No success with son's tics yet

[jkc]

Just wanted to post little update about my son's tics. My 9 year old son's eye blinking/winking has not calmed down yet and this has been going on for 2 months now. Everyday he has these tics, may be he had 2 or 3 days in two months where his eye winking was down 50% than usual other than that he is constantly winking his eyes (left mostly but some times its right eye also). He doesn't have any vocal tics, some times he kind of flaps his fingers but that is not constant. He also does mouth twich some times but that comes and goes. I have stopped his milk for last 3 weeks, he eats pizza on fridays in school though. No tv and video games for 3 weeks. I have not noticed any difference with these changes.

I am trying vitamin B complex now for past one week but that also doesn't seem to do anything. Also trying kids calm for last 5 days and so far no luck.

Would like to hear from all the experts on this forum as to what I can try, I have been reading and there is so much info here its hard to decide where to start. Any suggestions on what combination of vitamins I should give. How long usually transiet tics last? I have talked to an environmental dr and he did some allergy tests but have to wait for 3 weeks. Neurologist appt. is two weeks away. Time seems to go so slow. Any suggestions as far as what supplements to give would be really appreciated. Do all of you who have great success with supplement are working under a physician's guidence because I took my son to pediatrician and she just completely ignored diet/allergy connection.

My son has been also complaing about how kids in school ask him why he is doing this, any suggestion on what is the best way to deal with school kids and friends who don't stop asking why are you winking so much.

[itsme]

Hi, our son and myself have great success with Bontech supplements. We also are on a VERY restrictive diet. Tics are down about 95 %. I would give them a try if i were you. Also, if you can find a good environmental dr. they can be very helpful - as ours is.

[Chemar]

good to hear your success with bontech, itsme

 

jkc, I honestly believe it is the COMBINATION of the right supplements that works best.

 

When we formulated our plan I based it on Bonnie's original protocol, and even tho she has changed that slightly with bontech, yet once again it is a COMBINED supplement program that seems to be effective.

 

so whether one puts it together individually or purchases bontech or other combos with similar ingredients, IMO it is the supps working TOGETHER that have the best effect

[jkc]

chemar,

 

how do you go by Bonnie's protocol? I mean should I just call them and explain the symptom or do they have specialists in different locations. I have been to their website but didn't see where you can just order the products. Thanks for your help.

[Cum Passus]

Hi jkc,

 

I would stop the school pizza for a while. Maybe you could tell him you will make him homemade pizza for dinner on Fri. to help with the disappointment. We have a special treat for our kids on Fri. nights, we make healthy nochos. They can't wait for Fri. because of that. My son ticced non-stop for over a year, I thought he would never stop. (has not stopped, but doing very very well) Hang in there things will get better.

 

C.P.

[janey]

chemar,

 

how do you go by Bonnie's protocol? I mean should I just call them and explain the symptom or do they have specialists in different locations. I have been to their website but didn't see where you can just order the products. Thanks for your help.

 

 

Hi,

 

You can contact this woman Cas, she has a natural food store. You can order the products thru her. Tell her how much your child weighs and the symptoms. She will tell you how much product you need. This is her e-mail:

 

casrifkin@hotmail.com

 

Cas Rifkin

 

Natural Food Store

 

501-268-9585

[Pamela Kay]

I noticed for my son a huge trigger was corn, corn syrup, high fructose corn syrup, dextrose, or pretty much corn anything. Also recently it seems environmental allergies play a roll.

 

The pizza he eats probably contains corn products in some shape or form.

 

Have you tried epsom salt baths?

[amy1]

Hang in there. We had a 3 month span of constant tics. I thought it would never end and found myself afraid of the next day. The great dr i went to calls them "flare ups". My daughter is mid right now. You really need the magnesium citrate (it comes in liquid) and the omega-3s. i bought the omega-3's called "coromega" at our Publix grocery store...looks like a ketchup packet you can mix it with something. Watch the trans-fats. Also food coloring in foods. In our house instead of making my daughter feel like she had this horrible illness and restrictions i simply told her we were all going to clean up our diets and we are all taking vitamins. I know you are having restless nights as i do. When the sun goes down i start worrying...it's hard to fight. I am new at all of this stuff too. another great site for energy and well nutrition and positive thinking is jongordon.com. he had written some books, not TS related, but just good advice on living more healthfully.

[amy1]

can someone shed light on the epsom salts? what is that used for with TS? i am confused

[patty]

Amy1,

 

The epsom salt bath calms the tics. 2C of salt per bath, soak for about 20-30 minutes. And drink plenty of purified water during and after the bath. It also helps one relax & sleep better.

 

Pat

[jkc]

Thanks Janey and pamela for the info and Amy1 for your support.

[amy1]

i was re-reading your post this am and a few things came to me---we had about 3-4 months of intense tics...now we are at a mild stage. i know how stressful and scary that intense time is...are you doing magnesium and omega 3's?

during the summer my child had so many tics during bible school. she came home and told me she was sick of kids asking her what was wrong with her...first she told them she had tourettes, then they want details, etc...so finally i told her it was ok to say it was allergies during that week...BUT i would suggest getting with your son's teacher and i think educating the class on what tics are is great...you can go in for 10 minutes or so and explain to the kids that tics/tourettes is not contagious, doesn't mean they are not smart, etc...and that it's like a sneeze that has to come out...etc. i really believe that education is power and that the kids will love him and feel more comfortable if they understand it...it's scary when you don't understand it. your son may feel comfortable talking to the class about it or having you do it---we aren't at that point as school just started and my daugther is mild right now but her teacher (my daugher is in 3rd grade) is aware that if things increase and it is appropriate that i can come talk to the class, etc. you also, if you haven't already, do a quick printout for your son's teacher on what TS is----nothing overwhelming, but just a page on it. that way they are aware. so many teachers aren't familiar with it. it's funny you mention video games, etc. my daughter is in a "laptop" class in the 3rd grade public school. it's fabulous. i think the computer actually helps her with the tics and helps her channel her energy with learning...just works for us.

hang in there!!!

[mykids]

[

In regards to the kids at school asking your son what /why he is doing this? THe best way to explain it is: " It's like the hicups, when they start, you just can't get rid of them. " My son has even gone as far to explain that a hicup is air trapped in your lung and what he does is air trapped in his brain. goodluck.

[Chemar]

Sorry not to have seen this before jkc

 

Back in 2000, when my son was newly dx, Bonnie had not yet started Bontech products but had published on the web what she had used to help her own child.

I found that at her old web page (no longer up) and simply copied it, took it to our Integrative team of physicians and, based on his additional testing, began giving him supplements that matched what Bonnie had done for her child and on what his own test results revealed.

She now has the BonTech range, which I have never used, only because what we have him on works and I am reluctant to fix what aint broke

 

There is a phone order line for Bonnie's products but I cant seem to find the # at the moment...however, if you email Bonnie through her website about wanting to purchase, you will get a reply with details

 

here is the ordering page on her site http://www.bonniegr.com/Order%20Info.htm

 

hope that helps

Cheri

 

chemar,

 

how do you go by Bonnie's protocol? I mean should I just call them and explain the symptom or do they have specialists in different locations. I have been to their website but didn't see where you can just order the products. Thanks for your help.

[jkc]

Thanks Chemar! I have more questions:

My son had braces for about 11 months, he just got them removed on Monday. On Monday I also started him on B-comx, taurine, and magnesium. Tuesday was probably the best day he had so far in over two months. He only blinked few times (very mild). He was still doing his nose/mouth twich but that has not been severe. Today (wednesday) he had to get retainers, they are plastic and not visible and he has to wear them about 12 hours a day. I noticed as soon as he wore them his blinking got more noticeable. I asked him to take it off and it was a little better again even though not as good as yesterday. Is this my imagination or these retainers are making him more anxious. Any input would be helpful.

 

Are the supplements suppose to help with all tics because I noticed the difference in eye twiching only and not with the mouth/nose twich. Thank you!