MichaelTampa

Agree with all of it except that long-term problems she listed along with lyme can be fixed with diet. Sure that is important but things can get so bad with lyme and the other accompanying insults she mentions that just diet is not going to do it. The digestive situation can get so bad that the body cannot take what others might take from good food, and so healing is not going to take place from food and nutrition when the body can't even use that. (I would add, as an extreme example of this, the child of the poster on this board who cannot even eat and instead is/was getting nutrition from IV.) I couldn't make any headway that way until something more specific towards lyme is given. I did that with abx and herbs and other things all at once, and there are plenty of very substantial lyme treatments that are not abx. So I don't want to say abx is necessary, but I do want to say very substantial/dramatic treatments are going to be necessary in many cases, well beyond just diet.

One possible connection is lyme disease, as it can cause both seizures and tics.

Keep in mind days of the week. Perhaps Wednesday is okay. Last I knew, towards the end of the week was no good because they don't want it to sit around during the weekend. Wish I remember the name of the lab I used, it was not Quest or LabCorp, a smaller type place that was used to drawing and then sending to Quest or other labs to process for the testing. This is one of those things where sometimes Quest or LabCorp will do it, sometimes not, just depending on the local situation.

Ok, can someone explain this to me? It makes no sense to me. If artemisinin is an anti-malarial/anti-viral, how you could you develop antibodies to it? And if you could, why would taking it steadily vs. pulsing make any difference - your body is going to make antibodies to an antigen regardless of whether it sees it a few days a week or every day. Are you talking about the fear that the malaria/babesia can develop resistance to the artemisinin? Would that be the reason for the pulsing? Something about this isn't clicking for me. Can someone explain? Also, anyone used this for virals (EBV, HHV-6, cytomeglovirus)? And did you pulse for this as well? I don't know if I can really explain it to you, as much as make clear what Dr. K. said at a conference I was at. As a reminder, by the way, for those without access to Dr. K. and/or his team, the DVD's are something they sell, I think well worth the money as the conference was tremendous. Anyway, he really did say that your body can/will develop antibodies to the artemisinin if given too regularly. So, he recommended 5 days a week and then also 1 week off per month. So, no, nothing about the bugs getting resistance, truly a worry that your body would fight the artemisnin to the point where it would be destroyed before it could be useful. I have to say that my energy testing of good and then bad and then good and so on after breaks were taken seemed relatively consistent with his recommendations. Maybe it's not that different then the food allergies which people claim we can get from eating the same food day in and day out? I do believe he also said that taking the artemisinin liposomal may well avoid that affect. Not sure how familiar you are with that, but true liposomals are made with use of ultrasound technology, which may sound fancy but can be purchased via a $30 jewelry cleaner. He discussed/recommended this during the conference. You can find liposomal recipes on the web without too much effort, I think, although if anyone wants direction on this, let me know and I'll try to point you in the right direction. I did do that for a brief period so I have a small amount of experience with it. Liposomal compounds basically have the special thing (artemisinin or vitamin C) somehow inside a fat molecule, or something like that. Your body (or body's cells?) can absorb the fat more readily, and then, bam, the other thing gets absorbed quickly as well. Babesia may well love the fat and be attracted to it, and then you have a surprise waiting for it. Anyway, the liposomals sort of avoid the regular digestive process, and perhaps that's how you avoid making antibodies to it. He also showed making a "cocktail" with artemisinin and a bunch of other yucky tasting stuff at this conference. He put phospholipids in the cocktail as well, and, as they are a necessary ingredient in liposomal compounds, he charactarized the cocktail as sort of a low quality liposomal mixture.

Not sure what vision therapy you are referring to. For a while I used to wear Irlen lenses, and they did help me with my sensitivity to fluorescent lights.

Fatigue is common both as a lyme symptom and as a side-effect of the treatment. As LLM says, perhaps an abx break would give you that information somewhat. One thing I took for a little while that helped a lot with that was pregnenolone. It is cheap and available at the health food stores. It is a hormone, so something to be careful about, not sure I'd recommend it without being guided by a doc or good energy tester, but it is something that can potentially help.

I took it for about 6 weeks straight the first time, before hearing about the rotating it on and off, at that point I had recently started testing bad for it, so perhaps the antibodies to it thing had kicked in. But, in total, probably 3-4 months of it counting both time on and time off. I did fine with it. There are just a couple/few treatments that have really caused issues for me, mainly fatigue. I did fine with the artemisinin, it helped a good bit but didn't notice anything from it on the bad side.

I have used Country Life's zinc picolinate to good use many different time periods. Of course that's just zinc. There are some combo mineral products out there, maybe hunt around at a health food store and you'll see some. I'll be shocked if anyone out there has all those different forms of zinc all in one pill, let alone that along with some of the other minerals in there. But, you could probably find something vaguely close to that, that perhaps you could try and see how it goes. (Or, if you have access to energy testing, you could test which is best as you sort through options.)

I'm an adult, not a kid, but when I took prozac for depression, this was before dx and treatment started for lyme, it caused something a lot like bipolar swings between deep depression and brief periods of mania. It also caused a tough and increasing all-the-time headache over the course of the couple/few weeks I took it, bad enough that I stopped taking it. The few days following the last dose were very difficult depression-and-suicide-feelings-wise. I think these SSRI's are a bit like a roulette wheel for the brain, shake things up and see what interesting situation results. There are some who have posted here that they have been helpful, and then some not so much.

I used Nutricology's Super Artemisnin product, which, per capsule, contains 180mg of artemisinin and 20mg of the sweet wormwood oil. On days I took it, it was 3 capsules with breakfast and 3 with dinner, so roughly 1200mg daily. These doses for me were based on energetic testing. I did find it interesting to note that I had read somewhere the relapse rate is much better with daily use of 1200mg compared to 400mg or 800mg ranges, based on some study. This might have been in Buhner's book, I don't remember for sure. Of course, if 1200mg daily is too rough then perhaps working up to it is wiser.

I don't know if I'm the someone, but I would take it for 4 days on, then 3 days off. Dr. K. will talk about building up antibodies for it with continued daily usage, and I found this pattern to work pretty well. Some also take a week off per month in addition to not every day of the week for similar reason. I did go through on and off cycles, though not precisely like that. None of this really had to do with smoothing off the herxing though, and I didn't have a real issue with that to deal with.

I don't know anything about the Parkinson's Foundation, but it is well known that the national Tourette's Syndrome group/foundation whatever it is called has a similar conflict of interest. They get their funding from companies making neuropsychiatric drugs, so they are not permitted to promote any idea or treatment contrary to the notion that it is a permanent genetic problem treatable only by neuropsychiatrics. In the end, if not supported by honest people, these foundations can simply become advertising agencies for whatever businesses choose to support them.

Guess that glutathione is pretty important stuff, eh? Besides getting it IV, some supplements can help make it, like NAC. By the way, there are those that feel that Parkinson's is from lyme.

I want to ditto what Chemar said. Go over to the lyme board and you can read some about how bad the tests are. Just getting a negative test is far from ruling out that lyme disease is a problem. Getting a negative test is quite common. To deal properly with lyme disease, you really need a specialist, and the problem is worse than that. There are those specialists who are in denial and do nothing but say that you don't have it (such as members of IDSA); then, there are those that know what they are doing (such as members of ILADS). Even the existence of problems such as tics before it really looked like lyme disease means little regarding whether lyme disease is a problem. I had very minor symptoms since childhood, including tics. Then things got much worse. I was eventually diagnosed with TS and of course told there is no cure, just dangerous drugs to help mess up your brain so, theoretically, less symptoms would appear. Then thanks to this board I found out about lyme disease and am doing much better (although not yet completely cured) after getting good lyme disease treatment. I also had a negative test for lyme disease but I first found a good doctor who knows not to just dismiss that.

As stated above, the heavy metals can become part of biofilm. I had nice success with Detoxamin suppositories combined with biofilm treatments of Serrapeptase capsules and Cistus Incanus tea. I also agree that it is something to be careful about in terms of being sure you're ready. I think energy testing is the best way to determine what treatments are appropriate at any given point in time. A skilled and experienced doctor could theoretically be good at this too, perhaps. Another thing I used was Allergie-Immun treatments which train your body that all these things like heavy metals and other chemicals are bad, such that your body starts removing them. As this can lead to a big dump of metals, again, care is cautioned in terms of being ready and able to soak them up.

The one pill I took for a while that I thought really improved my mood was SAM-e, I used Jarrow brand, 200mg a day.

Are you referring to 120/240hz mode? Those can be turned on and off and you can leave a TV in standard 60hz mode if you want. Some people don't like the "soap opera effect" that comes with the 120hz/240hz modes engaged anyway so they leave them off. Plasmas are said to be 600Hz but it's referring to something different... a plasma TV doesn't display 600 frames per second. That is what I was referring to, yes. I didn't realize you had a choice with those, good to know (although not going there myself these days).

When I took this, I used Jarrow brand and thought it was pretty good. It's enteric coating is bright yellow. The ingredients list has a few plastic-y sounding things, but nothing labeled a dye. So, not sure if the yellow really qualifies as a dye that's not labeled a dye, or something else.

I find the whole topic a bit confusing. FWIW, I did get the MTHFR test from LabCorp (my doc just filled it out, I didn't ask for it or know about it at the time), and did have one mutation on each of the two genes they test for. I believe the test report says there are many gene mutations that can affect this, but there are just two for which testing is as easy/practical as this. As a result of the test, I am supplementing with methyltetrahydrofolate by Thorne. There are other products out there as well, most add other vitamins/minerals to the mix, I selected this one because I prefer the no extras approach.

"Hard to get" is an interesting phrase. No prescription needed, just have to pay. However, my source requires money to be wired, and with my bank it took almost 2 weeks to simply execute getting money to them. That part was certainly frustrating and "hard". But, it is readily available if you can pay. I paid 660 euros for what they recommend to be a 8-week supply. So far, I have been taking less then recommended (per my pendulum testing), so it could potentially last longer than that. My doc just gave me my nagalase results today, it took one month for the results to come in, level is 1.40 which is elevated consistent with the idea that this therapy could help. A potential problem is the inflamation it can cause. Two weeks in I started to energy test that "Nrf2 Activator", a product that can help curb inflamation, would be good to take. If I am lucky that will head off that problem, but we'll see over time. For sure, it is experimental at this time, one of those things that some have great hopes for, but remains to be proven out either way.

I am trying the GcMAF as well. I just took my third weekly injection today. My pendulum says it is very good. For someone who has high nagalase (suppressing production of the GcMAF in one's own body) it is probably well worth the cost with the caution of being careful dosing is not too high. Another thought for viruses might be ozone autohemotherapy, which apparently has the benefits of IV H2O2 without burning the veins like H2O2 can. I just finished a series of 10 treatments, twice a week. I have heard H2O2 is specifically good for viruses. I haven't heard that about the ozone, just that it is better than H2O2 and can do the same things. The ozone treatment involves catheter for about 30-45 minutes each time, so certainly is more painful/nuisance than the GcMAF, which is injection with needle like people give themselves for diabetes/insulin, a very tiny needle.

I agree Chemar, I would not either, I was going for sarcasm, but missed it I guess, tougher with just the written word.

I think they are the same, aside from the fact that obviously they are different. One obvious difference, even if the finished chemical were precisely the same, would be the processing, which will leave behind certain metals or bones or other parts of the equipment used.

I assume what Chemar has said is the typical answer for many with tics/TS, because of her broad knowledge on the topic and time on the board here. But I want to point out I used to have a terrible time with fluorescent lights (they would cause migraine headaches, rage, diarrhea, nightmares, ...) until I got treatment for lyme disease. I was diagnosed with TS, and had some tics, but tics were not my main issue. I recently went shopping for a TV as our old one broke, and want to share what I learned. The plasma TV's use fluorescent lights. The LCD TV's use fluorescent lights. Even most of the LED TV's also have some LCD in them (I think these are the ones they call "backlit LED"), meaning they also use fluorescent lights. The only pure LED TV's I saw came in a very large size, something like 50 inches. So, I went with going to a second hand store and bought a used TV from the old CRT style, the kind with the very big back because of the tubes. I hope one day they will make pure LED's in smaller size, 50 inches is too big for our size house and rooms, because I know LED lights are okay for me, whereas fluorescent lights are not. Note also the newer style LCD and particularly plasma TV's have a very high refresh rate, which gives the brain a lot of information to process. Fluorescent lights are evil. Aside from the gamma radiation the produce, and strong magnetic fields they produce, and constant flicker, and mercury, perhaps they are not too bad, but those are kind of significant issues in my opinion.

I used them a little bit here and there. They helped some.