mar

I really Want to thank all of you for the support!!! I am proud of her and happy that she is happy! It is really nice to know that I can share all the ups and downs and that someone is out there to listen and knows exactly what I am talking about!! Thanks to all for all the info and support! I can't imagine what my life would be like without this group! Mar

That is so great!!!!! I'm glad it went so well and I pray that you have Many more days like this!!!!! Mar

Thanks for all the replys but it has gotten better. No sleeping on toilet since I last wrote. No sleeping during the day . Ds has had episodes of sleep walking when he was younger so I am assuming this is what it was. When I mentioned this to him he was shocked. But I recall when he was three and I hear him going to the bathroom and crash he falls over. This happened once or twice. He is a deep sleeper and his dad crashes in sleep. I was hoping it was a faze and I think it is I hope. He is back to the 7am wake up and ready to go. I really think in his case it's being overtired. Mar

So dd is in dance. She missed last year b/ c I couldn't deal with her breakdowns the year before and not wanting to go and ds screaming that he does not want to go didn't help. I I didn't want to fork out the money last year for nothing. So she started back up this past fall in a class with kids a year or 2 older then her. I was a little nervous if she would keep up since she has not done it in a year. 3 weeks ago her dance teacher came up to me and asked if I did auditions for company. I said no and she said that your daughter caught on quickly this year even though you were worried. She goes on saying that she has the smile and and the look that would be perfect for the stage. Also that she catches on quick and had the need to succeed. I am dumbfounded! She tells me if she would like to join she would just need to perform by a couple of teachers but she is basically in ( she is part owner of the studio) . So I kind of blew it of wondering if she would be able to handle the extra hours of dance. Then the following week the other owner that she would of auditioned to walks up to me and says is your dd interested. I have many questions and say I think she is supposed to audition in front of a couple of teachers and she saids yes that's me and I have seen her and she is good. And she says for miss Gina to recommend her is very rare. She never walks up to a parent and says this so she is definitely in if she would like to join. So of course I am Bouncing off the walls like really my little dd!!!! I spoke to dd and she wants to do it. Yes it's going to cost more but DH and I agreed to let her try it out. She will be in 3 competitions and the regular recital and she is excited. I don't want to sound like the crazy mom but with children who are on very strict diets and do tic and have OCD And who knows what else this is very exciting for me and her. I want her to be exposed to more friends and not be afraid of the stage and she seems to like it. She woke ul at 6 am on Saturday for her recital and said mom today is my special day!!! I said yes but come snuggle for a little so you won't be tired. So I am crossing my fingers and hope she will enjoy it and shine!!!!! Mar

Thanks for all the replys. I believe DH has adults pandas. Which is why this is hard. First let me say he is very sweet and would do anything for me which is why I feel in love with him and married him. But now that I see things in ds it's like wow he is like his dad. Here is one example of what I have to deal with. So ds wants to go out and play catch and practice pitching. DH saids really right now hold on. (. It's weird but most of the time he talks to the kids he sounds aggravated which I have figured out its his OCD) he saids let me take a break and ds saids you always say this that it's not the right time so I tell ds as I'm finishing the dishes I will go out there with you and DH looks at me and says really do you always have to make me look bad, I am the bad guy. I say what did I do I am just going to take him out and he jumps of the couch and by that point ds does not want to go out b/c he knows DH is just going to be annoyed the whole time. I shall say this this does not always happen. But DH has anger issues b/c it's not when he wants to do it. His dad was the same way. And when I remind him of his dad who never did anything with him which bothers him I say don't be like him. He will play with the kids and wrestle and all. He just makes me feel bad at times b/c he thinks I am doing things with them on purpose to make him look bad. He is one of those those that he will get all mad and then a couple hours later be like I'm sorry and act like nothing happened. And I feel like he always blames things on me. Mar

This is way too interesting. Yes both my kids are dairy free and gluten free. For ds we went this route b/c he is sensitive we found out and supposedly allergic to milk. It helped out greatly with congestion plus all his other eliminations. He has not had a sinus infection in almost three years where at that point he was chronic. His tics and other behaviors improved with his diet also. It's seems that when strep hits he has a setback. But for him the milk/ gluten free seems to help. If he is not congested and miserable he seems to do better overall. His sniffling tic and blinking tics went away. He has been on culturelle probiotoc. Lately which I need to research now. Mar

I would say yes from what I know. I thought any antibiotic or steroid causes yeast. Make sure you are giving probiotics. Anyone please correct me of I am wrong. Mar

This is real different and of course always wonder. So ds is 10 now. He has taken naps or I should say fallen asleep three times in the past couple of weeks. Which never happens! First time was a rainy day and all of us cuddled on couch and ds and dd passed out. Second time ds was arguing with me basically about something I don't want to talk about for the hundred time and he layed on the couch b/c I had enough and he passed out. Really??? Then a couple of days ago he was sent to his room for hitting his sister and 45 min later he is asleep. Now also in the last 2 weeks ds has went to use the washroom at midnight and falls asleep on the toilet??? This is the third time he has fallen asleep on the toilet in the last couple of weeks. I will walk in and he is sleeping and j will wake him up and he stares at me like I am crazy. I tell him to get up and get to bed and he stares at me being he is dazed but gets up and goes to bed. Is it his age and hormones or what the heck? Very different on his part. Mar

I skimed through the post and just want to mention a couple of things. Ds grew up with eggs and milk. He loved them both. He craved milk and would want eggs all the time. He was always very fussy and wanted attention. My mom would say he is a hand full and was always crabby. Ds is allergic to both on a skin prick and blood test at the age of 7 1/2 . When he has any milk product he get congested we have not tried him on eggs. I recall putting a egg into a pancake recipe about 7 months into being egg free and though what could this do since he had them prior and he woke up the next morning miserable. He was sneezing and congested and told me to never give him eggs. I was shocked. One to take something out of the diet and see such a reaction it's amazing, Mat

Your story sounds similar to mine. Ds first showed tics in nov when he was 4. Went away within a couple of weeks . Came back the following year at same time with more . DH tics so I didn't really worry. Now 10 years old and sicknesses defiantly set him of . Before that at the age of 7 1/2 he completely went downhill with several sinus infections and tics full blown. Allergies showing to outdoor and food. It was real scarey. I never thought he was suffering with so many allergies and those defiantly cause tics with him. I was focused on torrettes for the first year bc DH tics but as I had them on elimination diets and started noticing that sicknesses and allergies make there tics get worst I no longer buy the torrettes. I see a correlation. When ds is on his diet and not sick his tics improve. I know believe that both my children have pandas and not torrettes. I kept a journal and kept a close eye with their foods and sicknesses and do see a connection. Mar

You should be very happy very with your DH and that is awsome that he is there. Sadly on my side I take care of all the finances and since ds had been 7 1/2 and now he is 10 DH has not done much. I recently mentioned some tests I want to do and he looks at me and saids how much is this going to cost? We should hold off for now. Does he really need them. but then he comes home today saying we should buy an Rtv. Really! He has no clue about anything? He is a dreamer like ds. I feel like come back to reality bit I fear there is no hope! Mar

I understand what you saying. I have dd who is very impulsive and will basically lie to my face. It's interesting b/c I can tell now when she is lieing but oh my she is good! Here is a good example, I made homemade pancakes the other day she wants another throughout the day I say okay take one and safe the rest for breakfast. She has had several throughout the day. So I folding laundry while she pops in into the microwave and as I go to get it she says " did I accidentally put two in there". I say you put two in there and she says really how did I do that. I did not notice that. Really she lies straight to my face. I say you didn't know that? She says no I didn't realize it!!!! She is completely lieing to me. And then I have ds who is the complete opposite and never lies. He feels happy when he is telling the truth. He is bothered if he lies to me.

Ok this video totally made me cry. This is the song I used to put up loud in the car every time I heard it when all these allergies and what not started with son. so when I seen the video tears are just falling down my face. This video makes so much sense. Mar

My son also has tons of allergies. I think if he is congested it could change the sound of his voice. I am wondering if his allergy shots are helping? I gave always wondered about going that route? My son has bad environmental allergies that were helped by watching what he eats. he has not been on any allergy meds in two years as long as he watches his diet he is not congested. Mar

This sounds like dd who is 7. She is very impulsive. There were several times were I told her to not go into the neighbors house and play outside. Ds would say that when they invited her in she says my mom does not want me to go in b/c she thinks you guys are sick. How embarrassing! Even ds was really embarrassed. Just the other day she wants to go outside ok. Can I go by neighbors yes I say but play outside b/c it's nice out. So neighbor says do you want to come in and she says my mom won't let me!! Really you tell me in the house that you want to ride your bike and then you sneak over there and make he look crazy. Ds says she does this all the time. She is a comedian also. She messes around to make people laugh. She has many friends and is a pretty and bright girl but does things that infuriate me or make me wonder. There is a 4 yr old she plays with on the block which she specifically knows is afraid of the dark. So they go in the Basement and dd will run up and turn the lights off on her. Of course the girl is screaming and I ask dd why. She says I thought she was behind me but I know she is lying. She has done this several times to this little girl and when I ask why she looks at me like I didn't do anything., so I played her game the other day when she is upstairs getting dressed and screams saying she heard something. I say really there is nothing up there and you are 7 and not 4 like your friend. I say wow i guess that's how your friend feels like when you turn the lights out on her. She looks at me and doesn't know what to say. I feel like I have to tell her to stop touching or doing something several tomes before she stops. She always has tk touch it or do it one more time. Mar.

I forgot to mention about DH mom that gets to me is that I will mention the tics b/c she should understand and she always says they will be fine think positive. One can think positive till they are blue in the face but that is not going to help!

Airial95 You just brought back some memories. First let me say that I have not told my mom about any of this . I honestly don't think she would understand and it would just stress her out which would stress me out. I am the one out of 4 kids who was sick a lot with sore throats and high fevers. I recall being carried in to the doctors on many occasions with high fevers and getting a shot along with the antibiotics. I would freak out every time I went to the doctors because I didn't want the shot. My mom would say you will not get one but I always did and I would stress myself out to the point of passing out every time I got it. I now wonder if i ever had rheumatic fever?? Then little things I do recall b/ c of my kids. I must of been around 7-9 and I remember not wanting to flush the toilet b/c I didn't want to waste water. My dad would yell and say you need to flush. I would once in a while but then not . I didn't have the tics my children have now those are all that DH has or had. But I do recall always putting my hair behind my ears b/c it would bother me. I still don't like my hair in my face. I also recall that when i had a cold I would suck in the snots at school because I was embarrassed to blow my nose. I don't know if this would be a tic. I would sniffle like my dd but mine was do to embarrassment. This is where you give me a wake up call. I used to always want to sneak into my parents bed. I would squeeze in by my mom so she could wrap her arms around me. It was up to that age too. My kids have always been Lilke that also. They always want to be on our bed. Here is another one, I was a bed wetter till about I think 8 or nine. I would wet my bed pretty much every night. I'm curious if this has anything to do with pandas. I was put on some pill that made me feel real messed up and thank goodness my mom stopped . I then just stopped wetting my bed out of the blue. I recall my mom talking to a doctor that told her that when I start developing it would go away and if did. My axiety is still here. I remember going away to college and living with a friend I was very homesick for the first several weeks. I felt real sad and wanted to be with my family it did get better and I was fine. I was supposed to get my tonsils taken out at about the age of 8 b/c they were huge and touching but mom backed out! My tonsils are very small now and i have had strep once in the last ten years with the high fever and misery. Yes i do see some OCD in me but DH is a lot worse. I think my OCD is focusing on the children. I wish my mom would of taken those tonsils out! I feel like my kids are just doomed with the history of DH and myself. Mat

Thanks for the reply. I know what you mean, I do try to ask how he was when little. I realized that if I mention something negative about me then she opens up more. DH has one sister that lives out of state and don't really talk to her much. She is not a big talker and is always studying and doesn't have time. There are no grandparents, aunts, uncles, cousins. The one's he does have live out of the country. So basically the only family DH has are his parents. If i can't find anything out from his mom then that's all I have with gaining any info. Let me tell you that whole spoon thing with your MIL would drive me insane!! I really feel for you! That's one thing I should be grateful for is she cooks food for them according to what they could have. And she has commented that I am doing a great job with their allergies and sensitivities. She said that she doesn't think she would be able to handle that. Mar

For the past two in a half years I have started researching Tourette's for the tics b/ c DH has them. I have asked his mom several times in the beginning if anyone in the family has them. Oh no she said. And I have never seen tics on his side. I have also asked her if DH was sick a lot and of course no not really or what i can recall. She said he started ticking at age 7 because his dad was out of the country for a while and when he got home DH would follow him everywhere even to the washroom and his tics appeared. She mentioned that doctor said it was just nerves with his dad being gone and that was that. So she knows I was sick a lot as a child with my throat and fevers and almost got a T&A till dm backed out. So I am talking to her today about dd and all this strep for the past month and tell her in could be in the nose that antibiotics can't clear. She says really. She asks again if I was sick a lot, I say yes . I ask about DH and she said he was sick a lot in Austria And they were considering t&a . But then they moved to the us and he seemed to get better. Am I going crazy but what the ######. I have asked her this millions of times and she never mentioned this about DH. I asked her if he was put on antibiotics and she says yes always. But when he came her he got better. I mention this to DH and he thinks his mom is crazy. But he was 6so he might not remember. What kills me if this is true she tells me this 2 1/2 years later!!! What is she hiding and why! If I knew about this before and with my history then I would have reached pandas several years ago instead of wasting over a year on researching ts and all the axiety on that. Crap why do I feel like DH and his family are all lieing to me. Well I understand DH because he grew up with no help or support from his family on his tics. He kind of hates them because they were never supportive and just yelled at him for everything he did. I guess I am in shock that his mom never mentioned this before. Now let me mention that DH has a sister 9 years younger that his parents idolize. She does not have tics and is very smart school wise. His parents put her through college and bought her several cars because " she is smart" according to them. DH had to babysit her and get out of school early to watch her . Worked three jobs in high school to pay for a car and cloths. He feel asleep during classes. And they screamed at him the whole time. Its because he ticked, he did not get a's in school and his attitude was different I don't know but how depressing. Sometimes DH annoys me but then when I think about how his parents treated him I just want to scream!!! He was the black sheep and his sister was born with the silver spoon in her mouth. But he is the one who needed the help. His mom now saids I'm glad the kids are grown and I don't have to worry. Really I know have two kids with issues and have to deal with your son b/c he is upset that you never helped him. Thanks Mar

So I have been researching and wondering if T& A surgery would help ds. My question is has anyone who has done this with a pandas child seen improvement? Or those who have done it that have seen nothing helping. A yes or no or anything you want to add. I don't want to put him through this if it doesn't help. Like mother-in- law tells me today no you shouldn't do it b/c he won't have anything to catch his infections. He needs his tonsils. She thinks I am nuts for thinking about it. Mar

So I started talking to DH about all signs of strep and pandas with kids and I am a talker he loses it. He literally looks like he wants to crawl under a rock. He saids I can't believe you guys all talk about this . Meaning me and this site. I say really but we are trying to help them. He saids well maybe I need help b/c hearing to you talking Is making my head spin. I don't know how you can process all of this and has to walk away. He said his axiety if up the roof and he feels like running out of the house from just listening to me. Really great talking to u DH. Just 5 hours ago he said test me for strep. He can't deal with any of this he gets axiety. He will listen to a sentence here and there but once I start explaining he just losses it and freaks out. Wow.

Quick question I asked doc today about son and she said that when he came in two weeks after his first strep his rapid and culture were negative that it means he is not a carrier. That he must of caught it again from someone. Does that prove he is not a carrier?

Thanks for you replys! She was on amoxicillin and don't recall the dose. But now I am made she was on that because I do recall several years back ds was on it and it didn't help until he got something stronger. Will have to dig back through their medical records. But what really interests me is this strep in the nose. I never knew that antibiotics can't clear it. Well I guess I should mention her rapid was negative today. Am waiting on culture. But her fever has been down all day and she seems happy. Still says throat hurts a little but has been eating all day without complaining. I always wonder if i take them in to soon but it would show wouldnt it? Ds on the other has taken a nap yesterday and today which is unheard of!! And ever since he seen a mini bike at costco yesterday will not stop talking and thinking about since!! He seems on the verge of tears b/c I don't want to listen to him talk about it for 10 hours straight. My ds was congested the last time he had strep so now I wonder about the adnoids ( I know I'm spelling it wrong). He always seemed to have congestion issues from a young child. I had an ENT look at them at one point and she said they look fine but have always had this feeling of what do they really look like inside. Thanks mar

You are her mom and from what it sounds like you have helped her tremendously. I know how you feel you just want the best and nothing but the best for her . There are times I look down on my iPod with head hanging and praying dear god help my children and help me help them. You are the mom you has done nothing but the best for you dd. You have helped her!! Pat yourself on the back and give yourself a great big hug for all you have done and for all your love! I am so happy to hear she is doing better!! Guilt follows many of us but you have to remember we could only stretch are hands out to a point. Think about all you have done and just watch her smile! That smile is because if you. Mar

I do change toothbrushes and have been drink out of disposable water bottles and if they do drink out of a cup I immediately put it into the dishwasher. Anything they eat from goes straight into dishwasher. I change towels frequently do not let them share. I will have them use paper towels in bathroom to dry. Thanks for the tip . I do change the hand towel daily but maybe should just use the paper instead for the time being. I have been letti g them lay on the couch watching tv when they have the fevers and making sure the other does not go near them. My children fear sick people b/c of how crazy I get with "don't touch or go near you sibling". I think I am going to have to keep them in their rooms for a couple of days when they are sick. I just need to stear them away from the rest of the house. I don't know what else to do. Mar