• Announcements

    • Administrator

      Forum Community Guidelines

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator

      Disclaimer and Privacy Policy

      Disclaimer

      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010

Wombat140

Members
  • Content count

    475
  • Joined

  • Last visited

  • Days Won

    10

Wombat140 last won the day on May 16

Wombat140 had the most liked content!

About Wombat140

  • Rank
    Advanced Member

Contact Methods

  • Website URL
    http://
  • ICQ
    0

Profile Information

  • Gender
  • Location
    Lancashire, UK
  1. That is a one. Plain bizarre, as well as exhausting. Well, six year olds don't do making sense anyway and when you cross that with PANDAS... Glad if she's not sp bad with it now. Somebody on another forum suggested that it might have something to do with a traumatic event - she gave the ex\ample of someone who's in a car accident and there's a cherry air freshener in the car and thereafetr they hate the smell of cherries without necessariy even knowing why. That makes a kind of sense to me, it does seem to fit the way it behaves to suggest that it's a kind of conditioned response. But I don't know what the event would have been unless it was the OCD onset itself. That was traumatic right enough, since it was the famous out-of-a-blue-sky PANS onset and I had no idea what was going on, only that I felt as if my mind was being sucked out htrough a straw every time a car went past and that everyone was telling me that there was nothing and to stop being stupid - since they had no idea what was going on either and could only think I was just play-acting for some reason! But what the connection might have been, or where that would get you, I don't know. It seems t me that the way it works is that I mean roughly the same thing by it as most people - well, I think I do - but it's the associations that are off. When I think of that word, I think of the most creepy possible images that you could connect it to, and if I think of it applying to anything my mind immediately jumps from there to those. What do you mean by ERP? The name ERP always suggests to me being faced with the thing and held down by three strong men until the screaming stops. Well, with me it really would be a case of three strong men and also it does't seem to work; I can carry on being in a state for as long as we've ever tried it and the more efforts people are making to force me to stop, the more I/it fight back. In any case, it looks like being a while until I can get to see anyone; first I haveto see the local psychologist, who assessed me a while bac and would be making the referal, the referra, to discuss her conclusions and what's the best thing to do, and she says it's a two or three week wait just to see her. In the meantime, these wrod things are giving me the runaround and getting out of control, getting mixed up wth everything - they've become my main obsession now, in the last month or two. Can anyone make any hints about how you make friends with a thing that you've developed a horror of? I've been maing tentative fforts but it's often hard to know wher to get a foothold - how to come up with any way of seeing it as anything other than terrible, and how to get it to stick once I have. By the way, here's a thing. Yes, this is the word I'm talking about (or the maion one - I have various secondarty ones too at the moment), but please, don't say it to me for exposure's' sake, as I can't cope with that at the moment.
  2. Thank you, both of you! I was thinking it was just me, and that's never a goood feeling. And if it's commonish in PANS cases, and there are a fair amount of those about, maybe that means thetre's a chance that a psychologist I see might be aware of it. Yes, mine shapeshift something awfull, too. I suspect there are underlying psychological issues, but I also suspect that they wouldn't be doing this if some mechancial fault in my brain wasn't just convinced that something must be wrong and was just using them as inspiration for what kind of terrible thing might be happening. That mae sense, sdo you think? I should upaate my signature. I'm currently on Lyme disease. We've gone back to Amy Smith and she has me on various preliminary things to try and get me in better shape before starting on antibactieral herbs. HOPEFULLY shouldn't be long now; we've had a ludicrous amount of delays trying to get hold of the last preliminary thing! Unfortuntatrely I can't take any kind of psychoactive medications because my OCD won't let me. When I've forced myself to taethem anyway, t goes into screemaing lockdown claiming that I can't know whether it's safe to do ... pretty well anything I'm trying to do ... or whethet it's just the drugs making me think it is, and I'm practically unable to move at all until enough time has passed that I can feel sure the drug is out of my system. It's really inconveniaent beause I can't even take half the standard herbs for Lyme diseas (specifially, notweed, cat's claw, skullcap and ashwaganha), because they're supposedd to have psychoactive effects as well as pyhiscal effects. Any mors tories fro olther peple would be apprecaited, esppecially if you can say anything about how you got over it.
  3. I posted something in the OCD forum. I'm just mentionng it here in case people don't see it there. (please reply there rather than here.) Sorry if this is naughty, I just don't know how many p[eope actually look at the OCD forum, it's so quiet! https://latitudes.org/forums/topic/25056-irrational-loathing-of-something-that-others-consider-normal/
  4. I was wondering if anyone here knows about a thing that I have that I've heard about very occasionally, but it seems to be very rare - a horror of a particular thing, or in my case it's a word (see Desperately need to talk to somebody - poison words), not because I think it will cause something bad to happen but in its own right - that thing just is, in itself, a horrible thing to me. And yet it's not something that anyone else considers a problem. When I try to ask people about mine, they go "But it's a nice word". Has anyone any knowledge of this and how you go about getting over it? Does anyone know of anyne who's ever recovered from this? I'm currently pinning all my hopes on seeing a psychologist, but even when that happens, I d afraid they'll never have heard of this or know what to do about it!
  5. Hi Imy3, welcome to the forum. It's horrible, isn't it? I've had episodes of thoughts like that (,mine are usually odd ones that wouldn't make sense to anyone else, but they upset me a lot). I wish I could tell you how to wave a magic wnad and make the thoughts just go away, but it doesn't work like that. Trying to force them to go away in a hurry only makes it worse, because obviously to push something away you have to pay attention to it so if you try to attack a thought you just make it bigger; you just have to let them subside in their own time. It's like trying to sweep ripples off a pond with a broom. The more you swweep the more stirred up it gets, but if you wait a while it'll subside by itself. Take courage, it doesn't necessarliy take that long, if you can manage to be patient and not fight with them too much. Try and think about good things. I don't mean make yourself only think of good things instead of these thoughts, asI just mentioned that's not possible, I just mean try and think of good things as well. That way you can crowd them out. Or at least keep oyur spiritis up until they do subside, which also means you won't be panicking and attacking the thoughts. Reading something uplifitng, or very silly, may help. It's rather like having a illness of some kind - it's misreable but you just need to make a fuss of yourself and try and keep your spirits up and wait for the sneezing to stop. (I just thought of that.) Also, music helps a lot. I think it's lie the draught up a chimney - it keeps your thoughrs going along instead of stopping and swirling around in cicles. NO, you're not an evil person, far from it - everyone makes that mistake, naturally enough. It's often said, the fact that you were alarmed by the thoughts, whatever they are, to start with, proves that you don't like the idea. (no, that doesnt mean you need to carry on being alarmen by them to be in the right - they were a false alarm, so to spea, and you know that now.) The fact that a really nasty idea occurred to you doesn't mean you're bad, it just means you're imaginative.
  6. Incidentally, how do I tell if I'm a "5 drops only" person? The book mentiones that about 1% of people with Lyme disease are hypersensitive to all outside substances and can't tolerate more than 1-5 drops of a rememdy. How do I tell if I'm one of them? I was rather suspicious as I have a history pf bad reactions to things, so I started with 5 drops (echinacea), then as nothing mucn seems to be happening, IO went up to a full odse of 1 tsp, but there didn't seem to be any difference. I later went down to 5 drops again, because things had been rallly dire, but things contiuniued much the same i.e. bad. How do I know which is right? What is "being unable to tolerate higher doses" supposed to consist of?
  7. Hmm. I could really do with some advice, if anyone has any. The latest is: In desperation, on April 10th I started taking the milk thistle again - but I didn't get a headache and the OCD didn't budge. I'm still taking it but nothing's happening. What should I do? Can anyone think what's going on? If it was indeed that it did work the first time, why isn't it working now? I suppose it's possible that it wasd a delayed reaction to another thing, not the milk thistle at all. But then, I'm still taking all the other things I was taking at that point, plus a few new ones, so why the change? An intriguing thing is that the milk thistle seeds aren't meant to do anything for the Lyme disease directly; the point of them is to help with herx reactions caused by other things, by helping to get rid of the gunk released by killing off bacteria. So if it really was the milk thistle that helped, that seems to suggest that some of the other things WERE doins something. (The other things I was taking at the time were Echinacea angustifolia, selenium and green tea extract. I'm aware that these aren't usually considered first priority herbs, by the way. there are resons for that - my OCD won't let me take a lot of the "main" ones, so I'm just taking whatever relevant herbs IO can. And I haven't dared take any directly antibacterial ones yet because I'm in such a bad way I didn't dare take the risk of a herx.) Any help would be much appreciated. I really am despearate for help for help, and the milk thistle is the only thing that I've treid since I started with the herbal things in early March that does seem to have actually made things better! In general, it's just gone slowly downhill since Istarted on the herbal treatments.
  8. But if that does the opposite of what milk thistle does (at least, you seem to think taht milk thistle does the opposite of what I should be doing), then would that make my OCD worse? The trouble is, I'd sooner have migraines than OCD! Anyone else - is there anything else that might do the same job as mlik thistle without being it?
  9. PLEASE READ - Important: please read this posting before replying to anything I post: http://latitudes.org/forums/index.php?showtopic=24834#entry186170 I've been taking milk thistle - or trying to - as part of a Lyme disease protocol, or rather as a precatuin against the possible effects of a Lyme disease rotocal. I took it for a week and within a few days I started having headaches all the time, ending with what was unmistakably one of my old familiar migraines, feeling sick and everything, though I fell asleep before I got as far as actually being sick. I didn't take the milk thistle that evening (not becaude I was suspicious but jsut because I couldn't face taking it!) Headache had gone by nect day. I didn't start the milk thistle again, and the headache didn't come back. Since then, I've tried it twice, leaving a few days in between, and each time the headache has come back within a few hours. My question is, is this some kind of detoxification reaction and will go, or am I just allergic to milk thistle? I didn't think milk thistle was supposed to have a=an effct over such a short time anyway, I swa eome say that it took about a month for the liver enzmye readings to get back t narmol if they'd been up before you started taking it. The annyoing thing is that it did seem a bit better, OCD wise, while I was taking it. I'm not allericg to ragowrt pollen. I do have CBS +/-.
  10. For the information of anyone else: I found one! www.bristolbotanicals.co.uk They stock EVERYTHING (well, pretty close). Apparently people have asked them about this and they started stocking some of the herbs that had previously been missing, specially for that. Very good to deal with, too, quick and efficient and answer e-mail inquiries very fast.
  11. You're a star, LLM. You and Rowingmom both. I've e-mailed both of those people and hopefully they'll be able to tell me where they get their supplies! Good idea about Canada too, I wouldn't have thought of that.
  12. PLEASE READ - Important: please read this posting before replying to anything I post: http://latitudes.org/forums/index.php?showtopic=24834#entry186170 Hello, just wondering whether anyone happens to know a supplier for Buhner herbs in the UK or elsewhere in Europe? The book only lists American suppliers - some of them do ship to the UK but it looks like the shipping costs can be a bit steep and possibly slow as well, so it would be handy to be able to get them from closer to home. (The book suggests just doing a Web search for the names of herbs and seeing who's cheapest. I am certainly not doing that with herbs! I was reading only the other day about a woman who bought comfrey tea off a market stall and ended up in hospital, it turned out to be foxgloves.)
  13. Do the detox things make things worse before they get better?
  14. Thank you all for being so understanding! Yes, I'll definitely put a note on any new hreads, I was thinking of doing that. And thanks Sheila for editing those posts. What you say all makes a lot of sense. Don't know what I'd do without you! I've ordered the Buhner book too, you'd expect that to have something to say about it. I'll have something to discuss with my doctor now - hope he gets the point. By the way, I tested positive for something!!!! Or sort of positive. Positive on one Lyme disease test (Elispot) and negative on the other (Western Blot, I think, haven't got the results sheet handy at the moment - I do remember it had ten bands and only one showed anything), positive on Coxsackie virus, negative on the others. I don't know... is that maybe just normal and what anyone would randomly have and has nothing to do with anything? :-( maybe not, I hope. Can anyone comment?
  15. PS: In fact, LLM, could you remove the "calming inflammation" sentence in yours, too? It wouldn't wouldn't normally even be a problem, but I had such a catastrophic reaction to Ryan's posting that it's somehow got itself attached to, that particular example of it, got itself attached to he memory and is going off like a bomb every time I see it.