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It's an interesting topic- I did not watch the video, as I am next to PANS child, who has a younger sister who by all means is not looked through- I find the opposite- the neurotypical girl is more outgoing, engaging, and often commands the attention in the room with this charming nature, while the anxious pans child floats in the background - relative adults a bit unsure how to approach her, or if she wants to be- I have 3 kids, and it is a dance. Ironically, it is my oldest, straight A accomplished son I have had to concentrate on lately with 'growing up' pains. Just this year he joined an activity I insisted on driving him to and from every day, just so I can get alone time in the car with him- which had become almost rare. It means a lot to me, to just be alone with him. I do think we expected more from him, simply because he gave us higher standards- and the age difference played a role, too. It goes by very fast- hug each one, and let them each know how much they are loved.

For me, who is off all treatment, Enhansa or Longvida curcumin are a supplement I cannot give up, and I've tried, for financial reasons, but it's a keeper. I had a nose surgery years back, and when on Enhansa or Longvida, I can SEE the swelling go down- go off, swelling back up- plus, it helps intestinal inflammation - my gut works better on- and for me, I believe it helps yeast. Plus, the studies re: curcumin and Alzheimer's are fascinating. My dd- I did Enhansa protocol years ago- along with increased vitamin C- what happened as we reached max dose: A huge viral die off. A chicken pox like rash/ spots (she had been fully vaxed with Varicella vaccine previously) started on her upper body, and in 1 months time, while on Enhansa and higher dose vitamin C, worked it's way down her entire body- torso to arms, then down legs- it was wild- they did not itch, nor have pus or heads- took to regular Dr. and they were stumped when they saw it, and shook their head at me-said: huh! Looks like chicken pox. after this viral die off rash left, I decreased dose of Enhansa and took her off- during that time, her bowels were perfect, gut inflammation also decreased- I'm a fan.

That brought tears to my eyes.

Oh, I think yeast is a huge topic. Huge. My God, we worked on yeast for years on dd. And I would see black and white results. It was also a huge issue for myself- Diflucan was my drug of choice for a long, long time. Can't guess for your son- but the yeast beast is very real.

I very much like Custom Probiotics products (without the strep strain) Powders are not fun to get down, so we use the adult CP1 formula, which is 50 billion in a capsule- For myself, while in treatment, I used VSL capsules, which has the strep strain, which is fine for me. Very high count and quality. I found Costco had the best price on this- they keep it cold in the pharmacy fridge. I preferred capsules. My dd always reacted negatively to sac. bould. probiotic too, so I never gave that- we never had an issue with clostrida not using it. I also think Theralac and the Klaire Detox (detox is without the strep strain) are excellent.

Molybdenum can also help with phenol issues- which my dd has had, and why curcumin hasn't worked for her- makes her very hyper. For her phenol issues, which used to be more of an issue here, I would give Epsom salt baths, or a massage with magnesium sulfate cream. I am not scientifically savvy enough to explain how this interplays with genetic markers (she is double A1298c) I just know that giving digestive enzymes (We use Trienza by Houston enzymes, which is a multi spectrum digestive enzyme, and helps break down gluten, casein, phenol, etc.) has helped as well. My dd takes a multi vitamin daily which contains a small amount of molybdenum. The B vitamin Biotin also helps with excessive yeast.

Yes- with success. But never more than 1-2 a night. If she hasn't gone in 2 maybe 3 days, I will give 2 caps before bedtime. She weighs about 56 pounds. The instructions on the bottle call for more capsules- IMO, not necessary- when I use it, twice the weight as dd, I also never use more than 2 caps a night.

I find it completely ironic she lived in Connecticut her entire life, then takes a trip to China and gets bit by an infected tick. And, everyone is outraged the students didn't have proper tick protection in China. I can't get past the irony. ** Edit: oops, I guess she and the school are in New York, and the Federal judge who agreed with the ruling was from CT. Still... endemic north east United States outraged no tick protection on a trip to China.

Some thoughts: You could look at gut health. The metamatrix stool test will tell you yeast, bad bacteria's, gluten sensitivity, how well food is being absorbed, and how well probiotics are keeping the gut lined despite antibiotics. It also tests for parasites. $499. though, expensive. I think doing a C4a will just tell you if there is still inflammation, but it won't tell you from what: Lyme? Mold? Gluten? The Vega test- I had it done 1/2 way through my own treatment, it was normal, but I didn't feel I was done with Bartonella- but, I didn't have OCD- or Babesia. Another thought: Stop the antibiotics. He is just now on the Augmentin, right? And you say it hasn't made a difference this time? Do you think he could live with the OCD being a 2-3 out of 10? He has come such a long way: doing well in school, friends, no physical pains anymore- I know he has also done CBT- do you think he could use these tools to deal with the 'not right' feelings?

I don't have a brand recommendation, I just wanted to point out you may want to make sure you also have tongue depressors, too! I have the at home strep test kits, but not the tongue depressors, and getting a good swab was so hard without them!

I know this may be controversial, but 2 LLMD's made it clear to me: If there are no symptoms, they do not treat Lyme. It may be, or appears to be, some people's immune systems are able to 'deal' with the infections on their own- carry them. Some Lyme patients, after their experience, feel it should be treated anyway, in case an immune system taxing event takes place (like a car accident, birth of a child, major stress situation) then perhaps the disease could surface and cause health issues- possibly major. I don't know if you or your DH have symptoms, but if your child who does and is suffering, it sounds like you may have to find a proper LLMD to help- which 99% of the time are not covered by insurance. And, a proper LLMD can give you credible and experienced feedback on your test results, and run some additional tests to get a clearer picture. And, a proper LLMD knows about the co-infections, which also must be treated. Sending good thoughts- goodness it's a lot to take in, I know.

My daughter had issues since birth, symptoms and red flags, but really never got 'sick' In fact, after a PANDAS dx at age 4, that was really the first time on antibiotics. But, I know you are using a new posting name, but don't you have Lyme, and were being treated? I found out I had Lyme and Bartonella (positive tests) through my daughters PANS journey. So for us, yes, I believe congenital infections gave her a compromised immune system, and being fully vaccinated on top of that, multiple vaccines given every few months as an infant... all too much :-(. Very sad indeed. But a lot of hard work and pushing through has paid off on the way back to health and a better life. Day by day just do the best you can.

I am getting confused by all the different screen names. For constipation, my favorite is: Oxy Powder Capsules 2-3 before bedtime. It was also highly recommended by our former famous DAN! Dr. You HAVE to get the bowels moving. All the infections and toxins are backing up back into the body. I love Oxy Powder capsules.

I'm not sure I would have started Enhansa while on a steroid taper... My understanding is the steroids 'shut down' the immune system, and Enhansa can produce viral and/or yeast die off in some folks (did in this house)

I joined in a January- 2011. I had been chelating heavy metals from my daughter doing weekend rounds of DMSA, guided and with a DAN! Doctor overseeing, when in December 2010 we came off a weekend round into the most incredible flair/regression I'd ever seen- I believe the DMSA released a huge amount of bacteria into a PANS episode- (there was no illness caught at the same time) I found the symptom list for PANDAS, read this forum, and found my people from the planet from which we came ;-) Our DAN! at the time treated PANDAS, and off on that route we went.

Forgot to add: I also did Nutrimedix Hout. herb while in treatment, and Nutrimedix Cumanda (for Bartonella). But I did find the Zhang HH2 quite effective. JMO.

I used HH2 on myself, and found it excellent- for me, I thought it held all Bartonella at bay while I was using antibiotics for Lyme- I used it for a couple of months, I believe, 2 caps of the HH2 a day- After I did the HH2, I finished of my Bartonella treatment with another round of Levaquin-

If I may offer some unsolicited advice: Get off the forum that is scaring you to death-don't read it anymore- your baby has had a negative Igenex newborn test- you have educated yourself on what to possibly look for in the future as symptoms, and have an LLMD relationship already established for yourself. I say this because I can relate- I have spent hours upon hours consumed at times on various yahoo forums, and the despair and pain would often really get to me- but I would get hooked in- as I personally have completed Lyme treatment, I removed myself from all of these forums - if I had felt I could have given back and helped, I might have stayed, but really my suggestions were already known- and, I realized it was taking up too much of my time, and not in a positive way. (ACN forum will always be my favorite, this one here is in a different category to me) Anyway- and this may sound hokey- but I recently have been reading positive type affirmation sayings- instead of having the yahoo forum emails come through- take care of yourself, I'm sure you are exhausted with a newborn- and with hormones and treatment-- do the best you can do to keep your baby healthy and nourished --- it's a gift, that little baby :-)

I found this very interesting- my take on it is that the Lyme bacteria uses up all the manganese - not the iron as previously thought, although my understanding is Babesia uses up iron- Some years ago, I was studying Andrew Cutler chelation protocol for heavy metals, and did the Doctors Data hair tests on dd and myself- The hair tests show what minerals are excreting, and heavy metals (mercury, lead, etc.). Cutler also had a formula to look at mineral derangement on the hair test results. Anyway, my test came back 'normal' (I never had amalgams, vaccines, etc.) Except, I showed ZERO manganese! And low magnesium. It suggested I start supplementing manganese immediately.

I believe this is the one you are looking for: http://www.eurekalert.org/pub_releases/2013-01/niom-sdt011413.php

For those of us that have tried risperadone, trust me, the decision was not made lightly. There are side effects for every treatment on this board, none of them mild. We are all trying to do what is best for our children and families.

Rowing Mom made some excellent points- If you google Dr. Sears delayed vaccination schedule, I think there is excellent information presented. Also, be aware it is possible to pass Lyme and co. through breast feeding - although the mother being treated while doing so negates that possibility- I tried to find to copy and paste here Dr. Jones ILADS speech where more details were given about signs in a baby- my own daughter had these red flags: Inconsolable colic, high sensory irritability, late to achieve physical milestones - late to sit, never crawled, late to walk. Anyway, speaking from my own experience, sometimes it is best to stay off forums and read worst case scenario's- it can become consuming. I understand it can be a fine line between educating yourself and knowledge- and living the life in front of you and counting the blessings. Glad you have an LLMD, and best wishes and progress in your own treatment-

**Congratualtions on your healthy, beautiful baby! Wonderful the Igenex tests came back negative- my advice- take that to heart, and enjoy :-) The famous Dr. J, premier and most experienced Lyme pediatric Dr., has some recent lectures with statistics: He states that even an infected, NEVER treated pregnant mother has about a 50% chance of passing Lyme and co. in utero- that fact is true for me personally, as I had unknown, untreated chronic Lyme with 2 pregnancies - and one child is completely healthy and neurotypical, and the other child was born very distinctly different- suffering - we have been treating her health issues for 4 years, she is almost 8, and she is presently doing well- typical classrooms with good grades, has friends- no pain. I also treated myself (with 2 LLMD's) for 18 months with extensive antibiotics, herbs, supplements- been off all since January, and am doing well, too. There is hope :-) Enjoy your baby!

Charcoal can absolutely be constipating- Going 2x a week does not sound like enough, ideally, it is best to go at least 1x a day. How about some magnesium citrate or George's aloe juice (clear and tasteless) to help things along? For constipation, my favorite product is 2 Oxy Powder capsules before bed... Hope it's better soon-

**Hi- well, it certainly could be... it will be interesting to see how our CD57 test comes back, as well as the other testing on yourself. Have you started taking Doxy again yet? Your response to it may also be telling. It's a big ball of wax- there may also be some co-infections that went along with the original Lyme you had- but how wonderful you were able to treat so quickly after that bite- by doing that, you very well may have tamped down the infection, and did not get continue to get sick-able to function through life. Another thought is perhaps the recent stress of your PANS child's diagnosis weakened your immune system and allowed Lyme to re-surface. Either way, wishing you the best, sounds like you are in good hands-