Andy

Regarding an IEP No testing can be done without your written approval. There would have to be a formal meeting to get your approval on legal document forms. A child can be given OHI status in Florida and it should be the same around the nation with Tourettes with a doctors note or if your home district has a form for the doctor to fill out and then present that information at an IEP meeting. If you feel you do not need it fine. But it does give the parents more power if they know how to use it to protect thier kids at school. IEP's can stay in place with OHI status all the way thru a child's college education under disabilities acts. An IEP is special education status and of course that status should be in the least restrictive environment which is the regular education classroom. A 504 would not get the same special education status and comes from the regular education department. However, a student can get the same accommodations on the 504 as the IEP.

It is my understanding that Tourette Syndrome is an automatic accepted condition for an impairment under Other Heath Impairment which would get a student an IEP. Chemar is right an IEP is a great help with the accommodations page for it could give a student extended time for testing, small group for testing, indidividual setting for testing, extended time to do work, etc...She is also right in that an IEP can protect a child from those school staff members who just don't get it and from students. A teacher can not punish someone for their disabilitiy and in the higher grades a student can be charged with a hate crime for bullying a disabled student which is a big thing for bullying is often ignored in the school system as long as violence does not occur. Also remember with an IEP a student is suppose to get FAPE, Free appropriate public education and that puts power in your hands when it comes to meetings for now you do not always have to be on the defensive but could actually have the ball of power in your court. Why did you remove my child from the class, why did you comment about his handicapping condition in front of other students, etc....also remember you are a member of the IEP team and should have full input in what goes into an IEP. But if anyone here ever goes into an IEP meeting go in as both parents on the same page or with an advocate, it is allowed, so you will not feel as teamed up against which can occur in a hostile school.

My son is now 8 years old. He has been doing chelation thru IV's now for around 3 years. We saw a decrease overall with the chelation, he was tested for heavy metals, yeast infection in the gut, food allegies and low in various vitamins, minerals and amino acids. We were working on the yeast, had a restricted diet and were doing supplements during his worse time of ticing and it did decrease it some but mainly what that did was regulate his behavior, cleared up his consiptation, enabled him to sleep at night. The Chelation helped drastically with the tic issue. But if his tics were not so drastic at such a young age, 24/7 with no waning period, to begin with we would not have done the IV chelations.

2 till 5 years of age with a host of other problems as well. The regular doctors we went to see discussed meds, home school and special education back then. Now we just hope that the worse is behind and not ahead.

Hi Gina, I just wanted to add to this thread that my son is also going thru chelation metal detox. We are on the third year now with breaks. We thought we were finished since no lead or mercury was showing anymore. We decided to use EDTA in terms that it may be a once a month long term detoxer since he has such a low natural detoxing ability, practically zich. Boom, he went from no ticing for 6 months plus to heavy ticcing. Had a urine challenge test done and his mercury was past 99% tile, practically off the charts and I mean the chart that shows the graphing print out as well. Well after another 7 months or detoxing his mercury is still extremely high but we are planning on stopping the chelation when the mercury is no longer shown. Just a thought that perhaps not all of the mercury is out. Another thought, our son does not respond well to calcium supplements and for some reason started to respond bad to the fish oil, same company that you get yours from even if he did well with it for 5 years.

The guy makes me sick. I could write 60 pages myself in a few days but the difference would be one that I know that it would be an incomplete text, two it would be information I gathered using the internet as well as what we used with our son based upon that information and three it would still not be a cure all never mind that I wouldn't sell it as snake oil playing on the pain and guilt of sick worried parents. This is one of the best websites to garner information from in terms of parents discussing tests, diets, supplements, detoxing, accupunture, etc.. and a good spring board to doctors, DAN websites, and follow up to articles based upon medical research mentioned here. I would recommend spending some of those sleepless nights that parents have reading this website and Shelia's book as well to build up information to start a plan of action with.

I have an old cast iron pot that we cook just about everything in for our son. It weighs a ton and is not always easy to clean but Fe is suppose to be low in our kids anyway so I figure that would be the best thing to cook in.

Thanks alot daniel. I did not want to seem rude to anyone else directing this question only to you it is just that I was waiting some time to ask you the question for I know you have been doing it for awhile so you would have a test of time answer.. Seems that you have had alot of success with your boy now eating bread. Thanks again an a happpy new year to you as well. Andy.

We have been using a lotion which I always wondered about. What do you use?

Happy New Year Chemar and to all that I know here and may come to know. Sorry I have been gone for around a year for the most part but it was a year that I am glad is over.

Quan I noticed some time ago that you were using enzymes with your son, perhaps the Houston brand. I am interested with the success of which enzymes you used and if you used them for gut repair, to expand a restricted diet, or just found them to help kill hidden virus in the body. Looking forward to your response.

Our son's bowel movement problems went away when we took out all gluten products. If a parent has a child with off and on bowel movement problems they may want to keep track of what the child is eatting to see if there is any patterns. There is never one answer to all issues and every child has to be looked individually to see what works and what doesn't.

When speaking of food allergies one also has to consider the tolerance level. My son can handle the reduced sugar level in his one carb tomato ketchup but he can not handle the regular sugar level in "normal ketchup". It is a small difference from 1g to 4g but it seems to make a big difference with him. We are also lucky that he doesn't uses that much ketchup to add taste. Just small dips where I would pour the stuff on my own food. You also have to wonder about binders in food. Many foods today have added stuff in them which in some cases to not have to be listed upon the product. In our case, that is why when we buy 100% Beef hot dogs it has to say gluten, sugar and nitrate free.

Why get the Flu shot at all. According to the various research that was document in the book "Flu" The story of the great influenza pandemic of 1918 in which the recorded amount of people who died was over 40 million, most of the victims who died had no natural antibodies to the flu for they never caught it before while many survivors of that Flu were sick from the flu in the past. Also a curious note is that all of this bird flu fear may be overdone for the research shows that the flu strain of 1918 is still with us but is in a lower form as Swine flu for it survive in pigs. Gina Kolata, the science reporter of the New York Times wrote this book back in 1999 and based it upon the research of scientists. Just something to think about and yes the Flu vaccine does have mercury in it and let us not forget we had a shortage one year due to the bad batch that was caught before shipment in England. Makes one wonder how many bad batchs of any vaccine are not caught and released to the public.

My oldest had severe tics and what worked best was the following: 1. Was tested for delayed food allergies and then placed on a restrictive diet. 2. Was tested for yeast overgrowth and was given supplements to deal with it. 3. Was tested for vitamin and mineral decifits and was given the vitamins and minerals needed based upon his weight. 4. Was tested for toxic heavy metals and has gone thru chelation. We were told that our then pre-school son would at best be in Special Ed and may need home schooling by conventional doctors. 4 YEARS LATER, He is currently in the gifted class in his school district. All treatments were based upon medical procedures. However, the procedures were not mainstreamed services at the time. Since then quite a few have been given insurance approval.

We do the same but this year we went to less houses. It is getting pretty expensive! Nice to see your name again quan daniel. Hope all is well with your family.

We also have a reverse osmosis system for our drinking water and a salt water system for our bathing water. If we ever find a need to buy water it would be aquafina.

Become pro-active and as you see progress you will slowly get thru it.

Almond milk often is made with rice or soy. Make sure you have no delayed food allergies to both of those if you have not already.

[ He started to eat. Now I hear, "Dad I am hungry" His increase of tics did decrease until it is hardly noticable unless triggered by extreme stress however when triggered it decreases fast when taken care of, we noticed sleep and olive oil help, of whereas it used to be 24/7. The sulfur may have a negative effect if sulfur based drugs are given orally for yeast and bad bacterial is thought to feed upon them. That is why IVs, creams, and supposortories are given.

My son is doing fantastic. However, a lack of sleep...getting sick.....and stress from his grandmother dying and a visit to the dentist office did set off his tics again for short durations before becoming subdued.

We have used DMSA with my son and are still using DMPS. DMSA and DMPS is considered to be invasive ways to chelate the body. We have had wonderful success with it but can not wait till we are finished with it for we are concerned about long term effects if any and hopefully not. I would advocate the use of either DMSA or DMPS for severe cases of TS if heavy metals show up on a challenge test but unlike that article I would not make DMSA or DMPS for that matter sound as harmless. DMSA and DMPS also pulls positive vitamins and minerals from the body like zinc and if someone is not keeping track of the body's levels it can become lethal. Alot of pre-testing and preparation is needed before using DMSA or DMPS and a lot of on going testing is needed to ensure safety. As for eatting, enzymes I think is more of a step in that direction after the DMSA or DMPS gets rid of the heavy metals that may have damaged the gut in the first place.

Carolyn, I am glad that you have found a well trained DAN doctor. Not all DAN doctors agree but the good ones who disagree agree that different treatments work better with different people and it is the person and not any individual treatment that should be looked at first. My son has used both DMSA and DMPS at the same time and it worked great for him. The DMSA works better for getting out the lead and the DMPS works better for getting out the mercury. In severe cases or with young children research has shown that the faster the better for success with getting out the heavy metals. Being aggresive with the young is neccessary but that research is based upon autism which even if TS is in that spectrum it is not as serious as the autism label itself. I believe that there is more damage to the brain with mercury crossing the blood brain barrier with autism then with the other spectrum labels. We stopped using the DMSA for we were using it as a supposortory and my son as he got older became uncomfortable with it. We used that mode as well as the IV to by-pass the gut. Remember if you have gut issues you should not be taking anything orally be it pill or liquid for the yeast and bad bacteria feeds on it. So says the research. Oh by the way for the first time I read that a noted DAN doctor at the conference gave the ok with a natural detoxer. I believe it was what Chemar has used for her son. I do not want to mention it now with out having the conference notes it in front of me. By the way in the begining when my son first started to pull out the metals his tics got worse but slowly declined with the treatments until it is hardly noticable to the untrained eye. Note to all: The detox is just one step of many with my son's success. A restricted diet, supplements, epsolm salt baths, and various lotions are all part of his plan.

I am not a doctor so all information that I am giving is based upon what I learned from researching medical research. DMSA is great for pulling out lead, that was what it was developed for, but not as good for mercury. DMPS is great for pulling out mercury, that was what it was developed for, but not as good for lead. EDTA is newer for detoxing and has had problems with doctors offices ordering and dispensing the wrong kind. Chelaton IV's are used when you want to bypass the gut due to yeast issues. The yeast feeds upon the DMPS and DMSA. Oral, liquid and pills, DMPS and DMSA is safer to use then chelation done thru IV's. Lotion DMPS and DMSA does not have a great success record even if one DAN doctor, who has the patent on the DMPS is pushing it. Everyone that I know of who used DMSA Suppositories stated that there was fantastic results. NDF-Plus is not proven enough and will feed yeast issues. Chlorella has been frowned upon in the past by the DAN doctor community but at the last conference was presented as a safe natural detoxing measure by one of the leading and a very much respected DAN doctor. fecal toxic metal tests are not the most accurate of tests for a few reasons. The Urine challenge test is the most accurate test if done properly. DAN doctors are expensive but the best DAN doctors price is the same as the worse. Based upon parent converstations across the nation over the years. That is what leaps to my head right now, feel free to PM me anytime but as you know sometimes it takes me awhile to get to the computer.

My son was tested for allegies using the skin test and nothing came up. He was then tested by a DAN doctor for delayed food allegies and it turned out that his body was not properly digesting corn, soy, gluten-all bread products, milk/dairy, and rice. The reasoning may be that his heavy metal poisoning damaged his small and large intestines. My son has had only very low grade, not noticable to others, to no tics for a while now. However, he has had two outbreaks during that time due to stress from seeing a dentist and having work done and when his baby brother got severly burned by my inlaws when they were baby sitting. What Carolyn described sounds alot like what my son had. It got to a point where you could not count to three seconds with out seeing his body jerk, a sound being made, his neck turning or his eyes rolling backward. But natural and detox treatments did help and we did them in stages. I forgot to mention before that one of the main treatments that we still are doing is pro-biotics to help repair the gut.