philamom Posted February 2, 2011 Report Posted February 2, 2011 I ran the CD57 on myself. Can anyone help me understand the results? HNK1 (cd57) Panel: % CD8-/CD57= Lymphs 3.1 (ref is 2.0-17.0) Abs. CD8-CD57= Lymphs 59 (ref 60-360) LOW Then there's a list of other standard tests (CBC, platelets, exc..): High (slightly) Lymphs Low (slightly) Neutrophils Absolute Low (slightly) WBC
NancyD Posted February 2, 2011 Report Posted February 2, 2011 I believe under 60 falls into chronic and under 21 falls into severe. This will serve as your baseline during treatment. My DD is 24 and I am 158.
Priscilla Posted February 2, 2011 Report Posted February 2, 2011 does anyone know if you can count on the quest lab results. my dd was 28, seems pretty significant, I guess we will have to keep using them to measure progress
kmom Posted February 3, 2011 Report Posted February 3, 2011 @ Priscilla, We accidentally did our test via Quest 1st time around but they don't give the one crucial # that is needed for determining CD 57. We had to redo thru Lab Corp.
Fixit Posted February 3, 2011 Report Posted February 3, 2011 Nancy d...do you have other info on the cd57... yours is at 158...are you being treated for lymes too... is that number after treatment... or that is your baseline and see where treatment takes you? Julia can you post the article or pm it to me too...thanks
MichaelTampa Posted February 3, 2011 Report Posted February 3, 2011 The key number there is the "absolute" number, which is 59. It is low, and consistent with chronic lyme, or at least severe chronic infection. Disregard the "reference range", as healthy is more 200. Some who use the test believe that if you get to no symptoms and a CD57 of 100 or higher, you're good to stop treatment with low risk of relapse. Yes, 59 is not absolutely horrible. My score was 27 before I began treatment. Quest does not do a CD57 test. Whatever anyone got from them, it was not that.
philamom Posted February 3, 2011 Author Report Posted February 3, 2011 Ok...this is where I get a little confused (doesn't take much ), I thought someone mentioned that only chronic Lyme and HIV (and possibly Mycoplasma) can lower the number. Can other chronic infections lower it as well? Thanks!
MichaelTampa Posted February 3, 2011 Report Posted February 3, 2011 Ok...this is where I get a little confused (doesn't take much ), I thought someone mentioned that only chronic Lyme and HIV (and possibly Mycoplasma) can lower the number. Can other chronic infections lower it as well? Thanks! In my comments of "or at least severe chronic infection", I was just referring to the short list of exceptions that some think can also depress the CD57. As far as I can remember, it is the ones you've listed here.
philamom Posted February 3, 2011 Author Report Posted February 3, 2011 Ok...this is where I get a little confused (doesn't take much ), I thought someone mentioned that only chronic Lyme and HIV (and possibly Mycoplasma) can lower the number. Can other chronic infections lower it as well? Thanks! In my comments of "or at least severe chronic infection", I was just referring to the short list of exceptions that some think can also depress the CD57. As far as I can remember, it is the ones you've listed here. Michael- Has your number gone up since treatment? Melinda
NancyD Posted February 4, 2011 Report Posted February 4, 2011 (edited) Fixit, I think JuliaFaith posted some good info on CD57 either on the Lyme or PANDAS forum. I saw it earlier today and thought it was great but I couldn't find it just now. Yes, I am also being treated for Lyme. I had more positive Lyme-specific bands than DD. And my physical problems were more acute than hers. However, my guess is I will be much easier to treat. 158 was my baseline before treatment. I only started treatment mid November. DD started her treatment mid Oct. We have not yet repeated CD57. Just found JulieFaith's post at http://www.latitudes.org/forums/index.php?showtopic=12182. Nancy Nancy d...do you have other info on the cd57... yours is at 158...are you being treated for lymes too... is that number after treatment... or that is your baseline and see where treatment takes you? Julia can you post the article or pm it to me too...thanks Edited February 4, 2011 by NancyD
MichaelTampa Posted February 4, 2011 Report Posted February 4, 2011 Ok...this is where I get a little confused (doesn't take much ), I thought someone mentioned that only chronic Lyme and HIV (and possibly Mycoplasma) can lower the number. Can other chronic infections lower it as well? Thanks! In my comments of "or at least severe chronic infection", I was just referring to the short list of exceptions that some think can also depress the CD57. As far as I can remember, it is the ones you've listed here. Michael- Has your number gone up since treatment? Melinda My CD57 has tracked my treatment and progress fairly well. After a couple months of treatment it had gone up, and after discontinuing treatment several months ago, it even went up slightly more as my health and strength improved, but after a couple months of discontinued treatment, symptoms started increasing, started feeling worse again, and a re-test showed it was back down to around where I was pre-treatment. I started up again, and have had the test again recently after another couple months of treatment, but haven't actually seen those results yet (probably will in a couple of weeks). I have heard comments here and there, some people say the CD57 can be all over the place, daily, hourly, and so on. And maybe for some people that is the case. But for me, goodness, I think I've seen 5 results now, and they've all been remarkably consistent in relation to what has been going on with symptoms and treatment.
norcalmom Posted February 4, 2011 Report Posted February 4, 2011 FYI - I came across this int he paper today. If you are in area of Stanford University, that has time to participate might wan to give some blood to this study. They are trying to find immune markers that could be predictors of healthy aging. Like, cholesterol is for heart health. Have to be 40 years old. http://med.stanford.edu/ism/2011/january/aging.html I'm not sure how much of your own specific information they will share with you, but, it looks like a free blood test (actually, you get paid something). from the article- In the study, clinicians led by Krishnan will draw blood from participants. Then Fathman, Goronzy and their colleagues will draw upon a state-of-the-art facility at Stanford, called the Human Immune Monitoring Core, to analyze hundreds of features of these blood samples. These measurable features range from the type and amount of white blood cells to the nature and quantity of chemicals they secrete to the responses of these cells to various biochemical and immunological perturbations.
philamom Posted February 11, 2011 Author Report Posted February 11, 2011 bumping up for Falling Apart
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