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TOaksMom

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About TOaksMom

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  1. I also posted this on the PANS/PANDAS forum: http://latitudes.org/forums/index.php?showtopic=22272 There is a new Feb. 2014 study from Lehigh University in Pennsylvania: (http://www.ncbi.nlm....pubmed/24257436) that says: "Two experiments examined probiotic pretreatment (Lactobacillus rhamnosus GG) on obsessive-compulsive disorder (OCD)-like behavior induction by RU 24969 in BALB/cJ house mice. In the first experiment, two groups were defined by their daily pretreatment by oral gavage of either (a) L. rhamnosus (1×10⁹ CFU/day) or b. the saline vehicle. Both a 2- and 4-week probioti
  2. There is a new Feb. 2014 study from Lehigh University in Pennsylvania: (http://www.ncbi.nlm.nih.gov/pubmed/24257436) that says: "Two experiments examined probiotic pretreatment (Lactobacillus rhamnosus GG) on obsessive-compulsive disorder (OCD)-like behavior induction by RU 24969 in BALB/cJ house mice. In the first experiment, two groups were defined by their daily pretreatment by oral gavage of either (a) L. rhamnosus (1×10⁹ CFU/day) or b. the saline vehicle. Both a 2- and 4-week probiotic pretreatment attenuated OCD-like behavior induction (increased perseverative open-field locomotion,
  3. Studies I had read said the dose for L-Histidine was 2-3 grams a day. Last night my daughter took 1800mg (three 600mg capsules) of the Montiff L-Histidine. When I asked her tonight about it she said it made her feel very crazy and didn't want to take it again. There can be that much histidine in a few chicken eggs. I wish this epigenetics was easier.
  4. It has been awhile since I've visited and now that I have this post has me intrigued as the mother of a 16 yo daughter who vocal and motor tics. We've been doing CBT once every week for the past 9 months for the OCD and the therapist had me convinced that the tics were all OCD related. Now I'm not so sure. The full new study in the Neuron journal can be viewed here. Just X out of the download prompt. http://www.academia.edu/4581915/Histidine_decarboxylase_deficiency_causes_Tourette_syndrome_parallel_findings_in_humans_and_mice._Neuron_81_2014_77-90 The mutation in the histidine
  5. I'm updating this post to keep the continuity. My daughter got the $600, 10 week long Advanced Laboratory Services Lyme culture test and her July 30th report said she had growth and we have the microscope photos of the spirochetes from them but I can't figure out how to add the link to a photo of them. If someone could tell me how I will. In the last post to this, Lfran had let me know about the band 58 being significant for European Lyme which is Borrelia garinii and Borrelia afzelii. Borrelia burgdorferi is the more recent US Plum Island / Lyme, Connecticut Lyme. So after getting the
  6. It's been awhile since I've posted and I came to the site to search for something when I noticed your post. Here's some of my observations with my daughter. We recently put my DD16 back on the SSRI Luvox / fluvoxamine for her debilitating OCD and it is helping a little. My DH has been on 20mg of Prozac a day for 20 years and like most people I had always thought of the serontonin reuptake properties doing its thing when taking SSRIs but recently found it may instead be their brain anti-inflammatory effects that are helping to relieve the issues. Here is a short abstract that explains it
  7. Thank you for your replies. All four of us have tons of symptoms. Sorry, I didn't mean to imply that we did not. I started with symptoms about 30 years ago, my husband about 20 years ago. My kids have had on and off symptoms since birth but more severe symptoms when they started puberty. A problem with the two local wannabee LLMDs we have seen so far has been the approach to band-aid the specific symptoms with drugs that only mask the symptoms. From my experience with in-network insurance LLMDs, I think they do not want to jeopordize their status with the insurance companies by doing
  8. Thank you very much Shelia for hosting this invaluable forum, adding the new PANS label, and upgrading the site. I'd like to remind everyone that Swedo's 2012 updated paper: From PANDAS to PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) clearly states in figure 1 that "Lyme, mycoplasma, and others?" are in the same infectious triggers category as Group A Streptococci (PANDAS). http://intramural.nimh.nih.gov/pdn/PANDAS-to-PANS2012.pdf Lately there seems to be less strep only PANS children and it is great that our resources can be grouped together now which will help us re
  9. My DH and I recently got tested for Lyme via Igenex WBs. Our Blue Cross insurance in-network ILADs referred but non-ILADs member psuedo LLMD who makes it very obvious once you are an established patient that he doesn't want to treat Lyme patients but accepts them anyway told my DH that he doesn't have Lyme even though his WB IGG was Igenex positive. So now my DH has a Dr. confirming that I'm nuts. The Dr. also told me not to worry that I didn't give DS and DD Lyme congenitally. Both DS and DD have Igenex positive IGM WBs and he has not said whether or not he thinks they have Lyme but after
  10. My DD16 also does not tolerate NAC but does very well on Bactrim. She also had issues with SAMe when we tried it and has always had an aversion to sulfur veggies like broccoli and cabbage. I'm looking forward to our genetic testing results. These links may or not be helpful regarding the CBS mutations but they seem interesting enough to share. They are way over my head but there's a lot of buzz words mentioned. I got to the first link searching for an unrelated topic about how cancer treatment with high-dose methotrexate depletes folate even further in people with the MTHFR defect and
  11. If you've ever gone to the Heartfixer's Nutrigenomics Methyl Cycle page: http://www.heartfixer.com/AMRI-Nutrigenomics.htm You would have noticed the page title at the top and a link that says 'Return to Autism Page' but you get a page not found error when you click it. It's still in archive.org from 2009: http://web.archive.org/web/20090213144855/http://heartfixer.com/AMRI-Outcomes-Non-CV-Autism.htm This topic is apropos: Toxicity + Genetic Susceptibility + Infection = Autism - a Perfect Storm in Your Child's Mind There is also a Neurological and Psychological Disorders page that is
  12. Sorry for adding another off track post. LLM, I hope you give us more of your methylation and genetic words of wisdom soon. My chronic Lyme and C1298A mutation induced OCD is making me add some details on the testing in hopes to help a fellow harried parent when they read through our posts looking for help in the future. It is my understanding that when the 23andMe genome test was fresh on the market in 2007, the price was $999.00 back then so maybe Allie forgot to add the extra 9. The price was later reduced to $299 and just this past December 2012 the price was reduced to its current $9
  13. How was your appointment with Dr. Bhakta? We have never seen her but have been thinking about it.
  14. This is amazing. We have recently suspected TMJ problems with my DD16. She has had teeth grinding /bruxism at night when she is sleeping since she first got molars. It is the kind that is so loud you can hear it down the hall. I've read recently that bruxism can cause TMJ injury and the TMJ injury can cause movement disorders but was unaware of the OCD aspect which is a very big symptom for her. She got braces when she was 12 and when they came off 2 1/2 years later the ortho gave her a combo mouth guard retainer to help protect her molars and her head tics started a couple months later. The
  15. Not sure if you've tried these links yet. This site has lists of doctors by state: http://www.o3center.org/Clinics/index.html Here is a Maine dentist that does it: http://www.dental-holistic.com/services/ozone-therapy/ This site explains how ozone is administered: http://www.oxygenprescription.com/OzoneDelivery.html Under the sinus infection section they talk about breathing it through olive oil: http://www.o3center.org/ConditionsCenter/Head-CNS-PNS/Sinusinfectionandozone.html This explain how to do that: http://www.o3center.org/Protocols/BreathingOzonatedOliveOil.html
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