7 years old boy has TS, Mom is heart broken

[lele]

My son is 7 years old, and looks like he has TS, mom is crashed.

 

 

He started moving his neck, rolling his eye ball and clearing his throat from May, the children neurologist said it is TS and we don't want to use medicine now, is there anyone knows how to release this by the natural products? please help me, thanks in advance.

 

By the way, we want to start the L-Carnitine, anyone can give me some suggestion on the dosage? Thanks a million!

[lele]

My son is 7 years old, and looks like he has TS, mom is crashed.

 

 

He started moving his neck, rolling his eye ball and clearing his throat from May, the children neurologist said it is TS and we don't want to use medicine now, is there anyone knows how to release this by the natural products? please help me, thanks in advance.

 

By the way, we want to start the L-Carnitine, anyone can give me some suggestion on the dosage? Thanks a million!

Please, any kind suggestion will be highly appreciated, especially the eye rolling. School will start in 2 weeks, this is really bother him, since he is really a good reader and he spend a long time on reading everyday

[faith]

welcome lele,

you could start by trying some magnesium, and a product called Natural Calm that many of use here, it seems to be implicated in kids with ts. you could search it out and read their website.

 

I can just tell you that I don't think at his age and being in first or second grade, that it will be so noticed by his classmates, and even if they do, I don't think it will be too big a deal for them, kids at that age are pretty noisey and always moving about. my son is now 10 and it has been pretty okay at school, and he has worse vocal than throat clearing, more of a grunt. Try not to be so worried, just have a little talk with the teacher the first week and tell them to just ignore any tics and it should be okay for now.

 

You'll have to read alot of the posts here, especially the ones from newbies and there will be alot of advice there that you can start with. Most of us are on hand to answer any questions.

 

good luck,

Faith

[mommyof2]

first want to say sorry you have to go through this...it is tough... that i know.

 

Second I am no expert on this at all.... but will tell you what works for us.

 

My son started when he was young with the blinking, sniffing hands, tiny things we thougth were habits. Then about 3rd grade we saw more body movements and knew it was more to it. We have done chiropractic, cranial sacral, had a native healer work on him and many many supplements over the years. Back around Christmas we put him on topamax....after alot of thinking because I swore I would not resort to medicine but school just got to hard for him and the teasing was bad and it actually took the tics away completely for a few months at 50 mg...then summer came and they have started up but not like they were...He first started with a vocal hmmm about 2 weeks of using the generic topamax and a week later body twitches, we went back to the regular topamax and a few weeks later they slowed down but we still have a small vocal with eyebrows rasing with the vocal sound but not constant which is good and he can control it when he needds to but when excited it is hard. . Anyways I am not sure if this helps or not but we started giving him a 500 mg vitamin C, 50mg B6, some magnesium, with his topamax and to most people they are not noticable, but I am more in tune with them and watch closer. Also I found when i gave him a flinstone vitamin with the Vitamin C he started to twitch and found that they have art. colors and flavors so when i went back to the gummy without art. colors and flavors it stopped to.

 

Also epson salt soaks are good. My son doesn't like to sit in the tub so i have him soakhis feet insome when he watches tv once in a while, not every night.

 

I was using the L-cartine and the aceytl l -cartine but neither stopped the vocal but have heard good success from the board. I do forget the dosage I used but if you do a search you may find what others do use.

 

HTH for now but soon the more experience posters will give you lots of info. I know I learnt so much from this boars and am thankful everyday for it.

 

Mary

[mommyof2]

wanted to mention Faith is right.....my son moved so much and even his closest friends never really thought much of it...it was just him.... My son finally said something to him last summer ( he is going into 6th grade this year) and his friend said I saw you move sometimes but never really thought about it, he also said hey if you can't help it don't worry about it...i bite my nails and I can't stop that either........... He was so lucky with his friends and understanding... I am sure your son will be also.

 

 

And Kids Calm is a great mix. We mix it with v8 fusion and my husband even drinks it to help him with headaches and to relax.

'Mary

[colleenrn]

I just wanted to add to make sure and rule out PANDAS as a cause of the tics in a 7 year old child. Some children with PANDAS have primarily tics and not OCD. There is tons of info on the PANDAS section. Hang in there!!

Colleen

[Chemar]

Hi and welcome

 

I cant post much right now as working but wanted to agree re the importance of magnesium (we really like the natural calm products too) and epsom salts tubs are very beneficial for my son

 

L carnitine worked for my son with vocals some years back but more recently it made him feel really spaced out and didnt help much so it really is a trial and error thing

 

I have a link in my signature on what has helped my son

 

also, have you seen the book written by our administrator, Sheila Rogers

http://www.latitudes.org/book.html

 

it has excellent information and is carefully researched and written

 

I agree you should checkinto other things that can cause tics, like PANDAS, vaccines and food and other allergy etc etc

 

not all cases diagnosed TS *are* actually TS as many conventional docs still are sadly not fully educated on the other multiple causes

 

 

my son is almost 20 now and was diagnosed TS age 10, tho he had symptoms (tics, OCD etc) since very young. We tried meds and found they only made things worse with multiple serious side effects, and saw dramatic improvement with diet and supplements, acupuncture and the other stuff I mention in my siggie link thread. He got thru the good and the bad times just fine and is a wonderful, very talented young man.

 

I pray you will find answers to help your son too

[stacielynne]

My son is 7 years old, and looks like he has TS, mom is crashed.

 

 

He started moving his neck, rolling his eye ball and clearing his throat from May, the children neurologist said it is TS and we don't want to use medicine now, is there anyone knows how to release this by the natural products? please help me, thanks in advance.

 

By the way, we want to start the L-Carnitine, anyone can give me some suggestion on the dosage? Thanks a million!

 

 

I have a seven year old boy with similar tics. He does a no dye,dairy,gluten,msg and perservative free diet. He doesn't eat high frutose syrup for the most part. I have him on supplements and probiotics daily. He does cognitive behavior therapy. He is 95%better.

[lele]

Thanks for all the welcomes. It's nice to have some people to talk to about this and to share ideas! It is so touching. I will never forget the that tragic day when I heard the doctor said TS to me, my heart was broken and I can't accept it for a very long time, what a perfect boy I had before, and I can't imagine he will turn to a Monster in front of me, I cried to lord everyday, why me............... We checked the strep infection, and it turned negtive, so disappointed.

 

I don't want to put my baby on medicine until I tried all the natural way,

Please tell me what kind Magnesium I can use for him and what dosage I can give to my 7 years old?

 

Thanks for sharing

 

Luckylele

[Chemar]

the Kids Natural Calm magnesium was mentioned above.

many have reported very good results with it. (dosage is on the tub)

http://www.iherb.com/Kid-s-Formula-Calm-Na...226-g/5120?at=0

 

you may want to check the PANDAS forum as a throat swab showing negative for strep doesnt rule out PANDAS

http://www.latitudes.org/forums/index.php?showforum=17

 

 

lele, people with TS dont turn into "monsters"

 

even when at its worst, people with TS are often the kindest, most compassionate and gentle people around, blessed with many talents and abilities. I am not sure why you have that concept of TS but I hope as you learn more about it you will see that it is just another neurological disorder

 

after my son was diagnosed and I was very depressed over it, someone wise recommended I spend some time reading about kids with terminal cancer and other truly heartbreaking conditions. It sure helped me get my perspective straight on my son's diagnosis. As I mentioned above, he is now almost 20 and the challenges he has faced having TS have made him into a young man who has qualities that shine!

[lele]

the Kids Natural Calm magnesium was mentioned above.

many have reported very good results with it. (dosage is on the tub)

http://www.iherb.com/Kid-s-Formula-Calm-Na...226-g/5120?at=0

 

you may want to check the PANDAS forum as a throat swab showing negative for strep doesnt rule out PANDAS

http://www.latitudes.org/forums/index.php?showforum=17

 

 

lele, people with TS dont turn into "monsters"

 

even when at its worst, people with TS are often the kindest, most compassionate and gentle people around, blessed with many talents and abilities. I am not sure why you have that concept of TS but I hope as you learn more about it you will see that it is just another neurological disorder

 

after my son was diagnosed and I was very depressed over it, someone wise recommended I spend some time reading about kids with terminal cancer and other truly heartbreaking conditions. It sure helped me get my perspective straight on my son's diagnosis. As I mentioned above, he is now almost 20 and the challenges he has faced having TS have made him into a young man who has qualities that shine!

 

Thanks a lot for encouraging me, Chamar. Maybe i am over react with the peoblem, but please understabd that I have a really tough life already, my husband has a bad health condition and Lele (my lovely boy) is my only child, he is such a sweet boy with a lot talents, he started the gifted program when he was 6, can't imagine how he will looks like if he start to shaking hands, moving body and yelling.......... I don't want thim face to the teasing by himself, he is such a lovely baby.

I was so depressed after the doctor told me he has TS, thanks for giving me such wonderful information about your son, that is my hope.

[CSP]

welcome lele,

 

I totaly understand how you feel, and I promise this will get better for you and your son. It is only human nature to be crushed when you think all your dreams for your son seem to slip away with a gust of wind.

 

My son was dx at 12yo with TS, and all I heard was there is no cure. I did not hear he might outgrow it. It is so easy for us parents to think of the worst for our babies.

 

My son had a screaming tic for a year and that tic would come and go for about 2 years. He is 15yo now and I just want to let you know all my fears slowly disappeared. He has had a great year, and I have seen my boy still ticcing but dealing with life just like all boys his age. He played great baseball this season and even got to try catching. I can't tell you how many times other parents come up to my husband or I and tell us how much they love watching our son play ball, tics and all. He volenteered for the county and missed the county award by 2 hours. He did recieve a cert. in the mail tho. He just made his red belt in his martial arts class and is working on his black belt. He made lots of money this summer cutting grass, and has been talking everyday to a girl that at this piont he won't tell us if he likes her yet, but is asking his older sister how to dance so we think he may want to ask her to homecoming. All these things were things I thought my son would never get to do because of the dx of ts. I spent too much time feeling blue and I wasted time fearing the unknown. Don't let this happen to you, your little guy will get better.

 

God Bless,

CP

[lele]

welcome lele,

 

I totaly understand how you feel, and I promise this will get better for you and your son. It is only human nature to be crushed when you think all your dreams for your son seem to slip away with a gust of wind.

 

My son was dx at 12yo with TS, and all I heard was there is no cure. I did not hear he might outgrow it. It is so easy for us parents to think of the worst for our babies.

 

My son had a screaming tic for a year and that tic would come and go for about 2 years. He is 15yo now and I just want to let you know all my fears slowly disappeared. He has had a great year, and I have seen my boy still ticcing but dealing with life just like all boys his age. He played great baseball this season and even got to try catching. I can't tell you how many times other parents come up to my husband or I and tell us how much they love watching our son play ball, tics and all. He volenteered for the county and missed the county award by 2 hours. He did recieve a cert. in the mail tho. He just made his red belt in his martial arts class and is working on his black belt. He made lots of money this summer cutting grass, and has been talking everyday to a girl that at this piont he won't tell us if he likes her yet, but is asking his older sister how to dance so we think he may want to ask her to homecoming. All these things were things I thought my son would never get to do because of the dx of ts. I spent too much time feeling blue and I wasted time fearing the unknown. Don't let this happen to you, your little guy will get better.

 

God Bless,

CP

 

Thanks CSP. i appreciate your replys and sharing, I am so depressed now by fearing the unknow future, but I don't know how I can help him, the non stop worry drove me crazy. I don't even know how to deal with his school life if he start yelling and body moving, and if he will be kicked out from school......Do I need to plan the homeschooling now?

 

My Lele is 7 and has facial and vocal tics. These started in May with a nech jerking and eye rolling,alone with the throat clearing. After doing a lot of reading and finding that no medicine can heal the TS, and some of the lucky kids whoes tics will eventually go away. Feels so helpless. I hate to take him to the doctor, went to the doctor's office always make the tics worse.

 

We started to put him on Magnesum ans epson salt bath and waiting for the good result.

 

Anything else we can try? I appreciate all the wonderful advice

[Chemar]

lele

TS is classified a disability and so BY LAW no school can punish or deny education to a child with TS because of their TS symptoms

 

here is information about it

http://www.tsa-usa.org/educ_advoc/education_main.htm

[lele]

lele

TS is classified a disability and so BY LAW no school can punish or deny education to a child with TS because of their TS symptoms

 

here is information about it

http://www.tsa-usa.org/educ_advoc/education_main.htm

 

Thanks for giving me such a helpful information, Chemar, do I need to file a special education plan for my son if he is getting worse? can't home school him since English is not my mother language, by the way, by any chance you know anyone has TS child in Virginia? I really need some help