guy123

Is a standard B complex acceptable?

is the magnesium something you have to cycle, does tolerance build? Or can you stay on it indefinitely with no reduction in effects?

I think caffeine is a known trigger for a lot of people. Depending on your coffee habits you might want to see if it makes a difference for you, too. Me too. That's why I only use Clonidine. I take it at night before I go to bed so I don't notice the "drowsiness" side effect. What about THC in pill form (Marinol)? Most doctors won't prescribe it but some will. But I hear it's quite expensive. Do a google search for "Marinol tourettes" and you can read some studies suggesting it is extremely effective. Re: your other reply: I haven't heard anything about hypnosis working. The only thing I've heard of working, other than a few medications, is some electro brain stimulation, and I've never heard any *conclusive* proof (or long term studies suggesting it's safe and you don't go crazy or develop other problems).

Hey AHB900, I just turned 28 and have had a blinking tic since I was 17. I'm also a weight lifter so I understand all those supplements you take The only trigger I've been able to identify for myself is fish (including fish oil capsules, but also if I eat fish or sushi or whatever). It's definitely not something you can control so don't let anyone give you any crap. Tics are generally a result of goofed up chemicals/signals in your brain. I take a small dose of Clonidine (also called Catapres) daily and it seems to help my tic a bit. It's a prescription medication so you'll have to first find a doc who understands tics. The good news: There are many medications available that treat tics, but... The bad news: Nearly all of them have horrible, potentially permanent/fatal side-effects. Clonidine is one of the more mild ones... the side effects are drowsiness, dry mouth, constipation, dizziness, and libido issues. I'm on a super low dose so I don't really have any of those (occasional dizziness when I stand up too fast). Some of the other medications (specifically ones in the neuroleptic/anti-psychotic class) have side effects including tardive dyskenisia (permanent facial/body tics) and death, so you might want to stay away from those if you can help it. The other medications that have decent side effects are: Tenex (aka. guanfacine) - basically the same as Clonidine Topamax - an anti-seizure medication that some people here have had fantastic results with Marinol - made from THC (marijuana) - clinical trials report amazing results. Also, depending on how you feel about it, some people with tics report that smoking marijuana relieves their symptoms. I believe that indica strain marijuana will relieve symptoms and sativa strain marijuana will make them worse (I've experienced both). Other than that, there's a bunch of other tic medications but none of them really work consistently. A lot of people here have a wide range of experience with vitamins/herbs/homeopathic methods, so I encourage you to search the forums and see what has worked and maybe get some ideas and go from there. Good luck.

panax notoginseng licopus incidus rheum officinace casual pinia sappan angelica acutiloba cartamus tinctorius pistacia lentsicus inula helenium rehmannia glutinosa commiphofa myrrha silek diunicatum nepeta japonica polypodium fortunzi kze phellodendrom amurense calamus draco san guiso rea ossicinalis or known to have interactions together?

garlic cloves can be broken up and swallowed like pills with water. i've done that before. You don't have to "eat" them. they'll still make your breath smell tho if you burp

A couple times when I was a kid I would get a similar situation where I'd pee before bed, go to bed, and like 10 minutes later feel like I needed to go pee again, so I'd go, and like a few drops would come out, and then I'd go back to bed, and repeat this over and over. I told my mom about it one night and she said it happened to her on occasion, too, and to just drink a big glass of water and resist the urge to pee and then your next urination will be normal sized and it will fix the problem. I remember doing that and then REALLY having to pee, but then falling asleep. I was afraid I would wet the bed. lol. But the next morning I woke up, had a normal sized pee, and then I was fine. I think the pee reflex might just get out of wack sometimes. There are medical conditions that cause incomplete emptying of the bladder that can result in that sensation, but I don't think that's what he has.

The only kind I've tried has been Sovereign Silver and I never noticed any effects from it. I tried gargling some every so often for a sore throat. I also tried drinking it throughout the illness, no effect. Overall it had no effect. There was no short term reduction in symptoms, and there was no shortening of the sore throat/cold compared with times when I didn't take it. Still convinced by hype on the internet, I began taking a small dosage each day as a preventative. Within a few weeks, I had another cold/sore throat. This was the only time in my life I've gotten two cold/sore throats in the same season. The internet is filled with miracle stories involving CS. "I cure my strep throat in 15 minutes!" "I cured [insert condition] that doctors never could in only a week!" I had no such luck. And if you decide to use it, take some probiotics as well, as it can supposedly kill all intestinal bacteria, not just the bad ones.

They make probiotics in pill form but they are usually expensive and have to be kept refrigerated. You can also find probiotics in yogurt. I believe some types such as Kefir have a good amount/selection of probiotics in them. Supposed to help digestion, too.

My gf (who is 24) emailed me this the other day: "I was thinking about getting this. Glad I didn't" And then attached this to her email:

my son has both TS and Crohn's and could not have any steroid treatment for the Crohn's for that reason Thankfully he developed a natural diet/supp plan that has helped it go into remission without drugs my husband has TS and did have a prednisone burst for pain after a back injury and it had horrible effects on his tics triggering levels he has not seen since early childhood (he is in his 60s now) the tics are still elevated even tho the steroid burst was many months ago Wow. I thought it was just AAS (anabolic androgenic steroids) that increased tics, but apparently it's corticosteroids, too Isn't a "steroid burst" one of the ways they test for PANDAS? Like if that improves symptoms, then IVIG treatment is likely to work? Do you think there is a link between TS and Crohn's? I've heard it's generally believed that Crohn's is autoimmune, and I've heard theories suggesting that TS is autoimmune (specifically anti-basal ganglia), too.

I have heard that you shouldn't take large doses of vitamin K if you're on blood thinners. I will research it with clonidine.

Interesting. I didn't see vanillin listed the first time I went through the list. I believe the amino acid profile in this vitamin is ridiculously low (not saying that that wouldn't still trigger tics, however). I did not know that! What if someone had TS and Crohn's. Would treating a Crohn's flareup with prednisone (a steroid) cause an increase in tics, or is it only anabolic/androgenic steroids that cause increases in tics? Oh, I believe the "men's" part in the name comes from the fact that there is no iron in this vitamin. They sell a similar women's formula that does include iron. I'm not sure how the rest of the ingredients differ.

Yes, the sensation in my eyes was unbearable. Ok let me try to describe my tic for you: I get a sensation in my eyes that is only relieved by a hard blink. I would say the sensation in 70% physical (an actual feeling in my eyes) and 30% mental (cognitive). The sensation is usually present for 80-90% of the day, every day, only going away for a few minutes at a time throughout the day (oddly enough, it goes away almost completely when I am going to the bathroom or taking a shower). When I do a hard blink, the sensation goes away, but usually comes back a few seconds later. After starting Clonidine, when I'm having a "good day," the intensity of the sensation is reduced. I can still feel it usually, but it's not so annoying that I have to be constantly blinking, and it is tolerable. Last night, an hour or two after I took the multivitamin, the sensation to blink was greatly increased in intensity, and I was blinking every few seconds for 5-6 hours until it started to wear off a little bit. Hope that helps.

So far the only thing I've really identified that seems to aggrivate my tic is fish. Anyway, I haven't been feeling too good for the last month, and my diet has been quite lacking, so I decided to go get a multivitamin today since I was feeling rather malnourished. I got the multivitamin that I always used to take, GNC's Mega Men vitamin (basically large doses of all the B vitamins, normal doses of the fat soluble vitamins, and a bunch of other stuff). It could have been coincidence, but about an hour after I took it my blinking tic went BONKERS. Here's an ingredient list. Anyone know which ones of these could have been reponsible? Ingredient - Dosage - % RDA (the listed dosages are per 2 pills, so divide these all in half because I only took one pill) Vitamins Vitamin A (50% as beta-Carotene 50% as Acetate) 5000.00 IU 100% Vitamin C (as Ascorbic Acid & Calcium Ascorbate) 300.00 mg 500% Vitamin D (as Cholecalciferol) 200.00 IU 50% Vitamin E (as Natural d-alpha Tocopheryl Acetate) 100.00 IU 333% Vitamin K (Phytonadione) 80.00 mcg 100% Thiamin (Vitamin B-1)(as Thiamin Mononitrate) 50.00 mg 3333% Riboflavin (Vitamin B-2) 50.00 mg 2941% Niacin (as Niacin and Niacinamide) 50.00 mg 250% Vitamin B-6 (as Pyridoxine Hydrochloride) 50.00 mg 2500% Folic Acid 400.00 mcg 100% Vitamin B12 (as Cyanocobalamin) 50.00 mcg 833% Biotin 300.00 mcg 100% Pantothenic Acid (as Calcium d-Pantothenate) 50.00 mg 500% Calcium (as Calcium Carbonate and Calcium Citrate Malate) 200.00 mg 20% Iodine (as Potassium Iodide) 150.00 mcg 100% Magnesium (as Magnesium Oxide) 100.00 mg 25% Zinc (as Zinc Oxide) 25.00 mg 167% Selenium (as Hydrolyzed Protein Chelate) 200.00 mcg 286% Copper (as Copper Gluconate) 2.00 mg 100% Manganese (as Manganese Sulfate) 2.00 mg 100% Chromium (as Hydrolyzed Protein Chelate) 120.00 mcg 100% Molybdenum (as Sodium Molybdate) 75.00 mcg 100% Proprietary Sports Blend 215.00 mg ** Ginkgo Biloba Leaf Extract ** Green Tea Leaves Extract (Camellia sinensis) ** L-Arginine ** L-Carnitine ** L-Glutamine ** L-Taurine Ethyl Ester HCL ** Branched Chain Amino Acid Blend 150.00 mg ** L-Isoleucine ** L-Leucine ** L-Valine ** alpha-Lipoic Acid 25.00 mg ** Choline (as Choline Bitartrate) 10.00 mg ** Inositol 10.00 mg ** Silica (as Silicon Dioxide) 4.00 mg ** Boron (as Hydrolyzed Protein Chelate) 2.00 mg ** Lutein (as lutein esters) 950.00 mcg ** Lycopene 950.00 mcg ** Astaxanthin 50.00 mcg ** Zeaxanthin 50.00 mcg ** Vanadium (as Sodium Metavanadate) 10.00 mcg ** Other Ingredients: Cellulose, Titanium Dioxide (Natural Mineral Whitener), Vegetable Acetoglycerides, Caramel Color, Ethyl Vanillin No Artificial Color, No Artificial Flavors, No Wheat, No Gluten, No Dairy, Yeast Free Contains: Fish and Soybeans I see at the end it says "contains fish." Which one of those ingredients is fish? That could be what set off my tic, since I know fish is a known trigger for me. I thought it was interesting to see that this vitamin is completely free of artificial colors and flavors, wheat, gluten, dairy, and yeast. Thanks.

http://www.sntp.net/drugs/damage.htm

I remember reading a post (I believe it was on this forum) from someone who had neuroleptic-induced TD and they were talking about studies being done on developing new neuroleptics that didn't cause TD at all. Does anyone have any info on these drugs, who is developing them, how they work, or what they're called? Thanks.

Yes. 0.05mg nightly of Clonidine resulted in significantly decreased ticcing. Side effects: headaches and eye aches (went away after the first week), lethargy, dizziness upon standing, decreased libido (reduced dose to 0.025mg nightly to compensate). The libido side effect was annoying. Keep in mind I'm a 28 year old male, however. Most children probably wouldn't care (or notice) decreased libido. The reduced ticcing was extremely nice as it made me more confident out in public. Keep in mind that of the few dozen or so drugs that are used to treat Tourettes/tics, there are only 4 I would even consider trying in most cases due to the potential side effects of the others. These 4 are: Clonidine Tenex (similar drug to Clonidine, supposed to make you less sleepy, tho) Topamax (anti-seizure drug a user on this forum (myrose?) has had fantastic success with) Marinol (marijuana THC extract in pill form, studies report phenomenal success in trials) Nearly every other tic drug has one or more of the following side effects: - Sudden death from lengthening of the QT interval - Tardive dyskenesia (potentially permanent movement disorder) - Increase in tics - Stiffness and difficulty when trying to move - SSRI side effects So in other words, I would start with one of the four I listed above, and only if none of those work AND the symptoms were really, really bad, would I move on to the other ones with the more severe side effects.

I'm going to second the recommendation to NOT increase it unless you need to. If he can get by on 0.05mg a day then that's awesome.

It could be transient childhood tic disorder. Even if it's Tourettes, in the majority of cases it gets significantly better and/or goes away entirely as they approach adulthood. It sucks that they have to deal with it during their formative years (like in middle school when kids can be mean), but it's often NOT a life sentence. And sometimes the opposite happens. I developed a tic at 17 (which completely baffles doctors as that makes me such a statistical outlier) and I still have it 10 years later. Good luck. There's a lot of info on this site.

For what it's worth, I've noticed that my tic gets worse after I eat fish (which sucks, because I love sushi).

Is that why I feel good when I stay up late sometimes? No sleep = increased dopamine (reward)? I've always been a night owl ever since I was a kid.

What??? I've never heard of anything like that before

Sorry. I'll be 28 in a week (5 days actually) and I haven't tried DHEA.

what is the test for Lyme disease?