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  1. thanks for sharing your experience with tic tamer. i am glad it is at least taking the edge off of your own anxiety about the trip. i don't know if you have ever taken rescue remedy by bach...it has helped me to be more relaxed when travelling and didn't have any side effects. also, my son's tics are exacerbated by strep, likely pandas, but they get worse whenever he is sick, even if it isn't strep...any kind of virus or bug increases his tics. have a great trip!!! julie quote name='myrose' date='Jul 28 2009, 08:00 PM' post='35449'] Yes I did order and finally receive it.
  2. hi. in may, some of us were talking about tic tamer by native remedies...has anyone used it since then? i recently received it in the mail and wanted to check around before giving it to my son. thanks! julie
  3. hi. it was me, julie, who mentioned the spray down. our doctor recommended 1/4 cup salt to water in a large spray bottle. we leave it on after each swim and then take a bath after camp. julie quote name='swim' date='Jul 4 2009, 02:00 AM' post='34650'] Hi Chemar, You mentioned spraying with epsom after swimming. Any idea what the water/salt ratio is when mixing up the solution to spray? Do you know if they rinse off right away or leave the solution on for some time? Thanks to everyone for their comments on this. With no guide book for PANDAS, it helps to hear other peo
  4. thanks. there is an old post from the tourettes forum about this from october 22, 2007 - a doctor usman writes about it under kim's post (sorry - not sure how to better describe where it is to you). there are different approaches and they include the antibiotics and antifungals but also involve other supplements. in summary, as our doctor described, it includes 4 steps. she stressed the timing as being very important: 1) detachment of biofilm with things like enzymes, apple cider vinegar, etc. on an empty stomach 2)microbrial killing with antifungals and antibiotics no sooner than 1
  5. peglem, have you used a protocol to clear out the biofilm? the doctor's thinking is that we need to break down the filmy "bad" biofilm that prevents him from absorbing nutrients and detoxing germs, yeast, etc. I find it difficulto to make sense of it all! I am new to all of this. What is biofilm? Here's wikipedia's article: http://en.wikipedia.org/wiki/Biofilm Thanks! All of you are such amazing advocates for your children! I am learning so much! thanks!
  6. my son's doctor has recommended that we start to address breaking down his biofilm and i was wondering if anyone has used a biofilm protocol, and if so, how did it work? thanks! julie
  7. sorry if this is a duplicate - i tried to post before but don't think it worked! my son's doctor recommended spraying him immediately after swimming with an epsom/water combination. i plan on sending him to camp with it and the counselors will spray him down after each swim... julie
  8. hi. has anyone found that tic tamer works?? julie
  9. hi - my son's doctor also recommended spraying him down after he swims at camp with a mixture of epsom salt and water. i sent a spray bottle and the counselor will spray him all over right when he gets out. he's six and will likely have fun spraying himself! it will be interesting to see if this mitigates the effect of the chlorine. julie
  10. hi. i haven't been on for a while, but yes, my son's tics have increased significantly over the last few weeks! this has been a pattern for the last few years and was also wondering if it could be allergy related. he does not have any typical allergy symptoms, though. julie[ quote name=myrose' date='May 31 2009, 12:03 PM' post='33588] I have read over and over through a MILLION of old posts and it seems to me that people report mostly an increase in tics during the April, May and June time (it seems these months were mentioned most) I would guess this to be allergy induced
  11. thanks so much buster. do you know of any less invasive alternatives to IVIG that might interfere with this antibody? what about IgG orally? my son is currently taking immunotix by xymogen and considering IgG... thanks. julie quote name='Buster' date='Feb 5 2009, 10:59 PM' post='30006'] Hi Julie, I'm not sure there is a great answer to your question. The current research indicates that the ASO and AntiDNAse B antibodies are not the problem. A rising titer in either of them indicates a prior strep infection, but a falling titer or stable titer does not seem to mean a lo
  12. the DAN doctor is guiding us regarding all supplements and medications as well as recommending testing (e.g., urine, stool). she is my go to person for the moment and i like her because she walks on both sides of the street - traditional and alternative, integrative. it is expensive. my son is 5 1/2 and first started with tics 2 years ago in the context of strep. he also had sensory and social pragmatic issues -- through supplementation and dietary changes and likely maturation, his sensory and pragmatic challenges are much improved. i think that his custom amino acid blend has been very
  13. hi everyone. what would you recommend for clearing the strep antibodies? does prophylactic antibiotics help prevent strep but also continue to help clear already elevated levels of antibodies from a recent episode of strep? thanks! julie
  14. hi. it is GREAT that you have been so careful to notice the changes and to link them to strep. many parents wouldn't have been able to do that. my recommendation is an integrative, biomedical pediatrician. often times they are DAN trained (defeat autism now). my son does not have autism and isn't on the spectrum, but his biomedical doctor has a tremendous amount of experience with pandas and healing the gut, etc. you might have some luck if you find a local DAN practioner. being a clinical psychologist myself, i would not recommend that route for pandas but seeing a cognitive behavioral
  15. this is a very interesting article and a good name for me to have as we live outside new york city. thank you! julie I have not heard of anyone using this drug. Here's a link http://en.wikipedia.org/wiki/Vancomycin . Wikipedia says it is a "last resort" drug and can only be given IV, not absorbed if given orally.
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