Mustang Carole

HI, Interesting article...another road to healing beyond meds/vits/diets/ etc. http://news.yahoo.com/s/ap/20080531/ap_on_...s_healing_power Mustang Carole

HI...WOW SICK MONKEYS: RESEARCH LINKS VACCINE LOAD, AUTISM SIGNS BY DAN OLMSTED http://www.ageofautism.com/ The first research project to examine effects of the total vaccine load received by children in the 1990s has found autism-like signs and symptoms in infant monkeys vaccinated the same way. The study's principal investigator, Laura Hewitson from the University of Pittsburgh, reports developmental delays, behavior problems and brain changes in macaque monkeys that mimic "certain neurological abnormalities of autism." The findings are being reported Friday and Saturday at a major international autism conference in London. Although couched in scientific language, Hewitson's findings are explosive. They suggest, for the first time, that our closest animal cousins develop characteristics of autism when subjected to the same immunizations – such as the MMR shot -- and vaccine formulations – such as the mercury preservative thimerosal -- that American children received when autism diagnoses exploded in the 1990s. The first publicly reported results of this research project come in both oral and poster presentations on Friday and Saturday at the International Meeting For Autism Research in London. Poster presentations must go through a form of peer review before they are presented at the conference; the papers have not yet appeared in a scientific journal. In addition to Hewitson's oral presentation today, on Saturday in one of two related poster presentations, the researchers also are reporting in their abstract that "vaccinated animals exhibited progressively severe chronic active inflammation [in gastrointestinal tissue] whereas unexposed animals did not. We have found many significant differences in the GI tissue gene expression profiles between vaccinated and unvaccinated animals." Numerous scientific studies, as well as many parents, report severe GI ailments in children with regressive autism. The results are sure to be controversial, in part because they lend credence to studies first published in 1998 by British pediatric gastroenterologist Andrew Wakefield, one of Hewitson's co-authors on these findings. He described an unusual inflammatory bowel condition in children who had regressed into autism after they received the measles-mumps-rubella (MMR) vaccination. Wakefield is currently fighting charges of medical misconduct in Britain over allegations of conflict-of-interest and improper procedures related to that paper. He denies the charges. In the program for the conference, the 7th Annual International Meeting for Autism Research (IMFAR), there are three separate presentations listed that report results from the overall research program. The first, an oral presentation entitled "Pediatric Vaccines Influence Primate Behavior, and Amygdala Growth and Opioid Ligand Binding" (the "amygdala abstract") was led by Dr. Hewitson and lists 12 co-authors, including five of her colleagues from the University of Pittsburgh and Dr. Wakefield. Other authors are chemists, pathologists and psychologists from the universities of Kentucky, California-Irvine, and Washington. Hewitson's introductory presentation will be followed by two poster presentations on Saturday; one of the two, "Pediatric Vaccines Influence Primate Behavior, and Brain Stem Volume and Opioid Ligand Binding", was led by Wakefield and includes six additional co-authors. It focuses on the developmental effect of vaccine exposures on brain growth during infancy. The second, "Microarray Analysis of GI Tissue in a Macaque Model of the Effects of Infant Vaccination," was led by Steven Walker of Wake Forest University and performed gene array analysis on the intestinal tissues of the vaccinated and unvaccinated monkeys. The studies address – albeit in animals, not children -- one of the major criticisms by parents and scientists concerned about a possible link between the greatly stepped-up immunization schedule in the 1990s, including higher exposure to the mercury preservative, and autism. While the Food and Drug Administration approves individual vaccines as safe and effective, and an advisory committee to the Centers for Disease Control and Prevention recommends the childhood immunization schedule adopted by the states, the overall health outcomes from the total vaccine load, versus no vaccinations at all, have never been compared, the authors said. A bill requiring the government to conduct a study of autism rates in unvaccinated American children is pending in the U.S. House of Representatives, co-sponsored by Reps. Carolyn Maloney (D-N.Y.) and Tom Osborne (R.-Neb.). Just this week, former National Institutes of Health Director Bernadine Healy called for more research into a possible vaccine link to autism and said the question had not been settled, despite repeated assertions to that effect by the CDC, the Institute of Medicine and the American Academy of Pediatrics. In the abstract for today's oral presentation, the authors noted that macaques, the type of monkey used in the study, "are commonly used in pre-clinical vaccine safety testing, but the combined childhood vaccine regimen, rather than individual vaccines, has not been studied. Childhood vaccines are a possible causal factor in autism, and abnormal behaviors and anomalous amygdala growth are potentially inter-related features of this condition." The study found evidence of both behavioral and biological changes after the 13 macaque monkey infants were administered proportional doses, adjusted for age, of the vaccines recommended between 1994 and 1999. Three monkeys were not given any vaccines. "Primate development, cognition and social behavior were assessed for both vaccinated and unvaccinated infants using standardized tests developed at the Washington National Primate Research Center." MRI and PET scans looked for brain changes after administration of the MMR. "Compared with unexposed animals, significant neurodevelopmental deficits were evident for exposed animals in survival reflexes, tests of color discrimination and reversal, and learning sets," the authors reported. "Differences in behaviors were observed between exposed and unexposed animals and within the exposed group before and after MMR vaccination. Compared with unexposed animals, exposed animals showed attenuation of amygdala growth and differences in the amygdala binding of [11C]diprenorphine. Interaction models identified significant associations between specific aberrant social and non-social behaviors, isotope binding, and vaccine exposure." One of the Saturday abstracts makes the further point that the research "revealed significant differences between exposed and unexposed animals" in the kinds of developmental behaviors a mother might be able to observe, "with delayed acquisition of root, suck, clasp hand, and clasp foot reflexes." They conclude by noting that "This animal model examines the neurological consequences of the childhood vaccine regimen, Functional and … brainstem anomalies were evident in vaccinated animals that may be relevant to some aspects of autism. The findings raise important safety issues while providing a potential animal model for examining aspects of causation and disease pathogenesis in acquired neurodevelopmental disorders."

HI, Had 2........age 16 one was in hospital 48 hr eeg test....negative age 20 in clinic .......negative MC

Hello, Here is an oldie but goodie site just loaded with recipies http://www.geocities.com/HotSprings/Spa/8672/stjreci1.htm Mustang Carole

HI, One more...Mitral valve prolapse and anxiety... http://www.anxietypanic.com/mvp.html Says causes are unknown, could have all been from strep/pandas all along, maybe we are on to something here. Mustang Carole

HI, This is a nice article about heart valve and PANDAS to copy and show your cardiologist! linkinghub.elsevier.com/retrieve/pii/S1090379807000165 Mustang Carole

HI, I need a dosage for a start up for Inositrol for a 190 lb male. How long before any response and what should I look for ...as far as good or bad results. Thanks, Mustang Carole

Hi...go to this site to read http://www.neurologyreviews.com./apr02/pandas.html

HI, Our local Tourettes Society is having new lectures series, first one is Feb, 27th At Children's Hospital Detroit/ Detroit Medical Center on Beaubien St., in the Auditorium, reservations required. Harry Chugani, Chief of Pediatric Neurology and PET Center is presenting. Refreshments served at 6pm, lecture begins at 7 pm. He does alot of research , so may hear something new. See you there. Mustang Carole

HI, Googled this... http://www.kk.org/cooltools/archives/000188.php

HI, Is this the new enzyme product by Houston company? If so, it is on back order there is such a high demand. Mine will not be here until after Nov. Will let you know then. Garlic is not so bad. It is chelating something! Mustang Carole

Hi, Try your local March of Dimes Association, they have reasonable costs for therapies, Carole

HI, Thanks for posting about your experience with Dr. M. Because she is a physician in Fla, I do not think she can write a script if you live in another state...unless she has a liscence there. Can anyone confirm this? Carole

Hi, Please describe rash in more detail...example raised, flat, with or with our pustules, areas affected first... spreading , and with or without other symtoms and describe ex. temperature, sore throat, aches, joint pain, etc and etc. post other infections ongoing.... This will help other parents who do not understand the medical teminology and better to have more info. Thanks! Carole

Hi Kim, No discussion , just a question on the autism immune forum by me and one response. http://health.groups.yahoo.com/group/Autism-Immune/ Lots of interesting stuff over there that is way over our heads, LOL! M.C.

Hi Kim, Here is the interpretation regarding your article...this is a cross posted answer from an immuno person... They isolated three antibodies from patients with Syndeham's chorea and looked for the corresponding human protein target. The results suggested beta tubulin was a likely target though another protein, lysoganglioside, blocked the antibody form binding to tubulin which suggests and alternate target or crossreactive sequence in both proteins. Since the three antibodies were chosen for their ability to recognize strep proteins, it may also offer a mechanism whereby strep infection can trigger the production of autoantibodies toward brain proteins. M.C.

HI, She may have a sensitivity to milk/wheat that did not show up as such until her immune system went into over load when the strep attack. Any food that comes in a box is loaded with the preservatives and dyes that also adds to the stress on immune system. We would all be alot healthier if we ate natural foods, esp. the organic, meats without hormones, cook from scratch, etc. Of course we all say, time and money are the huge factors...but then again, health reigns supreme... M.C.

Hi Emma, While you are looking for a lab to draw blood, etc... try cutting out the milk and milk products for a few weeks and see if there is any changes and then try the wheat free just go slow. Casein takes about a month to clear and wheat takes a few months to clear the body. Here are some great recipies from an old list http://www.geocities.com/HotSprings/Spa/8672/stjreci1.htm Hope you get some positive results. Hang in there, Mom! Happy healing, Mustang Carole

Hi Listmates, From the Shaffer report today: http://www.chron.com/disp/story.mpl/ap/health/5142592.html Mustang Carole

HI Listmates, Here are many lectures very worthy of your time... MIND Institute conference 11/06 Dr. Susan Swedo, Dr Green, etc few of many lecturers http://www.ucdmc.ucdavis.edu/mindinstitute...ded_events.html For PANDAS,,,,scroll to bottom about environmental toxicology also the panel discussion is interesting in that group. Mustang Carole

Hi Update...They are moving........ Phase I testing is beng set up in a Wisconsin laboratory: NeuroScience 373 280th St. Osceola, WI 54020 888-342-7272 http://www.neuroscienceinc.com Carole

HI, For anyone interested, Immuno Labs is closing. The word is they are only doing research. This is the California lab run by Dr Vodjorian who does the PANDAS test. http://www.immuno-sci-lab.com/2003_cat_page115.htm Mustang Carole

Hi, High arsenic levels can be from chicken, try buying the amish, or kosher chicken, that are alot cleaner than your brand name ones at local grocery store. Just my 2 cents. Over the yrs with 2 sons with tics, I have seen it all, tics come and go, and sometimes tic of the week, new ones always popping up and then go away. Hang in there, Mom! You are not alone! Mustang Carole

Hello, DEODERANT has aluminum. , so check your brand and toss them. Buy the non aluminum kind, like Jason's , etc. and can find them at Wholefoods and Better Health stores or on line. They have some great fragrances that are seasonal, and also the non fragrant, most are stick and a few roll on for male and females. I love them and tossed the Arrid. Mustang Carole

HI Power if Prayer, While waiting for 4 months to see an neurologist who is going to perscribe drugs anyways for tics, get an appt with Pedi Immunologist b/c they know more about PANDAS, etc. Another road is to get her to an allergist while you are waiting for #1. Get all the information that you can, get copies of all dr reports, labs, and take them with you to every new dr to review!!! Has your daughter had recent vaccines, has she been exposed to anything new to induce tics, like new meds for a cold, been exposed to someone ill, family member ill, anyone at school with strep, does she have a low immune system, any recent travel to cause allergies from pollen, any new foods with addatives. Help me out here folks !!! Support her while she is going thru this as she may be scared, but it sounds like you are a wreck yourself, We have all been there where you are, so hang in there!! You have found us and we will all help you, Keep reading the posting. My Holistic dr recommends vitamin C to support the immune system and helps with elimination ( poops) to get rid of waste. Give her lots of healthy foods without addatives, that means you cook the food, nothing boxed already prepped. fresh veggies and fresh fruits. Keep us posted, please. Happy Trails, Mustang Carole \the horse, not the car