Andy

We had an EEG done to rule out seizures and it indicated slow response in the posterior parietal cortex. Was sent for a MRI to see if there was tumor,vien problem, stroke damage, etc.. in that area. Nothing showed. Son is doing ok, not as good as when we were doing the DMPS IV's, regarding tics, but good enough. He is in third grade and reading on the 10th grade level but still, at times, freeze's up-zoning out type of tic with any writing assignment. When he's on with his writing he has scored perfect grade level rubric scores so it has nothing to do with being able to write but an issue with transfer of thought to paper at times. Got him a 504 plan the second try around. The first try was more of educating everyone involved. Needs extended time and redirection, when needed, for writing.

Some if not many of us had EEG test done with our children. I was wondering what were the test results.

" YOU KNOW THAT YOU OR YOUR CHILD REACT NEGATIVELY TO SULFUR, I WOULD CERTAINLY RUN IT BY YOUR DOCTOR FIRST. Perhaps someone on the forum may know the answer to this." If I remember correctly sulfer can feed the yeast infection if some one is having gut issues.

Thanks for the response. For the life of me, I can't find the article that I copied this from, but epsom salts probably wouldn't be enough. I agree that epsom salt baths is not enough which is why we did so much DMSA/DMPS chleation for over three years. We are not doing the epsom salt baths but rather continuing the high protein diet but I am interested in your knowledge of MSM. For sulfer is good for the body even if it is not mentioned that often in modern times all one has to do is look at history and the sulfer baths that were used for healing in the past.

Laura oats out of Canada does it for us. We order directly thru them oatmeal for hot cereal and oatmeal flour that can be used to make waffles, bread, etc. Another outlet for food that we order directly from is Papadini pastas such as spaghetti, penne, etc that is made from lentil beans.

I do not know your child but you mentioned that the doctor stated that she is on the autism scale. There are doctors who place Tourette Syndrome on the autism scale and others who place learning disabilities, ADD,ADD/HD as well. Sometimes that scale is used to freely.

DMSA is a sulfer drug if I am recalling correctly and the sulfer is used to pull out , chelate, the heavy metals from the body. However, I understand your question, since epsom salt is also a sulfer agent, if I am remembering correctly, would that be a safer sulfer agent to get into the body if the body is craving sulfer be it to clean itself out of balance an inbalance, What I can say is like Carolyn, my oldest son's delayed food allergies seem to have decreased since the last two tests we gave him only eggs which is new came up. However, we have found that anything with gluten and the other sensitivities that were on the high end he can not handle. The reactions are not bad, a few hours to a few days vs a few weeks to months, with just observing reactions to the food but lactose free milk he seems to be handling on a rotation diet. We feel that the chelation help repaired his insides by taking out heavy metals but it is still weak and may take years to fully heal. I am thinking of starting enzymes this summer for I have read that the proper enzymes can help heal the gut and we are debating oxygen tanks(tents) to enrich his blood with oxygen to help heal. Right now he is playing soccer so he is pumping more oxygen into his body and well as releasing stress which is a great thing. For those who are reading this and may not know, my son is doing great from where he was with years of treatments. Most of them we did before DAN doctors broke onto the scene in popularity and some with a DAN doctor. Currently he is not chelating and not doing as well as he did while chelating with either DMSA or DMPS but he needs a break and if he continues to do as he is now with his tic frequency, I will not ask him if he wants to go back to the procedures we were doing. We felt we had to go extreme with the IV chelations when he was younger for the tics were extreme at that time.

Over five years with alot of success. Laura's Oats out of Canada is a great way to get oatmeal that is gluten free. I buy a buckwheat that is gluten free but can not think of the company right now. Boer's Head has gluten free/sugar free hot dogs. Boer's head also has a feingold section of deli meats. But I would stick with what you know you have control over like Plain meat,potatoes,carrots,peas,beans, and greens. All can fill up a lunch and dinner menus. Be careful with the eggs thru for my son did not tested as a reaction to them but with overuse did develop one to them. Also be careful with the fruit. To much may overfed the yeast in the intestial tract. We are slowly now placing our son on a rotation diet with latose free milk. But this was after 3 years of chelation and treatments for yeast and fungus overgrowth.

hi! if your child has tics.. you can have her exercise like playing or doing something else.. anyways, it will just decrease when she or he gets old.. take care.. Exercise follows the mode of thinking of the oxygen tents in that you are placing more oxygen in your blood as well as increasing your blood flow to hopefully help fix damaged areas of the body. Right now, I feel that pro-biotics are making the biggest difference in my child's progress by helping to restore the balance of his intestinal tract and research shows that this is a treatment that really must be maintained or the yeast overgrowth would come back.

Hi Kim, I have been lurking about here now and then and have answered a few private messages from people who looked me up. My son is doing pretty good. His strength levels are still increasing but he is still not up to his peer level but he has enough strength to play the field in Optimist Soccer for 1/2 the game. He still has low muscle tone and is on the small side and needs glasses which is why I was concerned about the mitochondrial disease, that you mentioned, for those are some signs of it and there is no cure. However, his gastrointestinal disorder has improved from years of treatments so we may get him tested in the future for mitochondrail disease to be on the safe side at his next doctor visit but I am not in a rush since the vitamins that we do give him seem to fit the prescribe therapy for that. Coenzyme Q10 B Complex vitamins Vitamin E Selinium L-Carnitine Vitamin C etc. As for his tics as he eats, great memory Kim, he still does tic more when he eats but I would have to collect data on that informally to reassess the rate of frequency in an objective manner. feel free to send me a private message for any questions that you may have. I will get back to you.

What state do you live in, maybe I can offer a few names that I heard praise about. As for DAN doctors they are very expensive and a lot of stuff that they do now is out in the open for people to be able to do themselves. Such as ordering supplements, some chelation agents, tests that the DAN doctors use themselves.

How did you find out that your child had high levels of mercury? We did IV DMPS challenge urine test. The more treatments we did, the more stuff showed up until it was off the charts. I would not recommend nor sway anyone away from it. It is a serious matter that one has to weigh the pro's and con's before making a personal decision based upon their child's needs. There is alot of information on the matter on the Defeat Autism Now website. If you are going that direction, I would share information.

Last time I looked it up the flu shots still had mercury in them hidden in the name of thimerosal. Thimerosal consists of 49.6% ethyl mercury, an anti-bacterial, anti-fungal that allows manufacturers to sell the vaccine in large, multi-dose containers without fear of contamination. Something to look into for the future.

Sorry I did not have time to read this entire pa ge. However, one thing jumped out at me, "She has not met Andrew but must have a perception of tourettes based on past experience that he would need a special bus". A special bus is considered a more restrictive environment then a community bus. Typically where I am a special bus is only used for kids in a self contained classroom, and not always, or a multi-handicapped child who needs the wheel chair lift and/or is on a reduced school day.

My kid had high levels of mercury and other toxic metals in his body. We did chelation for quite some time but are currently taking a break to give the body a rest. Depending on how he does would determine if we ever do chelation again.

It might just be a tic, when my kid has the sniffles he seems to have a hard time shutting that impluse, blowing nose, down. Usually nose drops does the trick.

Did you find a DAN doctor in South Florida and if so are you happy with your choice? I have personal experience with a few so willing to compare notes.

Enzymes have been noted not only to help with the digestion of food but with healing of the gut as well. This site has had people who spent alot of time with supplemental enzymes and I remember reading Houston as a brand name being used. We have no experience with this for it was always our plan to use the enzymes after the mercury was removed.

Our son will not eat in school. Even when he was doing great and no tics were really showing to the untrained eye, he would tic while eating. Now that he is not doing as well, we had a change in his treatment plan, but still better then before his ticing is off the charts while eating. We tend to look at his gut for the reason for this. It may be that the food is not being completely digested, it may be that food is leaking into his body, it may be and most likely since it happens a few minutes into eatting that the yeast inside of his body is releasing body waste as it is feeding on what he is feeding on. We have a restricted diet so it is not delayed food allergies and he is not showing the other issues that he had before we placed him on the restricted diet.

By the way we have corn and any corn by-product on the list as well as gluten, rice, soy, sugar, and mushrooms.

We have an elimination diet for one of our sons. Every time we sway from it, usually something small at that, there is a price to pay. We only hope that with time he will be able to add some items to his diet but if not there is still plenty of food to choose from . Hope the rotation diet works with you.

My kid is eight years old and he weighs around 47 pounds. He is small and thin for his age and his younger brothers are catching up.

I also wondered if some of these inherited conditions were conditions that the other family members were not born with but exposed to as well. It is like Lung cancer, as a bad example, if you do not smoke you will most likely not get it but if you do you may and if someone in your family has had it your odds of getting it is increased. We are exposed to so much these days it is something to think about.

Look up any medication that any doctor mentions and see if it was designed to treat what your child has and then look up potential side effects. Your child has health issues. Did the doctor check the child's blood to check the amino acid, mineral, vitamin levels? Did the doctor check for gut yeast infections or delayed food allegies? Did the doctor check to see if there is an underlying illness like PANDAS or heavy toxic metal poisoning that could be causing the tics? If not any of the above then how is the doctor practicing medicine?