philamom Posted June 13, 2013 Report Share Posted June 13, 2013 Thinking of you. Hoping recovery is still going smoothly! Link to comment Share on other sites More sharing options...
tpotter Posted June 14, 2013 Author Report Share Posted June 14, 2013 Came home yesterday. Has had a few flares...not looking forward to that part, but he's definitely doing better. Have a busy day of getting tested for h-pylori (suspected prior to surgery), home care, and detox at the chiro. EmilyK 1 Link to comment Share on other sites More sharing options...
Pandasphilly Posted June 17, 2013 Report Share Posted June 17, 2013 Thinking of you, your son and family. Did you receive results of Bartonella test? Link to comment Share on other sites More sharing options...
3boysmom Posted June 17, 2013 Report Share Posted June 17, 2013 (edited) Wow, what a fighter you are for your son! What an inspiration you are for me.....he is so blessed. His ART doctor saved his life, but so did you!!! Way to go mom. I love how you don't except ". No" ( from the surgeon ). and get the testing done anyway. I hope I can be that strong for my son as we fight our way through this long road to health....stay strong....for your son as well as those of us that need a role model on how to handle these though situations. Prayers to you and your son! Thank you, Linda Edited June 17, 2013 by 3boysmom Link to comment Share on other sites More sharing options...
tpotter Posted June 17, 2013 Author Report Share Posted June 17, 2013 Thank you everyone. Link to comment Share on other sites More sharing options...
mar Posted June 18, 2013 Report Share Posted June 18, 2013 I am praying for your son. Link to comment Share on other sites More sharing options...
Wombat140 Posted June 19, 2013 Report Share Posted June 19, 2013 me too by the way, what is an ART doctor? Link to comment Share on other sites More sharing options...
tpotter Posted June 21, 2013 Author Report Share Posted June 21, 2013 ART stands for: Autonomic Response Testing. It's a Klinghardt technique. Also, blood test for DS came back positive for bartonella. Took 3 draws over a 5 day period doing testing basically 9 different ways (3 ways X 3 days). Only 1 was positive, but it was PCR DNA! Don't know if it was what had affected his valve...still waiting for those results, but never-the-less, we have no choice but to treat. Taking him back to LLMD in 1 1/2 weeks, because he stopped tx about 2 years ago when he got recurrent c-diff. We're definitely going to have to deal with that, too. Link to comment Share on other sites More sharing options...
BamaMom Posted June 21, 2013 Report Share Posted June 21, 2013 Tpotter, I am new on here but wanted to tell you your DS is in my prayes and has been since I read the post of his surgery! Of course you and your family also! I am so sorry you are going through all of this. Nothing is worse than watching our children suffer! Link to comment Share on other sites More sharing options...
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