Jump to content
ACN Latitudes Forums
Sign in to follow this  
Dylans_Mom

Handwriting Help

Recommended Posts

My son Dylan has what I believe to be PANDAS although this is not a medically confirmed diagnosis. We have seen great improvement using alternative treatments to try and attack his allergies and strep issues. One thing that is remaining that is causing some trouble in school is his handwriting issues. His handwriting is so hard to read and I don't know what to do. I never thought this was associated with his tics or ocd untill we tried a Naet treatment on strep antibodies and he seamed like a new boy for almost a month. While he is still 90%-95% improved his handwriting has once again deteriorated. When he writes he writes over and over the same letter on top of itself making it very hard to read the final product. His teacher is trying to get him approved for occupational therapy to help this. She did say it can take several months to get this approved if he qualifies. I am having a hard time finding info on what this therapy involves. I have heard some mothers mention it in this forum. Are there things I can do to help coach him with this problem.

 

When I sit with my son to do his homework I am constantly reminding him to only write the letter or number once. He says it is so hard to stop himself from doing it time and again. I don't want to harp on him I know it's hard for him to control. Is my constant reminding helpful or harmful. He is bright but how can a teacher grade a paper she can barely read.

 

Are there books that describe coaching methods to help with compulsions. Or does anyone have suggestions.

 

Dylan's Mom

Share this post


Link to post
Share on other sites

Dylan's Mom,

 

I can not give you advice on what to do. I think that OT is your best bet. We did consider private OT at one time when our son's handwriting was at it's worse because we couldn't get the school system to work fast enough. Then things started to get a little better and we held off. The doctor told us that alot of PANDAS kids have trouble with fine motor skills. Looking back, my son always struggled with those type issues. He always hated to color in pre-school. He was always so smart, but I didn't think the kid would ever tie his shoes. Honestly, he is almost 12 years old now and he still begs me to buy him slip in shoes. Not that he can't tie them now, but he just hates it and can never get them tight enough. His handwriting is still pretty awful, and his Dad is on him constantly about it. He alway shrugs and says he will just type everything on the computer when he is grown. I can always tell when he is having a flare up, he starts having trouble in math and his handwriting gets so bad you can hardly read it. It is so odd how similiar some of the children are. My son's science teacher told me last year that you really have to get on that OT pretty early to help with handwriting because that becomes a pretty permanent pattern early on. I would keep on the school system, call every few weeks. You know the drill, the squeeky wheel and all that. Good luck!

 

Dedee

Share this post


Link to post
Share on other sites

We are going through the same process with the OT right now. My son is in kindergarten. We have struggled with the fine motor for a few years. He hd trouble forming letters in preschool and hated to color and cut and paste. His is worse during flare ups too. Andrew is smart like Dedee's son and prefers to type on the computer. He also has no interest to tie his shoes and can not ride a bike. They are all similar which is pretty amazing! Dr. Murphy said to get the OT right now too. She said this is the stage of the game where it can make a difference. We go the presciption from her. I am sure your ped could write one. Then ask the school in writing for an OT evaluation. If you have any diagnosis give it to the school with your request. They then have so many days(30) to get a meeting together and come up with a plan in writing. You will be in on the second meeting where they sign off on the plan. Best of luck and keep us posted on your progress. Andrew's first IT meeting is Thurs. I will let you know how it goes. The school said it will have to be proven that it is essential for him to get OT at school. I could take him to a therapy place but I thought I's start with he school. Hopefully the diagnosis and prescription will get us help at school.

Michele

 

Dylan's Mom,

 

I can not give you advice on what to do. I think that OT is your best bet. We did consider private OT at one time when our son's handwriting was at it's worse because we couldn't get the school system to work fast enough. Then things started to get a little better and we held off. The doctor told us that alot of PANDAS kids have trouble with fine motor skills. Looking back, my son always struggled with those type issues. He always hated to color in pre-school. He was always so smart, but I didn't think the kid would ever tie his shoes. Honestly, he is almost 12 years old now and he still begs me to buy him slip in shoes. Not that he can't tie them now, but he just hates it and can never get them tight enough. His handwriting is still pretty awful, and his Dad is on him constantly about it. He alway shrugs and says he will just type everything on the computer when he is grown. I can always tell when he is having a flare up, he starts having trouble in math and his handwriting gets so bad you can hardly read it. It is so odd how similiar some of the children are. My son's science teacher told me last year that you really have to get on that OT pretty early to help with handwriting because that becomes a pretty permanent pattern early on. I would keep on the school system, call every few weeks. You know the drill, the squeeky wheel and all that. Good luck!

 

Dedee

Share this post


Link to post
Share on other sites

Dylan's mom,

 

From what you described about your son's handwriting, it seems more like a compulsion than a hand writing issue. If it is a compulsion, IMHO i may not want to harp on him too much as stress can possibly cause even more stress. Perhaps cognitive behavior therapy may be helpful.

 

My son also had fine & gross motor skill issues. This is what's helpful for my son. I have a table just for arts & crafts with crayon, sissors, paint, glue, hole punch, paper, yarn... that are assessible 24/7. So he does artwork all day long (It helps that we don't watch much TV. Otherwise, he would be in front of the tube instead). I also let him play with playdough or make playdough. We have a small garden for the kids, so l let him water with the hose and dig dirt, that helps with his fine motor control too. We also do alot of messy or water play. Glitter glue sticks are great because the squeezing helps with better finger control. We gone thru tons of them.

 

Pat

Share this post


Link to post
Share on other sites

hi Dylan's Mom

 

the writing over letters and erasing them to rewrite can be an OCD behavior

 

my son had a lot of problems with this and so his 504 plan had built in accomodations to allow him to use his AlphaSmart in class and to be able to type all homework assignments

 

once his OCD had been brought under control with the specific supplements for it, this area also got better, tho writing accomodations remain built into his 504 as even tics can interfere with writing, especially long assignments

Share this post


Link to post
Share on other sites

That is interesting to hear about the writing over letters, however does he form the letters niceley? Although my son has beautiful penmanship (for an 8 yr old) the teacher has mentioned that he erases alot, and when she writes something down to show him, she said he goes over it again so it will be in his handwriting or erases it and does it over. I notice the erasing aloth during homework too, its like every letter has to be perfect or he's not satisfied (compulsion?). I'd be interested to know about the OT too, as we are in process of putting together the plan for him, but who will determine that? I guess after he goes through the evaluation. I am not happy with the time it takes either, they said it will be about 60 days to go through everything.

 

Also, Dylan's mom - are your son's tics still under control since the NAET treatments? Had you ever noticed this type of handwriting thing before or just recently? Or is this something that was resolved, and is not starting again?

 

Thanks

Faith

Share this post


Link to post
Share on other sites

Thank you all for your replies.

 

The tics are still better. I have not noticed his new tics in a couple weeks. We have been treating specific strep and brain antibodies over the last couple weeks with NAET. Strep Viridens antibody, M12 peptide antibody, streptolysin O antibody, Myelin Basic Protein antibody have all been treated. We still have Deoxyribonuclease Antibody and Hyaluronidase antibody to treat. I don't know if these are making a difference. Dylan's new tics are so infrequent that they are hard to notice unless you really watch for them. Maybe they are gone again? I hope this is not a wax or wane cycle. We have never seen this type of cycle before he was always just getting progressively worse. While I am hoping they don't come back I realize they may.

 

Dylan's writing has always been bad. The only time I've thought it was good was the month following the first strep b antibody treatment. Then school let out and he is back to the same old writing when hschool got back in. I never thought his bad writing had any assosiation with his tics and ocd untill I noticed it get better all the sudden last school year. This is when I really started watching him and realized it was the repetetive writing that made it so bad. I always thought he just wasn't trying to write nicely. I've been trying to find a NAET treatment that will clear this up again because I'm so comfortable with them and I don't think they can be doing any harm. I don't think I should put all my eggs in one basket though so I'm trying to find other ways to help with the OCD.

 

When Dylan does his homework I sit by his side and when I see him copy over a letter I gently remind him to only write the letter once. He sighs erases the letter and says, " Sorry I forgot." I think this is constructive but I don't know what is going on inside him. This does increase the time it takes him to do his homework but I think it is helping.

 

Chemar, you mentioned suppliments for OCD. If tics are currently under control which suppliments are more specific to OCD issues.

 

Dylan's mom

Share this post


Link to post
Share on other sites

there are a couple of supplements that seem to be helpful for OCD and the different ones work a little differently so it is a case of finding the best "fit" for the individual. They all help to boost serotonin levels, which seems to help with OCD, anxiety, depression etc

 

the safest is INOSITOL, a B vitamin, best taken with combined B6, in the mornings

 

others that can be helpful are methionine, or better yet, samE

 

 

as well as

5HTP and L-Tryptophan ( these two are very effective, but a bit more potent and so should be used more carefully, especially in children, and starting at the lowest dose in the evenings, as they promote sleep too. Some people dont react well to them and so any edginess or bad reaction means best to not take it anymore.

They should never ever be taken with SSRI meds like luvox,prozac,paxil,zoloft etc as that can lead to serotonin spiking which is very dangerous!

 

 

St John's Wort (hypericum) is also found to be very helpful for some.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
Sign in to follow this  



  • Announcements

    • Administrator



      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator



      Disclaimer

      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010
  • Help us learn if blood type has a correlation with PANDAS/PANS   78 members have voted

    1. 1. If you are the biological mother of a child diagnosed with PANDAS or PANS (or you believe the child has PANDAS or PANS), please select your blood type below:


      • O +
      • O -
      • A +
      • A -
      • B +
      • B -
      • AB +
      • AB -
      • I Don't Know

    Please sign in or register to vote in this poll. View topic
×