sptcmom

We use Custom probiotics and rotate between the six strain and the 11 strain- we use 1 trillion a day for DS and 250 billion for DH and I. Flora synergy by Energetix is good too. Probiotic research suggests the most imp strains for combating Strep, and other bacterial infections are Salivarius, Reuteri and Rhamnosus. Probiotics should be taken with a little milk, banana or cheese- cow, goat, camel, any milk or cheese. These are rich in fructoooligisaccharides which are prebiotics and help the good probiotic strains establish colonies. otherwise the effect and benefit is temporary and even colonizing probiotics become transitional probiotics. We take the powder in juice and then eat the above foods. Huge difference. I finished learning about probiotics last month and for a month now the entire family's gut has been extra phenomenal. Had a two day adjustment period with loose stools not diarhea, just loose but it passed and its been great. So much better detox thru that channel.

The interconnections are so interesting. Nagalase is a toxic substance produced by viruses (opportunistic infections that never leave) as per current info. Patients with tumors have high Nagalase as do patients with chronic autoimmune and neuro degenerative diseases. Tumors have been studied in depth by Dr. Yamamoto in his Philadelphia studies and he can be Googled easily. But thats where he has researched GcMAF and achieved phenomenal remission even cures of his patients. Ruggiero another scientist is currently working on GCMAF probiotic, MAF 314 I believe. It might even be out in Europe. Yahoo Autism and Neuro kids groups and Lymenets across the world are discussing these current therapies and even trying them out. Check all this out- its cutting edge and there are so many parents doing it. There are theories and symptomatic relief treatments while the theories are being further researched. Then there is a practical approach to things which is still experimental with GcMAF shots, checking the Nagalase levels and bringing those levels down to achieve tumor regression. The very affluent are doing the stem cells in Ukraine or New Delhi. There are only 2 or 3 docs in the US who understand the impact of Nagalase, viruses, tumors, chronic degenerative diseases, PANDAS, Lyme and co. My experience with learning with two of these docs has been mindblowing.Infact several patients of this famous LLMD in California and another one in Seattle have already travelled and successfully FULLY recovered after Stem cells at the New Delhi facility. The famous LLMD in Georgia is now trying to work things out with Ukraine as the more economical options.

Rebecca I am an alternative medicine practitioner and have a child with PANDAS and lyme. You should look into GcMAF. www.gcmaf.eu and Stem cell therapy. Without a good/normal immune response, its extremely hard to find an answer to regulate the BBB. Innate immunity can only be enhanced but adaptive immunity can be gained if the precursor factors are intact. Another imp aspect as many alternative practitioners look at is very often and almost always in my practice leaky gut = leaky brain and its not just the DAN! protocol Im referring to. There are so many critical neurotransmitter biochemical processes happening in the gut.Im pretty sure you must already read and explored the gut connection by now. Weak macrophages keep searching for the antigen and when they find it they can't annihilate so the search continues, molecular mimicry happens and wreaks havoc. GcMAF is helping with all of this and adequate nutritional support will help build the neuronal connections again. We are currently getting ready to start GcMAF with DS. DS's immune system is currently responsive, awake, alert and producing IgM which is getting converted to IgG at the right time and his body is able to contain new infections. He is getting fevers again and we are very happy with this progress.However the neuropathy in his legs is hard to eradicate and I wish to put an end to the autoimmunity, hence the GcMAF consideration. We are using a heavy duty integrated protocol to get rid of inflammation (its working), an aggressive approach to put lyme and Co into remission using the Bionic 880 biophoton therapy (its working very well) and repairing the inflammation induced damage with the Bemer 3000 protocols and they all seem to be working great by God's grace.IVIG in 2010 was a band aid but very helpful. No band aids so far with current protocol. Keeping my fingers crossed. GcMAF seems to be the answer for many children and adults alike and stem cells are becoming the final step after GcMAF. Thats been my experience.

The Sed rate is an acute phase reactant. Its very imp to note that its been increasing and at 94 the inflammation is pretty high in her body. iron is low meaning her diet is deficient or body is not able to absorb properly. There is also the possibility that iron stores are getting depleted due to poorly controlled bacterial overgrowth. The best way to calm down inflammation due to microbial processes is switch abx to those with immune-modulatory and anti-inflammatory effects. There was a thread running on the Pandas forum yesterday. I usually recommend abx pulsing (the LLMD is usually on board)along with lyme smoothie with liposomal ultrasound processing of the smoothie before taking it. The ingredients I can PM you but the taste is terrible. I disguise it in Mango juice. Next I switch the patient to anti-inflammatory diet and increase detox and drainage. Final step is to use the Bemer 3000 at an anti inflammatory setting once a week for 45 minutes. This brings about a huge reduction of symptoms in a few days so far in my experience incl with my own DS. DS gets severe head shakes and body shakes if the sed rate rises so I needed a fast acting protocol and the fastest has been this one and it still takes 3 to 4 days. The nausea is most probably due to GI inflammation.

My vertigo, air sickness and car sickness has been cured after lyme treatment. But prior to that what I would do in a bind would be keep sucking on Halls menthol throat lozenges. The peppermint always does the trick for me- soothing cool, calming and just helps. Selzer water lemon flavored gave me a few burps and it was great for nausea. Now medication wise- I guess you could try the orange flavored chewable Dramamine. That obviously works great but does take 10 mins to kick in. DS eats a few organic mint leaves and that helps him along with a throat lozenge- the sucking is soothing for him.

DS had muscle spasms, leg aches, pains, severe , couldn't sleep, screaming middle of the night, joint swelling both knees- on and off for 1.5 years before sudden onset of PANDAs. Not much relief after PANDAS treatment incl. IVIG. We found Lyme, Bartonella and Babesia two months after IVIG and he had complete remission two months into the lyme abx cocktail treatment. Now after a year he had a severe relapse after exposure to strep. Dr Jones diagnosed him with CRMO- autoimmune inflammation of the bone radiating to the muscles which is an autoimmune condition he has seen in his practice that can complicate Lyme and PANDAS. Its CRMO- Chronic Relapsing Multifocal Osteomyelitis. DS also gets wrist and finger pains when this flares up. It takes a few months to go into remission. Dr J gave us Minocycline and it has helped tremendously. Inspite of Lyme and Co, PANDAS/autoimmune issues are the chief culprits with DS we have found.

Tummy Tonic from Oregon's Wild Harvest brand. Half dropperful each time symptoms appear. They also have organic fennel seed for the same purpose for those kids who will eat it. Nux vomica use the 6X dose 5 pills under tongue, let disslove. To prime use this dosage every 15 mins for the first hour, every hour next two hours and then 3X/day. If she is very emotional along with the nausea then use a 30X potency and same dosing. Not so sure on IV abx. All her symptoms and labs are pointing towards inflammation. If you choose IV abx then please get the abx that are also antiinflammatory. Any LLMD will understand theres inflam looking at the labs and the symptoms you describe. Liposomal Artimisin is helpful for inflam but plain old Motrin might work in some kids. Her nausea/stomach queasiness/cramping symptoms are basically 24/7. And white as a ghost! The lady at the store recommended the 30X since daughter symptoms are chronic. Do you think I should begin with the 6X? It's easy to switch and/or return at Whole Fields. She is not emotional right now (yeah to that). She has been on Prevacid 15mg now for 25 days - don't see it touching it (maybe a smidgen). I worry about the Prevacid since I read it can increase your chances of c-diff. I got her to run to the local Rite Aid tonight with me. She wouldn't leave the house since Saturday. I had this problem two years ago which morphed into her not being able to leave the house for 3 months. I won't let that happen again! Her OCD is much better now though. Homeopathically speaking 6X is stronger than 30X. (I am also a practising homeopath as is my mom so kinda grew up with it- dunno if you knew). Anyways basic rules are the worse the condition the lower the potency and the higher the mental/emotional symptoms, the higher the potency. So if she is not emotional do the 6X like I outlined earlier. Wish you lived closer and I could come see your DD. I feel sad she and you are going thru this. I also wish I could get the bigger picture, her history in depth. I feel you are missing something important. I feel you have been trying to help her symptoms to give her comfort and maybe in that something nutritionally may have been missed. Sometimes things like hydration level can make a difference. Raw goats milk would be a great option to try for GI issues. I just ordered mine thru a friend in PA- they can't ship raw milk to NJ. Need to work on DS and his growth and lack of appetite. keeping my fingers crossed. DS goes into motor tics within a half hour of consuming dairy- cows milk. Its nuts. There is no dairy allergy just sensitivity. Then there was another patient I had and was doing nutrition analysis and she actually got very sick and tons of GI issues after starting fish oil supplements! Yikes! Anyways ART pointed towards her liver and some research later turned out this child had a deficiency with being able to digest and absorb fat properly and even digesting good fats themselves are an issue. It could one of two or both issues- low enzymes and / or low Taurine. Low Taurine . You can research more to se if it fits your Dd. Another aspect would be is your DD taking a multivitamin with iron? or too much iron in her diet? This can cause antibiotic resistance. In my practice I've had a couple cases where the child has low Ferritin and parents were supplementing with iron in am attempt to normalize the labs and help their child. long story.

I suggest 5 drops each three times a day for apo hepat and itires and start with two drops once a day and build up to 5 drops twice a day for Renelix. Renelix can cuase urinary frequency or nighttime bedwetting if dosage is incorrect so since you're not using ART, build up slowly.Excellent remedies in my experience. Thanks! How is the taste when mixed with water? Anything else they can be mixed with? Taste is fine but if DD is sensitive then diluted juice is also ok.

Tummy Tonic from Oregon's Wild Harvest brand. Half dropperful each time symptoms appear. They also have organic fennel seed for the same purpose for those kids who will eat it. Nux vomica use the 6X dose 5 pills under tongue, let disslove. To prime use this dosage every 15 mins for the first hour, every hour next two hours and then 3X/day. If she is very emotional along with the nausea then use a 30X potency and same dosing. Not so sure on IV abx. All her symptoms and labs are pointing towards inflammation. If you choose IV abx then please get the abx that are also antiinflammatory. Any LLMD will understand theres inflam looking at the labs and the symptoms you describe. Liposomal Artimisin is helpful for inflam but plain old Motrin might work in some kids.

Philamom I hope you are following Dr Klinghardt's instructions on urine collection for KPU and not the labs.If not then PM me for them.

I suggest 5 drops each three times a day for apo hepat and itires and start with two drops once a day and build up to 5 drops twice a day for Renelix. Renelix can cuase urinary frequency or nighttime bedwetting if dosage is incorrect so since you're not using ART, build up slowly.Excellent remedies in my experience.

Biopure and yes the liquid. It tastes like dried chick peas but I use it in mango juice for DS. One teaspoon once a day is good.

Fatigue occurs due to various factors and we have great posts above. Please check for viruses. I find many of my patients test high in mono and they are quite unaware. I find CMV and EBV infections can be stealthy and cause a huge amount of fatigue. 1 dropperful of Viruchord and 1 dropperful of viressence twice daily work like a charm. What I would like to add is when the bodys iron levels are high due to dietary consumption mostly (red meats etc), the microbes multiply faster and deplete intracellular mitochondrail energy production. This is what I've read.So reducing red meat consumption to normalize iron levels, reducing emotional stress is also a biggie to keep the cortisol in check. ATP fuel is a good supplement. Researched nutritionals has about 4 supplements for different kinds of mitochondrail support so a look at their website is a good idea. That is symptomatic relief. Now if one wants to tackle the adrenals themsleves then I use Homeopathic sarcode remedies like Adrenopath and for tonifcation and drainage support I use Adrenal tone along with a good antioxidant combination like CoQ10 and Phyto Rad. This combo helps the adrenals to heal, repair and regulate. On the rare but possible side of things - In some patients I find the beginnings of CCSVI and due to which they are "feeling" fatigued. Its a perception of being tired kind of borderline depression due to a dysregulation of the blood supply. I use neurobiofeedback to improve cerebral circulation and that helps almost immediately. I always use a good detox and drainage protocol to get rid of all the byproducts produced by unutilized supplement bits.

The autoimmune part of Lyme is very difficult to deal with. There can be upto four or more mechanisms in play once the autoimmunity is triggered. My DS has PANDAS and lyme and coinfections but PANDAS is his primary problem we have come to discover. We are now trying to meticulously eliminate the infections one by one in the right order which is critical. We are also trying to determine his specific mechanism for his autoimmunity. DH's family has a VERy high genetic susceptibility to autoimmune but DH is fine. I used to have PANDAS from age 4 to 12 which resolved after puberty. So DS has a double whammy. But DH has no trace to any autoimmunity whatsover. DH received only two vaccines in his life and that too in his teens. My mom in law's side of the family is very high in autoimmune conditions- chorea, arthritis, motor tics, CFS, Fibromyalgia, Diabetes etc. BUT they all seem to be vaccine triggered in DH's family. His nieces and my DS ended up with severe autoimmunity (Ds also has Vitiligo)two weeks after their DTaP vaccination which is known to open up the blood brain barrier in susceptible children. I have an 8 year old patient whose severe onset of PANDAS was triggered just days after a flu mist. Anyways, we did one hd IVIG last year for DS which seemed to help with his anxiety quite a bit. But we also had 4 weeks of herxing and then he was exposed to strep so it all started all over again. The IVIG administering physician himself had told us that as per his experience with kids like Ds either just one IVIG would give us the epiphany moment or IVIG wasnt the way for us. We are not ruling out IVIG but are currently pursuing other more natural immune modulating alternatives like GcMAF and Stem cells.

I have used Spectramin from Energetix as an alternative to Core for some of my fussy pediatric patients. Works fine. Combination of spectramin, rehydrate and alka C works even better. Can be made into a fizzy drink. I find most of my pediatric patients test less for Chlorella tablets, more for Chlorella growth factor and for microsilica as the detox agents. detox using Energetix supplements which are homeopathic liquids is another option. ART customization is the best way to do it but generally Drainage tone, Lymph tone, liver tone are all excellent organ toners and lymphopath is a sarcode prep that can be useful if the body hasnt been detoxed in a while. As always, practitioner guidance is important.

PANDAS 16- We have addressed your concerns before and I don't want to address them again. Wishing you peace and be well.

Girlfriend, are we friends on FB??!! If not, we need to be! I can see you will be moving and shaking things up in the pandas community!! Also, i'd like to get you into our little homeopathy group on FB (most of us use PF or Angelica Lemke, but some use Ullman and other hpaths). That sounds great! yes, definitely. I will PM you later on today. Your knowledge in Homeopathy is amazing and the fact that you made this choice for your family at the right time is also a sign that your children will heal really well using this approach. Locally, I have a great network of a LLMDs, DAN! docs, Chiros and pediatricians who understand Lyme, PANDAS and Spectrum issue connections and we work together. We also work together with Dr T, Dr Jones, Dr Klinghardt, Dr Dorochov in Germany, Dr Grundmeyer in Germany and also Dr Buschkuhl in Germany and most of us are ILADS clinical practitioners and members including myself. Its been amazing to help so many children with stealth PANDAS issues under all that spectrum behaviors. My little guy's journey and my resulting learning has helped so many of other families. Motor tics commonly labelled as "stims" have been disappearing with Homeopathic treatment, children are happier, more cooperative and the special Ed schools are now approaching me to hold some lectures about this "new age" medicine LOL! I wold love to connect with like minded mothers, professionals, folks in general who understand the approach we have chosen for our childrena nd families. I would be happy to share what I've learned.Infact two Dr Klinghardt's healing devices for Neuro Biofeedback arrived yesterday (Yay!) and still waiting on Bionic, Beemer 300, Green Laser to arrive in the next week or so. These help with CCSVI issues, help improve the microcirculation to the brain, reduce inflammation, regulate any allergy type overreaction, rebalance the vital/ chi organs, retrain the immune system to void the autoimmunity, the immune system actually prodcues less and less autoantibodies in PANDAS kids once treated with the cascade of Strep and immune down regulation Nosodes. Ive seen it during my training and its amazing how the motor and vocal tics reduce and disappear. My little guy and myself will be the first to get treated with the new devices and will start using them in clinic during the Christmas break when a lot of my families want to try them as well. The preventative aspect of Strep exposure is another HUGE factor that is very disabling for PANDAS kids. My son would be unable to walk with strep exposure as the inflammation would go directly to his pelvic bone marrow. Well, The German Homeopaths have this figured out as well. There are throat coat homeopathic formulations that coat and bind microbes, coat the MALT area and protect the child. I brought these back for DS but am currently in talks with the German manufacturer to get a steady supply for my clinic. So lots being learned, lots happening. I am coming to Florida to see Dr Bradstreet and train with for the GcMAF protocols as part of my continues training for my son and my practice in the near future. Will send tons of extra PVs your way once we land in your state! More later.

Stephanie CONGRATS! I am so happy for you. Ours is a homeopathic success story too. My mom is a classical homeopath in the UK and I am a pediatric Holistic practitioner of Complex Homeopathy and A.R.T. here in NJ. I have trained with Dr Klinghardt for two years now and recently had the wonderful opportunity of training in his clinic and for him to see my son. DS 9. Dr Kling confirmed that PANDAS was the primary issue for ds and lyme and Co were secondary. So him, mom and I came up with a pretty aggressive protocol homeopathic, Bionic and cryosurgery of the tonsils and adenoids. Homeopathically we used strep nosodes, Pleo sanum remedies for treatment and Energetix remedies for prevention. Homeopathically we are also going to try out the Bionic 880 biophoton light therapy using the strep nosodes which allows for intracellular penetration of healing biophotons along with the nosode. Interestingly the Bionic 880 which has been thus far used primarily for Lyme and Co. The German homeopaths treating lyme in children realized PANDAS to be a huge component and there are strep nosodes and protocols to address strep using the Bionic. I have been in training with the German clinicians for the last six months and just got back from Germany after the final phase of training and the Cryosurgery. The Bionic 880 for strep is also excellent for a strep carriers since biophotons will retrain one's own immune system along with the serial strep nosodes to keep strep at bay. That is my next step with Ds as soon he recovers from his cryo surgical T & A. Infact I will have the Bionic 880 with PANDAS nosodes, lyme and coinfection nososdes, immune entrainment, and treatment protocols in my clinic in the next couple weeks! Its still in Germany but we have received all the clearances needed and it will be shipped soon I heard. Very excited. We are actually using organic raw goat's milk instaed of camel's milk and are seeing very good results. Dr Kling's nurse mentioned both work on pretty much the same principle - natural enzymes promote healthy digestion, rebalance the synthesis of neurotransmitters and help in detoxing by preventing intestinal reabsorptions of released toxins- namely sealing the leaky gut. This along with the homeopathic protocol works very well. We are also pursuing GC MAF shots. Ds is now all clear of Aspergers. We have minimal OCD, NO motor tics, NO vocal tics, minimal inflammation in the bone marrow which is rapidly resolving. Ds has no brain fog,no intrusive thoughts, no anxiety, is age appropriate in every way, no GI issues, immune system is healing and he is now responding with fevers to even a cold virus! My babysitter thought I was nuts rejoicing over a fever after a recent cold Ds picked up! This is the first time in 7 years that DS is able to mount an immune response since being diagnosed with Aspergers and first motor and vocal tics at age of 22 months of age, PANDAS in March 2010, and Lyme and Co in August 2010. Ds's suffering and this 7 year journey thru neurological challenges has been such a huge learning curve for myself as well. We have been able to identify several children with Autism in my practice as also having PANDAS and right now we're seeing phenomenal success with the children making rapid progress in language, self care, academics etc once the PANDAS has been addressed. I am using Homeopathic protocols and working closely with Dr T and Dr Jones (absolutely brilliant and amazing docs!!) for the conventional abx part of the treatment. Its been an amazing transformation in so many of my little guys, I love going to work and seeing happy alert little faces. Point to note is Dr Kling and the cryo ENT surgeon both found myself and DH to be huge strep carriers and we had cryosurgery for T&A and sinuses as well. We are recuperating. All of us also have Lyme and Co but just found out (in our early forties!) that we have PANDAS too for sure. On the lighter side while I am glad to see my sleep issues disppear, I am hoping to keep my house cleaning OCD! I will be treating my entire family with the Bionic 880 for PANDAS, lyme and Co and will also investigate GcMAF for myself and DH once Ds is all set. Thats been my experience so far.

I am puzzled that you cannot see why your comment - this sentence in particular - has left people feeling offended and defensive. Perhaps if you switched around your use of mainstream & alternative med references you might be able to see this from the eyes of others - esp since most of us (a) don't know you and ( b ) have no clue why you would expect us to forego our own judgment and embrace yours instead? Given the attitude expressed above, I find this even more puzzling. You just finished talking about the mainstream approach as inadequate and touting the alternatives as THE CURE for those with the wit to recognize it as such - and now you say that you prefer both? Why aren't you just going for THE CURE? I am hoping that all this is a misunderstanding and you are just having difficulty expressing what you actually mean... Unfortunately I don't have a personal triumph or a cure to report.Still researching, learning and trying.I AM going for "THE CURE" believe you me. My research is what I will rely on for my family and those who understand my methodology. You're entitled to misunderstand, misinterpret whatever. Its ok with me. Nothing new. Its just information from my side of things.If you're that interested or "offended" you can search for my previous posts. I am having NO difficulty in expressing my personal experience. It is you who is having difficulty accepting what millions, even billions of people in other countries already know and have tried for their chronic illnesses. Its just info, take it any way you like. YES, its all about one's interpretation of the word cure. Cure is NOT remission to ME and I refuse to rest till I can get beyond that.Remissions can last years and parents get comfortable. I have several young adults in my practice going through the nightmare of Lyme returning in full force after some stressful event in college which is heard to begin with with all the changes/emotions. These kids have been off abx for two even five years and they are a mess seeking relief from alternative medicine. Two of them are Ivy league students and children of famous physicians. Its very sad but the good in it is even very conventional physicians are atleast keeping an open mind and trying alternative approaches in addition to the abx which clearly did help in the past. But how long will one do abx? 10 years? 20? What will happen to the internal organs of our children when they're older? Lyme and co are in my family for Three generation that we know. I have LOST FOUR of my five brothers, my twin included to these diseases. I have them all myself as does my son and I gave them to my husband. I don't really pay any mind to any vicious comments anyone has to say about my experiences and opinions. I believe they are very valuable to people who understand where Im coming from. I write for those parents who will relate to my story and my approach. Its worth it to listen/ignore nasty comments and disbelief from some of you for those few who do understand. Dr J is VERY comfortable in his own skin. He knows there have been NO long term studies on the thousands of children he has helped. There are spurts of research coming in from all over the world little by little. Dr Jones is a beyond brilliant physician, a devoted doctor, a devout faith oriented person and simply a wonderful human being I know on a personal and professional level. He amazes me everyday. He is my mentor and I love him dearly I respect him, he has saved my son's life and I will always feel this way. I seriously wouldn't waste time reading something what you don't understand. Instead of trying to force a more informed parent to admit she's an idiot why don't you use that energy to actually keep an open mind and research whats being said. We should be leaving no stone unturned, listening to every bizaare story out there to see our child can maybe resonate along the same path and NOT bite each others head off. Speaking of small pockets of longitudinal research here is an interesting study I found yesterday eurheart%20journal_estudio%20amigdalas.pdf Bottomline and my final words on this- a combination conventional (abx) plus alternative approach is whats working for me right now. IVIG failed for us and screwed up the PANDAS autoimmunity even more, PEX wasnt considered, steroids failed for us and after two years of use made things far far worse for my child. I'm still researching and am still uncertain if its worth it going fully alternative. In my research , MY personal research only , I found that the only stories that people have shared of any sort of a cure are with alternative approaches that address the whole person, take care of intracellular biochemical and physiological changes, re educate the immune system rather than kill kill kill the microbes kind of an approach. Every child is different and will react differntly to any approach. There is no right or wrong.Thats it.

I've found it to be futile to think one can target TNF alpha per se so specifically. So I just approach it from the high sed rate and low appetite perspective. I attack some of the symptoms it produces and it seems to work. Betaine HCL I use more for specifically increasing the stomach acid in cases. I often pick up things like low acidity in the stomach but adequate alkalinity in the small intestine with ART and betaine tests well for the stomach. The bloating, burping, feeling full too soon in children and adults seems to disappear with two weeks of regular treatment with Betaine HCL. Now when the intestine tests problematic too then one of the combo approach is the rotate different kinds of enzymes. I never stick with one brand since the body will adapt. Raw goats milk also does the trick waaaaay better than the above approach but one needs to find it fresh, all natural and strictly hygienic. I have a dairy farm in Pennsylvania I get my raw goats milk from and its phenomenal. Dr Klinghardt's suggestion for my son and its been amazing and yes my son (and Dr K) is GFCF but not for goat's milk just cow's.

sending you a pm sptcmom- your box is full. sorry philamom will clean up

Thats pretty serious stuff philamom. I would leave it to Dr Jones or your ART practitioner. The Sed rate worries me more then the ANAs. Lupus can be a false positive sometimes. Dr J is well versed in all that. Check out Inflammaforce capsules together with inflammatone from Energetix. Be happy to order for you if you like. If yu give me height and weight I can figure out the dosage too. Great from serious inflammation in my experience.

I find your past and present posts to be instigatory one or two liners. I don't know what you hope to achieve by that but its a sad and pathetic attempt at getting attention. The content of your posts, the quality of the language you use is very much lacking in maturity, in mutual respect and very closed minded. I have personal knowledge of several people who have been cured- biophoton therapy, NLP, NET, NMT etc. So many stories of children with even the worst kind of cancers, AIDS, Lyme etc being cured based on Holistic protocols alone, including the recent GcMAF. I actually believe in a combo approach. But what I have said is in MY experience and research I have read about cures only with energy medicine. No stories of cures with conventional. I am still pursuing a middle approach because thats what I believe in currently. AGAIN, just MY personal experience. Like it or leave it. Dosent matter to me.keep in mind there are SEVERAL countries ravaged with Lyme not just us here in the US of A. There are several stories on Lymenet europe and on forums across the world of cures, chakras getting aligned, acupuncture meridians and channels being open again, Kundalini awakening and the body learning to heal itself with alternative medicine. Infact right HERE in New Jersey, maybe you should attend more lyme group meetings and stay aware- since you're on the Lyme forum and many people with lyme also have Pandas- because there are TWO recent stories of a cure. One of them is the producer of the sequel to Under Our Skin. Its a shame you choose to be so close minded.She will cover it in the sequel which will be aired in the Spring ILADS gala in NYC, atleast the trailer will be. They are still shooting the footage. Its truly tragic you actually believe you're stuck with band aids. But keep in mind thats YOUR belief and yours alone as far as I am concerned. Most parents on these forums are amazing people who continue to look high and low for a cure. Ofcourse one needs to do whatever one can to stay functional and so do I but giving up hope is extremely sad. I feel bad for you. New parents are looking for reality but also hope. Once again please read- its plain English- this is MY personal experience.Like it or leave it. Doesnt matter to me at all.

I do look upon you as a knowledgeable mom who helped me with one important aspect of PANDAS last year. But its really sad to see you still in angst and hurling insults at fellow parents. Why do you feel the need to repeatedly defend your very conventional position? Perhaps you are trying to convince yourself you've made the right choices for your girls? Im fully convinced you have. When I spoke to you, you sounded very well informed and researched on steroids, abx and pex etc. I was impressed.I wish you could move on to a happier place where you don't have to read whats not even there in other people's posts just trying to express an opinion. NOWHERE in my post have I mentioned the word "band aid" or even implied. I have been fair and cited the respective merits of both approaches form my experiences.As I've told you before I am entitled to an opinion without knocking heads with self appointed posting police. You don't need to read my post if it offends you.You know my ID so don't pay me any mind. On the other hand one has to realize this is a multicultural society we live in. PANDAS, Lyme and Co is not segregated to one culture. We have millions of people from India, Pakistan, China, Eastern Europe, Middle East, Mexico, South America etc who live in the USA. Im in NJ and thats a lot of what I see in my practice too. All ethnic parents have alternative medicine questions and want to do a combo approach to PANDAS, Lyme, Autism etc. For Autism the DAN! protocol was ridiculed in the beginning too and look how many thousand even millions the mostly holistic DAN! protocol has helped.Ancient Chinese medicine, Ayurvedic medicine from India, Unani from Pakistan and Russia, holistic approahes from Israel etc have been around for centuries, proven and tested. In my experience I find people with cultural roots to these and other countries ,they have a much deeper understanding of alternative medicine, and I KNOW they/we read these forums and Im sure are glad to read all the holistic info many moms are kind enough to share. 50% of people I meet at the tens of specialists I'm seeing around the world are infact doing ONLY holistic for their kids and themselves. Even kids as little as 6 months old or less. Im not swayed or offended by their approach. I value their opinion and choose to stick with mine- abx and holistic approach. Atleast I know I've learned all aspects of treating these horrible diseases affecting our children in every way I can. When you so vehemently insult an approach that so many parents take, you're not only insulting me but all the parents who have chosen this path. Just because its not published in JAMA or any other American peer reviewed journal, it doesnt mean its nonsense. Medical journals from other countries and alternative medicine journals from this and other countries are ABOUND with scientific research on alternative approaches.Like I said, you need to do real broad spectrum research.There are FULLY licensed and accredited alternative medical schools in the US and ofcourse many abroad. The sooner we realize we need a global and open minded approach to heal our kids, the sooner, I feel, will our kids heal. Most people who know me on these forums know I am a combo approach type of person. I use several conventional methods and several Holistic. Its works for MY family and patients. Doesn't mean Im trying to convert anybody. Im SURE most poople, new parents and all want to read as many experiences as they can before they make a life altering treatment choice for themselves or their little ones. And yes, Thanks Trudy, I appreciate it! I havent had a chance to PM but will. Going to Germany for a couple procedures and will keep you posted once I return.

No offense but it seems to me you're just trying to start a discussion and haven't really read up a whole lot on Dr Klinghardt. If you had you would see a simple Google search come up with quackwatch along with HUNDREDS of amazing testimonials from real people. I don't find it necessary to explain Dr Klinghardt or holistic approach. When someone reaches the end of the road, they find him and his methodology and other similar practitioners who practice energy medicine. One needs a basic understanding of Quantum physics and the human nervous system physiology to understand most energy medicine concepts. There are lay term DVDs available but like I said, unless you are ready to believe you won't. Every person will try their best to keep themselves and their children as healthy as they can. There are those who choose symptomatic relief with every cutting edge method out there IVIG, steroids, PEX etc.This method works very well with regular repetitions of these treatments and remission is often achieved.Its like organ transplant patients who survive and live a nice life on immune suppressing meds on a regular basis. Then there are those who look for a cure and take the only road that can lead to a cure- bioenergetic methodology.Its a road more and more travelled as chronic degenerative disease is fast becoming such a global epidemic. The problem is the Epigenetics which is a discussion for another day.... There are books, there are studies and there are clinical trials. Do your research on your own- forums, website search in depth,- even Pubmed has hundreds even thousands of articles for the benefits of individual herbs for bacterial, viral, fungal etc issues. But one has to understand that in many ways all this is pioneering work and the double blind studies are simply not feasible right now. Your life, your choice, your research, your decisions.To each his own. I don't believe there is a right or a wrong. I wouldnt be swayed by what anyone says- steroids are the best thing, herbs are great, whatever. I would do my own research. You can't assume the other person has done all the research. You may have a better understanding of certain aspects that another doesnt. A mom who choses steroids may have a certain understanding of PANDAS and how she wants her children's future to be. You may do the same research and come to a different conclusion. Trust your own instincts. yes, I've had PANDAS since age 4 and my son has it too since age 2.5. If you truly want to understand PANDAS even better than you already perhaps do now read/Google Dr. Aristo Vojdani's work on PANDAS- its amazing.