treatment first and may be an area of interest for you and your son as well. Stay with us and ask your questions. We all have done that ourselves.

I have three sons. My oldest son started to show autistic spectrum behaviors at around age 2 after getting sick after getting a vacination shot. We started an enrich protein and vitamin diet as well as a behavior modification program at home to keep him in touch with us. At age 4 he was diagnoised with TS by a few neurologists and he started treatments under an alternative doctor. At age 6 we felt we went as far as we could with a well known alternative neurologist doctor and placed our son under the medical treatment programs of a well known DAN doctor. My other two sons age 16 months and 5 years have not shown anything yet. However, we feel that they may be prone to developing TS if exposure to an outside agent like mercury is made so we are proactive with their diet and supplements as well as having their vacination shots done thru another DAN doctor, who was featured in the wall street journal, and have the shots given individually rather then three at a time in one shot. We have spent most of my investment money profits and I gave up time to research other investment venues by applying that time to the health and well being of my own kids. But it was and is worth it for us. I mention the doctors as being well known for I wish to point out that there are many doctors who treat our kids who are not mainstream doctors but who vary from teaching medicine at harvard to having had successful results vertified by conservative news outlets.

Thanks Kim. My son is currently taking two Culturelle a day. My Dan doctor states that they are the only probiotic that he knows of that does not get burned up by the stomach acid and makes it into the small intestines. We have been giving supplements for over 5 years now and to tell you the truth I am pretty tired of the whole process never mind the costs involved. We are hoping that in a year he would not need the majority of supplements anymore but that is the hope and the tests will be the facts. My son is also taking three 1/8 spoons of nystatin a day with the culturelle. We try to give it 1/2 hr after my son eats to maximaze the results. Before starting the nystatin we were giving Culturelle for around three months to lessen the die off effect. We had a die off effect from the yeast with the Culturelle for around the first month and a half when I was giving it 3 times a day. We have had none with the nystatin being added so I am hoping that most of the yeast and fungus was killed and now we are doing clean up and maintance of the gut. As for getting out the Mercury we have did DMPS with glutathione IV's for 5 months and then stopped for two months then continued up to this point for three more months. That would be 8 months overall. We are awaiting the latest test results for if no mercury is being shown we will drop the DMPS and just leave the glutathione and continue those as the once a month IV's until we see a natural increase of my sons own glutahione levels. We were planning on stopping the twice a week DMSA supposortories at the end of Feburary for that would be a complete year of that and we never planned on doing it for longer then that. My son has had such drastic improvement since we started our then own path 5 years ago. The worse things they show on TV about TS was nothing compared to what we all went thru. I feared at the time that he was falling away from us into what is called delayed autism. You know where the kid is normal for the first 18 to 24 months of life then all of a sudden, boom. I get so angry at TV shows when I hear parents say "I didn't noticed anything was wrong to aroung 18 months". I feel like yelling, that is because most likely nothing was wrong in the first place. As many of the veteran posters know, I am a big believer that the vacination shots my son got caused his damage. Yes, he might have been predisposed but if it wasn't for being poisoned it would have never happened. Sorry for the long winded answer but basically my son started to eat more at the same time as the chelation process. He has a restricted diet in that he can not eat breads, anything with gulten, rice, soy, corn, cane sugar, or mushrooms but he can eat meat, chicken, vegs, beans, potatoes, fruits and nuts which is alot if you think about it and we have increased his beans and fruits since we seen no more die off from the probiotics and none with the nystatin.

Hi Kim and Claire, My son is doing wonderful again except for an occassional eye twitch which to us is nothing. We are considering stopping the DMPS IV treatments and DMSA supposotories. We are awaiting for the blood and urine results to come in. The main thing that I wish to state is that we have been using Culturelle, two times a day for close to three months along with Nystatin for 19 days now. One of the reasons why we were doing the chelation was based upon the theory that if you remove the mercury you could heal the gut. Our doctor gave us the option that if the results show no more mercury if we should add another substance to reach into the deep tissues and pass thru the brain barrier and pull from there as well We are not happy with going to pull anything from the brain for we have our concerns and since he is doing so well we do not see why we should do anything else as long as he is where he is. Anyway sorry I have not been here to much recently but I did see a post on how many parents here have had success when i was lurking one day and it was so good to see.

We find that overexcitement and lack of sleep are things our son's body still can not deal with. Also a cold could affect him as well. He can now tolerate TV and some computer time, but no computers at home only in school.

The answers are out there and in time you will find them. We found the stool test for yeast to be useless ourselves. I believe we did an Oats test thru the urine but I would have to check the paper work at home. Our kid has had many tests and over time and research and help from others we realize which tests are good indictators and which ones were a waste of money. Do not give up on supplements. Supplements only work when other things are in place and when the right type and dosage are being given. Everything we give our kid was based upon his body's chemistry needs. The trick is not to over spend on the testing.

If medication is the best treatments for someones child, then great. We ourselves felt that medication should be a last choice due to the facts that the medications were not really designed for our children in the first place, that they only mask what is causing the issue and that they do have side affects and do not always work as well. Now we were told when our child was 4 years of age to place him on meds. We were told by more then one neurologist that our son most likely will never be in regular education and may need to be home schooled. That was how bad his condition was. What did we do. We decided if we could research what car to buy we could research his condition and how we could try to treat it. My son is now 7 years old. The doctors said he would never be in a regular class in school. Well you know what, he is in the gifted program. We have a child who could not keep his head straight, could not stop body tremors, who could not focus on any object with his eyes with out aid to now having a kid who is reading way above his level and who has won a school art award in one contest as well as a Southern Florida art award in another contest where his work was featured in an art show. Remember this was a kid who couldn't keep his head straight and had tremors 24/7 with a host of other "stuff" Our treatments are all based on medical tests. We test to see what amino acids, what vitamins, what anti-oxints his body needs. We tested on delayed food allergies which basically means he would pass the skin test if gluten is pricked in it but his insides are damaged so he can not digest it properly. We had him tested for heavy metals, and his body was a toxic dump. Which we have been treating under medical supervision for three years now with the last year with a DAN doctor and with chelation. Now we had our ups and downs and we are not out of the woods yet but he is living a normal life "med free". A child could be on meds for life. Why not try to treat the problem, if possible, before going to an end game that has no end?

The hair might not show the heavy metals for that is for more recent exposure. The heavy metals over time sink into the muscles, the fat, the stomach/intestinal lining, and the bones of the body. There is a challenge test for heavy metals that puts a chelation into the body to pull it out. This treatment has been developed in the USA during World War II for the painters of warships. Hence the term"get the lead out" came from. It also has been developed in China and Russia to remove toxic metals like mercury that is used for most dirty bomb warfare. mustard gas as an example. However, if your child does not have a yeast issue then you might want to try a more natural detoxer like NDF or Chlorophyll. Chemar has had good results with the second one that I mentioned. Ask your Dan doctor about it. I just want to add that there is no one treatment fits all with this issue. It may take time and trial and error to find the right direction but don't worry in time you will find it as long as you look.

My son got sick right after a vaccination shot and has never been the same again. We have been treating him now for 5 years. This last year we started chealtion with once a month IV's and eight times a week supposortories. This included epsolm salt baths as well as a restricted diet, probiotic treatment and supplements with gluthione cream treatments. Our son has made tremendous progress but I would not recommend chealtion unless a high amount of heavy metals is detected in the body.

We have upgraded our probiotic since yeast and fungus overgrowth has been found. We have seen wonderful results since the upgrade. However, we are going to use Nystatin over the Christmas holiday break. We feel that the yeast issue is one that we have contained in the past only to have reoccurred again so we are hoping that the nystatin will kill it all off for once and for all.

We found that our son can tolerate watching any screen after we started detoxing his body of heavy metal poisoning. Before that it was a big no-no. Now it is no more then an hr a day and usually only on weekends or special viewings like Christmas shows or educational tapes.

My son can not eat any soy, corn, dairy, rice, or gluten product. This statement is based upon observation and medical testing. Try food groups seperate from each other and at least three days inbetween each other if there is no reaction. If there is a reaction, just wait till it passes before trying any new foods and stay away from the food that caused the reaction.

I have read that Germany is big on detoxing the body. Perhaps your nephew has been environmentally poisoned? If there is no history of TS in the family, I would look into that or yeast and fungus overgrowth in the gut.

You may want to test for heavy metal poisoning that may have come from vaccination shots and you may want to test amino acid, vitamins and gluthione levels. Why treat with medication if it turns out that your child body just might need its' chemisty boosted with supplements. Good luck and hang in there.

Hi Gary. I am a father of three kids of which the oldest has been labeled with TS. He first became sick at age 2 after a vaccination shot and stuff has happened since then. We are currently treating him with the assistance of a Dan Doctor. He has been tested to have various heavy metal poisoning, delayed food allergies, yeast and fungus infection in his gut as well as not having enough natural guthione in his body to clean itself out. We feel that his TS was induced from mercury being in the vacination shot as a preservative and damaging his body. However, we understand that there could be many causes of TS and that there could be more then one treatment that could help people depending on what they need. My son is on a ton of supplements, he gets once a month DMPS/Gluthione/NAC IV's, he takes epsolm salt baths, he is on a restrictive diet based upon his food allergies, he is taking probiotics for his gut, he has weekend treatments of DMSA for detoxing, and he gets twice a day gluthione lotion rubs. He is also constantly tested to monitor his blood cell count because of the detoxing and other tests to see what his body chemistry is. My son has made wonderful gains but we also have had set backs along the way. We love our son and consider ourselves blessed to have him and will try anything we could to make his life easier. If I remember correctly , the person that you speak of who has had the deep brain stimulation posted here at this site a year or so ago. If you look up Jeff Matovic under members, you might come across some of his posts. It was not that many but the content of them impressed me. Don't sweat not being an ace with this forum. Since I came back to it I have noticed that its layout is a little different from what I was used to and I have been fumbling around here myself. In time and with practice I am sure we both get a handle on it. Please continue to post. I've been away for awhile due to stuff but now I am back and I usually check in once a week to see how everyone is doing, to learn something knew, and to share my own information when I can.

I'm tired so excuse my past spellings. The probiotic that we are using now is called Culturelle and the website is www.culturelle.com if you want to look it up. 1/2 hr after using it we give our boy a capsule of activated charcoal in juice to absorb the die off. This may have stablize my son. It is hard to tell for we re-started the IV treatments at the same time. This winter break we will be giving nystatin 3x a day with the culturelle 2x a day until tests state otherwise. We want to lower the yeast levels before going with the nystatin to hopefully lower the kill off effect by lowering the yeast levels. We want to wait to the holiday break to give my kid time in hopes that when he goes back to school the kill off effect would have past. We want to use the nystatin to ensure the yeast and fungus problem is gone for good by killing it as well as pull out the mercury with chelation to take away the conditons that could cause it to grow. I think this is the last major piece of the puzzle.

Brett We were told that our son was looking at special education or home school for his future when he was 4 and were pushed towards meds. To make a long story short, he is now in a gifted program in his neighborhood school and has art work being exhibited in a showing after winning a county wide contest. Yes I am bragging but could I have been able to brag if I listened to those doctors. I think not. If nothing else works then go to the meds is my feeling but there is so many alternative treatments out there. For my son it was a long road starting at 2 years of age but after many ups and downs we feel that we made the right decision for even if we are not out of the woods yet, he is enjoying his life and that is what it is all about. By the way, my boy was also tested for siezures and for a tumor. Negative. However, he did test for heavy metal poisoning, extremely low gulthione levels, delayed food allergies, and yeast and fungus overgrowth. All could have been the result of mercury in vaccination shots.

Medication should always be an option but it should be the last option especially when the medication was not designed for our kids issues or needs. At least that is my view on the matter. From our experience our kid was in really bad shape but with the alternative treatments that we have been using he is doing so so much better. It has been a long road, a road of many ups and downs. But it is a road that we are glad that we took. This road can be expensive but made affordable. Do not be shy to ask questions about what tests to take or not to take, how to get tests done without a doctor, cheaper brand names for the same medication. Etc. Most of all, when you have the chance try to read as many past posts page by page as you can. There is a ton of information on them from parents and doctors.

Hi Gary there are people on this forum who have gone what you are going thru and there are people here who took their kids off meds and have had wonderful results. I do not feel qualified myself to give you any advice right now but I did want to take the time to say hi and to let you know to check up on this website for I am sure that once Thanksgiving is over you will have better posts then mine to read. By the way, I thought you did a good job with your story. It was direct and to the point yet stayed human.

We thought we were out of the woods completely then the tics came back strong. Perhaps the NDF caused the yeast to get out of control perhaps it was something else in anycase he was tested for and tested with a yeast and fungus condition. Most likely was always there but was put in check then got out of hand. He is doing much better now that we resume all of his treatments and are treating the yeast infection with heavy probiotics but there is still the eye rolling tic on ocassion. Hopefully this Christmas break we will start the prescription treatment to clear that up. I think you are going down the right street with the yeast thing yourself. As for the pill issue, our Dan doctor said it was ok to open the capsule form and mix it in juice. We do this 1/2 hr after meals to avoid stomach acid and we give charcol 1/2 hr after that to absorb kill off residue. If interested I will post the products name. We have been doing this for over a month and will do it until Christmas when we will use the prescription powder medication that can have strong kill off effects.

Thanks for the congrats. I mentioned the gifted program and art award not so much to brag but to let others know that the doctors are not always right. I was told to expect special ed and perhaps home instruction. We were always treating him with alot of probiotics to keep his gut in check but I am wondering if the NDF was a yeast feeder and they got out of control. His test came back with fungus and yeast issues.

Well I am Andy and like Giselle I also want to applaud you. My son was doing great until we tried the NDF. Since then he has been tested for yeast and then needed to be treated for it. He is doing pretty good right now. Not as good as before the NDF, if that was the cause, but good enough to have been recognized for outstanding achievement in art by the Superintendent of the local District School Board last month and to have his work on display at an art show this month. Excuse my bragging but we had some rough months, really rough, after introducing the enzymes and NDF. This Thursday we will be going for another DMPS IV in Miami.

David Berger, MD Board Certified Pediatrician Specializing in pediatric primary care, nutritional and detoxification therapies for autism, ADHD and related disorders (DAN! protocol), asthma and allergies. 3341 W Bearss Avenue Tampa, FL 33618 (813) 960-3415 - Phone (813) 960-3465 - Fax Sorry about the delay. Hope that this reaches you.