danf Posted August 18, 2017 Report Share Posted August 18, 2017 Can anyone help me find a reputable practitioner in NJ ? Thank you. Link to comment Share on other sites More sharing options...
ABdualPT Posted August 21, 2017 Report Share Posted August 21, 2017 We just travelled from Seattle area to Hinsdale IL to consult with Dr. Kovacevic and the had IVIG treatment. He is nothing short of amazing. I highly recommend traveling to see him. The travel and treatment are expensive but my son was in excellent hands, and Dr K expects that he will have a 90% or greater resolution of symptoms within 3 months. Good luck. Link to comment Share on other sites More sharing options...
Getwellsoon Posted August 22, 2017 Report Share Posted August 22, 2017 Has anyone been to Dr. Latimer recently? (2016-17) Link to comment Share on other sites More sharing options...
kristin0713 Posted September 15, 2017 Report Share Posted September 15, 2017 Quote Can anyone help me find a reputable practitioner in NJ ? Thank you. My PANS daughter sees Dr. Jyanouchi at St. Peter's in New Brunswick. She's been WONDERFUL and her treatment worked very well for my DD. There is also Dr. Trifiletti in Ramsey. Link to comment Share on other sites More sharing options...
Christy17 Posted November 26, 2017 Report Share Posted November 26, 2017 We live in southern middle Tennessee, and are in the beginning phases of possibly getting a PANS dx. We had the Cunningham Panel which showed elevated CaM Kinase (137), and was border- line on the Anti-Tubulin, 1:1,000. Does anyone know how these values correlate in terms of Dx or treatment if any? Also if there are any good knowledgeable PANS Dr's in the southeast. We are not too far from Vanderbilt Children's hospital. Feeling desperate and overwhelmed....My dtr is 15 and we are just barely getting by.😔 Link to comment Share on other sites More sharing options...
ejh Posted November 29, 2017 Report Share Posted November 29, 2017 On 8/22/2017 at 3:56 AM, getwellsoon said: Has anyone been to Dr. Latimer recently? (2016-17) I took my son to Dr Latimer in 2016. She diagnosed and treated him she was wonderful. Link to comment Share on other sites More sharing options...
amychris03 Posted March 19, 2018 Report Share Posted March 19, 2018 Hi- I'm new here and looking for a doctor that is close to Virginia Beach, VA. My son does not yet have a diagnosis, but I am almost certain that PANDAS is what has been going on with him for the past six years after reading about it. I suspected this earlier in the year, but now, low and behold after his three siblings contracted strep throat (a week apart from each other so it's literally been in the house for almost a month), he's having crazy flare ups of his tics, anger, anxiety, and even his math grades have started to drop. Any insight to a doctor would be great. I have an appointment to discuss with his Pediatrician on Friday, and she's typically quite receptive. Thanks! Link to comment Share on other sites More sharing options...
SayanaraBugs Posted March 24, 2018 Report Share Posted March 24, 2018 Hi. I'm new here and wondering if anyone has been to Dr. Jodie Dashore (BIonexus Health) in Marlboro, NJ? Link to comment Share on other sites More sharing options...
Mamafour Posted November 25, 2018 Report Share Posted November 25, 2018 On 3/19/2018 at 10:23 AM, amychris03 said: Hi- I'm new here and looking for a doctor that is close to Virginia Beach, VA. My son does not yet have a diagnosis, but I am almost certain that PANDAS is what has been going on with him for the past six years after reading about it. I suspected this earlier in the year, but now, low and behold after his three siblings contracted strep throat (a week apart from each other so it's literally been in the house for almost a month), he's having crazy flare ups of his tics, anger, anxiety, and even his math grades have started to drop. Any insight to a doctor would be great. I have an appointment to discuss with his Pediatrician on Friday, and she's typically quite receptive. Thanks! Richmond, VA — Dr. Wei Zhao at VCU. Takes insurance. Communication sometimes slow but orders ivig and plasmapheresis depending on case. Changed our lives. Link to comment Share on other sites More sharing options...
rainingrebecca Posted December 28, 2018 Report Share Posted December 28, 2018 Any doctors in Denver or Colorado? Link to comment Share on other sites More sharing options...
bobh Posted December 28, 2018 Report Share Posted December 28, 2018 You can see a list of 5 for Colorado here: http://pandasnetwork.org/us-providers/#COLORADO No guarantee that any of these will work out well - you might want to check for references or ratings some other way. Link to comment Share on other sites More sharing options...
Ronnie Posted August 25 Report Share Posted August 25 Anyone know of a PANDAS doctor in NYC? Link to comment Share on other sites More sharing options...
Emmysmom Posted September 25 Report Share Posted September 25 Any doctors In western PA, Pittsburgh area? Link to comment Share on other sites More sharing options...
Pennmom Posted October 5 Report Share Posted October 5 Certified Registered Nurse Practitioner Amy Montgomery (Mechanicsburg, PA) Link to comment Share on other sites More sharing options...
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