Doctors we have seen who helped with PANDAS

[bulldog24]

Great Psyhcologist in Quincy MA

 

Dr. Michael Rundlett

(617) 890-1120

He was the only doctor who believed me that my son has PANDAS. Excellent with kids. I cant say enough good things about him

[KaraM]

Massachusetts: Watertown

 

Dr. Jeanne Hubbuch124 Watertown St., Suite 2F Watertown, MA 02472

email: drhubbuch@aol.com

phone: 617-744-0401

Fax: 617-744-5346

 

She is a holistic, family practitioner and uses a combination of western medicine, herbs and homeopathy.

 

She is not a PANDAS/PANS expert (yet), but is willing to run tests, etc.

She is a DAN! doctor as well.

Edited March 26, 2012 by KaraM

[minimaxwell]

Dr. Fulbrigge no longer sees PANDAS patients.

Dr. Kenneth Bock in Rhinebeck, NY (specializes in integrative medicine and also a DAN doctor)

Dr. Robert Fuhlbrigge in Boston, MA (pediatric rheumatologist at Children's Hospital Boston)

Dr. Raif Geha in Boston (pediatric immunologist at Children's Hospital Boston; specializes in immunodeficiency)

 

There were so many great responses to a request earlier this week for doctors who have helped with PANDAS that I feel it may be helpful to start this topic in the forum.

 

Please, if you have seen a doctor in your area who has been helpful, can you please post the state and name briefly, perhaps to provide a resource to parents along the way. I sure wish I had this at the beginning.

 

Perhaps we can list the city/state in the subject heading for ease of access.

 

TMom

[Lor]

I'm in desperate need of a pediatrician in SW Florida who understands PANDAS/PANS and will prescribe ABX. We live between Ft. Myers and Naples. Dr. Distasio (pediatrician) referred us to a neurologist. Dr. Distasio is not educated on PANDAS/PANS and does not believe in prophylactic antibiotics. I couldn't get an appointment with a neurologist in the area in less than 6 weeks. I finally got in with a pediatric neurologist, Dr. Osterman, who had a cancelation, and he diagnosed my 9-year-old son with PANDAS but neither doctor will prescribe antibiotics!

 

My son meets the criteria to be in the NIH clinical study for IVIG, but could be excluded b/c I can't find a doctor to prescribe the prophylactic antibiotics. Please let me know of any pediatricians in the area who are familiar with the condition and treatment of PANDAS/PANS. My son's 10 day course of amoxicillin runs out on Sunday. It has helped to lessen my son's sudden-onset OCD and I'm not looking forward to an increase!

[Chemar]

I'm in desperate need of a pediatrician in SW Florida who understands PANDAS/PANS and will prescribe ABX. We live between Ft. Myers and Naples. Dr. Distasio (pediatrician) referred us to a neurologist. Dr. Distasio is not educated on PANDAS/PANS and does not believe in prophylactic antibiotics. I couldn't get an appointment with a neurologist in the area in less than 6 weeks. I finally got in with a pediatric neurologist, Dr. Osterman, who had a cancelation, and he diagnosed my 9-year-old son with PANDAS but neither doctor will prescribe antibiotics!

 

My son meets the criteria to be in the NIH clinical study for IVIG, but could be excluded b/c I can't find a doctor to prescribe the prophylactic antibiotics. Please let me know of any pediatricians in the area who are familiar with the condition and treatment of PANDAS/PANS. My son's 10 day course of amoxicillin runs out on Sunday. It has helped to lessen my son's sudden-onset OCD and I'm not looking forward to an increase!

 

Dr Tanya Murphy is at the Univ of South Florida and is one of the first physicians who recognized and began treating PANDAS.

Tanya Murphy MD

 

Rothman Center for Pediatric Psychiatry

 

880 6th St S

Dept 7523

St Petersburg, FL, 33701

Phone: (727) 767-8230

Fax: (727) 767-7786

 

 

[bulldog24]

Why woukd you be excluded because of that? once you go to nih the rx abx till study is over. Pm me for details

[Kiera]

Dr Melanie Alarcio, pediatric neurologist, Phoenix Children's Hospital, Phoenix, AZ. Great Pandas treating Dr!

[Nearlydoc]

Dr. Elisa Benaim -- Pediatrician in Memphis, TN http://pedseast.com/doctors -- Dr. Benaim has treated several children with PANDAS and has consulted with specialists. She is most helpful and really loves the children.

 

Dr. Dean Klug-- ENT in Memphis, TN http://www.mid-southent.com/sinus-center/

 

Dr. Greg Hanessien -- Allergist and Immunologist in http://www.memphisallergist.com/

[DsMom]

Redmond, WA

Dr. Cynthia Keller

Redmond Pediatrics

Only accepts new PANDAS patients and she's got a wait list, but she is WONDERFUL.

 

425.881.KIDS (ph)

[LaurenK]

Dr. Najaar. NYU Langone. Doesn't treat children but treats me aggressively for PANDAS with IV steroids, PEX, IVIG whatever it takes. My son sees Dr. T. We are located in NJ. Thankfully PANDAS treatment is pretty easy here.

Edited July 25, 2012 by LaurenK

[WorriedDADNMOM]

DR ALLEN LEWIS---INTEGRATIVE PEDIATRICS---COLUMBUS,OH

 

http://www.integrativepediatricsofohio.com/

 

 

HE IS A DAN CERTIFIED INTEGRATIVE/BEHAVIORAL PED. SO FAR WE ARE VERY HAPPY.

[TheresaC]

Cincinnati, OH

 

Jennifer Wells, OCD CBT,ERP therapist: Lindner Center of Hope; 513-536-0600; 4075 Old Western Row Road, Mason, OH 45040

 

Brian Duermit, D.C. (homeopathic care); 513-683-4387; 3116 State Route 22-3, Maineville, OH 45039

[JenniferG]

Dr. Joseph Brown

 

Connecticut/Mass

 

www.drjosephbrown.com

 

Clinical psychologist

[cub]

Looking for a Dr. in the Kansas City area? Thanks

[ashlynn]

Would like to here from anyone who has been to either one of the Drs. mentioned in Charlotte, NC or Chapel Hill, NC. We have been to over 17 Drs. and therapists over the past 4 years. Went to a neurologist @ Duke who did not believe PANDAS exists. Our DD had sudden onset OCD,separation anxiety,became school phobic,almost catatonic the first week of onset. Psychiatrists x 4 have had her on every possible combinations of meds in existance it seems. We finally took her off of it all as none were helping and making s/s worse.

We are beyond desperate for help.