8 year old boy with transient tics

[lmcgill]

Results from the alergist was negative for all his tests. I should be glad, but I feel still unsettled as to what caused the tics in the first place, and can now rule out common alergies. The Dr. did say his tonsils were very large, we have had him into see a ENT specialist before and made us feel stupid for sugesting his tonsils be removed since he was under weight compared to his twin sister and most other males his age. His tics are under control right now, so I should just learn to relax.

Lenny

[faith]

Just curious as to what type of allergies he was tested for (environmental?) and what type of test they used.

 

Also, just as a side, wanted to mention my child is also slight and light weight and although no pandas connection to date, allergist did mention he had big tonsils too. Just noting the similarities. Anyone else fit that profile?

 

Thanks

Faith

[Cum Passus]

Faith.... once again... the same on our end. Large tonsils and small weight. No PANDAS here, Titers are very low, if that means no strep. About the Iron he is only deficient. Very healthy boy, superstar in PE. He is so healthy I find it hard to believe he is deficient in anything. My husband was the same too. Oh and the same for husband about the tonsils and small build... NOT SMALL ANYMORE. (HEE HEE) Must be all the boxing he does with our son.

 

C.P.

[lmcgill]

His test for allergies were for food and dust, pollens etc, we were told it was the standard tests done here in BC Canada. We did tell the Dr about my mother being Celiac, but he didn't seem to be too concerned about that.

Interesting about big tonsils, as I said, the Dr basically said he would not take out tonsils due to our boy being slight in weight, he is tall, like me, and he said he may allways be slight, leave him alone! (exact words). I had my tonsils removed when I was 28, and gained weight almost instantly.

Lenny

[Chemar]

Lenny

from my limited knowledge on the subject, enlarged tonsils are usually a sign of something irritating the imune system

 

no need to have them out, but a possible upping of his antioxidant foods and supplements as well as natural antimicrobials like honey, garlic, and possibly olive leaf extract, monolaurin etc

 

Do you have him on natural yoghurt and /or a probiotic?

[lmcgill]

Is natural yogurt good for the imune? I am not familar with a probiotic. He loves yogurt, but unfortunatly he loves the stuff in tubes!

[faith]

Thanks C.P.

It's good to see the similarities and commonalities. Who knows, maybe together we'll all discover the common denominator!

 

I think I remember the Dan doc (also an allergist/immunologist) mention something like "yea, he's allergic, he's got big tonsils" and he was having my son blow hard into some blowing tube. So it makes sense that maybe that is a sign of something irritating the immune system, as that is what allergy is, right?

Imcgill, I think Chemar meant yogurt and probiotics are sources of the same thing, which is friendly bacteria for the gut. So glad you are in a good phase.

 

Faith

[Cum Passus]

Chemar,

 

About the yogurt/kefir in our case. For about 3 years my son had a wort on his leg. Then last year when things really exploded his wort became worts. I have been giving him Kefir for about 8 months and before that plain yogurt. His worts slowly went away. I was told worts were a virus of some kind. I'm wondering if the kefir gave his immune system something it needed to fight off the worts. What do you think?

 

Also I got a free sample of raw milk to try, is there any reason you can think of that the raw milk might increase tics? Any info you might have would be great. I'm just wondering because of the bovine liver problem we had.

 

Thanks a bunch

C.P.

[Chemar]

CP

Kefir is a true health gift! We use it, as well as the Stoneyfield farms natural yoghurt as our source of probiotics and yes, I do feel it will have helped to heal the worts and many other things too!

 

re raw Milk...I honestly have no knowledge of whether it would impact tics unless of course there is a dairy allergy

I personally dont use raw milk as I dont know the source and that would trouble me

 

Instead we again use only Stoneyfield farms organic whole milk

[lmcgill]

I am going to check with a couple of local stores that specialize in organic and/or natural products and see what they have for yogurt. He cannot tolerate milk, gives him abdominal pains, (like me) and seemed to increase his tics at that time when he had them. I am sure the lactose was the problem, I know that yogurt does not cause the same problem. We give him organic soy milk and he likes it.

Lenny

[kim]

Lenny,

 

This may seem like a strange question, but I'm wondering if your son, by any chance has a lot of joint mobility? Have you ever considered him double jointed, or noticed that he has more flexability in his joints than most people?

[lmcgill]

No, he seems fairly nomal in that respect, a little less active as some of the other kids due to his slight weight.

I did get him the natural yogurt and he seems to like it.

Lenny

[lmcgill]

There has been a slight setback this weekend. He has started again with some abdominal and shoulder tics. Racking my brain as to what we have done different. The only thing I did was change his B12 complex pill after it ran out with another brand that was much cheaper at Costco. Besides being a much lesser dose, it looks like it has very similar ingredients. We also got a box of "smokehouse almonds" that he has been eating every day for a school snack. Last night I went a got the same B-12 bottle he had before and will take him off the almonds, but somehow I wander if these things are the triggers. The term "waxing and waining" seem to come up in several posts/books I have read. Maybe this is just that. Last night he had a lot of Pizza just prior to going to bed and couldn't sleep for hours. He complained his stomach was twitching and he felt weird.

He has been a few days shy of 3 months since he has really had any noticible tics, I hope we can find the trigger and not let them progress.

Our case is so minor compared to most other cases on this forum, we know he does not have TS and is not AD, but our goals are the same, and that is to do all we can for our children. I don't know of any parent that wouldn't trade places with their children if that would make their lives better.

Lenny

[lmcgill]

Reading some other posts I agree, it is a roller coaster. We had some tics come back last weekend, after changing back to his regurlar b-12 (Natural Factors) he seems to be tic free again. Wish so bad I could figure out the cause, but I should just relax and be grateful but of course I can't. I keep coming home waiting for him to tic, I watch him so intensely that even when he moves I think it might be a tic! I need to relax, neither him nor I or my wife bennefit from my stress.

I had mentioned he was on the smokehouse almonds, has anyone heard of those being a trigger?

[faith]

Hi Lenny,

Could you elaborate more on the b-complex that you used and then switched to. If anyone recalls, I have been wondering myself about my son's reaction to b vits and have been experimenting. My current suspicion is that he seems(?) to tic more while on something in b complex--niacin or folic acid? So I'm cutting it out for now. Could you tell me more about what's in your b-complex and the one you switched to? So you think he had minimal tics when you switched back to the old one? Please let me know your experience. It would be interesting to know other experiences with B's.

 

thanks

Faith