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Everything posted by Phyl

  1. 906bell, we treated my son for d. fragilis about 9 years ago. We used a DAN/holistic/MD who tested him for other parasites too, and found he had c difficile and also yeast overgrowth. His tics disappeared when those other parasites were finally eliminated. He no longer has tics. My recommendation is to check for these other parasites too. Good luck.

  2. Hi, We used vision therapy when my son was in 4th grade, and afterward the headaches that he used to get while trying to read completely disappeared. He need to learn to have his eyes track, change focus from near to far smoothly and work together binocularly so I did daily exercises with him which were prescribed by the doctor for about 13 weeks. It was very hard for him, but we found it to be well worth it. I think that it depends on your doctor as well as whether the child has other issues going on. Phyl
  3. mylittleangel, I think that you will have success more quickly than we did, because you are starting with the right things more quickly. I said 3 years, because that's from the start of when we learned the results of the first microbial OAT panel to when he no longer had those issues. Our first doctor wasn't really trying to rid of him of the yeast and clostridia, but rather wanted him on omega 3's, lots of magnesium, zinc and other supplements. We were trying to figure out where the issues were and what was important to work on. My son used culturelle for a long time too(about 2 years), but it didn't seem to make his clostridia overgrowth go down. I also recall that the doctor who helped us most (the 2nd one) wanted to get rid of the clostridia first, before working on the yeast - something about it would not be possible to do them at the same time, but I don't remember why. (My son also had another parasite, Dientamoeba Fragilis, which the doctor eradicated before anything else). To answer your question about the reduction in his tics, I would definitely say that when we finally were on the right track, reducing the overgrowth of clostridia and yeast, his tics dwindled with a very apparent correlation. I was very skeptical that anything could be working, after such a long time, but it gradually became more and more obvious. This probably took about a year. One thing that may be helpful to you was a "conversation" I had way back on March 10 - 13, 2003 with Dr. McCandless on this forum, entry "Stubborn Clostridia". I hope this link works: http://www.latitudes.org/forums/index.php?showtopic=187 In this Dr. McCandless recommended Flagyl to get rid of the clostridia. In truth, I can't remember whether we used that, but think that we must have, though I can't find a notation in my diary that says we did. I did find a letter that I'd written to our doctor where I noted what Dr. McCandless had recommended and it was after that when we finally started to see results.
  4. The Microbial Organic Acid Test by Great Plains Laboratory is the one that we used also. It is a urine test and so is pretty easy to do. Some insurance companies accept billing for this test (at least Blue Cross Blue Shield used to do so) from this lab which is a big help. As far as I know, though, this test needs to be done through a doctor - you cannot simply ask for it yourself. Colleen, I believe that my son picked up the parasites also through years of antibiotic use for ear infections before he had tubes put in. I wish I had known then... mylittleangel, my son also used to go through a wide number of different tics, often one right after another, though some stayed for a long time. He grunted, went t-t-t-t, blinked, looked over each shoulder, opened his mouth wide, touched his thumbs with the other fingers, lifted his hands in the air, and had a painful stomach tic among other things. One thing that I did that was very helpful was to keep a diary of what we did each day (which supplements he took, what he ate, any treatments or anything unusual that we did and how he reacted, what his tics were and their severity). This was helpful to try to track down what was beneficial, because after a while, everything was a blur as I was also very emotional about it all. After a while, when I looked back at the diary, I could see definite changes that I might not have observed had I not been writing things down. After a while, it was clear that the tics were fewer and fewer. You asked how long it took from the beginning of treatment to having no tics, and I think the answer was about 3 years. I switched his doctor after we started, because I found one whose outlook I preferred, but it was very slow going. My son is now 16 years old and he does not restrict his diet at all, though at home I don't buy any thing with artificial or processed ingredients. However, I know that he sometimes gets junk with artificial coloring and flavoring, and eats foods with nitrates, but he claims that it doesn't bother him at all now.
  5. It seems that most people do use a special diet to get rid of candida, but my son's doctor did not suggest that. I believe that Chemar's son and several others here did use a no-yeast diet. My son's allergy test did not show him to be very allergic or sensitive to any particular foods, so that was not an issue for him. I know that there are now some good cookbooks available for children who are on special diets. Maybe you can find one that will be helpful so you'll be able to find foods that your son will enjoy while you are working on his health. I don't know anything about a correlation between how long one has had candida and how long it takes to get rid of it. We retested my son's OAT panel many times over the course of months it took and I recall that we did it after he'd gone through as much of the whatever treatment it was that the doctor had prescribed for him, to see his status. Then, depending on results she would continue with the same thing or try something different. Yes, his ticcing did wax and wane while he was being treated. However, gradually, as the candida and clostridia diminished, I could really tell that his tics were reducing in frequency too. One thing that I think was unusual about his tics was that almost all of his motor tics were bilateral or symmetrical, that is that whatever he did on one side of his body was repeated on the other (maybe not all of them, but the majority). He did have some very difficult times, and this forum was, back then, a place that helped me a lot. (That's why I come back here, though not as frequently, these days). Since your son has similar issues, are his tics also symmetrical? Your son sounds wonderful. I hope that you can enjoy him no matter what. Best, Phyl
  6. Do you have a doctor to advise you? My son also had candida, clostridia overgrowth and leaky gut back when he was younger. It took years of work for him to get better, but we did finally remove the overgrowth of candida and clostridia and heal his gut with the help of a good doctor (and then both his vocal and his motor tics also went away). The good thing is that we were able to check the progress of his treatment by repeating the OAT panels, and as his tics diminished, the results on the OAT panels kept improving too. We tried to use Nystatin, and went through several rounds of it, but it was completely ineffective for him. The doctor prescribed S-Boulardii as well, but I had to discontinue that as it really exacerbated his tics. Our doctor did not prescribe any special diet, though I did keep him dairy free for a while because we found that dairy made his tics more severe. (Now he is fine with dairy). Also both artificial food coloring and msg really made him react strongly with heavy tics and adhd symptoms. The things that I recall helped him most were some homeopathic drops (by Pleo/Sanum) which are intended to counter candida, probiotics, and oil of oregano (which is so strong I had to put in empty capsules for him). He also took Bonnie's supplements (mentioned a lot in this forum), but he no longer does that either. I was extremely surprised that the homeopathy worked so well, but it did. We discovered the candida, clostridia and leaky gut when my son was finishing 3rd grade, and it wasn't until he was in the middle of 6th grade that his health improved, so you can see that we had a long time of searching and trying and retesting. Since then, he has not had this problem reoccur, nor has he had tics. Good luck to you.
  7. In answering a question to someone, I recalled a suggestion that I wanted to make for anyone trying to help their child or themselves with tics. Keep a "tic log" to try to see any progress and any triggers. When my son had tics, upon a friend's recommendation, I was very consistent about keeping a log in one of those hard composition-type notebooks and that is how I could see which foods and environments were triggers for him. Eventually I could also see how much better he was getting with treatment. Truly, I had forgotten some of the horrible times he had, and so the log was very helpful to look back upon, both for reporting to the doctor and for understanding myself what was happening. ~Phyl
  8. My now-16-year-old son had severe tics that started as throat clearing and eye squeezing in 1st or 2nd grade. These came on gradually just after we tried him on 10 days of the stimulant Ritalin for attention deficit problems. He developed both small tics like jaw stretching and finger to thumb rubbing, and full body tics, like doing pirouettes while walking and painful stomach tics. One of his most difficult verbal tics was when his speech became interspersed with "t-t-t-t's". Most all of his motor tics, however, were bilateral - he'd do them on both sides of his body simultaneously and symmetrically. Also, an important part of his history is that he had had numerous ear infections while an infant as well as fluid behind his ear drum that wouldn't go away. His doctor had prescribed him a continuous regimen of antibiotics to try to lessen the fluid, but of course that was useless and he had tubes put into both ears at 21 months old. After he would eat, I often thought that I noticed my son’s tics would worsen. Sometimes, his tics would seem to be taking a break, but they would develop again after a meal or snack. After a while, I could pinpoint certain foods in particular that would cause him to tic. Anything made with milk (like cheese that he loved), sometimes made him repeat a “hmm, hmm, hmm” sound, sometimes so quietly that I had to be very close by to hear it. We took away milk and milk products from his diet for a while, and if perchance he ate any dairy by accident, he’d get a violent reaction, clucking and almost retching. Also, whenever he had a food or candy colored with artificial dyes, these also caused his tics to accelerate. Worse, he’d behave uncharacteristically antsy, literally unable to sit still, and would wander around after ingesting these dyes for hours. Bright lights also were a trigger for him, as was even a tiny amount of MSG. When he was in 3rd grade we began to work with an MD here who practices holistic and orthomolecular medicine. She's also a DAN doctor. For a long time I gave him Bontech vitamins which seemed to help some. Through lab testing. we found that neither allergies nor heavy metals were causing him problems. Rather, he had a heavy overgrowth of both yeast and clostridia in his gut as well as other parasites (like Dientamoeba fragilis). The Microbial Organic Acid Test through Great Plains Lab was the check we used to see the levels of yeast and clostridia metabolites. Needless to say, he also didn't have enough good bacteria - all this was probably due to the excessive use of antibiotics. We tried large amounts of probiotics and also nystatin, but though we continued the probiotics neither of these helped reduce his tics or the metabolite levels. What did finally help him were a series of three different homeopathic drops by Pleomorphic that very gradually reduced his yeast overgrowth (they were Pleo Alb, Pleo Forte, and one other I've now forgotten) and oil of wild oregano that reduced the clostridia overgrowth. I was quite disbelieving that the homeopathic drops worked but they clearly did, because his tics gradually diminished as we verified that the yeast overgrowth kept getting reduced as shown through repeated Microbial OAT's by Great Plains. The oil of oregano was so strong that he couldn't abide it, so I put drops of it inside empty capsules that I got at the health food store. When the Microbial OAT results showed that he no longer had either yeast or clostridia overgrowth, his tics were at a very very low level and eventually they went away completely. By then he was in 5th grade. He has just completed 10th grade and has not tic-ced since probably the beginning of 6th grade. He can now enjoy dairy again with no repercussions. Bright lights (fluorescent or other) no longer affect him. He sometimes has food or candy with food coloring and they also no longer bother him. I believe that it was the lack of balance of good bacteria and the overgrowth of yeast and clostridia that made him sensitive and caused him these issues. We don't have tourettes in our family history, but do have some ocd. This site was very helpful to me back when he had tics and I still come here at times to check on things. I'm glad to have the chance to contribute and hope this can help someone.
  9. Hi again. After reviewing lots of information, we did decide to start the Dore program for my 15 year old son who has mild inattentive add. (He no longer has the tics which I wrote about several years ago on the ACN forum). He began the Dore exercises in August. Within about 4 weeks his organizational abilities have amazingly improved - he has been cleaning and organizing his room and he's kept his notebooks way better organized than last year. Is this from Dore or just maturity, I don't know. It's still the beginning, so we'll see. He complains but has been good about doing the exercises which so far take about 5 minutes twice a day. Apparently many people don't see any changes until they've been doing the exercises for much longer. We decided to try Dore though it is expensive instead of Learning Breakthrough because of the feedback and check-ups they have.
  10. Has any one here had any experience with either the Dore program or Learning Breakthrough program?
  11. Kim, Yes, they both did have high markers for Candida, especially my younger son who had taken a lot of antiobiotics as a toddler for fluid in the ears. He also had very high markers (metabolites) for Clostridia bacteria - I think that was elevated DHPPA-like Compound, which Dr. Shaw from Great Plains Lab links to tics. A few years ago we treated for both the Candida and Clostridia, and had repeated Microbial Organic Acid tests. As the levels of the metabolites went down, so did the levels of tics for my younger son. Since then, I only very rarely see any tics. The correlation for him was very clear. The treatment was difficult and prolonged and I am very grateful to our doctor. (The things that actually were most useful, I think, as we could observe from the lab reports, were some homeopathic drops by Pleo and oil of oregano). My older son is also much better now, though he still has some difficulty with ocd. But he's 18 and heading for college away from home soon, so........ Phyl
  12. Kim, Hi. You asked whether anyone who took the Organic Acid test didn't show low glutathione. Both of my sons had this test, several times. It was my older son, who didn't have tics, who was very low in glutathione. He did, however, suffer from ocd. My younger son, who did have tics for several years was in the normal range for glutathione. Our alternative doctor was much more concerned about my older son's issues and after almost 2 years of supplements (alpha lipoic acid and other things) he squeaked into just normal for glutathione the last time he was tested. Phyl
  13. Kim, If you do the Great Plains (urine) OAT test for yeast, there are several fruits that need to be avoided 24 hours before because they increase arabinose. From memory, I believe they are apples, grapes and cranberries, but I can't find that for sure now though the directions are clear on their instructions. This page, from Great Plains re: their OAT panel http://www.greatplainslaboratory.com/Organ...-Acid-Test.html describes some information about their yeast sensitivity test, and how it differs from tests offered by other labs, including Labcorp. I think it's an important test, because the metabolites found might also indicate an overgrowth of clostridia which is often found along with an overgrowth of yeast. Having this information was very important for us in helping our son. Phyl
  14. Hi Dara, We live in Massachusetts. I don't know of any books to recommend on all this except for the yeast book that Chemar recommends by Trowbridge(?) You are the first person who I found who also has a child also diagnosed with an overgrowth of clostridia as well as yeast. I suspect that my son had these issues because he was prescribed so many antibiotics when he was little for ear infections. He was on a prophylactic dose for about 8 months. Did your son have a similar history? Dr. Shaw at Great Plains Lab (where we did the Microbial Organic Acid Tests that showed these overgrowths) suspects that clostridia contributes to tics. He recommends taking a probiotic called Culturelle (Lactobacillicus GG) which you can find in many drugstores. I believe it is supposed to crowd out the clostridia bacteria by repopulating the digestive track with "good" bacteria. My son took Culturelle for over a year, but his clostridia didn't budge. We had the most success with some homeopathic medicines which our environmental physician prescribed for him. Even though I was very skeptical about using these, I will say I am very impressed still. They completely eliminated the clostridia overgrowth and greatly diminished the yeast overgrowth. Some yeast overgrowth, as evidenced by later testing, still remained after he took the homeopathics for several months, but it was at a much lower level. The homeopathic remedies my son took were liquid drops of PleoForte (for the clostridia, I think), PleoAlb (for yeast), and PleoPef (also for yeast) all by a company called Sanum/Pleomorphic. Since the yeast was still remaining, our doctor then prescribed drops of Oil of Oregano for 3 months. This is amazingly strong and bitter stuff and I had to put the drops in an empty capsule for each dose so that he'd taste nothing. I have not yet had him retested since he finished this, but I do feel concerned that since he has completed the prescription, the yeast may have returned, as I think I see a few more tics. They are all very mild. Sorry this is so long, but I do think it's all important to tell you.
  15. Dara, Hi. I also wanted to say that my son made exactly the same noises that you described for your son. This was about 5 years ago that we noticed it. Sometimes he would make a low (quiet) humming sound, sometimes he'd just clear his throat, cough, and/ or grunt as if he was trying to clear mucous repeatedly from his throat. We also noticed that he was worse if he had dairy, so we tried to eliminate dairy from his diet. Several times though, he ate something with cream that we didn't know was there (Indian food which he loved), and the throat clearing was immediate and really strong - so I felt like we had proof that dairy was bothering him. Much later, through testing with an environmental physician, we discovered that he had a big overgrowth of yeast and also an overgrowth of a bacteria called clostridia. We treated him for these and he has been taking supplements for about 4 years now. Though I think he may still have a some yeast overgrowth (it's very hard to get rid of), the tics he used to have are very very mild now and he can tolerate dairy with no problems now. Phyl
  16. The Out-Of-Sync Child: Recognizing and Coping With Sensory Integration Dysfunctionby Carol Stock Kranowitz, Larry B. Silver is an excellent helpful book that describe SID very well. Carol Kranowitz has also written another book called The Out of Sync Child has Fun. These look like 2 good websites with lots of links about SID: http://www.geocities.com/~kasmom/sid.html http://www.tsbvi.edu/Outreach/seehear/fall...l97/sensory.htm From what I know, SID can involve more than the 5 senses; it can also affect the vestibular system (sense of balance and movement). Phyl
  17. The only test sensitive enough to pick up my son's yeast and clostridia overgrowth is the Great Plains Microbial Organic Acid Test (OAT). It involves a collection of the first morning urine and it requires that the client not eat anything with apples, cranberries, and two other fruits for 24 hours before. Our environmental doctor prefers this test because it shows up metabolites from yeast, etc. overgrowth and also can pick up some deficiencies like glutathione. The only test which my son had, of those you mentioned was the Great Smokies test for parasites. That's an excellent test, and can pick up parasites that other tests miss, but it may not catch the yeast.
  18. Natalie, In her book, Is this Your Child?, Dr. Doris Rapp talks about all sorts of allergies and sensitivities affecting behavior. She has several case histories of children who are sensitive to things like formaldahyde or mold whose behavior improved dramatically when these were eliminated or when the child was treated for these sensitivities. Since you already know about an allergy to certain foods, perhaps your child has other sensitivities as well. That's great that you have found a doctor who can test for heavy metals, yeast, IgG, etc. at the end of the month. Hopefully, the allergy test will include other things besides food. Doris Rapp's website is: http://www.drrapp.com/ take care, Phyl
  19. Claudia, I think this man was mentioned in the testamonial section of Bonnie Grimaldi's web site. Here's a link to that page; check out #20, dated 3/16/99: http://www.bonniegr.com/testimonials.htm There it says the article is from Latitudes magazine Spring 1999 Vol. 4, Issue 2.
  20. Great information, Caz. Thanks very much. -Phyl
  21. Hi efgh, The oregano oil for my son is in liquid form (though apparently it could also come in a tablet I think). The brand is called Physician's Strength, manufactured in Lincolnshire, Il. He is supposed to put 3 drops of it on to some food and eat that, twice a day. The first time he tried that, he could barely get it down. He likes oregano, but this stuff is unbelievingly strong. It's very penetrating in your nose as well as your throat. So we bought empty clear capsules from the health food store, and put 3 drops in one, twice a day. This way he doesn't taste it at all, and the doctor said that was fine. Our doctor never talked to us about changing his diet (avoiding sugar, vinegar, etc.) so we have never done that. Perhaps that's why this yeast is so hard to beat. He no longer tics much at all. I guess you could say that it would help tics go away if it worked to kill off the yeast. I think his yeast levels are low enough now that they don't impact tics any longer. Good luck.
  22. efgh, Our doctor prescribed oregano oil (not olive leaf oil) for my son. You asked about dosage, brand and how he takes it. We have it in liquid form in a small brown bottle, though apparently it could also come in a tablet I think. The brand is called Physician's Strength, manufactured in Lincolnshire, Il. He is supposed to put 3 drops of it on to some food and eat that, twice a day. The first time he tried that, he could barely get it down. He likes oregano, but this stuff is unbelievingly strong. It's very penetrating in your nose as well as your throat. So we bought empty clear capsules from the health food store, and put 3 drops in one, twice a day. This way he doesn't taste it at all, and the doctor said that was fine. Our doctor never talked to us about changing his diet (avoiding sugar, vinegar, etc.) so we have never done that. Perhaps that's why this yeast is so hard to beat. Ronnas, I agree with Claire that taking the probiotics after antibiotics is a wise thing to do. But I think your son is already doing that, right? Phyl
  23. Hi HS, My son is one for whom treating an overgrowth of yeast (and clostridia) made a huge difference. Since we began to eliminate these overgrowths, his tics have mostly disappeared. (Once in a while, I see something that could be called a tic, but they are nothing like before.) He has had many lab reports that show a gradual lowering of metabolites from yeast at the same time that his tics lessened and lessened! We have been working on this for a few years now. The last report from this summer showed a small amount of elevated metabolites from yeast, but it is apparently not enough to exascerbate tics. We used nystatin (from a doctor's prescription), some homeopathic drops from pleomorphic, and now oregano oil. Yeast is incredibly stubborn. It takes a long time to bring an overgrowth into balance. I hope that your gf can get help from a doctor.....I know we would not have been able to get so far without the help of our environmental (holistic) doctor. Also, can you get any books from the library that you want regarding yeast? In the US, there is also a chain of stores (The Vitamin Shoppe) that has a lending library for customers. Maybe there is something similar where you are? Finally, have you seen this: http://www.nutritioninstitute.com/Tourette...s_Syndrome.html
  24. Hi Jean, Yes, our environmental doctor recommended quercetin for my older son who has respiratory allergies. She said it has a natural antihistime-like effect. He was supposed to use up to 500 mg 2 or 3 times/day. (He's about 130 lbs and 16 years old). We never found it to be very effective for him, though I'm not sure he ever did it more than one time/day. One thing he did like was a product called stinging nettles, in capsule form. This did seem to help him breath more easily and have less nasal congestion. He had no side effects from this. If you look at Dr. Weil on the net, he recommends quercetin highly. Phyl
  25. Claire, Somewhere I read that celery is a perfect food to help with adrenal insufficiency. However, I can't find any reference for that now. Have you seen that anywhere? Phyl
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