Jump to content
ACN Latitudes Forums

PANDAS_Denmark

Members
  • Content Count

    110
  • Joined

  • Last visited

About PANDAS_Denmark

  • Rank
    Advanced Member

Profile Information

  • Gender
    Female
  • Location
    Denmark
  1. Hej :-) Jeg er dansk mor til en 11årig dreng med PANDAS. Jeg så en af dine posts ved et tilfælde og kunne ikke undgå at bemærke, at du er fra Sverige. Er du opmærksom på dette nordiske forum for PANDASforældre : http://www.facebook.com/groups/248942168516221/ ?? Så vidt jeg kan læse ud af dine posts, er din søn meget hurtigt blevet diagnosticeret OG behandlet - og med godt resultat ?? Charlotte

  2. Thank you SO very, very much ! (and all the way from Denmark :-) )
  3. http://www.andersoncooper.com/2012/02/10/could-the-illness-in-le-roy-be-pandas/
  4. In THIS article Swedo is - quite interesting - quoted for saying : "If this many girls had gotten PANDAS in the school, then that meant there was a very virulent form of strep in the school"; that is : PANDASclusters are a possibility given the right (or wrong !) circumstances -
  5. Hm - it seems as if Mechtler did consult Dr. Swedo ? : - If that is in fact correct, I find it highly problematic, given that NIMH just yesterday stated, that Swedo hadn´t seen or examined the Le Roy kids and because of that wasn´t able to make a statement about them or their diagnosis -
  6. When asked the Batavian reporter seems to point at Swedo ! : http://www.facebook.com/thebatavian#!/thebatavian/posts/10150767545159972 IF that is in fact correct, I find it highly problematic, given that NIMH just yesterday stated, that Swedo hadn´t seen or examined the Le Roy kids and because of that wasn´t able to make a statement about them or their diagnosis -
  7. Mechtler & Vige : "Although we have not evaluated all the patients affected, we have considered many other diagnoses, such as PANDAS and neuro-toxicity due to environmental factors. With the cooperation of the New York State Department of Health and nationally recognized PANDAS specialists, we have ruled out these diagnoses ..."
  8. According to The Batavian Q and A with Susan Swedo (http://thebatavian.com/howard-owens/q-dr-susan-swedo-regarding-pandas/30364) if that is considered a reliable source of information, she now states that : "The updated clinical criteria for PANDAS are as follows: 1) Presence of obsessive-compulsive disorder and/or tic disorder; 2) Unusually abrupt onset of symptoms ("overnight," "0 to 60 in one to two days," "possessed by the illness"); 3) Prepubertal onset (NOTE: This criterion was an arbitrary one chosen because post-streptococcal reactions are rare after age 12, but could o
  9. "Dr:LeRoy girls have PANDAS-like illness Updated: Tuesday, 07 Feb 2012, 6:25 PM EST Published : Tuesday, 07 Feb 2012, 11:59 AM EST Ed Drantch LEROY, N.Y. (WIVB) - A New Jersey doctor is offering another possible explanation for the illness affecting over a dozen students in LeRoy. Dr. Rosario Trifiletti rebukes the diagnosis of conversion disorder. He says his test results show an infection is behind the girls' unusual symptoms. The uncontrollable shakes and outbursts could be connected to something other than conversion disorder. News 4 has confirmed eight girls from LeRoy Hig
  10. Wauw ! Thank you for posting this ! This is huge ! Mr. Conversion Disorder caught in a(nother) lie !
  11. Thought someone might be interested in this "conversation" with the Batavian guy about Mechtler and the question of whether Swedo is involved somehow :
  12. Markowski, a biological psychologist and a professor at SUNY Geneseo : He's been closely following the mystery illness in Le Roy in the media. He says the culprit may be a common bacterial infection : "It seems to fit all the symptoms. "The facial tics, uncontrolled movements in the face." http://rochester.ynn.com/content/top_stories/572334/healthy-living--can-pandas-be-ruled-out-/
  13. The interview is now online : http://drdrew.blogs.cnn.com/2012/01/27/erin-brockovich-investigating-teen-mystery-illness/?hpt=dr_mid Erin Brockovich states : “I think the first thing that hit me in my gut was, ‘well, you haven't necessarily ruled anything and everything in or out,’” she said. “It just seemed to be a very quick diagnosis.”
  14. Hi, My 10years old PANDASson suffers from skin peeling as you describe it, every time he has been exposed to strep. The doctors have told me that the skin peeling and PANDAS is "somehow related ... but I am not to worry". Haha :-(
×
×
  • Create New...