I think this needs exposure over here!

[Fixit]

as per this site...and i don't know how reliable they are

 

it says

 

Step

2Use oral erythromycin as the drug of choice for mycoplasm infections

 

any thoughts on why Doc K or T aren't using this one

 

 

http://www.ehow.com/how_2079184_treat-myco...infections.html

 

 

 

as per this site it says myco feeds on amino acids.....so should i stop giving my ds his morning amino acids(Nac and glycine)???

and what about fatty acids...Omega 3''' should i stop giving those for a while too....or give so it feeds on that and not the brain...i'm getting confused

 

. They have never been found growing freely as living organisms because they depend on their host for such things as fatty acids, amino acids, precursors for nucleic acid synthesis and cholesterol

 

How do i help starve this thing

 

 

http://s99.middlebury.edu/BI330A/projects/...pneumoniae.html

[JTs-Mom]

Fixit - I have been wondering the same thing .... do I try to avoid the things the mycop feeds on or do I increase his cholesterol intake (my son's cholesterol was quite low) to draw it out of its hiding places so the antibiotic can better get to it ????

[abbe]

Cheri, Caryn and everyone else,

 

I know I have talked about Mycoplasma and Nicholas this past year. His Dr. muscle tested him for it and found that he had it. We have NEVER used antibiotics to treat this infection. I gravitated to this sight originally because I am a big believer in healing the body without medicine if at all possible. Even when I mad the choice to use 15 mg of topamax for Nicholas I did so only to alleviate his anxiety from his tics, the tics themselves and "buy" myself time to figure out the real issue. I don't know if mycoplasma is the real and only issue behind Nicks tics. I can say we have gotten 100% positive result treating Nick for mycoplasma with homeopathic vials and through a machine called the kmt machine. Dr. Chung is completely against treating it with antibiotics and he is a medical doctor who practices integrative medicine. His reasoning is the infection goes IN the cells and antibiotics will only kill the infection outside of the cells. Also he said that we are ALWAYS exposed to mycoplasma everyday and unless the body builds up the immune system to fight against the virus the problem will just persist. That doesn't even take into account the yeast issue with antibiotics.

 

So although I wanted to stick nick on antibiotics and just get rid of it I knew better. Nick has been tic free again. 100% . Ten days ago he started to tic and I took him in and he tested for some aluminum on the left side of his brain. I have been using cilantro on his head every night and he used the kmt machine at the office. Within 3 days he was 100% tic free again.

 

I think Nick's brain is prone to infection and metals from his blood brain barrier being weakened due to his past medical history. I can only hope in time it and he heals up completely.

 

 

abbe

[Fixit]

Hey Chemar...does this answer any of your thoughts..

 

someone else of cours found this link to Myco P...F i think it's called

 

but it says

 

The Mycoplasma is a slow-growing, stealth-type organism that can cause the patient to be very ill. It activates the immune system, then can successfully hide from it within the host immune cells. It can then circulate throughout the body and go wherever a white blood cell can go. It can cause infection deep within any or all organs. It can even cross the blood/brain barrier and cause brain and spinal infection. It has also been known to cross the placental barrier to an unborn fetus. Unless the white blood cell is split open and examined for the evidence of the live organism, it can go undetected for years. Because the organism resides deep within the cells, conventional antibody tests may be relatively useless. (21) The splitting open (fraction) of leukocytes (white blood cells) from a fresh blood sample, with a forensic PCR test is the most accurate way to detect the presence of active infection with a live pathogen. Further gene-tracking techniques perfected by the Nicolson's are even more accurate. (22)

 

http://www.rense.com/general7/microplasm.htm

 

Also talks about Myco causin auto immuned disorders...lupus, hashimotss, adreanal over load, enviromental sensitivies

[abbe]

Fixit - I have been wondering the same thing .... do I try to avoid the things the mycop feeds on or do I increase his cholesterol intake (my son's cholesterol was quite low) to draw it out of its hiding places so the antibiotic can better get to it ????

[Chemar]

Cheri, Caryn and everyone else,

 

I know I have talked about Mycoplasma and Nicholas this past year. His Dr. muscle tested him for it and found that he had it. We have NEVER used antibiotics to treat this infection. I gravitated to this sight originally because I am a big believer in healing the body without medicine if at all possible. Even when I mad the choice to use 15 mg of topamax for Nicholas I did so only to alleviate his anxiety from his tics, the tics themselves and "buy" myself time to figure out the real issue. I don't know if mycoplasma is the real and only issue behind Nicks tics. I can say we have gotten 100% positive result treating Nick for mycoplasma with homeopathic vials and through a machine called the kmt machine. Dr. Chung is completely against treating it with antibiotics and he is a medical doctor who practices integrative medicine. His reasoning is the infection goes IN the cells and antibiotics will only kill the infection outside of the cells. Also he said that we are ALWAYS exposed to mycoplasma everyday and unless the body builds up the immune system to fight against the virus the problem will just persist. That doesn't even take into account the yeast issue with antibiotics.

 

So although I wanted to stick nick on antibiotics and just get rid of it I knew better. Nick has been tic free again. 100% . Ten days ago he started to tic and I took him in and he tested for some aluminum on the left side of his brain. I have been using cilantro on his head every night and he used the kmt machine at the office. Within 3 days he was 100% tic free again.

 

I think Nick's brain is prone to infection and metals from his blood brain barrier being weakened due to his past medical history. I can only hope in time it and he heals up completely.

 

 

abbe

 

thanks so much for posting that abbe

 

I like your doctor Chung and yes, our docs feel the same and that is why we use natural antimicrobials in our diet and supplements as well as other treatments. Conventional medicine is far too focussed on the massive attack method with drugs without regard for the collateral damage that is being done while trying to fix what is wrong

[abbe]

Cheri, Caryn and everyone else,

 

I know I have talked about Mycoplasma and Nicholas this past year. His Dr. muscle tested him for it and found that he had it. We have NEVER used antibiotics to treat this infection. I gravitated to this sight originally because I am a big believer in healing the body without medicine if at all possible. Even when I mad the choice to use 15 mg of topamax for Nicholas I did so only to alleviate his anxiety from his tics, the tics themselves and "buy" myself time to figure out the real issue. I don't know if mycoplasma is the real and only issue behind Nicks tics. I can say we have gotten 100% positive result treating Nick for mycoplasma with homeopathic vials and through a machine called the kmt machine. Dr. Chung is completely against treating it with antibiotics and he is a medical doctor who practices integrative medicine. His reasoning is the infection goes IN the cells and antibiotics will only kill the infection outside of the cells. Also he said that we are ALWAYS exposed to mycoplasma everyday and unless the body builds up the immune system to fight against the virus the problem will just persist. That doesn't even take into account the yeast issue with antibiotics.

 

So although I wanted to stick nick on antibiotics and just get rid of it I knew better. Nick has been tic free again. 100% . Ten days ago he started to tic and I took him in and he tested for some aluminum on the left side of his brain. I have been using cilantro on his head every night and he used the kmt machine at the office. Within 3 days he was 100% tic free again.

 

I think Nick's brain is prone to infection and metals from his blood brain barrier being weakened due to his past medical history. I can only hope in time it and he heals up completely.

 

 

abbe

[Fixit]

Hey Abbe, i read a couple of your threads....i don't know the whole stoyr on your son

when did he start to tic/

what other remedies did you try?

how did you come across dr chung...

i am an former njian....where is dr chung located?

[abbe]

Hey Abbe, i read a couple of your threads....i don't know the whole stoyr on your son

when did he start to tic/

what other remedies did you try?

how did you come across dr chung...

i am an former njian....where is dr chung located?

 

 

Hey,

 

I came across Dr. chung by a referral from this women named Janice Pickering . She did a dried blood analysis on Nick and said he was a great doctor. Nick started ticcing badly or obviously two October's ago. Looking back his eyes were ticcing the summer before that but I thought it was his eye sight. I have been done every road I can think of allergies, pyroulia, mold, yeast, screens everything. Just seems like mycoplasma might be the last thing. Funny I was reading some web site today that said all of the vitamins and minerals that Nick was lacking in are the ones that people with the infection are usually lacking in. It can really all be very overwhelming at times....

 

 

abbe

[Fixit]

Hey,

 

I came across Dr. chung by a referral from this women named Janice Pickering . She did a dried blood analysis on Nick and said he was a great doctor. Nick started ticcing badly or obviously two October's ago. Looking back his eyes were ticcing the summer before that but I thought it was his eye sight. I have been done every road I can think of allergies, pyroulia, mold, yeast, screens everything. Just seems like mycoplasma might be the last thing. Funny I was reading some web site today that said all of the vitamins and minerals that Nick was lacking in are the ones that people with the infection are usually lacking in. It can really all be very overwhelming at times....

 

 

abbe

 

where is dr Chung?

what vitamins and minerals is Nick on?

[faith]

I must say the recent talk here and on PANDAS forum does have me wondering too

 

if a parent had been infected with say for example mycoplasma before a child was born, could the child become more suceptible?

 

there is a school of thought in GI medicine that Crohn's may be caused by mycoplasma (I think the pneumoniae has been suggested?)

and I know some TS can be microbial triggered, so that includes mycoplasma

 

I had double pneumonia with bronchitis back in 1987 or 88, and my son was born in 1989. my oldest son was tiny when I got sick, but neither he nor my TS husband got pneumonia or were even sick when I got so ill. Oldest son is not TS

not sure which type pf pneumonia bacteria I was infected with tho as i realize there are several

 

I was immediately given antibiotics (injected and oral course) and seemed to make a good recovery. I seldom get colds or respiratory probs and they are over quickly when I do

 

I do wonder tho if something in my antibodies to eg mycoplasma may have impacted my son in the womb? tho I would have thought that kind of exposure, plus him being nursed for quite a long time, would have imparted more natural immunity to him?

 

any thoughts?

 

My TS husband had severe strep as a very young child

 

 

I find this interesting.....now I don't know if my son has myco and we still don't have much evidence of strep, but I too had a bad case of bronchitis that seemed to turn to pneumo because the first abx they gave me (Biaxin) didn't seem to do the trick. I was staying sick and got worse, couldn't even get out of bed, I was married and had to stay at my mothers. this was 1994, I remember because the winter Olympics were going on. After a different abx, I seemed to get better, but then relapsed about a week later and by that time it was walking pneumo, does that mean mycoplasma p.? is that what myco is? walking pneumonia?

 

But my son wasn't born until 1999. I don't know what this would mean, however, unless I still had some form of that all this time? don't know, is that possible? ... (reminder, I have fleeting moments of some tic urges like head tightening or tapping)......I have had mycoplasma p. tested for my son recently and it said negative, but the PANDAS doc thinks it was not the exact right test, so we are doing it again. I'll post an update here. but interesting if that could be kind of passed down somehow?

[Fixit]

I must say the recent talk here and on PANDAS forum does have me wondering too

 

if a parent had been infected with say for example mycoplasma before a child was born, could the child become more suceptible?

 

there is a school of thought in GI medicine that Crohn's may be caused by mycoplasma (I think the pneumoniae has been suggested?)

and I know some TS can be microbial triggered, so that includes mycoplasma

 

I had double pneumonia with bronchitis back in 1987 or 88, and my son was born in 1989. my oldest son was tiny when I got sick, but neither he nor my TS husband got pneumonia or were even sick when I got so ill. Oldest son is not TS

not sure which type pf pneumonia bacteria I was infected with tho as i realize there are several

 

I was immediately given antibiotics (injected and oral course) and seemed to make a good recovery. I seldom get colds or respiratory probs and they are over quickly when I do

 

I do wonder tho if something in my antibodies to eg mycoplasma may have impacted my son in the womb? tho I would have thought that kind of exposure, plus him being nursed for quite a long time, would have imparted more natural immunity to him?

 

any thoughts?

 

My TS husband had severe strep as a very young child

 

 

I find this interesting.....now I don't know if my son has myco and we still don't have much evidence of strep, but I too had a bad case of bronchitis that seemed to turn to pneumo because the first abx they gave me (Biaxin) didn't seem to do the trick. I was staying sick and got worse, couldn't even get out of bed, I was married and had to stay at my mothers. this was 1994, I remember because the winter Olympics were going on. After a different abx, I seemed to get better, but then relapsed about a week later and by that time it was walking pneumo, does that mean mycoplasma p.? is that what myco is? walking pneumonia?

 

But my son wasn't born until 1999. I don't know what this would mean, however, unless I still had some form of that all this time? don't know, is that possible? ... (reminder, I have fleeting moments of some tic urges like head tightening or tapping)......I have had mycoplasma p. tested for my son recently and it said negative, but the PANDAS doc thinks it was not the exact right test, so we are doing it again. I'll post an update here. but interesting if that could be kind of passed down somehow?

 

Hey faith.....i don't know if you kept reading down...but on 2 sites i saw where it says Myco P can pass through almsot everything it can feed off of...it can live in a specific organ, in the spinal fluid etc.and not be seen anywhere else....that was what i understood....and it can pass through uterus to the infant....

 

..they don't know how long antibodies last, but not forever and you can get reinfected and upon reifection your igm will not rise again.

...and the thing is ..if its hinding like strep, in one location but can pass through things like a ghost...maybe you've had it all along and never got rid of it...

...my concern going forward is that i hope the docs keep us on abx long enought to get rid of it... many have relapses after being on abx after 6 weeks...one paper said they have had a better success of "cure, remission after 6 months"!!!!! even in the 1 paper it said they had the patients on abx for 2 months.

[Chemar]

fixit

 

have you considered also trying the natural antibiotics?

[Fixit]

fixit

 

have you considered also trying the natural antibiotics?

 

well since i didn't have a specific target before now, i was all over the place as you have seen....gf/cf, exercises, tmj, allegies, vitamins& mins, low thyroid, etc

we also started thyroid med, as not only to give his body a break but i've heard it helps with cyticokes and if we can get things to calm i'd like to get him off that too since he is so young...as mentioned i've again heard myco p can cause hashitmots..chicken or egg...myco causing damage or bad immuno letting myco in

 

I would like to hit this hard up front at least with abx as they worked completely in the past and see where i am...

I have per my question the other day, given ds 1 capsule of OReganal -oil of oregano last night and will continue to do so indefinitly

it says 1 a day..is that enough? ds weighs about 80lbs now

 

it says cert oganic ev. olive oil 140mg

and wild oregano oil P73

capsul 100% beef gel BSE-free non-gmo

 

should i give him 2?

since it says olive oil would that be a sbustitie for olive oil leaf?

should i give both?

 

I will take any suggestions on natural abx, but that is all i know..of cours i will continue a clean diet and we just started to go cf again, as allergie season is here and want to keep his histamines down.

 

were you saying something about coconut oil?

 

I would love to hear it all and could you add what the purpose is..ie i'm cutting out milk again, as milk increases histamines levels

 

Chemar...on the water for the toothbrushes, do you let the brushes sit in it all the time and how often do you change the solution?

 

Thanks Chemar and Caryn if your there i know you have some good stuff too...and anyone please chime in

[Chemar]

no, olive oil is not the same as olive leaf extract...the oil is from the olive fruit. olive oil is very healthy but it is the extract from the leaves that kills viruses, bacteria, fingus etc

 

oil of oregano is a very good natural antibiotic (tho very strong!! dont ever try to take it plain as it will burn your mouth!) but I have heard that monolaurin ie the lauric acid extract from coconuts is superior when it comes to stubborn microbes, which mycoplasma is

 

coconut oil has some lauric acid in it so always good but the monolaurin capsules are what we use (made by cardiovascular research, I get ours from The Vitamin Shoppe

 

I have seen some info that alternative researchers are even investigating monolaurin for use against AID/HIV

 

we use coconut milk too

 

re the toothbrushes..we usually use fresh diluted hydrogen peroxide every few days and yes, we leave the toothbrushes in the solution all the time