WOW! A New Child After Antibiotics

[CSP]

OK... HUGE SIGH!!!! Praise be to GOD!!

 

Son had first dose of AMOXIL. 7:00 Fri night. Second dose was yesterday morning. He went to work with my husband to help clean up after a huge remodeling at the office, and DH said he was so much better. He was not making the loud high pitched barking noise, and was able to eat like before without making any noise.

DH said everything he asked him to do yesterday he got a, "Yes sir." DH was so pleased with him he took him to Best Buy and baught him a Hockey, Nascar, and Football video. OH BOY???

 

This morning he has made some noise but not every second and not as loud as what it has been the past few weeks.

 

He listened to the ball game on the radio last night and was so quiet, he himself notice it.

 

I feel so much better, with school starting on Tues.

 

 

I do not know what this means for him, but will call the Dr first thing tomorrow.

 

Thank you all for your prayers, I feel like he has been given another chance at living without medication.

 

THANK YOU, THANK YOU, THANK YOU,

CP

[Chemar]

oh CP I am so very very happy to read this and pray things just keep getting better

[ilovedogs]

Wow! So glad to hear this! So, are you thinking that he was carrying the strep and it was making his tics worse and exasperating the tics and his system? And, I'm so glad you don't have to consider medication for him!

Bonnie

[P_Mom]

CP,

So glad to hear it! This, IMO, is a classic PANDAS presentation....noticeable onset after immunizations, dramatic worsening with strep, and then the improvement with antibiotics. Your sons symptoms can very likely be well controlled with daily antibiotics....I hope all goes well and you find docs who can give your son proper treatment.

[faith]

C.P,

just checked in and saw your posts. Wow from me too. Is this the first time he ever tested positive to the strep? But you had those tests done before in the past, right? And he had no symptoms of sore throat or feeling ill now? I'm guessing that maybe this is like the episode I had with my son two years ago, when he had a bad bout of eye tics one weekend and then was given amoxy for sore throat and it calmed them considerably. (However, after that, he just didn't seem to fit the PANDAS because he was tested for titers and they were normal) So perhaps this bout of strep has exacerbated his tics. Whatever it is, yes Praise God that something has turned this around for the better, especially now that school is about to start. Keep us posted on how things go.

 

Faith

[MARYANN]

Happy for your news CP, Thats great! Maryann

[EAMom]

Hi Faith,

 

Please don't let a doc rule out PANDAS on the soley on the basis of low titers. Many docs are confused/misinformed on the titer issue. (This is a pet peeve of mind...SDS or "stupid doctor syndrome!") If your kid had a sore throat, and more importantly cultured postitive for strep, that is all you need to know. I am assuming your doc wouldn't have rx'd the abs if there was no positive culture?

 

I'm not saying your child does have PANDAS...just don't completely discount it on the basis of titers.

 

A good percentage of kids will have strep throat and their titers will not go up much. Moreover, some people have a low titer baseline to start, and even though their titers go up it is still within "normal range". Other times the titers go up and down rapidly so you miss the rise in titers depending on when the blood is drawn. Abs can influence titers as well as the lab used and the strain of strep.

 

"Buster" has a more involved discussion on 8/24 "A little bit about titers" (or something like that.)

 

My dd was definitely PANDAS (confirmed by pediatric neurologist, ped rheumatologist, and ocd specialist child psychiatrist and well as her eventual remission on Azithromycin) and she had normal and low titers the 2x they were checked. She also had postive cultures (we think she had been infected for 2 mo. at that point) at the same time her titers were "normal." A month later titers were decreasing even though her PANDAS was still going strong and she was completely wigged out (anorexia nervosa, ocd, tics, contamination fears, emotional lablility).

 

There are others who post on this board who have also have PANDAS kids with normal titers. Clearly there is more to this than just looking at the titer numbers. IMO cultures (and even that isn't 100%) and response to antibiotics mean much more than titers.

 

Additionally, Sue Swedo says they don't know for sure if PANDAS is autoimmune. She mentions titers are useful to look for evidence of a prior infection (if the child is no longer culturing positive)...if but if the titers are normal that doesn't conclusively r/o a prior strep infection for many kids and most certainly does not rule out PANDAS.

[patty]

CP,

 

Great new!!! The improvement cannot come at a better time for your son. I am so happy for your family!

 

Pat