Update on Nicholas

[abbe]

Hello,

 

Haven't posted in awhile been busy with Nick and my other two sons. I wanted to give you an update on Nick though. So without repeating his history to the new comers this is really for those who have been following my posts over the past 18 months. At Nicholas last visit Dr. Chung detected Mycoplasma infection in him. Second time he did. Once again he gave me the 10 homeopathic vials for him to take over a 30 day period. Prior to this visit's Nicks tics were gone again except after that laser light experience in Disney. But before this visit for no reason I could see his neck and eyes started up. After 3 vials of mycoplasma homeopathic medicine his tics went away again. 100% So I really started to think that this Mycoplasma could be the ultimate culprit for Nick. Yes the supplements and allergy avoidance helps (alot) but maybe just because they enable his immune system to function at a better level which keeps the infection from coming back or helps the body fight it off.

 

So yesterday I presented dr. chung with my questions on why or why not would he want to treat Nick in the "manner" that many of the pandas moms/dads are doing ie: blood work, antibiotics iveg. He said that the homeopathic vials are teaching his body to fight off the virus on it's own (he muscle tested that it was gone) he said that the blood work isn't necessary for him to know if Nick has it or not he can tell through the muscle testing alone. He wasn't opposed to me getting it if I wanted it but of course Nick doesn't. He said the titers counts aren't accurate anyway because you body could have the infection 3 weeks prior and then the counts go up or down.

 

He said treating mycoplasma with antibiotics wont work because it is an intercellular infection (goes in you cells) and antibiotics will just kill the infection out of the cells and do nothing to teach the body how to ward off the infection which is all around us everyday. also it won't work in the cells.

 

I could go on and on really but have to go to work and I will post more this weekend (we are getting a BIG snowstorm here in Jersey !!!)

 

 

wishing you all the best with yourselves and your loved ones

 

abbe

[Chemar]

sounds to me like you hit the jackpot with your doctor abbe

 

hope things keep getting better!

[Fixit]

Thanks patty, gives me the will to continue and maybe i just haven't hit it yet

i'm looking into mycroplasma as well, some good insight

[faith]

abbe,

Can I just ask if you think your son has ever had the mycoplasma p.? did he ever have any pneumo as a child?

 

I have recently had the bloodwork looking for the mycoplasma and it was negative. Our DAN doc has stated thesame that antibiotics cannot get at intracellular level, I asked.

 

 

Faith

[Chemar]

Maybe try antimicrobials like monolaurin. The lauric acid from coconuts seems to be quite amazing in the spectrum of microbes it seems to get at. I heard that it is even being tested re HIV effectiveness?

 

olive leaf extract is another that seems to be able to get to things that the regular antibiotics dont. at least so our naturopath told me.

 

there are other herbs and spices that also have broader antimicrobial properties

[PANDAS_Denmark]

Hello,

 

Haven't posted in awhile been busy with Nick and my other two sons. I wanted to give you an update on Nick though. So without repeating his history to the new comers this is really for those who have been following my posts over the past 18 months. At Nicholas last visit Dr. Chung detected Mycoplasma infection in him. Second time he did. Once again he gave me the 10 homeopathic vials for him to take over a 30 day period. Prior to this visit's Nicks tics were gone again except after that laser light experience in Disney. But before this visit for no reason I could see his neck and eyes started up. After 3 vials of mycoplasma homeopathic medicine his tics went away again. 100% So I really started to think that this Mycoplasma could be the ultimate culprit for Nick. Yes the supplements and allergy avoidance helps (alot) but maybe just because they enable his immune system to function at a better level which keeps the infection from coming back or helps the body fight it off.

 

So yesterday I presented dr. chung with my questions on why or why not would he want to treat Nick in the "manner" that many of the pandas moms/dads are doing ie: blood work, antibiotics iveg. He said that the homeopathic vials are teaching his body to fight off the virus on it's own (he muscle tested that it was gone) he said that the blood work isn't necessary for him to know if Nick has it or not he can tell through the muscle testing alone. He wasn't opposed to me getting it if I wanted it but of course Nick doesn't. He said the titers counts aren't accurate anyway because you body could have the infection 3 weeks prior and then the counts go up or down.

 

He said treating mycoplasma with antibiotics wont work because it is an intercellular infection (goes in you cells) and antibiotics will just kill the infection out of the cells and do nothing to teach the body how to ward off the infection which is all around us everyday. also it won't work in the cells.

 

I could go on and on really but have to go to work and I will post more this weekend (we are getting a BIG snowstorm here in Jersey !!!)

 

 

wishing you all the best with yourselves and your loved ones

 

abbe

 

Hi abbe -

 

Just wanted to let you know, that some of the parents (and Dr. Trifiletti) on the PANDASforum are looking into mycoplasma as a PANDAStrigger

 

PANDAS_Denmark

[abbe]

Hi all,

 

Seems like today I will have plenty of time to post I woke up to 18 inches of snow !!!!!!!!!!!!!!!!! To respond to the replies. I spoke with Dr. T. on the phone and I looked at the Pandas board. It was really that idea of pandas that propelled my thoughts to research into mycoplasma myself which I did just by googling mycoplasma and tics. It seems there hasn't been nearly as many cases reported as compared to strep. Dr.Chung always felt strongly that mycoplasma affects the brain neurologically. I haven't taken Nick to Dr. T. because at this point even though he recognizes tics/pandas etc. his protocal I think will still be run blood work for everything and give Nick antibiotics. I may have to do that but from what I picked up from dr.chung unless we can teach Nick's body to fight off the virus on it's on that will be an endless cycle of putting him on antibiotics.

All of my thoughts are still coming together but I don't want to take Nick to another doctor right now he loves dr chung and resents me dragging hi everywhere. We are doing outside testing right now for school since they were down my throat about add which he doesnt have I think he has a form of dyslexia that makes reading and writing a little difficult for him. I will post after I do the tests.

 

After he went on the vials and cleared the infection his school work, mood everything was awesome. It was like night and day.

 

Faith Nick had cold when he was younger that settled in his chest so maybe that is how he originally got it. I don't know. Dr Chung said it is everywhere all the time though it's just that a healthy immune system fights it off. In Nick's case I believe that his brain injury weakened the blood brain barrier to a degree allowing the infection to enter in more easily. Hopefully that means herbs can get in easier also !!!!!!!!!!!! Olive leaf is a great idea cheri and I have it in the house. I get liquids herbs from Pure Herbs they are great.

 

thanks and keep me posted as to your thoughts on trying to beat this without the antibiotics..

 

 

 

hugs oxoxoxoxox

 

 

 

abbe