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Dara

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  1. Hi Everyone, Yes, it's the phantom member Dara again. Hope everyone is doing well. I just wanted to update everyone on our appointment this past Tuesday, May 10th at the Pfeiffer Outreach Clinic in Annapolis, MD. It was a great experience!!!! My thanks must go out to Claire. Thank you so much for telling me about Pfeiffer. I really feel like it was the right place for us. I only wish I had known about it a year ago when Karl's tics first appeared. The clinic was set up in the same hotel that we stayed overnight in (which was great). Our appointment started promptly at 10:15a
  2. Hi Everyone, I've been out of the picture for awhile and have missed corresponding with you all. I'm so inconsisent. I go weeks where I write and read everyday and then weeks where I don't write at all. I do try to read often, but for me time is such an issue. During the day I'm so busy with both of my boys, that I hardly ever have time to get on the computer. I usually save the computer for the evening, but by that time I'm physically and mentally exhausted. Update. Karl's tics have been very managable over the last couple of weeks. As most of you remember, February and March
  3. Claire, I don't understand what's wrong with my mailbox???? Karl, my husband is coming back from Florida today, so I'll have him take a look at it. Sorry about that. Anyway, I just received the Health History form from Pfeiffer yesterday. I'm going to fill it out tonight and mail it back tomorrow. As I said, I'm really excited to go. I think you're right about the yeast finally dying off. Considering that Karl's been on Nystatin for almost four months, maybe his flair up was a result of the yeast dying off and maybe now things are leveling off. I've been so much more relaxed durin
  4. Hi Kim, I'm so sorry I never responded to your post. It's been so hectic around here for the last week and Karl's tics had been terrible for the last five weeks. During this past week, Kar'ls tics have gradually gotten better. Thank-god. As far as the comprehensive stool test and the organic acid profile, I've decided to hold off on both. You asked why was I doing them. During times of insanity and desperation I try to do everything at once even when it doesn't make sense. After dealing with Karl's tics for almost a year, and dealing with many ups and downs I think I've finall
  5. Claire, I don't think my mailbox is full. I only had 14 messages and I moved 6 of them to another folder. Can you try again??? I'm stumped that it said my mailbox was full???? Dara.
  6. Karen, Wow...what a coincidence that we're both from NJ. Why don't you write to me at my email address, dara.pfeil@comcast.net. Who knows, you might live in my town..ha, ha. Since we've been going through this since last April, I'd be happy to share with you the doctors that we've seen and the things that we've done for our son. We could even have a phone conversation (which would probably be easier) since I don't always have time to write lengthy emails. This forum is so great and bouncing ideas off of other families is the only way to learn. Looking forward to hearing from you.
  7. Hi Kmtatt, My son Karl is also 5 years old and began ticcing last April 2004. It's been quite a journey for us. The folks on this website are fabulous and you will realize that you are not alone. Like your son, my son tested positive to many foods - cane sugar, dairy, eggs and oranges to name a few. He also tested positive to grasses, oak trees and sycamore trees (we live in NJ and we have those two types of trees everywhere). I feel as you do about our doctor. He's very well known, has seen our son twice since November (our last couple of visits were with his partner who doesn
  8. Hi Susan, My son Karl sweats terribly during the first couple of hours of sleep. He then tends to cool down a bit and his body temperature seems more normal. He's 5 years old. His 3 1/2 year old brother Graham (who does not have tics) doesn't sweat like that. I never correlated it to his disorder. Jennifer - What are phenols found in???? Thanks Dara
  9. Hi Marina, Did you ever think our lives could be such a rollercoaster??? Ha, ha. Tonight I finally think I realize that I have to calm down and not be so hysterical about our situation. But as a mom, you know how hard that is. I just want to 'fix' Karl so bad and find it frustrating that I can't. In talking to the other moms, I think our son has three distinct issues that need resolving. Those being yeast/bacteria, elevated cadmium levels (toxic metal) and possibly pyroluria. I did the pyroluria test two weeks ago but the results aren't necessary correct, since I was giving Karl in
  10. Hi Alison, It's so good to hear from you again. I often think about you and your son. I'm so glad that he's doing well. As you can see from my posts, I'm a mad woman these days. Absolutly focused on helping my son Karl. I just love talking to all of you. I don't know what I'd do without you. I'll keep in touch. Dara
  11. Ronna, As I mentioned to Marie and Cheri, you all have been so wonderful to me in answering my questions and giving support. DEVASTATION hits the nail right on the head. My gosh, I never thought I could be laughing one minute and crying the next. Congratulations on your baby to be. I didn't realize you were going to have a baby. Do you only have Kurt? or are there others in between? I laughed about you're husband looking at the back of your head. Same here. In fact Karl, my husband doesn't see me much anymore. I'm always on the computer trying to find answers. I t
  12. Cheri, I ABSOLUTLY do not think you're being insensitive to my feelings. If anything, you and the others have been so awesome. I wish I could have you all over my house for a glass of wine and a chat. It's funny how you can feel like you've known someone forever and never met them before. Thank god for you guys. Our son Karl has been having tics for almost a year now. It's not like it's new to us, but for some reason these last couple of weeks have been unusually hard. Maybe it's my state of mind. As I mentioned to another parent. I really started downhill when Karl started
  13. Marie, Your words of encouragement are so awesome. I ask god everyday to give me the strength to handle this situation and to look after Karl. I've been doing as you say in regards to getting down at his eye level. I'm constantly kissing and hugging him. Time will heal. Thanks so much for your words. As a side note, I recently aquired a juicer. Low and behold, my boys love the carrot, spinach combination and I add a pear to it. What other vegetable besides spinach do you recommend? Dara.
  14. Kim, I think you might be referring to 'MPV'. I don't know what it is. It looks like the range is from 7.5 - 11.5. Karl's score was 8.6. As far as the organic acid profile test, go to www.greatplainslaboratory.com. They have every test that you need, but I don't know if you need a doctors prescription for it. I doubt it. I just ordered a comprehensive stool test to test for yeast in my son's stool. Claire told me about it. Keep in touch. Dara
  15. Hi Marie, Thanks for the encouraging words. I agree with what you say about trying not to be anxious around Karl. It's just that my feelings are getting in the way and it's very hard to pretend that nothings wrong when in fact something is very wrong. I just want to know that my beautiful little boy will be ok. Last week Karl brought home a little book that he and his teachers put together. In it was a picture of one of his boy dolls. Under the picture, Karl had the teacher write, 'My baby steals sugar from the kitchen'. I was so heartbroken. As you know, Karl tested positive
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