Chemar

My son is TS not PANDAS but he has always had OCD (and ADD) both of which are also recognized as fairly common co-morbid TS conditions....so I am not sure why the absence of OCD yet the presence of a strep history would result in a TS not PANDAS dx ? When my son was first dx TS (12 years ago now) I heard about PANDAS and went to a number of physicians until we finally got to see one of the few physicians who recognized and researched and treated PANDAS. My son had no history of strep at all, but he presented with many of the symptoms so I was determined to go to a PANDAS specialist. I would agree with others that you may need to get an accurate evaluation by a PANDAS specialist, especially with that history of strep and the current regression again off the abx kleek3, I do hope that you and dh can unite in all this As an aside..... I wonder if perhaps this thread has indicated how confusing it can be to only use Dr initials here. I know it is often easier than writing out the names, and has maybe become habit, or that some even think it is required here.... but confusion obviously arises when more than one doc has the same last name initial, plus confusion for newbies too not knowing who the initials refer to when they are desperately seeking PANDAS docs! I know admin prefers members not to "trash" docs by name here on the forums (best keep those to PM ) but in a general discussion it may bring more clarity for everyone to know from the start what doc is being referred to IMHO

Hi and welcome though sorry to hear what brings you here I am bumping your post up so that members here can reply

TS and PANDAS are not mutually exclusive so yes, someone with "classic" TS may indeed also have PANDAS and v.v. I fully understand that, especially because of the fact that some physicians still don't recognize PANDAS as a valid dx ,and others who misdx or are totally ignorant about it...the natural instinct is to immediately try to refute things like this....so that is why I am just sounding a gentle word of caution as sometimes we can cause a lot of confusion even when our intention is just to help.

the product that technodad linked is Natural Calm, starlygirl I am not sure what the recommended dose is for a 6yo technodad but you could call the company they also make a Kids Calm liquid multi that has a good dose of magnesium in it, but they used sodim benzoate preservative in it which is not good!

Hi please note that the random ads that run are NOT endorsed by ACN/Latitudes If you do a search for that product on the forum you will find I think that there was a mixed response but not any definitive positive reports

Hi and welcome yes, anything that one is allergic or sensitive to can trigger tics as when the immune system ramps up, it seems that tics increase. As far as the cat goes, there are special cat shampoos that actually neutralize cat dander and that are very successfully used by people who want to keep a cat but are sensitive to the dander. There are many assorted brands on the market. Seems a lot easier to treat the kitty than cause it stress by rehousing. Also, you mention your house is new and so I wonder if the known tic triggers of new carpet (formaldehyde) new woodwork (arsenic) or new paint may have a role? And yes, the outdoor allergens from your specific area may also be triggers.

to read more please go to: http://www.nejm.org/doi/full/10.1056/NEJMoa1203378

Hi and welcome bumping up so others can see your new post

Hi when my son had throat clearing tics he found that sucking a candy helped (we only used ones with no artificial stuff that could be additional tic triggers.... this is a good source http://www.naturalcandystore.com/

It could be two-fold....the stress/excitement of back to school as well as the subtle changes as we approach change of seasons.....many factors related to that! Both these have been noted as being potential "tic triggers"

Hi sounds like tics to me Here is a list of common tics http://www.tourettesyndrome.net/wp-content/uploads/CommonTics.pdf

Hi honestly there are so many variables in your son's situation that I think you best beginning is to find a doctor who can guide you. The fact that you have a TS diagnosis yourself obviously increases the genetic possibility that he has inherited at least the predisposition for it. That combined with the strep history makes PANDAS worth checking into as TS and PANDAS are not mutually exclusive. Then it also seems there are possible other factors that trigger his tics. So finding a physician who will carefully investigate all the possibilities instead of just giving him a label is the best course of action I think Have you tried the Epsom Salts baths? That really is a great way to get some transdermal magnesium in as well as having the relaxant effect of the mag sulfate. hope you find answers and paths to the right treatments. Be sure to read the Helpful Threads pinned to the top of this board and the PANDAS one. Lots of good info there! Also consider Sheila's book as it is a good basic foundation http://www.latitudes.org/book.html

Hi there and welcome I am bumping your post up for answers

Hi Carolyn well it is hard to say as yes, it is a recognized tic but whether your son is doing it as a tic or for some other reason?? is almost impossible to know at this young age. If it is a tic then the babysitter is making it worse by focusing on it. IO assume she knows your rules about healthy foods and is not giving him anything that could be triggering it? when my son had a lip tic, we found that soaking a chamomille tea bag in some warn water and then applying the bag to the irritated area really helped to soothe it . Drinking the tea is also calming.

Hello most magnesium is ok unless it is magnesium oxide (which is sadly the one put in many supplements..) Mag oxide is very poorly absorbed and a total waste of money! If the child has Tourette Syndrome, then often magnesium taurate is good because it provides the benefits of both magnesium and taurine, both of which are known to reduce TS tics. If the tics are due to another cause, then it is best to try to find out what is causing the tics. I am not sure what kinds of magnesium walmart sells. You would need to check the dose guidelines for a child as it is also dependent on their weight. When my son was 10, it was recommended he take 300mg a day

agreed! excellent news and thanks for sharing it here

welcome to the forum sorry your post got held back a while before showing....I am bumping it up so others can reply

Hi my son only has the magnesium that he gets naturally from food, along with his Thorne Research Multi & regular Epsom baths (2-3 a week) If you don't feel that the NUCCA is helping then it seems a waste of your time and money to continue. My son saw the chiro to help with the fact that he kept putting his neck etc out with tics, not as a cure for the tics ie the chiro helped allevate pain, discomfort and misalignment caused by the tics, and often alleviating that helped calm the tics some. My son's TS is really not much of a bother to him anymore, He is now 23yo. Some minor tics from time to time

hi and welcome bumping your first post up for replies

sorry it took a while for your post to clear the anti-spam hold bumping up for others to respond

As explained on the website I linked, NUCCA chiros do cervical vertebrae realignment. They use very gentle pressure and other non forceful adjustments. You can get a lot of info by looking at the website and yes they are all over the USA and again, the website gives a list of accredited ones

It is related to dopamine/genetics/ liver if I recall correctly Someone once posted a research article here explaining it

I am confused? If you don't have any PANDAS symptoms, why do you want to follow that route?

Hi Lilly I merged your two threads as it is far easier for others to understand your initial question that way Do remember that our forums here are primarily focused on natural and alternative/complementary treatments so not many may have been on medications. My son was not ever on prozac as it is not recommended for children, but he was once on Luvox which is also a SSRI and that weaning was done under doctor supervision and very very slowly over a period of a month as withdrawal from those types of drugs is very hard. Even so, it was still a hard time, and the only thing that really helped was visits to his acupuncture therapist, plus those daily epsom salts baths to help the detox. MY son was also on special supplements to help with the detox/withdrawal We found a lot of help from a book by Peter Breggin MD titled "Your Drug May Be Your Problem" where it has detailed instructions on withdrawal from all kinds of psych drugs http://www.breggin.com/index.php?option=com_content&task=view&id=17&Itemid=42

Dawn I really suggest that you take a look at our PANDAS forum pinned "Helpful Threads" for updated info for example, here is one of the posts there http://www.latitudes.org/forums/index.php?showtopic=3928&view=findpost&p=27173