bmom

Awesome info! Thanks Kelli. This really sounds like my son and nailed him on the head. I am swaying more towards PANDAS now. I just wish it had the info about the daily use of antibiotics filled in. The funny thing is we all got checked for carrier of strep and they all came back negative. I asked the Dr. if it could be our dog as he gags a lot and he thought I was really crazy then. I just wish I knew how to proceed or wait as he is doing fine now-no symptoms. I hate to do anything, but will kick myself if I should have. Thanks for the great info though.

I just did a search on the computer on this and it said that it could be related to an iron deficiency and the deficiency in iron could be related to Celiacs disease. It suggested getting tested for Celiacs disease.

Hi Lenny, We haven't heard from you in awhile and I was wondering how your son was doing. I feel the same way and keep wondering if I will get over this. I just want to fast forward until he is 15 or so. Yet he is doing great and I hope and pray it remains that way. It will be a year for us next month. I recently read something that said 8-12 is the highest level of ticcing so I just keep thinking that I am in the thick of it now and hope it will only continue to get better, not worse. I went to my sons first basketball practice for the year last night. I was nervous because of the lights, yet he remained fine. The funny thing is that one of the other players was doing some ticcing-raising eyebrows and hard blinks. I always think that I am alone in this, yet now that I notice, I do see other children experiencing the same thing. Glad to hear your son remains stable and I was wondering how many Bontech you give your son? I just started my son on these and it seems like a lot to give 500 mg of magnesium. Do you?

I cant tell you what might help, yet I am thankful for all the moms who take the time to post their info. I have listened to part-not all of Amy Yasko's speech posted on here and she talks about MSG and Aspartame as excitotoxins as well. I have been considering the digestive enzymes as well. Please let us know what the doctor says may help and what they say about the digestive enzymes. Thanks.

Thanks- I am trying to find the top doctors that handle this and he looks pretty good, yet it is so far. Did he tell you to do the diet based upon test results or just that it often works? The wheat free/ dairy free has a lot of books out there due to autism. You throw in the mold though too. I would probably make a list of ok foods according to Gf/Dairy free and then go through and see what to eliminate based on mold. Good luck. Please keep us updated on him as I am considering him. Did nothing come up on the allergy testing? I know he does optimal dose shots/drops and my son seems to have soo many allergies, I thought this may help him.

My son is not gluten free, yet I thought of 2 things. If you dont want to keep guessing, you could do the Alcat test on her to see what it says. It is somewhat expensive though. around 400-600 and she needs to have eaten the food for 30 days prior to have it show up on the test. The other thing I think about is sometimes increased tics for a few days is a good sign. It is almost like a withdrawl sign as much as we hate to see it.

According to Bonnie's website for Bontech my son- since he is over 8 years should take 500 mg of magnesium daily. I have had him on 250 with Kids Calm, but I switched him to Bonnie's as it seemed easier and more comprehensive then all my individual. Anyway, is 500 too much or is that what he really needs? or should I keep him around 300 mg? How much do your children take? My son is 9 and 70 pounds. Thanks. I did just have another hair analysis done and it showed him in average range for magnesium-high average- with the 250. I was seeing some small ticcing every once in awhile.

I am really up in the air on the vaccines. I feel stuck in what to do with either of my children. My daughter (age 3) is past due for 2 shots, but I cant decide. What do the rest of you do? Kim? Anyone? Im afraid not to, yet afraid to especially with my son. What is your plan Cum Passes?

I was just wondering if you have seen Dr. Robbins yet? If so, could you post about your visit? Tests run and recommendations? Thanks so much.

Thanks Pat! Glad to hear he is doing well. How long has he maintained his improvement and is it still 95% improved?

That sounds like she experiencing some seperation anxiety that some children have. It is a good idea that you are getting her tested for strep.

Sunshine- What a caring mom you must be. I sent you an instant message, but I do have another question. I looked at the Yasko approach online, are you doing all of the supplements. Does he do the bath detox? What about the gum? Was there one part of it that you found especially helpful? Thank you for taking the time to do all of this.

Michelle- Are you seeing improvements with Dr. Demio's program? If yes, are they big or small gains?

If a parent decides not to vaccinate, how do we get out of it and still keep our child in public school? Does anyone know of a website that has info. on what states give exemptions and what are the exemptions?

Michelle- Just to let you know Dr. Murphy's assistant has been very good about emailing me as well. They did recommend a Dr. closer to me although he is still in another state and 8 hours away, but they were trying to give me other options than going to Florida as it is pretty far away from us.

Did you see a reduction in his tics when he started on the Tenex and has he had any side effects? I like to keep up on all info. thanks for posting as I am sure that you have your hands full. Have you ever checked into a DAN dr. for either of your sons. I know it is expensive, but some treat both issues.

Emily, Recently Kim posted a speech from Dr. Demio on the sibling relationship. I haven't finished it yet, but you may want to listen to it as it discusses that particular thing.

I am sorry you are having such a hard time. I am just learning as well, but I hope someone can come along that will help. If it was the Rescue Remedy it should cycle out of her system in a few days. If you think the epsom salt bath helps, I have heard of people doing them am and pm. I think that everyone agrees that a DAN dr., environmental, or Integrative are the ones that deal with these alternatively. Perhaps ask around to find one with experience. I pray that things settle down quickly and someone else will come along with more substantial advice.

Kim- I am still trying to process the sulfer info and have not had time to read the posts you have included yet I thank you for that. I am on day 3 of switching my son to the Bontech as I had thought they were more comprehensive. I haven't seen an adverse reaction, but I only have him up to six and a combination of the Kids Calm that he has always done well on. Are you saying if they have a sulfer problem Bonnie's would not do well? I have had him take a B complex periodically with no problems so I figured he was ok, but Bonnie's has so much B's. What do you think? No increase yet- am I out of the woods?

Sunshine- So great to hear that your son is doing wonderful. I know that you have been on the website awhile and many know your story, but I was wondering if you could do a quick run down of treatments, age of your son, progression and things that have been most beneficial to your son. Thank you so much. By the way to you all, my husband has mild motor tics and my son began this year. My husband had a tumor as you described come out this year as well. Seems like this is related. I am trying to soak up what you are all talking about related to the sulfur.

Hi Cum Passes, I am sorry to beat a dead horse as I know I have asked you about diet before yet, a few more questions. What are your diet basics- did you have allergy testing done and eliminate or just clean up the diet? Did you go to an alternative Dr. ever? Is your son still on supplements? What about digestive enzymes? Thanks in advance for all the questions. My mind is just so packed with info these days I have to sort it all out. Glad to hear he is stable and to see you checking in. When I first started on this board and would read I would think- where did these parents go? Did they find success and then stop or give up? I have to say to the newbies out there, I now believe they find success.

My son takes the Kids Calm and it is a liquid with Zinc. It does not contain calcium though and the one my son takes is a pill form, but the Kids Calm is highly recommended. Try looking on Kirkman Lab Vitamins on the web. I believe it has liquid.

I just want to clarify, it is my understanding that Dr. Albert Robbins of Florida is wonderful with Tourettes, but I thought he was an Environmental Doctor. I think that protocal is quite a bit similar though. I could also be wrong on this.

Faith, When my son first broke out into major ticcing we were scurring to every type of Dr. possible and I was reading this board and trying to compute whatever info I could at the time. We do not have a Enviro Dr. here, but my friend who has an autistic son recommended a naturalpath. She did do the muscle test and only performed NAET on the dust and sagebrush as that is what he showed an allergy to. He still has allergies and was having some very bad nasal, etc problems so I took him to an allergist after that to test him-also to see if the test would correlate with what the naturalpath said. He did RAST and IGE which showed more trees and other things. Still no food with the exception of slightly beef. Naturalpath said not allergic to dogs and cats, but Rast said yes- so I am not sure about the muscle test. I think that there is something there, yet I find it hard to believe he was only allergic to 2 things and after NAET he was still having trouble allergies. I was just wondering Faith if you have taken your son to an Enviro Doc or DAN. Do they guide you on this? Is it the probiotics that you think are important? Did the Enviro say this? Anyone with more info on the enzymes would be helpful. I am considering these.

We did take our son to a natural path and had the muscle test done. She said he had no food allergies and only allergic to dust after testing him on numerous items, but he was having such allergies along with the tics and had asthma as a younger child so I feel that allergies are a big part of his problem. I have had him tested by IGE and that showed many allergies to trees, and other things that the muscle test did not show. He also came back slightly allergic to beef according to the IGE. My next step is the IGG although he is is doing pretty well so I haven't done it yet. SOOO, I guess what I am saying is that the muscle test did not seem to show much and was not that informative to us. It could be the Dr., it could be that food doesnt affect him, yet I just dont know. Insurance covered it and does not the IGG so we tried it along with the NAET. He is doing well- a few things pop up once in awhile. Supplements seem to really help and I think sickness and tv seem to be his big problems. I just think that the IGG may show something as my husbands family is allergic to many foods. You could give it a try though. I know my husband did it and said he just could not hold his arm up during the dust one. The leaky gut is one thing that I have been researching and it does say that when the person gets exposed to too much of one item- he becomes intollerant.