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Ronnas

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  1. I am sorry but I do not. It has been many years since my days of dealing with PANDAS and I am not up to date on most things related to it.

    Ronna

  2. Hi - do you know where in Toronto one can access the Anti-Dnase B test? We had ASOT but were told to have the other too, only to have the lab tell us they consider it the same test. Thanks for any help

  3. Thank you to all of the "oldies" that remember me and to the "newer" posters who were so nice to post! To answer a question about the Arrowsmith School, all of the schools locations in Canada and the USA are listed on the website. I linked the page with a lot of info: and articles about Arrowsmith. We are in Saskatchewan. http://www.arrowsmithschool.org/articles.htm I will try and pop in more often, I simply cannot believe how busy this forum is...oh my gosh, no kidding, PANDAS mom's were very few and far between 10 years ago, not to mention the information... I have taken my
  4. Hi to All, I have thought often of everyone on this forum and have let the years slip away and my visits here have been infrequent. As I was browsing through the posts this evening, my heart beat a bit faster as I remember the struggles we had years ago with our son. In the last few years the business of our life just completely took over and it was easy to drift away, especially as Kurt has done so well over the last few years and the birth of our 4th child in 2005 took away any "time" I had previously. I am sure buried in posts long forgotten are my posts about PANDAS. It
  5. I will be checking in often, and will try to respond ASAP but please dont think I am ignoring you if it takes a day or so Hi Cheri! I have thought of everyone here so often! How fast the years can pass! I have "popped" in over the years but as Kurt has done well for such a long time now it is easy to put behind me the many years I posted on Latitudes! I hope all is well with you! All of your years of support to parents who are struggling has been and will be a blessing to everyone! I will never forget the years of support you gave to me! I will post an update on the PAND
  6. Antibodies To Strep Throat Bacteria Linked To Obsessive Compulsive Disorder In Mice ScienceDaily (Aug. 13, 2009) — A new study by researchers at Columbia University Mailman School of Public Health's Center for Infection and Immunity indicates that pediatric obsessive-compulsive disorder (OCD), Tourette syndrome and/or tic disorder may develop from an inappropriate immune response to the bacteria causing common throat infections. [Mady Hornig, MD] http://www.sciencedaily.com/releases/2009/...90811143538.htm
  7. Hi Melanie, I am not on here as much as I use to be but do try to pop in when I can. I do agree that threre is no "cure" for TS, but with time and the appropraite treatments there is lots of hope for your son. Really each child is so different and it takes time to find the right combination of things that are helpful. My son is a PANDAS kid and has been on 500 mg azithromycin once a week for 4 years now. At present we are not needing to use supplements anymore. He eats very healthy and he is a active, healthy 12 year old (almost 13) and it has been at least 2 years since he has ti
  8. Hi Everyone, Dr. Swedo's talk from the DAN conference a few months ago is posted. It is up now at: http://www.autism.com/danwebcast/videoflv....=720&VID=93 . It starts with PANDAS info, goes into autism, then more on future studies and OCD. On another message board a person said that she asked Dr. Swedo how the how the original group was doing. Dr. Swedo said the original group did not receive treatment and so had some ongoing problems. The second group, which did receive treatment, was continuing to do very well. This poster also said "this is a great video though
  9. I read the book a few years ago and I thought it was a great book. Looking forward to the movie. I think I saw him in some interviews also...Oprah? I live by the quote..."if this is the hardest thing you have ever been through then it just is and it doesn't matter if someone is going through something worse"...but having said that, let's keep things in perspective... Although TS is debilitating in the most severe cases and my heart goes out to those with severe TS and the parents...really I am here to tell you...my son had severe tics...he use to BEG me to make them stop when his
  10. Hi All, I think lots of members will remember me. It's hard to believe but my sons tics began more than 7 years ago just prior to kindergarten. I won't re-tell our story, it is long and very similar to so many on this forum. I use to post frequently here and was pretty active on the old braintalk. I do pop in from time to time to see how everyone is doing. My thought and prayers to all the parents who are just starting down this road or are in the midst of it all. We did it all with my son, vitamins, naturopath docs, diet changes (removing casein was the biggest help), acupunct
  11. Hi Myrose, Although I do not post as often anymore I do try to pop in when I can and read posts. Your post interests me because I remember being where you are a few years ago... WHY, WHY, WHY.... My son had severe tics from onset at 5 years 4 months (I could tell you the day!) till around 8-9 ish and since being on azithromycin every 5 days for the past 3-4 years (it is important to write things down and journal because here I am years later and it seems like I cannot remember anything anymore...it is all a blur!!!) My son also has severe learning disabilities which for obviou
  12. Hi Carolyn, good question that I have some experience with. My son is a PANDAS kid. His first episode happened shortly after receiving his 5 year old immunizations. Do I think there is a connection...probably. By the time I had noticed this connection, my other son and daughter were finished with their baby and toddler shots. When my son with tics was 9 years old I became pregnant with my youngest son. Believe me prior to having my fourth baby I swore I would not vaccinate another child...after he was born I changed my mind. I did a lot of research and I do believe in immunizing my k
  13. Welcome to this great message board. I would continue to pursue PANDAS with your doctors. As said by others the trend in the titers is what is important. Here is some important informantion about the strep tests used...Overall, I would really recommend speaking with your doctor again and doing a trial of antibiotics again, azithromycin in particular, to see if you see an improvement in the tics and behavior BEFORE even considering some of the tic medications like clonidine etc. As well it would be helpful to ask for a referral to a doctor with experience with PANDAS or at the very least as
  14. Antibiotic prophylaxis with azithromycin or penicillin for childhood-onset neuropsychiatric disorders.Snider LA, Lougee L, Slattery M, Grant P, Swedo SE. Pediatrics and Developmental Neuropsychiatry Branch, National Institute of Mental Health, National Institutes of Health, Department of Health and Human Services, Bethesda, Maryland 20892, USA. sniderl@intra.nimh.nih.gov BACKGROUND: The acronym PANDAS (pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections) describes a subgroup of children with obsessive-compulsive disorder and/or tic disorder that experi
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