sptcmom

Just to add to that a bit- A body will detox thru the pores in the skin too. Especially lymphatic drainage areas like the underarms and the soles of the foot. Foot detox if done correctly works very well. Detox patches (autism forums have great info on these), Toxaway detox bath and Biopure has a detox deodorant type stick which we use for DS and I daily before bedtime. For the axillary area its recommnded a natural deodorant with cilantro formula to help keep lymphatic flowing and suck up toxins with the cilantro. I use Toms of Maine one. Also pays to keep in mind that liver and gall bladder usually go hand in hand for production of bile etc. GB detox needs to be addressed. Actually cilantro tincture 10 drops in warm water 10 mins before meals b.i.d. alog with dandelion extract similar dosage but with food and the chlorella all help GB plus liver detox pathways. add glutathione to that mix and you will resolve any genetic polymorhisms in liver detox pathways usually phase two is problematic in Lyme patients. Jodie

Research shows that Zith actually DELAYS the resolution of a sinus infection. Can be googled or on Pubmed too Im sure. Just the chemical structure of Zith. Augmentin works becuse it is more specific for upper respiratory infections which would incl sinuses.I usually add on augmentin when DS gets a sinus infection and it resolves in a couple days.

Notate and Quentans are both powerful homeopathic remedies for antiviral and antimicrobial action. The spray is a combo remedy great for daily prophylaxis for children. Dosage varies and I determine with A.R.T. but for adults averaging it out is fine on a temporary basis. Jodie

I know that this os one test Dr B did-I don't know what bands were reactive, but we do have 3 indoor cats. However, they were all rescues, so had been exposed to fleas &tics prior. COuld my kids get this from the cats? very possible. Also cat and dog saliva has been demonstrated as liable in passing infection.We're very careful with the puppy and DS especially incase of an open scrape or paper cut and like.

Biopure Rechts Regulat.Read a lot and use wisely. Increasing fermented foods in diet is another natural way of doing it. rechts Regulat is that and more. Lots of fermented ingredients. Do check for allergies as always. Dr Klinghardt told me inspite of Ds's treenut allergies, this wouldn't affect him and it didn't. I do ADP for yeast for DH and myself. Jodie

Im sorry to hear this. Zith and Augmentin are both used to treat Lyme but need to be in combo to be really effective so I would do both the antibiotics.Infact we did both of these AND Bactrim for DS 8 then, now 9. Dr Jones's RX for DS. Augmentin ES bid, zith 100 bid and bactrim 125 bid. Just high dose probiotics needed. Jodie

Whether or not its a herx too, it sure sounds like strep exposure. From your psot it sounds like your DD is still pretty reactive to strep. It takes varying amount of time and depends on the kind of treatment that children start decreasing their reactivity as time and treatment proceeds. Holsitic plus allopathic treatemnt achieves the best lowering of autoimmunity/reactivity to exposures. I hope she is doing better.Again the little boy in her class sounds like could have triggered her off. Many working parents do send their borderline sore throat kids to school as we know and in my experience 90% of them have microbial related sore throat. Not all kids mount a fever and have full blown strpe as we know. After exposure I start DS on 500 mgs vitc bid, one capsule freeze dried garlic bid, increase detox and drainage, notatum quentans spray to nostrils and throat, mupirocin ointment in nose daily (last two I use as preventative daily anyways).Works every time including on neuro psych symptoms. I agree with Wendy's explanation of herx v/s exposure. After a true herx you will usually see an upwards/positive shift in baseline. On another note: Neuropsych symptoms like oppositional defiant behavior, over sensitive etc are a sign of Mold sensitivity/exposure and metal toxicity in our kids. Has your DD been on Nystatin or anityeast meds lately? Jodie

Air hunger, dizzy spells are all basically neurotoxin/biotoxin symptoms. babesia, yeast die off, bartonella all produce biotoxins. two mechanisms one is - biotoxins will increase the thickness of your blood which will cause decreased blood flow to the brain or for me what happens is decreased bloodflow when I suddenly stand up from laying down- messes with blood pressure regulation. This can cause dizziness amongst other things RX : I use a warm compress around the neck to increase blood flow in the carotids and that helps children and adults. For about 5 mins only. Eating a snack is also helpful. Two is:- Yeast die off releases yeast bound toxins like heavy metals and spirochete carcasses into the fluid stream of your body. Nystatin is heavy duty anti yeast and should be used very carefully. Diflucan has some antilyme action too and should be preferred if allopathic treatment is desired. Otherwose oil of oregano (ADP tablets) are very potent and work just fine. metal binders like microsilica are very useful. So is Chlorella if cost is a factor. It is very important to correctly SEQUENCE treatment. One can't go ahead and peel away which ever layer one feels like peeling next. There is a gentle way of doing this. Many docs prescribe anti yeast too soon and I've seen some pretty sad reactions in kids that come to my practice looking for a holistic way out of the herx reactions as a result. Detox and drainage is the key. KMT biocurrent works very well too as does focused cold laser therapy if you have access to that. Many LLMDs are using blood thinners for this very purpose when prescribing ehavy duty herx candidate meds. There are natural gentle blood thinners available too. Just talking from my experience. Jodie

We use it as part of daily detox regimen. Child 5 tablets (vulgaris or pyrenoidosa are both fine) twice a day and adult double the dose gradually as tolerated or stay at that. Dosage can be adjusted really. These are tiny tablets actually. They taste like hay so we just chew them. Jodie

Hows the little boy today Wendy? I have had you in my thoughts.I forgot to mention that for aches and pains that are specific- headache, rib pain etc, I use Klinghardt cold laser therapy for DS and that works well if stared immediately and takes a few days longer if started late. I wish the Academy people would be able to set up a practitioner database sooner. The director insists that all clinicians need to clear the certification testng before they even start. I haven't found a 'Frisco clinician yet. If you need anything call me. Jodie

You can contact www.klinghardtacademy.com to find a practitioner closest to you. There are several excellent practitioners across the country and you don't have to travel very far. I know the academy is trying to collate a list once all practitioners complete their certification exams, requirements etc. I am in NJ but there are a few ART docs much closer to you. You will find TONS of info on ART, other Klinghardt protocols and contact info etc. Jodie

In my experience doing conventional meds and the amount that our kids need all by themselves are just not going to show us any improvement. Detox and drainage simply cannot be overlooked. Its a huge component. Many kids literally need to be taken off all conventional meds to detox and drain before they shed their so called herx symptoms. Herxing is considered "good" because its a clue that the meds are doing their job. Its not "good" for the body by any means. Herxing as we know means toxins are flooding your body faster than your body can handle them. The child's body is clearly asking for help. Rotating abx, etc and adding on new conventional meds simply won't do it. In our kids with the entire biochemistry and physiology gone wonky, we need a huge helping hand from holistic meds. Bartonella is the hardest coinfection to get rid of unfortunately. Will pm you back later. Jodie

ok, so its not a rifampin v/s milk thistle interaction. good. Sounds like a herx. so far. and yes, you will have to wait for the peak and then the resolution of it to decide what it really is. Fever resolving is a good sign. Fevers in itself are considered a good warning sign. Flu like symptoms as we know are a herx. some kids don't get the entire gamut of flu symptoms. If symtoms add on do call Dr Harris, esp if new ones add on. Here anytime you need me. Jodie

Lets reason it out: Wendy you already know all this but it helps to brainstorm so here goes: is this similar to other cycling symptoms? I know the fever is but the body aches? herxes would usually be most symptoms he's experienced before. Exposure would be new sttuff getting added on. herx would also have some tiredness involved ad would be like a Bell curve comes on, goes up, and then starts to drop symptoms and get better. If its a true herx you would see some gains after its over. If its a exposure you would see sustained regression. If its a combo both you will see back to before herx began status with no gains and possible one step backslde in some fragile children. Fever disappearing with advil is not really any info. If fever is resolved on its own, its useful info and he's truly fever free. Fever in itself is a good and normal immune response.Fever resolving on its own with no antipyretics given then its a herx. Again typically a low grade fever upto 102 is considered viral. Any bacterial (Lyme) fever would be higher grade but he's at 103 which is borderline high so not a firm diagnostic sign. Mouth sores would be contagious. try using those travel finger toothbrushes for her until it subsides. Throw away the old toothbrush. I would use Notatum Quentans spray on the sores. Its a nose spray which can be used in the mouth as antimicrobial. Also painting the sores with turmeric and olive oil (EVOO)will have good drying effect- doesn't burn. All above info is personal exprience for me too Wendy, so quite reliable. By any chance are you using milk thistle on Ds older? Gotta run now but happy to continue discussion anytime.will keep checking in. Jodie

A.R.T. is a Dr Klinghardt assessment and treatment modality and you can read more about it on www.klinghardtacademy.com and look for link to Autonomic Response Testing. I use my own protocols as a healthcare and ART holistic practitioner (pediatrics) and an ILADS member/practitioner.I owe a lot of my direction to many wonderful moms on this forum- Wendy, Elizabeth, Kim, Mary just to name my main supermoms without whom my journey would never have happened for my family and so many families that I've been able to help since.I am happy to help, discuss and learn anytime I can. One thing I've observed is my LLMD mentors included, we're all constantly learning. No one has all the answers as each child is so unique with respect to physiology, anatomy even I find and internal biochemical environment in the body since they're still growing and developing. With adults we can be a little more generalistic with the care plan. Anyways a note about yeast The body produces yeast as a sideeffect of abx yes, but also, the body produces yeast as a survival mechanism to bind toxins like heavy metals, biotoxins, microorganism remnants etc. So, many times docs forget to add appropriate binders when prescribing anti yeast protocols. When you kill yeast these boud toxins are released into the body. Chlorella, microsilica, cilantro extract are all wonderful binders for heavy metal etc and should be used diligently when on antiyeast meds, homeopathic or otherwise. Biotin slows down yeast metabolism, ADP kills yeast and other organisms holistically speaking. otherwise Diflucan, Nystatin work too as you all already know. We did a combo abx and holistic protocol for DS.Were able to reduce conventional abx drastically (2200mgs per day combo down to 250 mgs twice a day to cycling with no abx) once we incorporated holistic meds- homeopathic and herbal. Jodie

Ds started treatment for PANDAS in March 2010 and started for Lyme in sept 2010. We are at 100% for almost a month now and by God's Grace didnot see any PANDAS type autoimmune upticcing after a couple recent bad viral infections that we used to earlier.The key for us has been A.R.T., holistic approach and reeducating a wounded immune system holistically. The immune system needs blueprints of healthy organ systems to remember what healthy tissue is and retrain its T and B cells. I use homeopathic meds (tasteless and odorless liquids, very stable and can be synergistically combined with any foods even) for immune system retraining. Homeopathic Nosode remedies provide the immune system with artillery to fight off any infection and homeopathic sarcode remedies help it recognize healthy tissue (brain, thyroid, hypothalamus, liver, etc) based in each child's ART results or needs. DS9 is now responding to viruses etc with a fever (for the first time he's actually mounting an immune reaction!), and with holistic antivirals, he recovers and his body is identifying the microbes correctly at long last without attacking healthy tissue or generating anti neuronal antibodies for motor tics. My personal belief is the reason for lingering symptoms post successful treatment is the immune system left to re train itself and theres bound to be glitches because its been glitchy for so long so to speak. Adequate immune reeducation, specifically targetted as needed is an essential component of Lyme/PANDAS treatment or any chronic illness for that matter (Autism even).Thats how a natural immune system grows and develops in a normal child and thats what we need to give back to our children. Allopathci meds have absolutely no role in this arena and can't really help. Homeopathic/herbal is the only way I feel. Jodie

Yes, that is my question. I've read that Burbur is also a decent liver detox as well as kidneys, but seems to come in drops. DD6 will not eat or drink any regular food that "looks" or "smells" funny - so the idea of getting her to drink anything with herbal drops is pretty out of the question. Takes pills no problem. Will look into SAMe - thanks. Organic Dandelion extract maybe available from www.mountainroseherbs.com as a capsule form if that helps. Also many crustaceous vegetables are extremely helpful for liver detox- brussels sprouts, cabbage, cauliflower, brocolli etc.I make a green smoothie with a few of these and add green apple and pear in the smoothie to fix the taste and it works for several kids. Pure coconut water is a good liver and kidney detox. It comes in flavors too.8 ozs a day is recommended. The best native remedy for liver detox is sugarcane juice with ginger actually. Its used as the chief detox for children with jaundice in India.We have Little India here in Edison NJ and they have a little sugarcane juice place. We tried it and loved it. Are regulars now- weekly doses of the good stuff. They squeeze fresh Caribbean sugarcane in hygenically sealed machines and its awesome to watch and the taste is great too. Jodie

Product ADP from Biotics Research is great for yeast. Thats not enough water for all those pills. They need to reach the small intestine as intact as possible to achieve therapeutic levels of absorption for treatment efficacy. You can try using watered down juice or lemon water if she'll take more of that. Also remember when you start killing yeast, you will be releasing trapped metals (yeast binds metals and its the body's natural way of keeping heavy metals out of circulation). Add cilantro tincture to bind the released heavy metals. I use Ultrathon spray for tick protection. Jodie

ABart is stinky. You need odorless and tasteless remedies. Just PMed you back. Jodie

Its imp to know that - Milk Thistle has several interactions with other herbs and cannot be taken with Rifampin and Erythromycin as it can interfere with their metabolism and keep them in circulation longer and greater chance of side effects/herx. Its a powerful herb which needs to be used cautiously especially for children who have phase 1 or phase 2 liver detox delays. Detox PLUS drainage is the key. Liver plus kidney is imp. Bentonite is a binder/attractant for impurities/junk but it needs adequate drainage to move things forward to be flushed out. Alkaline body Ph, alkaline water is essential.Artesian water is best. I've seen a lot of families go easy on the drainage part and have massive herxes. Its no big deal to stop all abx and detox and drain for a week even. Its better infact. One needs to see the child pee more ( not to the extent of PANDAS frequency) and good amounts,1st pee needs to be stinky and gross; good stinky, gross and fairly well formed stools are also a good indicator as we know already. Mainstream docs LLMDs and otherwise have minimal time and/or understanding of this entire process and its up to us to maintain that. Failure to detox and drain leads to toxin build ups, herxs which get confused if they coincide with even a minor viral exposure. In my humble opinion I've seen several families panicking and going thru multiple IVIGs trying to "cure" this ramp up and the conventional medical docs are failing to understand the extreme importance of detox and drainage and binders and etc and multiple IVIGs are being attempted for children with active Lyme which is very hotly debatable at the moment. Its imp and very beneficial to our children to be self educated and informed. Also herbal antimicrobials like OLE are fine as long as well spaced from regular allopathic antibiotics.Do count the herbs the same as ABx when calculating how much to detox and drain your child. Many people fail to realize how powerfully these herbs kill the microbes, some better than regular ABX. Anyways, just my experience and opinion. Jodie

The book "Surviving Mold" by Ritchie Shoemaker is the authority on this. Wonderful case studies. His older book is Mold Warriors. Mold can be a very serious neurotoxin. Our LLMD doesn't recommend Cholestyramine for children. Microsilica from biopure is a good binder as is chlorella. First step is your furnace install a MERV 12 or higher filter and change once a week for a month, once a month for 3 months and then once every 2 months. A high end HEPA air purifier in the most lived spaces/rooms in the house. www.mycometrics.com is a great website for mold inspection, remediation etc. Jodie

DS went down the Aspergers path at 22 months of age and has been thru so much with major sensory mtor issues, lack of coordination, poor hand eye coordination,OCD, motor tics,IVIG, a million useless diagnostic tests invasive and noninvasive until we started treating fro Lyme and co infections since then. Since DS went thru A.R.T. and we had a much better idea of what his body needs its been many many bumps but overall an upward swing in all areas. He is no longer Aspergers (nowhere on the ADOS and otherwise). I researched and started four new protocols with him a month ago to help with a major herx which no one seemed to be able to give me an answer incl his lLMDs. Went holistic, Klinghardt plus homeopathic (Energetix remedies)and by God's grace it worked wonders. We have him at 100% for over a week now. Completely took us by surprise but am hoping and praying this lasts for poor little DS after 6.5 years of suffering. So, Philamom, there is definitely light at the end of the tunnel. You're doing all you can for your little girl, I know that. with moms and kids having Lyme together and being treated at the same time, its so much more challenging but things have no choice but to improve. I will be focusing a bit more on myself. Just started acupuncture and physical therapy for myself in addition to other RX.

Im going to be the bad guy and suggest you please read the reviews on Dr Gaito before making any appointments. I am in NJ and I know I can't say much more except do your research and read reviews.

So glad to hear the yong boy is ok...crazy! off topic- I would like to add Parsley (already in my cupboard) to the Burbur I'm giving my daughter. Can they be mixed together? I give my dd 15 drops of burbur in am/pm...should I slowly add in 15 drops of the parsley - taking it to 30 drops of both, am/pm. yes, you can add burbur and parsley in one ounce of fiji water and shake well. Donot use metal spoon to stir. You don't have to be slow with detox stuff. just do it. Shouldn't have any problem.