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PhillyPA- are you getting them done locally? How many ivigs has your son had?

lyme mom- so glad to hear you and your son are done with treatment and feeling better! I'm sorry I forget...but don't you have another child with Lyme? Is he/she still being treated? Again, great news!

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Hello- My CD57 (Natural Killer (NK) Cells) test from Labcorp was denied by my insurance as being experimental. Anyone else have this problem?

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Is Dr. Dalmau helping you receive IVIG? Does he administer it? If no, is he recommending a doctor who will administer it?

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We just had the doctor sign the Igenex form and paid for the testing with our credit card (listed on form). Then when Igenex finished the testing they sent us a detailed receipt to submit to insurance for reimbursement. Our insurance reimbursed us 70% in the past and just recently covered 90%. Our insurance does not require a medical letter of necessity. Note- when submitting form to insurance, be sure to circle the comment of using the modifier code. Our insurance never applies it, and covers the IgM/IgG as one test (since they have the same cpt code). I always have to call them to get the rest reimbursed.

Thank you Wendy for the update. Such a thorough doctor! Dd also has high HHV6 titer.

Any suggestions on the best way to make a good dairy free coconut smoothie? It would have to hide most of the coconut taste.

I just wanted to "like" this post. I also think we cannot begin to understand how much these kids are going through that we can't see. Do what you can to support his efforts. LLM- I love your posts! This was a great reminder for me today -- just what I needed...Thank you!

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Thank you.

Grace under Pressure- My dd got it at age 5-6. It was couple months after her first major onset of symptoms. I also was told it was related to her immune system. Laure- I wouldn't be suprised if she has Bart...very similar to PANDAS symptoms (neuropsychiatric/behavoral). I don't think molluscum would disappear after scratching them...it usually makes it spread. It's been a while so I sort of forget. Sounds like something else though.

My daughter had molluscum for 9+ months before it finally went away. There were a couple of threads on it...you could try the search box, if you need more info. Of course, it could just be a herx??

Tired Cobbie- I feel like I could have wrote parts of your post myself. Hang tough, Cobbie! That's a lot of bicillin shots...he's a trooper alright...I would have cried thru all 24. Melinda

We're not completely dairy free but try to limit most dairy. Is the coconut milk dairy free? Ifran- thanks for the info.

laure- do you think it could be molluscum contagiosum?

Ifran- I am so glad you are seeing positive results. Could you elaborate more on the three supplements you are giving...brand/dosage? Thank you!

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