mar

Ds on his second strep this month on day 6 1/2 on antibiotic. Today dd says awe yeah mom forgot to mention that my throat hurt in school today!!!!!! I nearly passed out ! I look at her and can see it in her eyes that she has a fever! Yes 101 temp here we come again. She just finished her antibiotic from strep on Monday! Seriously how is this possible. Can they catch strep while on antibiotic??? Going to doctor tommorow to confirm strep!! I am so tired, confused and angry. Okay so if she has strep I am going In And dragging in DH to get tested. Another party will be missed this weekend she is going to be so sad b/c it's her BCF. Mar

Forgot to mention that the neighbor is working at a different school so ds does not see her staring. And at the beginning of this year the neighbors ds sat by ds during lunch and I told ds son to be nice and he was. . He didn't mind him sitting next to him As long as his other friends were there. He had a great year with an awsome teacher and he was not starred at during recess. The neighbors child slowly moved away from ds and is not on top of him all the time. Mar

Thanks for all the replies!! I feel like some of the replies just told my story. I often felt like my kids think I walk on water. it was kind of creepy I was afraid of making a move but over the years I have been pointing out my mistakes and acknowledging when I'm wrong and it has helped. I have been saying that no one is perfect and we all make mistakes along the way. we all have fears and things that bother us. At one point I sad maybe I'm add who knows. He says no your not. I tell him I'm always moving and who cares if it is or not. I tend to be sarcastic and ds used to not get it now he does it to me all the time which puts a smile on my face:) Well I guess the kid did throw the ball at him they were playing a game of throwing the ball at each other. My son unfortunately threw it too hard and we had to be there to see it. Ds didn't complain when he got hit but he retailiated and the other child cryed. I resently wanted to paint the laundry room door that leads to the garage. It was filthy and I usually don't do this but tell DH you have paint in basement right. He says your seriously doing this now (he always plans out his projects and everything has to be just right and set up) I say yes and go get the paint myself. I can tell I am starting to annoy him slightly but the kids are getting a kick out of it. so I grab a roller and go to town. They are laughing at me saying that maybe that is my calling. Of course DH is pointing at spots I missed and I tell them to back off trying to hummer them. So of course when I'm done DH says ther are marks you could in the light I say it's good and no one is perfect. Ds is laughing and agreeing with his dad. I tell them sometimes who just have to try and who cares if it's not perfect the door looks a lot better. This is just another lesson for my kids to not be afraid to do something and that things do not have to be perfect. Now I am starting to think this is obsessive compulsive and defiantly not AS. I believe my neighbors child has had this since the age of 2. Was not potty trained till 5, could not ride a two wheeler till about 8. Completely has no age appropriate social skills and could recite a book I. A heartbeat word for word. Ds was raised and played with him till about the age of 8. I so much wanted to say something to the mother but couldn't do it because she acted like he was fine. They questioned his spacey ness and lack of social skills and she would come to me and say how can they say this when he plays with your son just fine. I just bit my lip b/c he did not play with son just fine. Most of the time he was talking to me or admiring dd who was 2 and the neighbor would play ball and do fun stuff with ds. I can't tell you how many times ds ran into the house saying I always do everything for him but he will never play what I want and he keeps calling dd a "he" and it would drive him crazy. I always new this child had issues and would always made ds just be nice and go along with it. I understood my ds frustration and now even more b/c of the issues he has that I was not aware of at the time. But this neighbor would always start playing with ds or dd when her child was constantly giving me attention and wanted to recite his many stories. I was not able to play with my kids b/c I felt bad for him. Anyway ds ended up having him in his class in third grade. So at this point this was 9-10 months into finding out about ds allergies and tics and all other issues. So my stress was real high and ds was going through a lot also with his diet and all other issues. The year did not go do well for ds. The neighbor was always involved with the school. Ds would come home saying that she stares at him during recess and tries to sent her son towards my ds. But he will not play just wants to talk and my ds is very active and all over. This is when dd started questioning about the neighbor. "monmouth he runs up to the teachers desk to talk to her and he will never sit or lay on carpet to read eith the kids. Then they constantly sat him next to ds b/c he did better. Ds would tell me that during tests he would Tap him and tell him to do his work because he would be staring at the ceiling. So they figured out that if he was by ds he would perform better. But I noticed ds getting Burnt out. Once again the mother would be staring at ds during recess when her son would just stand next to her. Ds would tell me he feels like he is constantly being watched. I told him to ignore her and go along playing. Then at one point I remember her saying that a lunch room lady said to her my son seems very stressed like he has axiety. I told her really. I was like j just need to get him though the year and told him not to worry about neighbor looking at you and don't worry about their son he will get by fine without your constant help. I could not wait for the year to be over. I think I have mentioned this before but ds got the spitting tick that spring/summer. The neighbers dad kept looking at ds in disgust and telling him to stop. I knew that ds couldn't do it would upset me especially how considerate I have been with their ds. I was actually shocked that he was treating him like this. Another neighbors son started spitting also with my son. One day I am sitting by my garage eith this mother and get husband comes home from work and runs to my house pointing fingers and saying one of you spit in the garage!!! Who was it !! I know my son never did it in our garaged bug the other neighbors kid does it but his parents weren't there. Ds said it wasn't me. The other little boy who was 5 looked scared with no one there to back him up . That was my breaking point I guess. I know the 5 year old did it but had no backup. I could not take it anymore I told ds right there and then to no longer go on there driveway and to stay away from the house. I was sick of it because he would complain when Ds did it at my house or on the street. I felt like worry about your own kid and leave mine alone. Talk about OCD. Within that week their son keeps telling my son the spitting is disgusting and gross. My son told hom he does not want to play with him b/c obviously he cannot stop spitting and he is sick of hearing it. I am inside doing the books for DH business and the mom is nocking at my door all flustered I tell her i am busy. I just can't deal with this b/c I have so much more that I am trying to figure out and deal with like dd now with her symptoms at the time. My head and brain was in overtime!!! So then I find out from ds that the neighbor told him to come sit with her on the front porch as she lectured him to be nice to her ds and that her ds is trying hard to do the things that my ds is interested in and to give him a chance. One again I was upset b/c you do not pull an 8 year old out a group of kids and lecture him. Really you are completely stressing him out. You are pressuring him to play with your child when they have nothing in common. I think you all know my son from what I have written. This was torture on him . I couldn't take it anymore, I am a kink person but I needed to say something for my sons well being . I called her and told her that I will speak to ds about anything he does wrong and that there is no need to speak to him. I was real nice and just kind of laughed it out that I will speak to him about things and handle the situation with him. Do you believe that they have not let there child out for a whole year!!!! They never let him come out to play! Now here is the guilty me thinking maybe I should have not said anything b/c I feel bad for him. But everyone reminds me you did nothing wrong you were just protecting your son. How strange. Sorry I just went off. But anyway my son has done the monster truck and toothpaste scenario to the t. Mar

Sorry for asking all these questions. Even though I kind of know what it is it's nice to hear back that others are dealing with this and I have the confirmation that I am right. Anyway, here we go . This I something I have noticed in ds for years. Everything I say is taken literally. Back in first grade he told a boy who never brought a sandwich to school that he will die if he does not eat. The boy would only have chips and candy. That boy came to school the next day with a sandwich. I said why did you say that and he says you say that you have to eat and you can't live off of junk. That you need good healthy meals to stay strong. So today we are in the neighbors yard and ds whips a wuffle ball right at his friends side two feet away. The boy is crying because it hurt especially since they have no shirts on . I'm like why would you do that and he said he did it to me and shows me the red mark on his side. Of course I was upset b/c this boys dad is standing in the kitchen and his son is crying b/c of my son . So my son is like you always said to fight back if someone messes with you . He is standing by me for five minutes saying that is what you always say so why are you mad at me. He would not give in and whisper you are confusing me you told me to do that if someone hits me. He is giving me dirty looks the whole time and saying that's what you tell me to do. I think he felt bad and he's blaming it on me . So I'm all quiet trying to ignore him but when we get home I'm like what the heck was that. I tell him yes I have said if anyone messes with you and hits you then fight back. Basically never throw the first punch. That you should always Stand up for yourself. Teaching and talking about bullies. so I go to tell him that you are in a yard with 2 adults and you are playing with your friend and if he whipped the ball at you that's different. Come over and say something don't whip it back. He said you never told me that. That I am confusing him. I think it's common sense. He says you always tell me to fight back if anyone messes with me. Basically my kids take everything j say literally. Like dd would get new pajamas every day and she was out and I say you could wear the same ones for a couple of days b/c she said I wore them lady night. So now if I'm like just put those on she says I wore them two times and you said a couple of days and that is two times and I can't wear them again. So for the past year I am like whatever to everything. I am trying to be very vague and not be so specific b/c follow certain things to the t. So what could this be and have any of you experienced this. Mar G

Yes I feel that food allergies or sensitivities could make a difference. dd is allergic/sensitive to too many things to list and dd has some too. Sugar is not welcome in our house. It makes them go insane. Not sure if this is due to pandas. But other kids can handle it but not my dd. You really do have to try different things and I know some things that affect them bad. It trial and error. If you keep testing and trying you can eventually find it. I kept a journal for several years which was very helpful in the beginning. I was able to look back and see the correlation. Mar

That is too cute!!! I am glad he is doing well!! Mar

Okay I feel like crying again. You are the best mom and your girl sounds like the brightest girl in the world. I am so happy for you both! Moms like you give strength to others! Mar

Sorry I'm not sure how to reply to a particular post. This was for big mighty. At first I though ate you serious!! Explain more!! That was way to funny!

Okay ds strep on may 9th. Took him in on may 16 for recheck all is good. Dd positive on may 18. So past couple of days ds looks real tired and says he thinks he's getting sick. Do not notice any increase in tics but is crabby and somewhat emotional. He made a " mat hat" and put it on his head b/c I made him made. He wouldn't stop talking about a micro pig ( that's what he wants for a pet) we have discussed this for days. We looked it up and they get big but anyway I basically said we are not having a 70lb pig in the house and I am done talking about it. So he thinks I'm mean and just lays on the couch with his made hat on. Does not want to go outside or do anything because he is mad. I grab the had eventually and put it on and act all grumpy and charge towards dd. I get a laugh out of him and squeals of happiness from dd. I am praying this is allergies with his tiredness and congestion and some coughing but of course that would be to good to be true. I get the wake up call at 6:15 of mom I feel real hot!! 103 fever here we come. Dd is still on antibiotic and we just got through with her high fever of five days starting last Friday. Family birthday party for them both tommorow down the drain. So take him in to Walgreens to get strep test b/c sick of sitting at doctors and of bringing both of them there to catch some other bug. Rapid shows a little sigh not full blown but says the line is staring to turn pink. Also one of his Lyme nodes seems swollen in neck. He has fever congestion and cough no throat pain. 10 days of antibotics prescribed. Ugh!!! Beatiful memorial day weekend he will be stuck inside. I feel so bad for him. This has been a month of ######. I am sick of high fevers! I swear if dd gets sick even though she is on antibiotic still I will have to dig up that mad hat and go crazy or just sit in the corner and cry!! Mar

Sorry I'm not sure how to reply to a particular post. This was for big mighty.

Thanks for giving me a good laugh! I needed that.

Sorry but quick question again. Wondering what this could be. DH and notice it in ds that when they get excited or just want to explain something they will actually do the movements. Like when ds talks about motorcrossing he will be on the floor showing me movements and what not when he could just say it. It's lke if they dont show you how it's done they feel like you don't understand. I tell him just tell me. you might think I'm mean but i guess once again j see it on DH and it does annoy me . DH had gotten on the floor to express things and now it freaks me out. Where I am just explain it and call it a day. Like if ds is taking about a dog he will get down on all fours and act like a dog and i would tell him how there is no need for this. DH will explain to a point of no return and I will say yes or no. They both feel the need to explain things very thoughly or they feel like the person does not understand. when I tell DH to just get to the point he will think I'm crazy. There was so many times before I found this out with the kids and DH would be explaining something in front of his parents and say I don't get it he would be like you don't understand. It would drove me nuts b/ c I am am a college graduate . But guess what I do get it more then he wants to believe. DH now fears me , he never saids I dont get it or never makes a comment of me not undersatanding. Because he thinks I know way more then the average person. Sitting at his patents house now they all look at me like I am queen but who still had no answers. Mar

I have a question if anyone had seen this or experienced this . I always talk about ds b/ c this is all where it started. But I have some questions about dd. first of all dd is one of those who could lie to your face and you get stumped until you get to now her. She is good!! I think she could be an actress. I can read my ds in a second, he can't lie or get past me at all but dd is something else. But what worries me about dd is that at times she looks dazed. For instance she will ask me something and i explain it and she takes a while and says oh yeah!! It like she has to think about it and I keep explaining more and she will say oh yeah. I just feel that things don't click . It kind of funny but DH is the same at times. She is very smart and bright. But it's the whole what and dazed look and explaining and ah yeah hits her. she forgets simple things. So perfect example the hose is making noises outside I try to explain why and someone would get it and she is looking at me like what? I explain it again and start to get frustrated its probably b/ c DH gets like this at times . I hate repeating myself three times But am wondering what this could be. Like I said she is bright started reading chapter books when she was on kindergarten. But if you exaib too much at times or whatever she takes awhile to register. What kills me hs DH husband is like this at times. I have been with him for 15 years and their are many times where I am talking and I can tell he is somewhere else. The attention span maybe but just not remembering. It's always do u remember this and then the oh yeah after explaining several times. Mar

So ds comes home today saying he had very bad news. Of course the first thing that goes into my head is what did you do!!! But he saids no I am ok let me show you the letter. A fellow 4th grade student pasted away this weekend due to a freak accident. He was on a boys scout camping trip and lost his footing while exploring caverns and fell into a ravine. So as I am reading this I completely get goose bumps and chills and I look at my son and thank god he is right there in front of me. I think about the mother and just want to start crying. This poor mother does not get a chance to fight and help her child. He is my sons age and he is gone. That's when I realize at least I could fight and help. At times I just want to give up and curl in a ball but my son is here and he needs me and I can not give up!! Many of times I feel like this is all so hard and why can't my life be like other parents who walk around with no care in the world b/c everything is fine. No allergies, tics, OCD, add, strep and what not to worry about. But after reading this letter I thank god my children are here and I can see their smiling faces!! Life could be so much worse. Thank goodness ds is doing okay with this young child's passing. He never had him in class but did know him through mutual friends. He tells me he was very nice and kind and would never do any wrong. He is in shock. He says they would joke around during recess a couple of times. He does have questions about heaven and hopes aiden went there. I tell him he absolutely is there and tell him to say some prayers and that will make him happy. He said he did already. Sorry to pass along bad news. The thing is when you hear these tragic stories sometimes it gives you a smack in the face to wake up and keep chugging. Mar

I am wondering what to do. When I was ds age I was scheduled to get tonsils taken out due to constant sore throats. Mom got scared and didn't do it. I constantly had sore throats the fevers as a child. My tonsils were huge and recall seeing white pus coming out of them as a child with a sore throat. I wish she would of just taken them out. They have gotten a lot smaller now nothing compared to where they were practically touching when I was younger. I have been pondering about getting ds tonsils and anoids out. He always has issues with his nose. One mother mentioned that when her son got a MRI on his the doctor was shocked and got them removed. Just wondering if getting tonsils out and anoids helped with strep infection? And if surgery went ok with pandas children???

So it seems that testing for titers is not accurate. Should I not waste my time and ds freaking out about needles for the test? Also wasting money that will not prove anything. Basically what will this test show me that j don't see already. You moms out there are so strong. All your kids are so lucky to have you. I pray for all these children that they can find relief. Also kind of crazy but as I am sitting in doctors office waiting for her to get called in I open up a parents magazine and of course I see an article about pandas. I think to myself is this a sigh??? Mar

I always thought this has to be torrettes. I should of listened to those couple of moms who said pandas. But I was confused at the time and didn't understand all of this and was basically in shock. But crap ds is constantly ticcing. I truely believe and see that this is pandas!!! He has been doing well because he has not been sick as often. Dd spiked to 104 today. Ds is ticcing and over all behavior is some what different. Thank goodness he is not extreme like before but do see a change. Still wondering if he is reacting to dd or if I should try him on more antibotics. I have not been giving him his vitamins lately because want to test him for pyroluria. He actually questioned me today saying why am I not giving any vitamins to him. Usually he can care less. He seems to want to be by me. Not excessive but feel like he trying to tell me mom help me here b/c he knows I understand. What scares me that ds had leaky gut b/c of all his antibiotics in the past and allergies. Throwing him on more antibiotics freaks me out. Why can't this be easy!!! Pondering what to do!!

I will call tommorow. I was going to ask when I was there with dd but of course my head is 100 miles away at times. Thanks, mar

LLM So this seems to not be a standard urine test that could be done at his ped office? I will have to ask to see if she will do this. When you dI'd the 24 hour catch what type of container did you put it in? Do they send one for this? Sorry for the silly questions. Could you pm me with your helpful hints. I would like to be prepared before I bring this up to his doctor . Thanks for the info. Mar

Ds had positive strep last wed. Went back this wed and rapid is negative and have received a call about the culture so am assuming its negative. They usually only call when positive. What I'm seeing with him is facial tics. Lots more then usual. He seems more excited and basically is acting a little different. So dd walks in my room this morning saying her throat hurts and she feels hot. I literally wanted to pull the covers over my head and just not get up!!! I was like &@"?&@great here we go again. So her rapid is positive. She was sniffling and throat clearing all day other then that very mellow. Ds facial tics are still around. I wonder if he is now reacting to her or if his strep could still be there even with negative results. I swear if he gets it from her I will completely lose it!!!!!! I am counting down the days till school is done. This really sucks b/c he was doing so well. He heard me tell the doctor that I think he might still have strep and now that his sister has it I think he is freaked out. Mar

LLM What is the exact name of the test you took for pyroluria. You mentioned that the zinc plasma is not accurate. I want ds to get this tested next week by ped but I want to make sure I am asking for the correct test. Did you do a morning urine sample or a 24 hour collection. Any info on this test would be so helpful. I really think he has this so I want to make I get him tested correctly. Thanks, Mar

Is the strep blood test the aso titer and Anti-DNase B . This is the one I am trying to get. Please let me know if it's the right one. I am new with the testing. Mar

Dd was put on azithro fro 5 days last wednesday due to rapid strep test being positive. Went back today for recheck. Rapid is negative and is being sent for culture. I asked if I could do blood test for strep and she said that since he recently had it it's going to come up high so it won,t be a real indication. My question is do I need to wait to do this test? If yes then how long after strep? If I do it now how will I know if it's due to recent strep or due to pandas? Thanks Mar

Well they were out today to to apply their solution to sanitize the attic which will terminate any mold growth. From I have been told the mold on the wood joints was because wood was wet before home was built. Good think is it's only on some joints. It's not on the plywood which is a good sigh (I think thats what you call it) we came to this conclusion because on a couple pieces of wood there is actually a strip that goes through it which is not black if that makes sense. That is where the joints had the plastic straps on them to hold the piles of would together. So the house smelled of chlorine as of your in a indoor waterpark. Luckily it was a nice day so windows were open and smell went away. Tomorrow they will be applying the Microbe guard Duraban anti-microbial treatment to prevent further growth. After today's treatment they will show us tommorow that all the black is gone. The final treatment is clear so it will look like there was never a problem. Which is better than another company that was going to spray the whole attic white. I can't wait till this is done. Mar