Suzan Posted July 27, 2009 Report Share Posted July 27, 2009 Charlotte, NC Chris Jenny PA - Dan! doctor, PANDAS knowledge, recently educated on Dr. Cunningham's tests and research. Agreed to zith treatment w/ positive Dr. C's test. Link to comment Share on other sites More sharing options...
poetmom Posted August 22, 2009 Report Share Posted August 22, 2009 Fort Worth, TXDr. Mark Mazade, Pediatric Infectious Disease Specialist with Cook Children's Medical Center800 7th Ave Fort Worth, TX 76104-2704 - (682) 885-1485My experience with him is he is gentle and kind. I have been very pleased with him.Arlington, TXDr. Wilfred Raine, Pediatrician in the Cook Children's group.848 W. Mitchell St. Arlington, TX 76013 - (817)-795-8498Dr. Raine is friendly, compassionate, supportive and was the only (of many) pediatricians in Arlington who took me seriously. Link to comment Share on other sites More sharing options...
Megs_Mom Posted September 6, 2009 Report Share Posted September 6, 2009 Dr. James Nelson, Neurologist, Presby Pediatric Neurology in Charlotte NC (very helpful, diagnosed her clinically, willing to work with antibiotics and IVIG as necessary. Will also refer to specialists as needed. Dr. Mauve O'Conner - Carolina Asthma & Allergy - Charlotte NC (also office in Concord) - she is very interested and curious. Willing to review all medical records. We are still new with her, so I'll update this once we have worked with her for a while. Dr Branner - Pediatric GI specialist - great guy, PANDAS believer, did not blow us off, really did good work for Meg to figure out stomach issues. Did not dismiss immediately as anxiety. Found her Peptic Ulcers - Charlotte NC - Presby Pediatric GI. Wish I had a good pediatrician, but still searching Dr. DeeDee Russell - not a PANDAS person, but excellent with ERP therapy for kids and helping with anxiety. Cornelius NC Dr. Pat Gammons - all the doctors at Duke, in PCAAD. Again, not really PANDAS believer - but not skeptic either. Just wants to help on the therapy side, and did amazingly well working on the OCD with our daughter. Link to comment Share on other sites More sharing options...
sf_mom Posted September 7, 2009 Report Share Posted September 7, 2009 (edited) Doctors in the Bay Area: Dr. Brock Bernsten 3838 California St. San Francisco, CA Phone: (415) 666-1860 Our Pediatrician, was willing to listen and support whatever recommendations immunologist made including open IVIG order if required. Willing to do additional research but not very familiar with PANDAS Frederick A. Lloyd, M.D. Palo Alto Center 795 El Camino Real Palo Alto, California 94301 Phone: (650) 853-2992 Has several PANDAs patients, knows Margo Thienemann, listens well, responsive, will provide antibiotics in conjunction with other Dr. recommendation, open to IVIG prescription if recommended by another Dr. David B Lewis Pediatric Immun. & Infectious Disease 300 Pasteur Dr CCSR 2115B Stanford, CA 94305-5164 (650) 498-4189 Has seen several PANDAS patients, has treated a couple kids with IVIG, will treat my son if he has another episode. Margo Thienemann MD 900 Welch Road Suite 207 Palo Alto CA 94304 Phone mail: 650 324 3241 Specializes in Forensic Psychiatry, Geriatric Psychiatry, Internal Medicine, Adolescent Psychiatry & Pediatric Psychiatry, Psychiatry.... OCD & Has well over 20 PANDAS Patients Edited August 31, 2011 by SF Mom Link to comment Share on other sites More sharing options...
EAMom Posted October 24, 2009 Report Share Posted October 24, 2009 Darien, CT one hour from NYC. His name in Dr. Denis Bouboulis (an excellent immunologist). This recommendation is from Coco in this thread: http://www.latitudes.org/forums/index.php?...art=#entry41096 Link to comment Share on other sites More sharing options...
LMama Posted October 27, 2009 Report Share Posted October 27, 2009 Dr. T Murphy now in Tampa Florida. I know I have seen her new number but not sure at the moment where. She is very good TMom I am in that area! Can you give me more info as to how I can contact this doctor? THANK YOU!!! Link to comment Share on other sites More sharing options...
ShannonOtown Posted October 27, 2009 Report Share Posted October 27, 2009 Dr. T Murphy now in Tampa Florida. I know I have seen her new number but not sure at the moment where. She is very good TMom I am in that area! Can you give me more info as to how I can contact this doctor? THANK YOU!!! Here you go... http://health.usf.edu/medicine/psychiatry/...taff_murphy.htm My son is treated by her and we drive from Orlando. Shannon Link to comment Share on other sites More sharing options...
mar Posted October 29, 2009 Report Share Posted October 29, 2009 Does anyone know of any PANDAS doctors in Illinois?? Link to comment Share on other sites More sharing options...
Stephanie2 Posted October 30, 2009 Report Share Posted October 30, 2009 (edited) Scott Smith in Edison, NJ. He is on the Medical Advisory Board of www.pandasresourcenetwork.org and is a DAN (Defeat Autism Now) practitioner. He has tremendously helped my very severely affected pandas boys. They are completely asymptomatic at this point. He does cunningham, titers, throat cultures, etc. He will test for mycoplasma and lyme upon request. He will also do a full immune panel. His two boys have pandas. He does all the traditional pandas therapies (steroid bursts and tapers, antibiotics, IVIG) and he also has other therapies to help modulate the immune system and bring down inflammation. His overall treatment plan is very broad, and in my opinion reduces the necessity of high dose and frequent IVIG. Contact info: www.drneubrander.com scottsmithpa@gmail.com Edited November 26, 2010 by Stephanie2 Link to comment Share on other sites More sharing options...
dut Posted October 30, 2009 Report Share Posted October 30, 2009 Dr Cynthia Keller and Dr Sharon Hemplar at Redmond Pediatrics in Redmond Nr Seattle, Washington. Link to comment Share on other sites More sharing options...
sww817 Posted October 30, 2009 Report Share Posted October 30, 2009 For NC: I e-mailed Eliana Perrin at UNC when we first started looking for a doctor. Her response when I asked if she was familiar with PANDAS and treated patients was: "No, really not. I just do general pediatrics. Please get the word out on the message boards as I get numerous phone calls and e-mails. " She recommended another doctor at PCAAD who turned out only to do research. He then recommened another doctor in the practice who told me PANDAS "is an area which remains controversial with limited evidence for a clear consensus on how to diagnose or treat". I do think the therapists at PCAAD might be good. We ended up driving to MD to see Latimer. Link to comment Share on other sites More sharing options...
bubbasmom Posted November 15, 2009 Report Share Posted November 15, 2009 Just wanted to make sure you found someone because Dr. K is in Chicago and VERY good. Does anyone know of any PANDAS doctors in Illinois?? Link to comment Share on other sites More sharing options...
JDuffner Posted November 18, 2009 Report Share Posted November 18, 2009 Doctor Cynthia Keller in Redmond, Washington is treating PANDAS Patients with Antiobiotics, Steroids IVIG and PEX Dr. Kim Kacoroski, ND is treating homeopathically in Kirkland, WA Dr. Judyth Reichenberg- Ullman and Robert Ullman in Edmonds, WA have cured cases homeopathically Link to comment Share on other sites More sharing options...
careair Posted December 8, 2009 Report Share Posted December 8, 2009 Louisville KY After being admitted to hospital for 2 days of GI testing (after 2 years of unexplained "tummyaches"), ended up being referred to neurology and spending 5 days, including 12 hours on quarantine for menengitis spinal tap test, MRI, many many blood/urine tests, etc. Two neurologists in the practice were ready to send our 6 year-old up to the psych ward until the chief of peds neurology Dr. Vivay Puri saw her and told us about PANDAS. At our last visit he invited us back the next day to be seen by Dr. Mink, a Tourette's specialist from NYC, who was in town to speak and did some rounds with some of Dr. Puri's patients. We were warned Dr. Mink is NOT a pandas believer so it was an interesting take. Dr. Mink explained that anxiety disorders can manifest in many ways, and that while it is unusual for so many manifestations to come crashing down so suddenly, doesn't mean that something (pandas) triggered it. Link to comment Share on other sites More sharing options...
ncdad Posted December 10, 2009 Report Share Posted December 10, 2009 Charlotte, NCJames, Lee, MD Piedmont Neuropsychiatry, (he is the one who diagnosed it) James Nelson, MD Neurologist Chapel Hill Eliana Perrin, MD Professor of Pediatricis Chapell Hill (did some of the origional work with Swedo) mom md... I just found out that Dr Nelson has moved to NE. Who are you working with now to continue treatment locally? I am still looking for a provider that would write script and administer IVIG. thanks. Link to comment Share on other sites More sharing options...
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