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I'm sorry--- How about adding higher doses of Biotin (B vitamin). It's the hair and nail grow vitamin, good for cracks in heels, and also is known to help stop fungi from replicating. I've had a nasty sore in my mouth- upped biotin in the last few days, getting better.

Sending you good thoughts and prayers------- Hang in there, you will get through---

Casein, or dairy, once removed 100%, leaves in about 3 days. Gluten longer, full 6 months or so, but I noticed a difference sooner. The deal is, it has to be completely 100%. The good news, there is much more selection readily available in your grocery store, bad news, your grocery bill will increase. I put dd GF/CF and then soy free 100% when she was 4- it was the first health/biomedical intervention we did for her, and at the time, I saw a significant improvement in her social anxiety. I was strict- she was 100% for 2 solid years and I worked on her gut. Beginning of this year, gave her back G/C/S, but with digestive enzymes. Ironically, at the same time, I myself came back 'highly intolerant' for gluten, and I'm now 100% GF. I keep with it as I see it help with my inflammation- Tell yourself you will give it your best try, and if you see no improvements in time, you can always go back.

Thank you so much, ALL very helpful. She is on low dose risperadone because we had some violence- she is a beautiful child that has an inner strength- has always done well in school, but we hit very dark days at home and the poor child could not be helped, and my family was in trouble- we've been treating her health for 3 years- we believe she is gestational infected, with issues as an infant. Neurotransmitter testing revealed extremely high dopamine AND seratonin, and the others- our first LLMD said he'd never seen anything like it- tried risperadone eventually (have not tried 'others', always tried the health angle) and for 2+ months, it was wonderful- took off antibiotics and herbs at same time- we had a great summer- until a virus came in and set off everything again. Or perhaps the infections progressed further off treatment. SF Mom, I find her and I treat completely differently. She seems to respond well to homeopathics (Pekana big 3 detox, Antitox gentle drainage) if I try a homeopathic, it feels like a straight shot of vodka, and I want to vomit. I can do big gun treatments, so to speak, she simply has an overwhelming die off, goes to breakdowns. I detox her the very best I can, many expensive supplements for gut, etc. I see MSM at our Dr.s office, we've never discussed- very interesting. In the beginning midst of re-treating my own Bartonella that was most likely insufficiently treated last year, and as I have beat down Lyme, cysts, parasites in myself the last months to have my Bart come surging back, It seems intuitively clear it is Bartonella for her that is forefront - So, we will try- It seems clearer for me which protocol, not for her, so I will take some notes on suggestions here and hear what our LLMD thinks.

Hi- my dd7 is going back to LLMD Tuesday- already sent in new CBC and liver checks. I want to start Bartonella treatment for her- she's on Amoxicillin and Biaxin for Lyme, honestly, feel like we are getting nowhere. Here is the rub: She can't take Rifampin, because she is still on low dose risperadone, they are contradicted. She was on Azithromycin alone forever (18 months?) for Strep PANDAS, and I truly believe from what I see Azithromycin is now ineffective. So, without those 2, an effective protocol for Bartonella? (We did A-Bart already last year) Thank you for any input.

I have a high positive Igenex Bartonella test, and have never had the stretch marks. On day 2 of Levaquin, I thought I saw them on my back shoulder, but couldn't be sure I didn't scratch myself. Gone in the morning, never seen the stretch marks anywhere. I had my VEGF tested last year as part of the mold protocol, came back normal. However, after working hard on Lyme, parasites, and cysts the last 7 months or longer, and not being treated long/aggressively enough for Bartonella last year, Bartonella has been creeping back the last few months and I'm going back on treatment. Still no red stretch marks. I think I see them flair up on the base of dd's neck- I've taken a picture or two- purple squiggly lines, but not lasting.

Yes, in the very beginning, first couple I did, I could only stay in 5 minutes, had to get out and had to lay down.

I think you posted because your intuition is telling you not to- and if you do decide to continue, DC mom's comments about completely healthy and 1 every 8 weeks sounds good- I do know exactly where you are coming from- I stopped all vaccines 3 years ago, BUT, by then all kids were fully vaxed, except my youngest, who is 5 years old, and 100% neuro typical and healthy. This child I never breast fed, for personal reasons. I thank God for that, because I had no idea I had Lyme and co. She is missing 1 DTAP, and MMR. I won't do them, and unless something grave happens (like confirmed strep throat!) I won't put her on antibiotics. She has only been on antibiotics maybe twice, years ago. My Ped. tried to tell me about continued vaccinations for her: 'But the plates are already up in the air, spinning. You need these boosters to keep them spinning.' Well, I cannot take the risk of setting something off. I think it would be the death of me. I also waived the right for my teenage son to get middle school DTAP (CA). No flu shots, no nothing anymore. I know it's probably different, since my kids have already had/have the majority- I now figure: no more of them on my time. When they are 18, if they want, they can continue. It's so hard. I wish to God they could at least try and 'green' these vaccines.

This happens with my dd too it seems- We put her back on 2 antibiotics for Lyme, after initial die off, leveled for awhile (still issues) but then off the chain 2 nights ago. Speaking from a Lyme perspective, Lyme and co- infections cycle in reproduction. When I see this 'off the chain' come up, without any real recent changes, presuming detox is being kept up, I think it is Lyme cycle (roughly every 4-6 weeks) Bartonella and Babesia cycle much more frequently. Just a thought- hang in there, PV's--

I would love to hear how it goes! Same story here - we don't have lyme in Canada either - ha ha. Apparently the ticks don't have passports so they have to turn around at the border. It boggles my mind that people who are intelligent enough to become doctors don't stop and think about some of these things. We also had to send our blood to the U.S. and go to a U.S. doctor. Best of luck on Cowden and we're excited to hear about it! Hey momcap & S&S, How long have you had Lyme for? Have you made ANY improvement? I just seem to be going up and down every few days. I keeping dragging myself to work as i need to pay a mortgage but i can really only manage 4 hours then i become so stressed because i cant perform at my normal mental capacity. Are you also really spaced out in the head/foggy etc etc?? Somedays i forget the most simpliest task im doing... like putting milk in my tea, I take it out of the fridge then wonder off holding it. I cant think clearly and its like im not on the planet. I get soooo frustrated with myself.. Are you the same?? **Sadly, yes, those are the symptoms/manifestation of chronic Lyme- it gets neuro. The fatigue, too. I had un-diagnosed Lyme and Bartonella for years- over a decade. Yep, can relate, and honestly, it HAS gotten better! I have finished 1 year of continuous treatment, and my head has cleared. I'm not doing my son's calculus, but I am clearer headed. Anti-inflammatories may help, too (curcumin, fish oil) Hang in there, one step at a time-

Thanks! Honestly, I don't think either one of us was treated long enough or properly enough for Bartonella last year... And it's a big infection for both of us. I've been working hard on Lyme, and these past few months felt my Bartonella emerging. So looks like that is what we'll be doing over the fall/winter (prayers please) Recently looks like I am having gall bladder issues (had ultrasound this morning) so may delay my new protocol. What a lesson in patience and 'not on my timetable' the process of this illness (illnesses) has been.

Lilly, thanks for asking. We were stable off all antibiotics and herbs, Risperadone only, until July. In July, a cold virus came through our house, and set my daughter off- I couldn't get her stable again, it got very difficult, so at the end of July, put her back on antibiotics for Lyme (same ones we were on before we stopped, slightly less dose.) Detoxing her along the way best I can- She is more stable now, after first 3-4 days of herxing- also notice she is clearer headed (sharper) back in treatment. So, we are back to treating Lyme and co-infections for her. She started 2nd grade and is doing well there. Home has it's moments of trying to reign her back in.

Cool! I ended up buying the Samento and Pinella (which is some sort of brain cleanse- hey, sounded good- and can be mixed with Samento) Anyway- I've been doing Bicillin shots and Tindamax for the last 4 months, and oral antibiotics for Lyme before that, and herxed with the Samento- not crazy wild, but it is hitting. I'm doing 7-8 drops of each 2x a day.

Well, the magnesium Lyme thing can be debated... It is said Lyme 'eats' or uses magnesium- leaving the body often deficient - according to our Dr.s, not a good thing. The reason I use the magnesium sulfate cream on my daughter - One of the first 'interventions' I did with her 3 years ago, when this poor child would be up for hours at night, scared to go to sleep, OCD (didn't know it was that at the time) was to start giving her a fairly warm bath before bed with 2-3 cups of Epsom salts, and have her sit in it for 20 minutes. It really calmed her down. Significantly. Also a good detox method- now I do the baths myself, after a dry brush to open up pores, get lymphs moving, and perspire a lot. Hopefully toxins out. DD went to showers only, so I switched to the cream. We had huge sensory issues with her, and at age 4 we did 10 months of Occupational Therapy for Sensory Processing Disorder- I did the 'brushing and joint compression' technique on her every 2 hours while she was awake for months- She still likes touch- so the massage is good. I have Lyme, and biofilms - I take magnesium, not all time, but when my eye starts to twitch, and the Epsom salt baths.

There is some brilliant advice here. I just put my own dd back on a combo of antibiotics - we were off them completely for 2+ months- then hit a serious flair/regression- This time, I did slowly and 1 at a time ease her up on them, over a couple of weeks (and am still under Dr.s prescription level of Amoxicillin, which is pretty darn high) AND, have been really focusing on detox/trying to manage the die off with her- Doubled her probiotics to 100 billion, and recently added a trio of homeopathic drainage remedies--also takes milk thistle, and some liquid herb detox stuff- And she is evening out.

Wow! :-) And going away to college: Huge! Woo hoo. Amazing job Mom.

If you are asking me if she is cool, calm and sedated when done, the answer is no. But, it allows me to 'remove' her from a situation: come here, I'll give you a massage. She lies still, relaxes under my hands. I work it into her back and feet. Wish someone would do it for me. (no husband jokes.)

Hi- I've used this on my daughter for years- massaging it into her back and feet- It's one of my calming tools. No herx--for us- Started it after I saw how well/calm she became after Epsom salt baths- then she went to showers only, thus I switched to the cream. I like it very much for her--

Thank you for posting, look forward to hearing more-- Hang in there!

I got a positive for Bartonella Henselae from Igenex- have no memory of pulling off a tick or any rash- I am almost certain I got it from taming a family of feral cats 15 years ago. Watch out for cats. Also, put dd7 back on antibiotics after being off for 2+ months, antibiotics for Lyme treatment, and last night noticed purple squiggly lines and blistered rash behind her neck (Bartonella to me) Took a picture.

Well, I am trying to stay positive. Maybe I'm a Pollyanna, but I do truly believe this thing can be licked. I wouldn't be spending my 401k if I didn't really believe that- I've had improvements over this last year- just finished year 1 of treatment, am with 2nd LLMD. I was told about a 2 year treatment time, and I choose to believe in it- or accept the improvements, try to keep my health up, and move forward with acceptance - but I have to try.

Could it be this? http://skinverse.com/guide-to-melasma-and-hormone-imbalances.html Toward the end, states it may be from antibiotics or too much copper, and lack of certain minerals, etc.

*Well, Cowden does have the famous Dr. Eva Sapi study, where she used Samento and Banderal in vitro and found it killed cyst forms, spirochetes. But one could argue in vitro is different than the human body. Hard to know, we all respond somewhat differently. Are you a Buhner fan? I did purchase some Cowden Samento (cat's claw) and their Pinella (brain cleanse, so to speak, can be taken with the Samento) for myself, as I feel like I've plateaued on my own Lyme treatment of 4 months of Bicillin injections, and Tindamax 2 weeks on/2 weeks off. It will be interesting to 'see.' Been on a lot of oral antibiotics for Lyme itself, don't want to go back to them.

Thank you- Well, back in the thick of it with her- started Biaxin too, will work up on that, nystatin, all the rest, here we go again. Odd, I've never associated brain fog with her, but she seems more articulate since starting back up- Hardest part trying to keep up the die off. Appreciate the support- S-