CSP

Thank you Chemar, That was helpful.

Hi Tracey, How old is your son? since we did not really watch or even know what TS was when my son was younger then12yo. If I had to guess back before he exploded, I would say my son had tics that disappeared for long periods of time. This would be the reason we did not notice a habit of ticcing. It was not until 12yo that it was everyday every second. This is the only thing I can tell you that may relate. CP

Chemar in the link from neurotalk the person says that coconut oil is omega 6. I cannot find anywhere info on what king of "omega" coconut oil is? I was wondering because of the Omega 6 being inflammatory and coconut oil being a good anti-inflammatory oil, this did not make sense to me. Do you have any info that could clear this up fpr me. Thanks, CP

It is On CBS, This would be a great time for you all to e-mail your childrens' teachers letting them know it will be on. It is such a great movie to educate folks who really did not know much about TS. It is wonderful for us as parents to see it, because we see through Brad how one can grow and still do well, doing all that with a happy heart. Brad has such a great spirit it is touching to watch. CP

Patty, I'm happy for you, thanks for letting the board know how this is helping your son. So how are you? CP

That's a tough call. The scenes where he is a boy could be hard on a child if they have a hard time with their tics, because of the how frustrated he is when adults don't understand him. Most of the time the other children are laughing because I think they believe he is the class clown. I do not believe they make fun of him, but that is hard to know how a child would view that. It really is a great movie. Good luck, CP

OOPS.... I thought it was darling not (dear)

fixit, I'm daily suprised at how much we all do think alike. I dreaded 3:45 too, and to make it worse I was always waiting to hear him come down the street. One could hear him from 5 houses down the road. I also could not wait until 9:00pm when he went to bed, it was the time I felt like I could think. If I woke up during the night I would begin to panic as I hated the mornings. I knew I would be hit with a blast of ear percing screams as soon as he opened his eyes. Yes, I hate the wax and wane, just when you feel like things are getting better... BAM... your rollercoaster starts again. I envy those who were able to let this roll off their backs at the beginning. Even tho. Fatih and I tease I really do not drink, I'm suprised I did not start, and I was very close to medicatiing myself. You are so not alone. Believe me it does make me feel better that others have had a hard time, not because I wish that on anyone, just to let me know I'm only human. My son had 2 shots 6 weeks before he exploded. CP

((((((((((((fixit)))))))))))) I'm so sorry you are feeling like this, but I understand. I really did think my son would never stop screaming. Please try to picture this... it is true... My son's vocals were something out of a horror movie. You would never believe how bad it was. He screamed all day every second. He did this for a year and I was paralized by it. I could do nothing for that first year. My husband was there telling me every day, "He will be fine," yet I could not bring myself to believe it. My head told me we were being punished for some sin we commited. After he turned 13 he went from screaming to really loud vocals. that lasted a year or longer. Last year during his 15th year until now at 16 he has been mild. So yes, it can get better after time. I still think my son will get even better after he fully gets in those last darn teeth. My son plays baseball, takes martial arts, and is a volunteer fireman. He volunteers also at the martial arts school and helps the little kids after school with their homework, and plays games with them. They all love him and fight to be on his team... whatever they are playing. It warms my heart to see that so many people love my son, and it puts me in my place when I lose it with him from time to time. One of the hardest things for me to do was... step aside and stop trying to control this. Please know I'm not saying you are doing anything wrong, I'm just telling you what I feel I did that did not help me. There is nothing wrong with the way you are greaving, you will find peace in your own time. Remember you will not fine true comfort in this world, or from any human, (esp a Dr.) only God can heal your hurt. We are here to let you know, we know all to well the emotions you are going through, and to give you that hope... that yes... this can get better. If I had to thank God for the horrable nightmare I went through... it would be because I get a chance to talk to other moms and dads who are just trying to come to grips with this life changing ordeal. I know at some point I will be handed another blow... and I will have to pick up the pieces again. Remember God is so close to you in your grief, he has counted every tear. God Bless, CP

Thanks Cheri, I may have to try this just before my son goes to FF1 classes. (for memory) So was this also to work for motor tics? CP

Maybe we should have a thread labled, "CONFESSIONS" I know I have a lot. I thought I would share this: My oldest dd last summer was working on a college essay that had to be about someone who impacted her with some life changing experience. She titled it, "Two People and One Disorder" her essay was so profound to me because I was able to read how my non-TS child witnessed the physical aspect and emotional aspect of Tourettes. She is so personally proud of her brother who in her eyes, silently accepted his suffering. She saw me as an emotional rollercoaster, but watched me pick myself up. She listed a litany of accomplishments her brother and myself had to overcome to unlock the shackles that kept us socially awkward. It was a beautiful essay and I was so proud of her that 4 years ago at 14yo she was able to see how two people she loved suffer, one physically the other emotionally. She ended her essay with, "Let his light shine." To honer her brother's accomplishments. CP

Hi Cheri, I remember I wanted to ask about Epstein-Barr, form another thread but forgot. So one can be tested for this? It just made me think after my son exploded with the tics after vaccines. Do you think Epstein-Barr could trigger TS? CP

If you all don't mind I'd like to take a crack at this problem and have Faith on my couch. I believe this stems from the fact her son erases over and over his work, so... PRESTO.... I have solve the problem... A DEEP HATRED FOR ERASING!!! WOW... I'm good... I did that and I only drank half my vodka bottle. I Love you, Faith, CP

I just wanted to put this out there... Of all who have had their child's T&A out, did you notice they did better in school? I mentioned this to faith in a PM, but thought maybe some of you had noticed this with you child. My son school history: K-5 I would say all A's age 12 start of the explosion of vocal tics (grades 6-9) C & B student with his best subject math taking a tumble. Today (grade 10) first quarter 2 C's, 3 B's, 2 A's. T&A done in Nov. The 2 C's were in history and science both are now A's, Spanish 3 was a B now an A. English was a B- and is now a B+ So I was wondering if he was getting better sleep after the T&A and so getting better grades. He does have to keep a C in all subjects and give his report card to the fire dept. or he would be kicked out. so I'm a little confused on why he is jumping from C's to A's. Not like him to push for A's he would be fine with just getting by. Comments anyone? CP

P.mom, Yes, I do believe she is having some sort of panic, but she thought it was because of the medication. I know my friend and, P.mom, and she is prone to worring just about everything. I think you are right on this one. Do you take anything for it? My friend was told this could last a year, and she was to rest, rest, rest. Allison I did not mean to bring this subject up thinking your dd had (Costo) I just thought it was intersting that they were on the same med. and my friend was sure the shortness of breath was from that.

faith, I think the sleep issues would be the #1 reason to have it done. I have been told taking them out as an adult with sleep apnea does not work, so get it done while he is small. Vickie, I think you said something about talking funny. My son always sounded like he had a cold. CP

P.mom, I guesss that would be it. She said she feels pressure around the heart, does that sound right? She never said hotness of breath so I don't know what you mean by that. She said she was given the medication to keep the immflammation down. She has been to the ER so much in the last month the Drs. did not know what she had, because she also had burning and itching of the skin. They know believe the burning and itching was caused by the dyes in the medications she takes. She also said in addition to the short breath, her heart rate drops then speeds up and she feels like she is having a heart attack. Does that all sound like what you are going through? CP

Allison, My friend was told she has costocongitis, and is taking the same medication your dd is taking, and she also has been having shortness of breath. Dr. have told her it was panic attacks too. She does not believe that is the case, and thinks it is from the medication. Costocongitis has to do with the heart and so the Dr. told her shortness of breath has nothing to do with that, so she feels this is a side effect. She also would like to stop the medication but has to go slow with the weening. Hope that helped. cp

Hi Faith, It was because the ped. thought it could not hurt to take them out because we knew it could help with the sleep apnea. It was kind-of a "not to sure if we have PANDAS or not, and he thought tonsils were large. He was set back on how large after he took them out. CP

Hi Faith, Just wondering if your son eats very little or he eats normal and just burns it off quick? My son did say since his T&A he can tell his food intake is larger then before the T&A. I feel his tonsils were making him think he was going to choke so he would not eat until he was full, just chewed his food a lot and then he was done. Or he would feel something and ask if he was going to choke and die. So when he said, he can feel that more food goes down now, I know he does not feel like he is choking. Dr. did say his tonsils were larger then he even thought after they were removed. CP

Welcome Cathy, I was wondering if you are able to get Hallmark movies? There is a good one out right now about a US teacher who won an award for teacher of the year and he has TS. Our school district baught this movie to show the teachers so they could better understand TS. I also had a hard time getting help until my son's vocals were so loud I knew he could not hear instruction over his own voice. This really helped to get him special help in school. I have a friend who has two boys with aspergers and even though their aspergers is different in the brothers, the one thing they do share is "social shyness." The other thing I remember is she said they were developing slow when they were young. Both boys are very very bright in math. They are 13yo and 16yo now. I also gave the book by James Patterson, "Against Medical Advice" to the school special-ed teacher. she read it and really thanked me for that because it helped her to understand my TS son better. Good luck, CP

Hi Q's mom So glad to hear from you as well. That is really wonderful about you son. Wish I could say mine was tic free, but I'm happy it is better. Oh... and he is cleared to ride, spent his first night at the firehouse Sat. Poor baby has duty on Superbowl Sun. doesn't know what he will do with that HUGE screen TV they got. cp

WINE???? Try the hard stuff... and who needs a meal.

Hi Caryn, So good to hear from you too. So do you think my son will have a reoccurring yeast problem? This was caused by to much abx. I have treated him with starving the yeast and he has only been drinking coconut water/water. His white tongue is gone now, and I have let him have mayo and mustard, and some homemade sweets. Just wondering if I should keep watching this or is he "OK" now? He never had a yeast issue before. Thanks, CP