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WorriedDADNMOM

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WorriedDADNMOM last won the day on January 25 2016

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  1. IGG is previous infection and IGM is current or acute infection. There needs to be some reference for negative,positive or positive H for high. Without seeing the report.....it is hard to tell. My kids' was IGM 5.9 with 0.9 or greater was considered positive.....ours said 5.9 H
  2. #Fthisshow....is my first response. 2nd is.....get a good Pandas doc....get treatment......tell your story to as many as you can......Truth always comes to light and wins.
  3. I would concur...more likely herx from abx as apposed to xclear. Maybe try the xlcear brand rather than making your own and see how that works.
  4. Remember.....you get what you pay for. Flat out refused to pay for doctors who wouldn't, couldn't treat Pandas/Pans. Paid many multiples more for good doc.....on a good path currently.
  5. DC Watch this vid series. It really helps you understand how and why certain "mental" health issues are more biochemically involved with gut health, immune issue etc... 5-6 part series. Very layman's terms where anyone can get it.
  6. http://www.pandasnetwork.org/research-resources/us-providers/ I really recommend the guy from Gahanna,OH....about a 4 hour drive from Ann Arbor. He is integrative where he will focus on the whole child. All aspect pertaining to immune system, infections, chemical imbalances, nutritional/mineral deficiency, allergy......It is very comprehensive and thorough approach to healing our kiddos.
  7. Where in Michigan??? I can recommend REALLY GOOD DOC north side of Columbus,OH with a probable long lead time to get in to.
  8. This is beyond unacceptable. Do not pay any bill where a doc treats you, your child or your concerns this way. Get to a DAN/PANS/PANDAS doc sooner than later. REPEAT.....DO NOT PAY ANY BILL WHERE A DOC DOES THIS. TELL THEM YOU HAVE NO INTENTION OF PAYING.....IF IT GOES TO COLLECTIONS....STAND FAST AND DO NOT PAY AND TELL THE COLLECTION AGENCY WHY YOU ARE NOT PAYING. They will get it and no pursue it....unless they are really big jerks.
  9. I would agree on the tonsils. I also would say that while abx are hugely important....supplements for immune support and overall health are equally important and critical.....just in a different way. Getting to a Pandas/Pans/Lyme literate integrative doc will be huge in seeing gains in health and immune function.
  10. Pandas....probably not......PANS......YES. I know kids who had febrile seizures post flu mist. So Yes.....I would say there is a link.
  11. Spot on Mama2alex!!!!------echoing.
  12. Echoing Dasu.....better to hit it early and stay ahead than let it get full blown.
  13. Sachromyces Boullardi is critical for anti yeast when doing long term abx like zith. It can be taken at the same time as the abx and the probiotic away from the abx. We like zithromax. I would say a worsening of symptoms for us was actually a normalizing of the immune response.....ie mycoplasma titers high....then zith.....and a big letdown of mucous from the sinuses and chest......being able to get it out. I also will say that zithromax has immune modulation properties and stopping cold turkey is not what is best........see below video. A M,W,F prophylaxis for a period after the long term is recommended to not cause the immune response to reactivate. https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=1&cad=rja&uact=8&ved=0ahUKEwiE-N_5_bjLAhVGKiYKHQ4wBOEQtwIIHzAA&url=https%3A%2F%2Fwww.youtube.com%2Fwatch%3Fv%3Du7Mn-v5f23A&usg=AFQjCNG6VBOpoJ_Co5ERfJPoDyT5d5IfwA
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