PLEASE SEND YOUR PRAYERS OUR WAY...

[ForyouCG]

Tomorrow will be the 2nd IVIG infusion my son will be receiving. Please say a prayer for my boy Chris. I am trying not to feel nervous but I can't help but to feel that way. After the 1st infusion, he got a little worse and it is now that I'm hearing some words again. As I have mentioned, my son is autistic and was very verbal before but when PANDAS struck, he lost alot of speech, what I call regressive autism or probably PANDAS all along. Time will tell.

 

You all have helped me tremendously...and my prayer is that I too can help others.

Thank you and God Bless

Maribel

[Blessedwifeandmom]

Maribel,

 

I will definitely keep you and Chris in my prayers.

 

We are just now starting this journey into treatment for Pandas and I have found this site so helpful as well.

 

Cindi

 

Tomorrow will be the 2nd IVIG infusion my son will be receiving. Please say a prayer for my boy Chris. I am trying not to feel nervous but I can't help but to feel that way. After the 1st infusion, he got a little worse and it is now that I'm hearing some words again. As I have mentioned, my son is autistic and was very verbal before but when PANDAS struck, he lost alot of speech, what I call regressive autism or probably PANDAS all along. Time will tell.

 

You all have helped me tremendously...and my prayer is that I too can help others.

Thank you and God Bless

Maribel

[philamom]

Sending lot of prayers!!! Please remember to hydrate with exta fluids.

[Fixit]

Tomorrow will be the 2nd IVIG infusion my son will be receiving. Please say a prayer for my boy Chris. I am trying not to feel nervous but I can't help but to feel that way. After the 1st infusion, he got a little worse and it is now that I'm hearing some words again. As I have mentioned, my son is autistic and was very verbal before but when PANDAS struck, he lost alot of speech, what I call regressive autism or probably PANDAS all along. Time will tell.

 

You all have helped me tremendously...and my prayer is that I too can help others.

Thank you and God Bless

Maribel

 

Prayers on the way.....

[tired mom]

Adding Chris and your family to my prayers.God Bless!!

[kimballot]

Praying for a smooth process and a positive outcome -

[EmersonAilidh]

Expect a prayer from Texas tonight. <333

[bronxmom2]

A shout out from the Bronx, neighbor!

good luck.

[Healingthedude]

Prayers from NJ too

 

Drink lots of water and my doctor calls in Ibuprofin suppositories to the compounding pharmacy

for afterwards to manage headaches and avoid nausea.

 

Once we switched to these there was no more throwing up for my son.

 

Best of Luck for a smooth treatment and continued recovery.

[JuliaFaith]

Best wishes for your child's treatment and continuing good health afterwards!

[T_Mom]

Praying for Chris and all tonight--

[ForyouCG]

Tomorrow will be the 2nd IVIG infusion my son will be receiving. Please say a prayer for my boy Chris. I am trying not to feel nervous but I can't help but to feel that way. After the 1st infusion, he got a little worse and it is now that I'm hearing some words again. As I have mentioned, my son is autistic and was very verbal before but when PANDAS struck, he lost alot of speech, what I call regressive autism or probably PANDAS all along. Time will tell.

 

You all have helped me tremendously...and my prayer is that I too can help others.

Thank you and God Bless

Maribel

 

Thank you so very much for your prayers and well wishes. I am deeply touched by all of you. 2nd IVIG was a toughy..he was poked 6 times with IV needle. Everytime they got the IV in a vein, the vein would blow. My poor guy was in pain and discomfort. The hardest part was holding him down through this while he was also having bad motor tics. It was sooo heartbreaking..

 

The infusion started at a slow rate but then within the hour the doctor infused it alittle faster and oh my gosh, my son started getting such a bad headache, holding his head and crying. Doctor immediately lowered the speed and gave him toradol and valium through the IV which helped. I was so scared and sad..So hard to see one's child suffer.

 

Thank God today he has no side effects, just a mild headache which I am treating with meds and lots of hydration. He's feeling better..

Slow recovery but he's recovering..

Will never give up until I get my boy back.

 

Thanks again and God Bless you and your children.

 

Maribel

[PhillyPA]

How old was your son when he got regressive autism?

[ForyouCG]

How old was your son when he got regressive autism?

 

Hello PhillyPA, just read your PM, thank you...my son is presently 14 yrs old and regressive autism just happened 8 months ago. My son changed from one day to the next. Being challenged with autism was never an issue. PANDAS struck and our world was turned upside down. I agree with what Peglem says in other post, she says that PANDAS is what may have caused her daughter's autism while very young. I too believe this is true for my son.

It just doesn't add up sometimes...

[PhillyPA]

OMG! 14 years old. I can't believe it. And I thought age 5 was bad. Did the doctors suspect PANDAS right away? Your son must be so scared.