Andy

Hi got my son's results back from the first challange test. No mercury was found but it is my understanding from the research that mercury usually is not found in the urine from the first challange test because one, urine is not the best indicator of mercury presence,( fecal matter is) and two the detox usually empties other metals first. As the case of my son, he had very high levels of lead. So I am very happy for the lead removal. My son also had low vitamin B, high ammonia, and very low glutathione results from the blood tests. I saw instant results from the challange test which was a detox in itself and this Friday I will be driving back into Miami for the second detox, challange test, with DMPS IV. We will also be using the DMSA in between the DMPS treatments along with the a GSH, NAC. and I believe a TTFD type of treatment. We have had our son on over two years of supplements, 4 years of organic diet and over 2 years of a very restricted diet so we feel he is ready for a heavy detox program and we wish it to be since I wonder if the older the child the less of success applies and if so time would be an issue. I noticed the research indicates that is the case with Autism but I do not believe any studies were done with TS or tic syndrome kids. However my son does have alot of the same health gut and heavy metal issues of the kids labeled with Autism, ( who I believed may have been posioned enviromentally and medically), but we are lucky with my oldest that his condition was not that severe and my heart goes out to those kids, their parents and their families. I will answer any private PMs if anyone is thinking about detox. I am not a doctor but as a parent, I think every parent should look into it and decide which procedure is best for their child if any.

"Most Conventional doctors sadly are either just ignorant or willfully opposed to anything that is out of their realm of experience", Chemar. I would have to agree with this and the sad thing is alot the doctor's today are not even thinking for themselves but are following the procedures of the HMO's that they work for.

I agree Dara, our sons do have alot of the same issues and I have read posts of parents who have or had their kids in the new york/jersey area our son's ages who also had the same issues. Makes one wonder. I really think that the yeast issue-gut repair and detox will be the final two pieces of the puzzel. I am not hoping for a complete recovery but I do expect that he should come out of this in a year or two with the ability to function life without having a tic issue. Keep me posted for as a parent I wish only the best for your family.

I thought you might be interested in this. My wife has even had a telephone conference with a DAN doctor on what preventive measures we should do before and after single dose vaccination shots and we are expecting a package of paid supplements based upon babies weight to boost the immune system and for detoxing. As for asking to see the vaccine itself, the last doctor we did that yelled at my wife. What an creep in a white jacket he turned out to be for we do have one sick child already. DAN! (Defeat Autism NOW!) Vaccination Guidelines: 1.Use Thimersol / Mercury free vaccines!! The only way to know for sure a vaccine is mercury/thimersol free is to read the insert yourself! Many doctors still have mercury/thimersol vaccines sitting in the refrigerators! And yes, mercury /thimersol containing vaccines are still being made!! Be sure to be 100% sure! If you are wondering which vaccines currently contain ethylmercury and which do not, visit: - http://www.vaccinesafety.edu/thi-table.htm and - http://www.vaccinesafety.edu/thi-table.htm#2 For information about which flu shots contain ethylmercury and which do not, visit some CDC-created information at: Flu Vaccine 2004 Mercury Content - http://www.safeminds.org/NewChart.pdf 2. Do not vaccinate newborns. 3. Avoid re-immunization with a vaccine after a previous bad reaction. 4.NEVER vaccinate ill children or children recovering from an infection. 5. Space vaccines - do not give multiple vaccines in 1 day. (THAT INCLUDES vaccines that have multiple viruses! Split them up!) 6. Use single dose vials from which to draw up the vaccines as opposed to multiple-dose vials which provide less uniform dosage. 7. Use inactivated polio. (the shot, not the drops) 8. Give RDA (Recommended Daily Allowances) of Vitamin C before and after vaccines 9. Give a natural form of Vitamin A ( cod liver oil ) to keep RDA's at level at all times for the age. 10. Separate the MMR into 3...start with measles at 12-15 months, then mumps at 18-21 months, rubella at 24-27 months. 11. Do not give live virus vaccines to immunodeficient children. 12. Do not give vaccines if allergic to any of these components: i. Yeast - Hep B ii. Eggs - MMR iii. Neonycian - MMR or Varicella 13. Hold off on the Varicella until 10-12 years & if the child is shown not immune to Chicken pox. 14. Checking vaccine titers before giving boosters (Most people are immune after one dose. We continue to get multiple doses that MAY NOT BE NEEDED. Have them check antibody levels via titres blood test.) Note: this information came from DAN! (Defeat Autism NOW!) Protocols. For a complete copy of the treatment protocols go to www.autism.com/ari and click on DAN! For information. RECOMMENDED READING: A great book for all parents / grandparents: What Your Doctor May Not Tell You About Children's Vaccinations by Stephanie, Md. Cave, Deborah Mitchell (Contributor) (Paperback - September 2001) Disclaimer: Talk About Curing Autism general information of interest to the autism community. The information comes from a variety of sources, and TACA does not independently verify any of it. Nothing in this binder should be construed as medical or legal advice. Always consult with your child’s doctor regarding his or her individual needs. TACA does not engage in lobbying or other political activities. ©2000-2004 Talk About Curing Autism

I hate to admit this but when my son's tics were bad, and I mean really bad, we would allow him to watch TV with the notion that we would trade one tic for another. Lesser of two evils type of thing. But usually, he could go weeks without watching any TV and when he does it is never more then for a half an hour and at night before he goes asleep. That is except for the most severe out breaks then the above applied.

I do not quite understand the question but I have read that DMPS, one of many detoxing agents, was developed in Russia for detoxing many many years ago. I also understand that alot of detoxing agents that are hard to obtain in the United States are easily obtainable in Germany and many are sold over the counter. So what I am trying to say is that information in regards to treatments for our children can be obtained by visiting overseas websites. I remember a couple of months ago while I was reading a Scottish website. if my memory serves me correctly, that this website was appauded by its members as being fantastic.

"He said the main reason is their brains are not fully developed yet and when they are exposed to over excitement (I guess like certain cartoon like Yu-Gi_Oh) or under tremendous stress, their brains simply cannot handle the pressure." Helen a neurologist said the same thing to us when my son was two. This a few weeks after my son got very sick after a vaccination shot and was in the emergency room. I had posted this remark under the quote section for TV screens a week ago. I do believe that stress and visual stimulation with the unclear pattern of screens can set off tics, it is nonsense to say that a child is ticing just because he or she is happy, etc, the real issue is the damage to the body itself.

My boy is six years old and in kindergarten. I tell every teacher that works with him that he has reactions to foods due to allergies. No point on having the teacher label the kid and not see the kid as a kid was always my point of view and I am a special education teacher myself. I also make it a point that even when he is ticing that no one should make it an issue and treat him as if nothing is happening. With the only exception being PE for they would have to make discreet modifications to protect him from getting hurt trying to do an activity while ticing. Maybe it is because I work in the school that so far everything is smooth, maybe it is because I work with great people, or maybe it is because everyone knows that I was an advocate before my kid attended who knows the law and always preached it in a second hand way at meetings. As for doctors, I have met some who would have been punched in my younger and less mellower days for the way they talked about my kid.. Doctors are not gods they are sometimes limited in their eductation due to the focus of the limited yet standard medical curriculum and sales agents who constantly visit their office with goodies. One of my best friends is in medical sales in New York and takes home a half a million a year working for a blood lab that specalizes in AIDS testing. The stories he tells me on how he gets doctor's business is unbelieveable. It ranges from everything to redoing a doctors office to season tickets to knick games. Of course there are also great doctors, however finding one is the trick. Oh by the way did you know that doctors could get a commission for every prescription filled.

I believe that today is the eleventh day since my son had the DMPS IV, with vitamin c added, challange test and my son is doing great. He did develop some humming day 3 after the test but it went away by day 6. My son has a very bad case of TS. We have kepted it under control with a special diet and supplements all based upon blood tests for periods of time but then something sets it off, a cold, clorine in a pool, stress, etc. and it would come back worse. We are now pursuing treatment into detox and then yeast tests to see if treatment is needed there as well to find the missing piece to solving the problem. We are also awaiting results from other tests taken.

Well of course I do not know of anything for certain but lets us suppose that TS may have been induced by mercury and over time that mercury was absorded by the bodies tissues then it would make sense that any chemical change within the body could release traces of the mercury back into the blood stream and henceforth an increasement of tics.

I have read over the years on how parents have blamed themselves or a grandparent or each other on our children's issues. I for one do not believe that TS or tic syndrome is from the gene pool or caused by any emotional distress from home life or during pregancy. My wife blamed herself for years for she was in college during part of her pregancy when she was carrying our first child. She thought it was the stress of her studies. I tried to reassure her that a whole generation of children were born during World War II and their were no big outbreaks of Autisum, TS etc from mothers to be whose husbands were fighting or who were in air raid shelters. So stress can not be the cause. As for genes, where was the Autisum before, the TS before. Yes I have heard of stories of a grandparent, an uncle but never beyond that. I have heard people state that depression has always ran in the family, but never Autisum or TS. It seems to have been a new entry into our families that does not go back very far. I firmly believe and research by others around the western world are finding the same conclusion that our children's issues were environmentally induced and most likely by the people that we are taught to trust the most, the standard medical field. So please before anyone wastes unproductive energy fighting with a loved one of crying in blame, go on the internet and investigate what is out there. Treatments do work. Immus, the disc jockey, has had two weeks of talk on this very subject for even the rich and powerful have had their children polluted and are pushing for the research that is developing the treatments in place now.

I am writing this response to take the time to thank you Sheila for posting the lead to the research paper. I also wish to place this back on top of the first page for new parents to read.

This wesite is a god send. It was just what I needed after having two doctors tell me to place my then 4 year old boy on heavy medication and to" go on with my life".

Dara, I don't know why you had a wrong feeling about the DR. but I always believed in trusting your first vibe on a person. He is , however, listed as a personal recommendation by Amy Holmes but he may only focus on Autism. The DAN doctor I am currently using feels that Autism, TS, ADD are all caused by the mercury in the vacination shots, which was vastly reduced just recently in this country. I am providing a list that I obtained off of Amy Holmes website of Dan doctors and DOs, who also have to pass the medical boards to practice, that you may want to feel out if you are interested. You may also might want to check out the list that is provided thru this website. Richard B. Menashe, P.O. 15 South Main Street Edison, NJ 08840 tel: 732-906-8866 fax: 732-906-0424 James Neubrander, M.D., F.A.A.E.M. 15 S. Main Street, Suite 6 Edison, NJ 08837 tel: 732-634-3666 fax: 732-634-8008 Stuart H. Freedenfeld, M.D. 56 So. Main Street Stockton, NJ 08559 tel: 609-397-8585 fax: 609-397-9335 Roberta Foss-Morgan, M.D. 30 N. Haddon Avenue Haddonfield, NJ 08033 tel: 856-216-9001 fax: 856-616-9837 Scott R. Greenberg 1907 Greentree Road Cherry Hill, NJ 08003 tel: 856-424-8222 fax: 856-424-2599 Allan Magaziner, D.O. 1907 Greentree Road Cherry Hill, NJ 08003 tel: 856-424-8222 fax: 856-424-2599 Emar Vogelaar, M.D. European Lab of Nutrients, Vitamin Diagnostics Inc. Route 35 and Industrial Drive Cliffwood Beach, NJ 07735 tel: 1-732-583-7773 fax: 1-732-583-7774 As for Florida, I live in the sunshine state and I had to stop letting my son swim in the community pools for he was a complete mess afterwards and it took him a long time to recover. I also believed it was the clorine. Now we just hit the beach and are careful to read the labels of the suntan lotions. Also if I may suggest , keep an open mind and look at and research everything before you make a decision.

For over 18 years or so I have been saying at IEP meetings, "Well I'm not a doctor so I can not give medical advice but I would think I would read up on alternative measures before seeing a doctor" and wouldn't you know it every time before I was able to pass over some information packets on the Fiengold diet or Gary Null someone at the meeting would recommend a doctor who seemed to have had great results with a student they knew. Ritlan was given out like candy back then and now it is a new product, which I care not to mention, that is being given out as a first choice and not as a last choice.

Dara, if I may suggest. You might want to call a DAN doctor and ask them if they have ever worked with a child labeled with TS. The DAN doctors are at the forefont of the research and treatment with these issues. I wished I went to one four years ago but I did not see the connection then. Two highly rated DAN doctors in New Jersey are Dr. Stuart Freedenfeld in Stockton, NJ and Dr. James Neubrander in Edison New Jersy. They may be of assistance to you and have no idea of whom I am. I just know of their names from research papers.

Jean, My son was given a challenge test to test for heavy metals. Standard blood and hair tests often may not reveal mercury as being present due to the fact that the mercury over time may no longer be in the circulation but bound to various organs such as the kidney or the brain. According to the latest Autisum Research Insitute paper on detoxing, the preferred testing method for toxic metals is done by performing a chelation challenge which reveals a toxic metal burden. This would be done with one of the chelating agents such as DMSA, DMPS, etc. I strongly suggest that you look at the paper that I referred to and see what the experts say and then do futher research of your own so you can make an informed decision with what ever direction you may or may not decide to go.. Shelia Rogers had made a posting of it on where you can download your own free copy.

My wife is impressed with how strong I am in this matter. I act as if nothing is happening and remind her to do the same for our son's self esteem. What she doesn't know is how when everyone is asleep, I cry a painful cry deep inside of my heart for the hurt is there, very much so, but so is the anger and I use that anger as energy for researching what is out there and what might help my kid. As for discussing the issue, I do not use the TS label with my son. We just talk about the tics and the food allergies either when he wants to or when I am preparing him in an informal way for a doctor's appointment or with his diet restrictions/supplement intake. I hate this whole thing but our children only need to know is that we love them and are always there for them. Good Luck and use this forum as most of us do, to vent and to share.

My son has had two FIA Comprehensive Profile 5000 test for determining vitamin deficiencies by SpectraCell Laboratories. One was done last June and the second one was done a few days ago for an update. I believe York Laboratories and Elisa does one as well. The test was done with the taking of blood and did come back with significant results. I would recommend going down that path as a start.

I went to Miami Beach yesterday with my son. We did a before urine sample and after. The chelation that was used was done with an I.V. I do not want to go into detail of the method that was used for my son for every child's medical condition and age/weight should be looked at before selecting treatment. I will tell you that no side affects have been noted after 24hrs. I decided to get an aggressive intrusive procedure for I feel that my son had a bad response to a vaccination shot and everything else that we were doing was great but the causing agent was still in his system henceforth his problem would always be there and perhaps get worse. The doctor that was picked was a DAN doctor who is listed thru this website and recommended from Amy Holmes' website. She is a doctor who I found to be very impressive. I also picked this doctor for I got a parent's recommentation, from personal contacts, and this doctor was part of the team of doctors that was listed in the Autism Mercury Detox paper that Shelia Rogers posted. Basically I wanted a doctor to look into detoxing for my son who knows everything about detoxing. Another reason is that this doctor was no longer then a 3 hr drive from where I live. I made the appointment into a day's outing for my son with visits to many fun sites on the way home. Being a parent who has gotton alot of direction from the people of this site, I would be glad to keep a posting on this matter. Hopefully I would have good news to share over time.

Well after a year of taking baby steps, my wife and I decided to see if we could have detox done on our oldest child. We have been treating him with elimination diet and supplements under a neurologists care since age 4 and decided we need to take a leap with more aggressive action. He is now 6. The posting of the new paper by the Dan doctors on mercury detoxing that Sheila Rogers posted was the final piece of information I needed for making this decision. My son and I are driving into Miami on Wednesday and if anyone wants to know anything about our experience for their own decision making, feel free to either reply to this post or e-mail/pm me. It has been over 4 years now that we have been directly dealing with this issue and even longer that we suspect that something was wrong.

slow..........why.........yes........it........is......very.....slow......as.......of.....late.

That was an awful case. The child should not be in a prison. If the state really felt that he did it without the medication's influence then he should have been committed to a mental hospital for life long treatment instead of the horror a prison will be for him.

I am checking out a doctor myself right now to do detoxing. There are many ways to detox. You might want to do a computer search for Dr. Amy Holmes. She has a wonderful website on this matter regarding testing, safety and alternatives. From what I have read is that DMSA may be reabsorbed into the body as it goes thru the intentines and good minerals might be pulled out as well but supplements and olive oils may prevent what was mentioned. It is a big step and we have been tip toeing into this direction. However, the research shows that the younger the age the better the results so now we are getting ready to take that leap. You might want to check out my last thread on cheaten detoxing. Claire had responded with a wonderfull post filled with direct leads.

Wow, Claire you really put into access alot of information to consider. My wife and I have been taking small steps into this direction for we want to make sure we are doing what would be the most correct procedure for our oldest son. Thanks for the time that you put into this matter and I hope others are reading and researching themselves for one thing I did learn was never go into a doctor's office without doing your homework first.