Doctors we have seen who helped with PANDAS

[mmiglio 0]

I'm looking for doctors in VA who treat PANDAS. Specifically, wondering if anyone has visited with Dr. Stephen Shield in Newport News or Sentara Pediatrics Physicians in Williamsburg (Drs. Gottfried, Graham, and Via). They're listed on the Saving Sammy website list of providers.

 

Does anyone know if these Drs have been helpful? This post is old, but I am in Virginia Beach and would love to find a Dr nearby. Thanks.

[danf 0]

Can anyone help me find a reputable practitioner in NJ ?

Thank you.

[ABdualPT 2]

We just travelled from Seattle area to Hinsdale IL to consult with Dr. Kovacevic and the had IVIG treatment. He is nothing short of amazing. I highly recommend traveling to see him. The travel and treatment are expensive but my son was in excellent hands, and Dr K expects that he will have a 90% or greater resolution of symptoms within 3 months. Good luck.

[Getwellsoon 0]

Has anyone been to Dr. Latimer recently? (2016-17)

[kristin0713 0]

Quote

Can anyone help me find a reputable practitioner in NJ ?

Thank you.

 

My PANS daughter sees Dr. Jyanouchi at St. Peter's in New Brunswick. She's been WONDERFUL and her treatment worked very well for my DD. There is also Dr. Trifiletti in Ramsey.

[Christy17 0]

We live in southern middle Tennessee, and are in the beginning phases of possibly getting a PANS dx. We had the Cunningham Panel which showed elevated CaM Kinase (137), and was border- line on the Anti-Tubulin,   1:1,000.   Does anyone know how these values correlate in terms of Dx or treatment if any? Also if there are any good knowledgeable PANS Dr's in the southeast. We are not too far from Vanderbilt Children's hospital. Feeling desperate and overwhelmed....My dtr is 15 and we are just barely getting by.😔

 

 

 

[ejh 2]

On 8/22/2017 at 3:56 AM, getwellsoon said:

Has anyone been to Dr. Latimer recently? (2016-17)

I took my son to Dr Latimer in 2016.  She diagnosed and treated him  she was wonderful.

 

[amychris03 0]

Hi-  I'm new here and looking for a doctor that is close to Virginia Beach, VA.  My son does not yet have a diagnosis, but I am almost certain that PANDAS is what has been going on with him for the past six years after reading about it.  I suspected this earlier in the year, but now, low and behold after his three siblings contracted strep throat (a week apart from each other so it's literally been in the house for almost a month), he's having crazy flare ups of his tics, anger, anxiety, and even his math grades have started to drop.  Any insight to a doctor would be great.  I have an appointment to discuss with his Pediatrician on Friday, and she's typically quite receptive.  Thanks!

[SayanaraBugs 0]

Hi. I'm new here and wondering if anyone has been to Dr. Jodie Dashore (BIonexus Health) in Marlboro, NJ?

[Mamafour 2]

On 3/19/2018 at 10:23 AM, amychris03 said:

Hi-  I'm new here and looking for a doctor that is close to Virginia Beach, VA.  My son does not yet have a diagnosis, but I am almost certain that PANDAS is what has been going on with him for the past six years after reading about it.  I suspected this earlier in the year, but now, low and behold after his three siblings contracted strep throat (a week apart from each other so it's literally been in the house for almost a month), he's having crazy flare ups of his tics, anger, anxiety, and even his math grades have started to drop.  Any insight to a doctor would be great.  I have an appointment to discuss with his Pediatrician on Friday, and she's typically quite receptive.  Thanks!

Richmond, VA —

Dr. Wei Zhao at VCU. Takes insurance. Communication sometimes slow but orders ivig and plasmapheresis depending on case. Changed our lives. 

[rainingrebecca 0]

Any doctors in Denver or Colorado?

[bobh 32]

You can see a list of 5 for Colorado here:
http://pandasnetwork.org/us-providers/#COLORADO

No guarantee that any of these will work out well - you might want to check for references or ratings some other way.