Cum Passus

Happy Holidays all, I have a friend who has a rare bladder disorder. She can't eat much, and some toxic smells bother her bladder, she would be in pain. Anyway she said she had her house painted and put pure vanilla out to pull the toxins out of the air, this she said helped her bladder. I figured the vanilla must have done something since it releaved her pain, and not just covered up the paint smell. Other then that I thought it would be a great air freshener since I through out all our yankee candles. Thought this was interesting and wanted to share. C.P.

Thank you Mrs.D, Chemar & kim Mrs.D talked about blood flow to the brain. Last winter I was talking to my Dad about my son ticcing worse when the weather is really cold. My dad had a heart attack a few years ago and said the cold bothers him, makes his chest hurt. He was thinking the blood flow was slowed in the cold. Could this be the reason why grape seed extract helps? (I was thinking blood thinner idea.) Same idea with the clonidine? Thanks everybody, My husband is just fascinated watching our son while he is sick trying to figure out what happened. C.P.

Chemar, Thank you for checking further into this. This is the third time this has happened. His tics have come back, now that he his getting better. C.P.

Giselle, I have been wondering about the artichokes you said you gave your son? How do they help him? And you said it was from the thistle family. Could you tell me about this, I have been wanting to try them but I didn't know how to cook them. Thanks C.P.

Chemar, My husband is wondering if you could answer this question? Our son was sick with a cold this past weekend he didn't make all the vocals while his body was not feeling well. When we told his Dr. he was suprised he said most kids he sees tic worse when they are sick. His question is about the dopamine does the body do some thing to the dopamine when your sick? It was really strange how he didn't tic at all, I only heard him once on Sunday, and I let him watch football all day. Thanks C.P. & S.P.

Patty, Everything you said you have done we have also done, but have not tried the chiropractic. I thought that would only help with the motor tics I'll look into that. We eat almost all organic too. I can't believe how are food bill has skyrocketed. I'm thankful we have the money, but still try to find ways to keep it down. The cleaning products I think I have worked out good. We use a lot of baking soda and lemon juice. Last week I spent 4 hours scrubbing the grout on the kitchen floor. It really worked great. I also buy the good laundry soap and use half the amount then add baking soda. That way I don't use so much detergent. If you have any good ideas I would love to hear about them. We also eat breakfast for dinner once a week, and roast a organic chicken, then use the chicken juice to make soup. That has helped save some money. We also change the food around alot. He really was upset when he found out he showed up abnormal to alot of foods. I figure if he does not care about the TS then I'm not going to make his life worse by telling him he can't eat the foods he likes. I have put my foot down on the junk food and all the bad stuff out there. He is ok with that as long as I make him a treat he can eat. He loves fruit and vegys thankfully. If you have any good cheap cleaning ideas let me know. Thanks C.P.

Patty, My son has an allergy to everything under the sun. So far it has not helped to take them out of his diet. We have been trying so many things over the past year, that I think he is going to have to grow out of some of it. He does take the baths and since he doesn't have motor tics hardly at all... the bath don't help with the vocal that I can tell. I found Natural Calm mag supplement comes in a powder mix with water and drink. We did the taurate and we think he can't do the taurate, but it is so very hard to tell with him because we really don't see much help. I wish I could better discribe, him he looks so normal until you hear an outburst. I guess that is why I have had to dive into reading because I'm so tired of waiting and watching to see what will work and so disappointed when there is no change. St. Frances de Sales said "God makes sure our cross is not one ounce too heavy or one inch too large for us." I have come to understand I make this cross too much by living in the past (pre- TS) and worring about the future. I wish I had more to offer people who's children have more vocal tics that gives hope, but all I have is prayer. How old is your son? Thanks for the info on the empty stomach I did not know that. C.P.

Patty, My husband's TS started out motor then became vocal. He doesn't have any motor tics now and the vocal really isn't there. It is hard to tell because he clears his throat or says a word and it is just like anyone doing that. He uses the word buddy so it sounds like a term of endearment. Kind of when you hear people say (like) all the time, but my husband will ony say it maybe three times in a day. That is why it is hard to tell if he really wanted to say buddy or was that a tic. Thanks for asking about my son he is still yelling, but the screeming has stopped. I think the meds are working for some of the vocal. I feel like I have him at a point where I can tell if some vit. will help or not. He did react to the fish oil. I alos think maybe even mag/tar. so I am doing the mag in a powder. Just started that last week, and he got sick this weekend and he has been so quite. Yesterday I only heard him once all day, even when it got late he never said a word. I guess not feeling well has stopped them for awhile. He is home today from school and I have noticed a couple come out. Strange isn't it? I have been thankful for the peace. Last year at this time it was sooooooooo bad and I thought life was over. I have heard alot of stories on the radio of families who are going through tough times, and I know TS is a small problem compared to what some people have to go through. I know I'm big on poems, but they really help me This is a great one. HIS PURPOSE The shuttles of His purpose move to carry out His own design. Seek not too soon to dispprove His work, nor yet assign dark motives, when with slient tread you view some somber fold, for lo, within each darker thread there twines a thread of gold. Spin cheerfully, not tearfully. He knows the way you plod. Spin carefully, spin prayerfully, but leave the thread with God. Author unknown Thanks for letting me share this season of our lives with all of you. You all are a huge help. Blessings C.P.

Jackie, I can really relate to the crying in the bathroom. It has taken me almost a year to get past some issues. It really helped me to talk to everyone we had contact with. Parents on my sons baseball team were so understanding. His coach even cried when I told him. I found people at church who had grown children who had TS, and they were a real comfort. Even a neighbor who's older son has it. Talking about it really helped me alot, but I would still have moments when crying seemed to be the only thing that would help. About the vocal, my son didn't have any until he was 10 or 11 and then it was only a kissing noise. He would do it so far apart from each other that we thought it was just something he liked to do once in awhile. Then when he was 12 it became huh huh ... now it is words and shouting and he even screemed. My husband had Ts and he said for him he liked the sound or feeling of a noise. He does think they change into other things but he said it had to be something he wanted to do, his parents didn't have any luck making him change. Hope that was of some help. C.P.

Lenny, I'm so happy to hear your son is happy. My son also is a happy 13 year old dx Ts last Jan. He has really helped me with my sadness. I figure if a kid his age can be happy being different at an age when for most kids that is the last thing they want, then I need to take a good hard look at myself. My son is also very bright he has a photographic memory when it comes to spelling. I have dyslexia and can't believe he doesn't have any learning problems. Glad your here. C.P.

Jackie, So glad you are here with us. I too waited almost a year before I hopped on board.This has been the most trying time in my life. I have been blessed with 3 really great kids and this really messed with my mind. I thought this would change them, but the girls are so sweet to their brother. I really can't get over how they can play with him while he is yelling in their ears. They really put me to shame, because I can't take it as long as they can. Your in our thoughts. Patty & Chemar, My son had only movements in the early days so mild that we didn't know he had TS. My question is can you have one motor tics first (longer then a year) then get the vocal later, say when their body is changing?Because that is what happened to him. My son still has very minor motor tics, and as far as I can tell he doesn't have ocd or add/adhd so we can hope that he only has TS. Should we be looking out for a possible ocd? Something that might show up later? Thanks, C.P.

Giselle, You and your son were on my mind all night, and I couldn't wait to see if you were going to let us know how it went. I knew deep down it was going to go great. Just a peace I guess. (easy for me to say it wasn't my son up there.) What a beautiful Christmas Blessing for you and your family. C.P.

Hi All, I was wondering about DHA supplements from algie? I came across them at the health food store, and was intrested in getting it, but wasn't sure. I was hoping some of you would have some info. I called almost all the fish oil co. to find out if the d-alpha tocopherol came from soy? Every one said they could not say for sure, and that it was such a small amount they didn't have to put it on the label. Anyway the DHA from algie also has d- alpha tocopherol form of vit. E, but I thought that might help to see if my son just couldn't do fish oil, or could it be some traces of the soy? Anyone heard of it? Anyone have info on DHA from algie? Thanks C.P.

Patty, I know how you feel, my son walks around yelling " FOOL " and when you try to talk to him he says "SO WHAT" all the time. Right now we are working on changing "FOOL" into"COOL" it has worked sometimes. It is hard he is 13 and sometimes I do think he is saying it to be a smarty pants. C.P.

Giselle, WEEEEEEE....... This is so great!!!!!!! I'm doing cartwheels in the livingroom. You are such an inspiration for considering this matter so prudently. God is so good to the humble and submissive. Look forward to hearing the revews. ELATED, C.P.

Patty, I know exactly how you feel. It is so hard to think about anything else, much less on the holidays. I have had the same thoughts about letting everything go. My husband is a big support, but since he had TS as a kid he really does think we should not do too much. He thinks it makes our son think about it too much. He also does believe there are things that will help that he did not have as a child. So it feels like a very fine line to walk. I have found one blessing through all this. Spending Thanksgiving with family I found for the first time I was really and truly not interested in the family gossip. It was a great feeling. I pray for a healing everyday for our son, but sometimes I really believe the Lord is healing me first. C.P. I read this poem by Helen Steiner Rice NEVER BE DISCOURAGED There is really nothing we need know or even try to understand If we refuse to be discouraged and trust in God"s guiding hand. So take heart and meet each minute with faith in God's great love, Aware that every day of life is controlled by God above... And never dread tomorrow or what the future brings, Just pray for strengh and courage and trust God in all things. And never grow discouraged be patient and just wait For "God never comes too early and He never comes too late!"

Carolyn, Thank you, and what a sweet picture. I'm glad you told me I have wondered if my girls could pass the gene even though they don't show signs of TS. So when you eat those foods do you see a difference in how bad the tics will be with the allergy vs sensitivities. I mean is one worse then the other? Chemar, I can't tell you how hard it has been to find supps. that don't send me into a panic, "whats that stuff... never heard of that name..." Thanks for letting me know you do them separately, and are concerned about questionable ingredients. C.P.

Thanks Chemar, I'll start the cal/mag/zink does it matter what time of day he should take it? Are they to be taken at the same time? Can you tell me a good cal/mag combo? Thanks again, C.P.

Hi Chemar, Hoping you can help, have some questions. 1. Has your husband ever tried vitamins first to see if they have an effect on him before you give them to your son? Our son didn't do well with the fish oil, and my husband also was effected by the fish too. 2. How much is your second son like your husband? Our son is so much like my husband its scary. They are like twins. My husband is alot like his father where as his brother is like their mother. (Brother does not have TS.) The only thing I see that all three share in common is they are ambidextrous. Maybe thats not strange but, my girls can't do anything left handed, and husbands brother is not ambidextrous either. 3. How much is food a problem for those who have had TS passed down? I'm wondering because I'm hoping to have tests for food sen. back this week. 4. Last check on the growth chart, son has grown 2 1/4 inches in 9 months. Do you think this is why things have been so bad all these months? 5. What can you tell me about Royal Jelly? Is raw honey just as good? 6. Last one. Have put son on vit. E so fer so good. Flax oil, not sure yet on that one. Thought about B6 next or should I do mag.? I'm just not sure about the B vit. after the bovine liver thing. Thanks for your help. and have a happy holiday. C.P.

Giselle, By coward hands was Christ crucified... yet, He still forgives. What a beautiful display of Christ like virtue, UNDERSTANDING AND PATIENCE God Bless You, C.P.

All, A question about high histamine test is that different then what the allergy test for? My son had the pricks on the back and histamine was a 4. Julia I think my son has the same type of allergies that don't show up as anything, as you listed. Have you ever tried royal jelly? I was going to ask Chemar about royal jelly I think I remember reading about her son using it. I have a whole list of questions for her, (a little warning Chemar I get that to you before the holidays.) I'll cross off the jelly question if you answer now. Thanks, C.P.

Thankyou, Thankyou, Carolyn, I will go on a hound hunt for those books. C.P.

Hi all, Just wondering what you all with pets do about flee and tic med. Is this bad to have it on the dog? We tell our son to not touch the dog for a couple days after she gets the medication. What do you all think, and or do about this topic? C.P.

Carolyn, Oh yes, I have spent meny a night worring about this. I don't know what to make of my son, I think he thinks there is nothing wrong with him. He has meny friends, and when my husband and I try to worn the boys what he will do before bed, they don't seem to care, and still want to spend the night. I just thank God and ask Him to bless each one of my son's friends. You would think he could pull off all A's and B's in school with as much noise as he makes, but he did. Thank you for your prayers. One day my husband was on his way to church late at night, on his way out he went to the mailbox and found this holy card in the mail. It said, " Jesus is waiting for you in the chapel. Go and find Him when your strength and patience are giving out, when you feel lonely and helpless. Say to Him: 'you know very well what is happening, my dear Jesus. I have only you. Come to my aid' And then go your way. Don't worry about knowing how you are going to manage. It is enough to have told the good Lord. He has an excellent memory." This gave my husband chills, as he was on his way that very night to church. C.P.

Carolyn, Thank you I'll keep close eyes on him, we went 11 months with no meds, and it really hurt to have to go this route. I wish I had some idea how long he would be yelling and screaming. My son is so athletic I hope this medication does not change that, I know he would be very sad if that happend. I would click you a smilie face but I can't get the clickable smilies to work for me. C.P.