Phyl Posted July 20, 2004 Report Share Posted July 20, 2004 That's great, Claire. How wonderful that you have such specific information. I didn't know anything about the Spectracell vitamin deficiency blood test, as our doctor never suggested that one. It's all very interesting and clearly so helpful. Glad to hear that the mercury is going down, too. All the best. Phyl Link to comment Share on other sites More sharing options...
Claire Posted July 22, 2004 Author Report Share Posted July 22, 2004 deleted by Claire Link to comment Share on other sites More sharing options...
Heather Posted July 22, 2004 Report Share Posted July 22, 2004 Claire Thank you for the specific information regarding your son. That is great news about the direction your son is going with the imbalances, aside from the yeast. I haven't had any time to post lately as we are moving next week and life is crazy right now. Keep us posted. Will is still doing great. Heather Link to comment Share on other sites More sharing options...
Claire Posted April 8, 2005 Author Report Share Posted April 8, 2005 deleted by Claire Link to comment Share on other sites More sharing options...
Claire Posted April 8, 2005 Author Report Share Posted April 8, 2005 deleted by Claire Link to comment Share on other sites More sharing options...
Claire Posted April 25, 2005 Author Report Share Posted April 25, 2005 deleted by Claire Link to comment Share on other sites More sharing options...
kim Posted April 26, 2005 Report Share Posted April 26, 2005 Claire, Wow, I think how confusing it is to do any of this without a Dr. You have the best and it's still frustrating. It's really wonderful how on track your instincts seem to be. The six month tests would be hard, when your not sure if a change you made might be having a negitive effect. The hair anaylsis for metals, and ruling out a problem based on those results does seem completley backwards. It sounds like hair and blood tests for metals may be useless until the anitoxidant levels are up and glutathione is used if low? You have come so far with your sons progress, at least the latest testing showed two clear cut problems that can be worked on. Thanks for posting the detailed information Claire. I'm sure the waiting is hard. My thoughts and prayers are with you and your son, and also with Andy's son and family as tomorrow sounds like a big day in their program. Will look forward to hearing Pfeiffers recommendations and how you proceed. Is it your son who doesn't want to use the lotion anymore? Is this due to the rash? Sounds like the fatigue has been making him unwilling to deal with another irritant, or is it his Dr. who said to stop? Kim Link to comment Share on other sites More sharing options...
Claire Posted April 26, 2005 Author Report Share Posted April 26, 2005 deleted by Claire Link to comment Share on other sites More sharing options...
Claire Posted April 26, 2005 Author Report Share Posted April 26, 2005 deleted by Claire Link to comment Share on other sites More sharing options...
GL_Lmom Posted April 27, 2005 Report Share Posted April 27, 2005 Claire You said that your son resists the glutathione lotion. Is this just because of the time it takes to apply? He didn't have any discomfort from it? How much do you have to use at a time. How is it applied? I think I need to ask Pfeiffer about this for my son. If it just needs to be massaged into a small area, a back rub may work. He has grown very resistant to all of our efforts. Thanks. Link to comment Share on other sites More sharing options...
Claire Posted April 27, 2005 Author Report Share Posted April 27, 2005 deleted by Claire Link to comment Share on other sites More sharing options...
kim Posted April 28, 2005 Report Share Posted April 28, 2005 Claire, Your post got me going on copper too this morning, just wish I could remember what I read I was wondering if your sons red blood count was normal. Since copper aids in oxigenation of the red blood cells fatigue with low amounts would make sense. I read where supplementing with vit. C causes a decreased copper status. Also, it mentions "zinc in excess" will have the same effect, although we know that didn't apply to your son. I just bought the Animal Parade multi for youngest son partially due to the fact that it has reduced copper. His old multi had 2mgs. the Animal Parade has .05. The copper does appear to be an issue to be concerned with, I never knew what a major role it played. I read about all of the things that it can have an affect on i.e. circulatory system, and cholestrol, triglicerides etc. and I wonder why these things aren't given more attention. Probably same old story; why correct something with a mineral when you can wait until arteries clog and treat with expensive drugs. While I was reading about the copper, I took another look at MPV which both of my boys were out of test range-High. I thought it was slightly high, after reading more this morning, I would have to say it maybe significantly high (one was 12.4) I also read it can be caused to be high because of a Vit. B12 deficiency. Another one both boys had,Low neutrophils: says the same thing, possible B12 deficiency. Is it common to have high enough B6 levels but low B12? Link to comment Share on other sites More sharing options...
Claire Posted April 28, 2005 Author Report Share Posted April 28, 2005 deleted by Claire Link to comment Share on other sites More sharing options...
kim Posted April 28, 2005 Report Share Posted April 28, 2005 Claire, This financial burden is so unfair. Thanks so much for the call you made regarding the insurance. I just hope they don't say the same thing Health Plus did. They said the tests were covered, as long as the lab was local. So does that mean only Florida residents within 50 miles of Immuno would be covered? Didn't make sense. Sorry, off topic. Your thoughts on why the zinc levels may have dropped off, made a lot of sense, and there were what? four changes? I'm sure you will figure it out. You have to get that boy to keep using that lotion and taking his zinc at night. Have you tried bribery? Also, do you remember youngest has been ticcings unusually bad since he had the throat "virus" and his brother tested streph positive? I questioned it then, well he went in yesterday with a throat full of white junk. They started him on amoxicillian, culture should be back tomorrow. I think this has been there all along, maybe just mild enough not to show up last time? Or I guess if it's negative, could be a reoccuring virus that could be irritating tics. I'm betting streph. Worried about the yeast, with his diet and antibiotic, but interested to see the effect of the amox. on the tics. I know Pandas is usually characterized by sudden and explosive onset, but as more studies are done, I wonder if they will find these types of infections impact other subsets also. I read Ronnas post on how PANDAS is tested for, and about the streph titers. I'm wondering if you have ever heard of PANDAS diagnosis with gradual onset? Link to comment Share on other sites More sharing options...
abbe Posted September 11, 2009 Report Share Posted September 11, 2009 Just wondering why all the posts from Claire are deleted here. seems like a wealth of information?? abbe Link to comment Share on other sites More sharing options...
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