philamom

Yes, while I agree that allergies (or anything that causes inflammation) can increase symptoms, I find many doctors just use it as a diagnosis, but don't look for an underlying cause. When this latest episode began for my dd 2 years ago, we took her to a Neurologist who said her intusive thoughts, contamination fears, rages, exc., were due to seasonal allergies and wrote a prescription for claratin. All for a price of $250.00! If it were only that simple!

I have tried a few over the years. The only one that has done anything for me is the one made by GiaWellness (formerly a different name, I think it was BioPro). They have several devices--pendant, something to plug in for the home or office, and a variety of "chips" for electronic devices. While I found them all helpful, the chips were just marginally helpful, not worth the money for me. The pendant and home harmonizer both have been and continue to be very helpful for me, the home harmonizer even more so than the pendant. The GiaWellness stuff works on the principle of randomizing the EMF's that are around. This brand may or may not be the only one using this principle, but some other brands do use different principles--adding "good" energy, or trying to block the EMF's, and so on. I really had tried a number of them several years ago, I got to the conclusion none of them are helpful. But then when my employer installed wireless at work, I had a severe problem, and out of desperation ended up trying the GiaWellness, after seeing it at least works on a different principle than the others ones I tried, so it had a chance. For me, it has been a true life-saver (or, more precisely, job-saver, literally), as my sensitivities to these things have just been extremely high. Michael- can you explain what the home harmonizer is?

y

Thanks for all the info. Only the C3D was done on my daughter. I'll inquire about the others.

Is this the same as C3D Circulating Immune Complexes (C3D Immune Complex)?

Can I get info. on the blood test? Can it be done through Quest?

Would the PANDAS doctor be willing to try a different antibiotic? I have found that many drugs used for anxiety to have the opposite effect with my daughter. You might want to post this on the PANDAS forum for more support. Hope you have better days soon!

My dd9 is positive for band 41 (plus other bands) with Igenex. But, even though band 41 is not lyme specific, it's usually one of the first bands to show up with lyme (Bb). My dd is also positive for Bartonella with Specialty lab and RMSF with Quest.

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y

Any word on your mold testing and T&A lab results?

y

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I've been away for a while, so trying to catch up on all the posts. My daughter is also itchy, especially at night. She itches herself while sleeping. It started when she began antibiotics for PANDAS over two years ago, so I do feel it's some sort of herx. It's not so bad for her during the day.

Wendy- I don't really have anything to add, just wanted to send a big hug your way!!! I hope it is just a herx...and short-lived!

y

As I type, only $10 more is needed for the immediate upgrade. If you were going to make a $10 donation, I'd apply it to the upgrade so goal can be met. For a larger donation, I'd apply it to the website category, as that will be the harder goal to meet. This month's maintenance has been met, so now we can move on to building a better website.

Maybe try some benadryl cream on the rash. It will be difficult since it spans the entire back, but it did help clear the few that popped out when I was on doxy. It might be wise to snap a picture (no flash) and forward to the llmd.

y

y

maybe...thanks for sharing.

Well, my daughter failed 10 of 14 serotype of S. Pneumoniae, and also H. Influenzae. This was done in Nov/Dec of 2009...haven't re-tested. I'm so glad to hear you are doing well with it! I'm sorry I misread, I meant to write daughter! No worries. Are you using the VSL #3 regular or double strength?

Well, my daughter failed 10 of 14 serotype of S. Pneumoniae, and also H. Influenzae. This was done in Nov/Dec of 2009...haven't re-tested. I'm so glad to hear you are doing well with it!

I'm sorry I don't know. Maybe try googling... Ok...I don't like what I googled. My daughter doesn't eat sugar free foods or drink soda, so not sure how she would have an elevated reading. It seems pretty high. And PKU seems like something that would be diagnosed at birth. I'll have to contact the doctor who ordered the OAT test (at my request) since he never got back to me about the results. I assumed it was fine...I'm sure it probably is. Also, you can call Great Plains Lab. and ask for customer service- I've called before, and in fact, they used to (pretty sure still do) set up an appt. for a free consult with each test. But they have people in customer service that know the tests. Thanks...I'll try them on Monday.

My daughter also strongly reacts to the S. Therm in many of the probiotics, so I avoid them as well. She reacts to all supplements and probiotics when first introduced, but, nothing like the reaction I get when I try VSL. It's ashame, because it's a great probiotic. I currently give my dd 250 billion cfu of probiotics daily. Last year she got c-diff while taking only Florastor.