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Fixit

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Everything posted by Fixit

  1. this family will need support! http://www.cnn.com/2013/05/28/justice/oregon-teen-bomb-plot/index.html?hpt=hp_t2
  2. butyrate a different action of sulfur...what is your take. http://www.badgut.org/information-centre/the-role-of-sulpher-in-uc-1.html Other research supporting these finding has shown that increasing reduced-sulphur compounds causes a reversibleinhibition of butyrate oxidation. Butyrate acid, a shot chain fatty acid, is also a product of colon fermentation, but unlike hydrogen sulphide, is vital in providing up to 70% of the energy metabolism required by the cells lining the large bowel (the small bowel uses different energy sources). Studies indicate that butyrate oxidation is impaired in th
  3. Any more info on this topic? i am hearing about low dose also. I have also heard of another plan that would be HD first, followed by low dose about 3-4 weeks later...and maybe a few more low doses to follow. ANyone do any of these other types of protocals being followed? Haylay, did you do the ld as Dr L suggested and how is it going?
  4. Yes. You are right. It is very difficult to be patient. I was not born with patience. FIXIT now...that's what i do. My entire family are take action people. Just do it, get it done. I wonder if that will reflect in my 23andme. I did all 5 of us, since all 3boys have pandas as well as hubby. So like you, i figured if i am researching, i might as well do all, instead of back tracking on the research. I guess the question now is...how do you know what to start first?
  5. Hi LLm, i am glad for you that you have figured some things out. I also appreciate your posting your information as it may help alot of us. Especially those of us who are older and have multiple panda children. NOt that we still don't have to research, but it gives a great starting point. Also i find i am getting more confused the more i work on this SOT. Can i ask you to clarify something? Are you saying if your COMT is fine, you break down dopamine well?? But if you have a mutation that you don't break it down?? And that that would lead to Vit D possiblely increaseing dopamaine
  6. How do you mean, or how did you firgure out that your dd was allergice to reveratrol?
  7. AMEN sister! I had ds at such a good point. Do to, at least in part, to a family emergency, everything went off track and so did ds. I would think that getting back to that good point would be quicker than the last time, but that does not seem to be the case. Regarding C..look into oxalates..i think. You may be at point where it is creating an amonia type thing in the body?? idk
  8. OOhhh CANNAAAADA...healthcare..here we come. Yes that care might be great if you have a broken bone, but forget any mistery diagnosis or finding knew causes to problems..they will have to kill you first to find out what went wrong! Forget anything as wonderful as what has happened here at ACN, in the last 2-3yrs for PANDAS/pans and lymes ever happening again. Not for any new correlations that parents might put together.
  9. Great thread. I am sorry you are being forced to take one, for the good of all! In GA..when ds was entering middle, he failed his booster required shots...i did not want to got there and he was still is this episode. Here, at least, at that time, you did not need a reliougys exempt. So ds13, ds10 are full up to 5yr schedule...rediculous...is it like 36 shots or elements introduced by one year old...who's immune system could handle that..?!?!?! ds5 is only current to his 2 or 3 yrs...he was not growing and a little off, as suggested by preK teachers..i am sure he would have ended up autist
  10. I suspect that your dd's results are right. My understanding is that high D1 was seen on PANDAS kids (Cunnigham) and was associated with OCD. High anti-lysogangliosides were associated with pandas tics (don't quote me though). Don't know how immune def would affect results--way over my head, but good question! Just to keep everyone on their toes DS; cam 160 only D1 elvated 4000..range 500-2000 TICCER...all day all night...i guess some of the tics could be compulsios..but idk.. only ocd that i have finally put a finger on is Triatellanmia..at the start of each allergy season, Sta
  11. rowing i just wanted to reply to this as my ds12(13 tomorrow)..had the exact thing happen to him. i too thought i would try gse for yeast..a couple years ago... he took 1! drop and 10minutes later all h(*&&^() broke loose. For us they are tics went crazy and the screeching went on for weeks until we treated with vaco....eyes dialted... don't know if it yeast, but gse is very high in phenols. who knows with these kids..i have not use gse again.... it is one of those things that i wish another parent would say... "yes that happend to us, but we continued and in x days/weeks we got
  12. I have a question for all who posted. I am assuming you saw the video on Dr oz reguarding the 3yr old child with joint pian. i thought i saw the link posted on ACN and some other info. the child was put on gf/cf/nighshade free diet..and in 6 weeks was better but took the full six weeks. My ds has had joint pain when on specific abx ie.augxr. when given an anit fungal at same time the joint pain does not come on. ergo..fungus in the joints? leak/ier gut allowing food particles to create other bacteria in the joints? Are all of you suggesting...that ra symptoms are all(most) from v
  13. Anyone have anything to report on this product? Good Bad? glutimine sounds great...but if leaky gut..wouldn't that possibly leave it in the form of glutimate if not absorbed properly and not glutithione?
  14. This is a very timely thread. I have been pondering this of late. Here are ds cunningham. Remember first draw ds was on added taurine bid for 3 months..with other aminos to balance. His tics were minimal/less but still there..and that is why I say if it is out range..and you have pandas symptoms you are still in episode Ds was 9 ¾. Dr C..whom I still respect..even though I don’t think there should be a limit on what the Cam reads, said not likely pandas I told dr L I canceled my original appointment as I thought she would not believe it was pandas…due to the low Cam and ds is most
  15. Been busy do to family emergencies..trying to keep up. Ds was doing fanaminal..but took a nose dive..possibly do to lack of my watching diet or allergy shot..or both Life is *^*^% here! During his best week..he was getting 4-5 frozen cherries cut into his steel cut, organic, nonGMO oatmeal every morning.. Cherries are a naturl anti inflammitory...but high in salicilates..frozen foods typically have fewer salicylates. It's finding that balance.
  16. Here comes a probable unpopular opinion... Yes..low but not normal, IMO can still indicate pandas. i don't understand how saying that out of range but low is not pandas. how from 5-10 indicates X 10-15 indicates Y and 15-20 indicates Z... out of range is out of range... indicating inflamation,infection,autoimunity,or a disconnect of some sort.. how can you say what condition it is based on how high it is??? i would hate to leave a child out based on this odd way of reading one particular number. prior to first reading...ds was taking alot of taurine. ds first read...was 106..epress
  17. My brain cannot comprehend any of this. Are you saying that if you treat the allergies before you get pandas, you might avoid a pandas kid or re-event...because that is what i am saying. My thought is that since i started allergy shots a year plus into this 4yr episode...ds might be flaring more per each injection. now that they are 4 weeks apart, i am trying to see if the regressions are do to the shots...then we get really good...then the next shot...and poo hits the fan again... I am not ready to say that is what is happening...but i think we will need a couple more shots to tell. H
  18. I wonder the same thing for you. the pandas for my ds' stems from my dh side. 3 brothers...oldest had t/a and allergy shots....healthiest, claims 1 time ocd period that remitted....he has been off and on allergy shots over the course of his life. middle (dh) a preemy...constant strep until 2 yrs ago...he tics. youngest brother,constant impitego(sp) ......has severe psorisis, more adhd-ish than other brothers, takes ramikade(sp) for skin condition...(i told him to get tonsils out and check for strep,but i am not a doc so he won't listen to me!!!!!!) I regret not pushing to getting the t
  19. I wonder the same thing for you. the pandas for my ds' stems from my dh side. 3 brothers...oldest had t/a and allergy shots....healthiest, claims 1 time ocd period that remitted....he has been off and on allergy shots over the course of his life. middle (dh) a preemy...constant strep until 2 yrs ago...he tics. youngest brother,constant impitego(sp) ......has severe psorisis, more adhd-ish than other brothers, takes ramikade(sp) for skin condition...(i told him to get tonsils out and check for strep,but i am not a doc so he won't listen to me!!!!!!) I regret not pushing to getting the t
  20. can i ask what your thoughts are on the phosphatidylcholine portion of the push?
  21. Hi there, Mom of 3 ticcers, 2 in remission, one of those 2 looked like heading to possible autism(cleared gut of yeast and is fine), oldest ds12 still fighting to get to 100%. Yes, i think ocd could pop up. with this ongoing episode almost 4yrs, we have had, tricatelanmais(sp), complusions, and a recently a desire to leave a room the same way he comes in. I try not to feed it nor ignore it. I brushed it off when he "confessed"it. And a couple of times i noticed he turned around to leave room the same way, i acted as if to do some other thing to redirect him out the other direction with a
  22. PLEASE...TO ALL PARENTS GIVING STEROIDS..PER MY EXPERIENCE WITH TICS...AND other conditions that look like early indications that could lead to autism. You need to give an anti-fungal or things will get worse! IMO steroids make more yeast than ABX!!!! You do not want it to become systemic/chronic. If you give an anti-fungal during steroid..you may or may not see a slight increase at first, but w/i a week things start to calm. You may see increase agitation with steroids. You will very likely see an increase in tics with increased yeast. JMHO and humble experience!
  23. YAY! Ds12 had if first fever in about 5-7 maybe 9 years, just after thanksgiving 102.8-9!!!!!! i monitored it very carefully...that was my limit. i was not going to let it go to 103..i felt comfortable staying just under that number. i was giving cold compress on neck, forhead, and feet. once it got to the above number, i had him get in a cool bath....i didn't want to shock him. his fever was 2 days and the second day stayed at 100-101. No tylenol, or ibuprofen. We did get a little bump up in his condition(in a good way)from the fever. Maybe in a few days you will see a little bump u
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