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Blessedwifeandmom

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About Blessedwifeandmom

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  1. My son is 12 and weighs about 73lbs. I give him 200 mg every 8 hours or so. We just started this 2 days ago and I can tell a big difference.
  2. Maybe what Swedo meant was that is easier managed as an adult. I sure hope it gets easier for my son. I would say my son is a mild case compared to Sammy or some of the others I've heard of, but it's still very hard.
  3. Later in the broadcast Swedo mentioned that she followed up after 8 years or so had gone by after a study and over half of all of the kids grew out of it by eighth grade or high school, some the symptoms were so mild they didn't consider them a problem, and some were be manage with medication. I do remember the host saying what you are talking about though.
  4. Reading your post is so encouraging. I'm praying when we go back to the doctor next week he will begin testing for co-infections/lyme. My so has his worst day in a long time yesterday and we are still on Azith...like day 18 or something like that. He has had some okay days but he still seems to be doing some herxing or just reacting to the abx....who knows???? I feel like I'm going in circles. I pray this will all end soon. The tics especially the ones with grunting and sniffing start to really bother me after a while. He seems the worst when he is trying to get to sleep. It's like his tics ar
  5. I listened to the live radio blog tonight with Sweedo and I think she said most kids grow out of it before high school. Has anybody had this experience or know anything about this? I had never heard this and I was thinking my son (now 12) would be living with it forever unless the traditional therapies worked. He is on Azith now and actually it seems to be making him worse not better. I'm on day 18 and his tics yesterday were at an all time high. He also just got bloodwork back and he has some elevated thyroid antibodies and low TSH. I'm hoping addressing this next week might help as well. Has
  6. I was encouraged to know that most kids grow out of it. I had no idea about that. I was thinking my son might suffer for the rest of his life with this. Also, we haven't done any behavioral therapy and after what she said about the success being as good as some of the other treatments, I'm going to be doing that as soon as I can find a good therapist.
  7. Yes we have him on it still and things seem to be a lot better than when I wrote this. I'm holding my breath as I type that... He definitely got worst immediately when starting it. It's so hard to know what to do. It seems no case is just like the other. We go back to our doctor in two weeks and it seems like forever from now. I'm thinking about finding an LLMD as everyone seems to benefit from that type of doctor. Praying for a miracle for us all, Cindi
  8. I know you I'm to space the charcoal at least 2 hours from ABX but what about supplements, probiotics and ibuprofen.. Should I give charcoal before or after bedtime supplements. He is in a major herx right now and I need to give him the charcoal to help him be more comfortable, but he also takes some supplements right before bed that are pretty important. I also just gave him ibuprofen for a bad headache and I want that to work also. The timing of the meds is so hard. Also when we were on Augmentin he took Culturelle but still got C-diff. Any suggestions on the best pro-biotics to use fr
  9. Just talk to doctor and he thinks it's probably herxing and to give him some activated charcoal. however I didn't mention lyme or anything to him. I have just read somewhere I think that if kids have such a reaction on Azith, it could be a clue that it's LYME. Thank you for the quick reply.
  10. Sorry this is so long. In 2006 son started overnight with tics and sever separation anxiety. We thought all those years it was mild tourettes with anxiety. Then I learned about PANDAS. I started learning about PANDAS in Sept. of 2010 . We just thought he had transient tics, very bad anxiety,and OCD. I had started supplements in September when his symptoms had gotten worse while we were on vacation. He seemed to get better. A couple of his tics (eye and facial mostly) totally disappeared for about 3 weeks. Then they reappeared with a rash, so I thought I needed to take him back to the
  11. Well he woke up this morning with a horrible migraine and his neck hurting. He's still ticcing more than normal, the sniffing and grunting are driving me up the wall, but I'm not letting him know it. Last night at bedtime he slept with us and he was sweating,shaking, and feeling like he was going to throw-up, which is one of his biggest fears. It's like I would imagine it would be if somebody in major withdrawals coming off a drug or something. Thanks so much for your kind responses. It helps to know I'm not alone. My son is 12 years old and I homeschool him too. However, I don't think we
  12. We did a round of Augmentin in November and I don't remember this happening. He got some better when taking Aug, but got C-diff so we had to stop and take Flagyl for 10 days and the C-diff got better. We decided not to go back on Augmenten and his was off all Abx for about 8 weeks. At out last doc appt, he put him on Azithromycin and he seems like he's getting worse. How long before you see improvement usually with Azithromycin. He is on 250 mg once a day. He is 72lbs. Please tell me this is a good thing and I will see the light at the end of the tunnel. I'm so tired.
  13. Just wondering if anyone can tell me if this looks like P.A.N.D.A.S. 12 year old son- Tourettic Tics, OCD , Severe anxiety (especially at night), Intrusive thoughts. The doctor did the test below and we will see him again, but I have the results of some of the bloodwork and wanted to see if any of you had similar results and if I should have any other test run? He had his ASO titers checked also a couple of months ago and the were high as well 360. low TSH, high T-4, suggest testing for thyroid antibodies and repeating this lab in 3 months. Anti-DNAse-B- 425(high) Normal is (0-170)
  14. Just wondering if anyone can tell me if this looks like P.A.N.D.A.S. 12 year old son- Tourettic Tics, OCD , Severe anxiety (especially at night), Intrusive thoughts. The doctor did the test below and we will see him again, but I have the results of some of the bloodwork and wanted to see if any of you had similar results and if I should have any other test run? He had his ASO titers checked also a couple of months ago and the were high as well 360. low TSH, high T-4, suggest testing for thyroid antibodies and repeating this lab in 3 months. Anti-DNAse-B- 425(high) Normal is (0-170)
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