philamom

Is the St Pete Pier closed down?

Thanks

July, but possibly in 2 weeks. I tried to pm you but your box is full.

It's a gentler form of doxy- easy on the stomach. I was told by our LLMD to be certain its not the generic form of doryx. It doesn't come in capsule. I wonder if I could rub something on it like butter. Thx- I'll ask the pharmacist.

Good for you - you really deserve it. Anyway you can make it a monthly hooky date.

Anyone else have other recommendations for hotels or housing near USF? thx

Tell him his Philly family is thinking of him! We at times use Alka Seltzer Gold. Helps some I think. Can you get him excused from PE, or does he want to be in it. I remember your dodge ball story

My dd has been taking the doryx 150mg tablets for 3 weeks now. She is having difficulty swallowing them. She doesn't have problems with her other meds, just this one. It is shaped like a little rectangular lego. I tried cutting them in 1/2 and 1/3, but makes it worse because of the jagged edges. I'm thinking of crushing them and placing in empty capsule shells- need to check with LLMD. She's starting to refuse them so I need to move fast. Anyone else have difficulty with the doryx tablets and have suggestions?

We did not receive reimbursement from our insurance for the Advanced Lab culture (fyi). It was $500 or 595 when we ran it a year ago. We received a positive culture and was sent a photo with 3 spirochetes shown. The test for biolfilms is from Fry labs, I think. Also expensive. A good test for Bartonella is Galaxy, I believe. Again, also expensive.

I recently went back to using Melatonin on myself (2-3 mg two hours b4 bedtime). It doesn't keep me asleep through the night though. I love the brand "Source Naturals" orange flavored sublingual tablets. It doesn't make me feel groggy the next day. Dd is more sensitive though - so not as useful.

Sending you a big cyber hug on this special day. Hang in there.

Great! Thanks.

I'm REALLY looking forward to it. Nervous, but excited to move ahead with this therapy. Oddly enough, there is a great intensive program 30 minutes away from us (Philly), but they don't accept insurance. It would be $8000. for the three weeks. Thanks.

Thank you - I really appreciate your opinion S&S. Happy Mothers Day! (and to all you great Moms here)

dcmom- I realize this is an older post but wanted to ask you about the therapy with Dr. R. We are headed there soon for dd. What happens if your child refuses to do exposures in front of strangers? How does the therapist handle it? I also think the embarrassed part of vomiting may be what is keeping us from success with ERP. thx

We r scheduled for the 3 wk program this summer with Dr. Rahman. Main reasons we are going is for a severe fear of vomiting and a fear of eating anywhere without me. There is a chance it may be bumped up to end of the month. Can you explain the difference between the two buildings of Ronald McDonald House (West and ?) . Are they different locations? Which one is quiet and which one is the busier one? Is there a tv on the property? Also, any other recommended places to stay? Like to have a back up plan. Thanks in advance. I know I probably asked this question before - just moving forward.

I still like you :-) We did run tests after the Metametrix stool test which all came back negative for celiac. It was done through Quest/Lapcorp, so doubt it would show a sensitivity or intolerance -just if you have the disease. My daughter is a VERY finicky eater though. On the thin side and rarely hungry. blah blah blah - I know - I should just do it. I wonder why her GI symptoms went away on the combo of abx. Do you think inflammation from the lyme/bart causes sensitivity to gluten/casein, etc?

Thanks S&S - I will call and inquire about a free consult. The ordering dr. just suggested diflucan. I was a little concerned about the very high Quinolinic/ 5HIAA ratio. The interpretation suggests neural excitotoxicity of NMDA-type receptors. Overstimulated nerve cells may die. It says an elevated ratio is not specific for a particular medical condition and is commonly associated with excessive inflammation due to recurrent infections. It does offer some suggestions (deprenyl, melatonin, carnitine,turmeric/curcumin, garlic). Had this test done 2.5 years ago when she was on a combo of abx for lyme/bart and the only thing flagged at that time was the Arabinose (70) and Phenylactic . She was doing good physically at the time. We've been dealing with GI issues & heaaches since 2009. The only time we didn't have headaches & GI issues was the year she was on the combo. I haven't used Custom Probiotcs in a while. I think I'll add that to our mix. Thanks for the links!

I'll send you another pm. I don't have much experience with parasite treatment. I was just commenting that there has been info mentioned before on the subject - you may want to try the search forum.

Thanks for the update Susan. Good luck with your appt. this month.

Great Plains Lab "OAT" test Flagged Markers: Yeast & Fungal: Arabinose- 146 H (ref <56) Oxalate Metabolites: Glycolic- 252 H (ref 20-202) Neurotransmitter Metabolites: Quinolinic/5-HIAA Ratio- 6.2 H (ref .04-2.2) Ketone-Fatty Acid Oxidation: 3-Hydroxybutyric- 5.7 H (ref <4.1) Sebacic- .40 H (ref <.37) Nutritional Markers: Vit C- 3.0 L (ref 10- 200) Detox: 2-Hydroxyhippuric- 27 H (ref <1.2) Amino Acid Metabolites: Phenylactic- 0.53 H (ref <0.27) 4-Hydroxyphenylactic- 3.0 H (ref .04-1.1) 3-Methylglutaric- 1.6 H (ref .07-.95)

4 weeks off abx (6 is better) for the lyme culture from Advanced Lab.

You can have Dr T write an RX to have blood drawn at home - thru Coram or such. Just want to be certain your insurance will cover it. For Igenex, you need to get the kit and then mail it back Fed Ex mon-wed.

trinity- I sent u a pm regarding GI doctor in north jersey. let me know if u didn't receive it. also, you may want to search the forum for parasite treatment- many have done it.

I don't have an opinion on whether or not there is a link regarding Autism and Lyme, but I do want to comment on the testing that was used for this study. The 2-tier standard serology used to detect Lyme disease is inadequate. Step 1, the ELISA test, is worthless in my opinion. And then, only if found positive on the ELISA, do they move forward with the Western Blot. Standard tests fail to properly diagnose over half of Lyme disease. My daughter who has PANS (lyme, bartonella, pandas), has never tested positive through this 2-tier serology. She has tested positive though a different lab's western blot, and more recently through a culture by Advanced Lab. They sent us a picture of the spirochetes in her blood indicating an active infection. But again, negative through standard serology.