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  1. Hi all, I haven't been here in a while. My son, who is now 10, has been doing great. But I recently took him to the dentists for the first time in a year and a half (because it always triggered problems) and, sure enough, he is obsessing and hopping around again. Nothing too bad... but it is quite evident. Has anyone figured out how to protect a kid who is in "remission" when he goes in for dental cleanings? Avoiding the dentist entirely is not an option obviously...
  2. Hi norcalmom, my son always had a STRONG reaction to dental cleanings. I know I may pay a higher price for this later, but I try to be strict about brushing and avoid the dentist. Hope he gets better soon.
  3. There's a station walking distance from Dr. B's-- Noroton Heights. Easily, pleasant trip from Grand Central. This is by far easier than driving, since I95 northbound is the vortex of suffering. Absolutely no need to rent a car.
  4. The most revolting article I've ever seen...
  5. He had his last IVIG in Feb 2011, by the end of the summer he felt solid. So.... 7 months? Which is just exactly what they tell you, but you don't quite believe because you can't quite see it as it's happening.
  6. I believe you will. Because you've already proved that you won't rest until you do. You have become hyperalert to every sign of trouble, but one day you will start to breathe a little easier. It's like raising a toddler... watching them every second... then one day you realize that you're taking a long, hot shower and your 3yo is playing somewhere and you're not even worried about it. Anyway I believe you'll get there because you won't stop until you do. As Dr. Latimer said to me (with a sly wink): "The PANDAS crowd is very persistent."
  7. Hi all, just wanted to give an update on my 9yo son. I hope it will give some hope to you if you feel like you're not getting anywhere. 3 years ago, my son seemed to slip away from me in a haze of delirium, only to come back when he had antibiotics, only to slip away again after they stopped, only for me to realize he needed them permanently, and then to realize that even with full-strength antibiotics he was not the same as before, he could not be around other kids without going bananas, he'd probably had strep colonized in his body for years, horror of horrors, he stopped being able to count
  8. One of the best PANDAS article's I've ever read.
  9. I just want to concur that the behavior charts are not going to work and will probably just undermine your son's fragile self-esteem. My son exhibited lots of behaviors that seemed (like your son's) to fall between impulsive and compulsive. He is also 9. Advil or Aleve in the morning to address the inflammation are a good idea. I also give my son fish oil every morning, though I'm not sure it does anything. For us, adjusting his brain chemistry with a low dose of Strattera has been a magic bullet. BUT... we were pretty far along in the healing process (3 years of abx, PEX, multiple IVI
  10. Sent chills down my spine. I was treated this way, 25 years ago, when I became suicidal in what was almost certainly a PANDAS exacerbation. I was locked in a room and left to cry alone.
  11. I am not sure but I don't think Lauren's daughter had OCD... or anyway this is not the first thing they would have identified.
  12. Hi Michael, It actually sounds, between the lines, like your son is doing great! I think you should honor his wishes and rescue him from that situation. There is a great homeschooling community in NYC called New York City Home Educators Alliance(NYCHEA)-- you can google them-- for a nominal annual fee you can get all their listings of amazing things to do to nurture your son, if you have the time to do it. This was a good alternative for us for several years. My son is back in school now, and doing great. I don't think your son should be in a special ed classroom. You must have an IEP for h
  13. Wow, this is huge. Thanks for posting. The language in the media is changing dramatically, ie "I used to think it was exceeding rare, now I think it is exceedingly common."
  14. I posted this because my son has not written ANYTHING for several years... now that he has started writing, this is what comes out. Astounding. If you could have seen how limited his writing was before... well, I'm sure most of you know about that.
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