lulu648

Does anyone know what happened with the Weill Cornell study on mouthpieces that was being done?

Hi everyone! Has anyone tried CBD (cannabidiol) for OCD and/or Tourettes? It's readily available now at Whole Foods and stores like that, and it seems like something that may help with tics and/or OCD. Please send along your thoughts and or experiences with this. I'm not talking about medical marijuana, which has THC and is different. Thanks.

I know this thread is very old. Can anyone update? CBD is readily available in stores now, capsules, drops, etc. Has anyone had success long term with this for OCD and/or tics/Tourettes? Thanks for any updates and thoughts!

Thank you Sheila. Will report back if we try it.

Has anyone tried tichelper.com yet? Interested to see if it's helping people. Thank you!

Just starting to learn about touretic OCD, anyone out there have experience or information on this? Thanks!

Oh, I'm sorry to hear about the strep. I hope he recovers. Thank you for sharing your story.

Thank you! Is your son still having success?

Has anyone out there heard of Tourettic OCD? I just heard the term today for the first time. Any info appreciated! Thanks!

Hello everyone, has anyone here tried Tichelper.com? Looking for any information on if it helped, etc. Thank you!

Thank you for your post and sharing your success!

Thank you Sheila

Hello! Has anyone heard of or tried Tic Helper at tichelper.com? I just found out about it. Thanks for any feedback!

Hi there, does anyone have any further information on this? Thanks!

Please let us know if you do try them and how it goes! Good luck!

UPDATE: 2/17/17 We have had the device now for almost three months. I can see that it helps my daughter a lot when she wears it, but she doesn't like to wear it, so we don't push it. It has helped identify, at least in my mind, the difference between her tics and compulsions, as it helps more (I'd say significantly) with tics than with the compulsions, although it seems to help some with the compulsions too. However, since she doesn't like to wear it, we're sort of back to square one. At least we have it in our back pocket, although it was a very expensive "back pocket item". It did help the other day when she started an eye rolling tic, she put it in for maybe half hour and that one stopped and so far has not come back. So that is huge. UPDATE: 11/1/16 Thank you to Sheila who sent me a link for a dentist in Seattle who we went and saw last weekend. Here is the link: http://www.seattletmj.com/treatment-of-tourettes He was so very nice, saw us on a Saturday and had a few options of things to try. He tried testing for the mouthguard, he tried an FDA approved anxiety device (you can see it in the video on his website), acupuncture bandaids and he gave us a few bandaids with magnets to try as well, we haven't tried yet but will today. His philosophy is if it has helped even one person, it might help others, so try everything. We so much appreciated his willingness to help. I will post more if the route we are going turns out to be successful for us. ORIGINAL POST: Hello, I am just learning how to better navigate this site, and thought I would try posting a blog. I read from Bigal about his son having success with use of a dental device used to correct TMJ/TMD. I have been trying to find a doctor in the Portland, OR area to work with to see if this might be a possibility to help my daughter but no one is interested in working with us. The five doctors I have found that do this are located in: VA, MA, WA, NY and CA. I am waiting on a call back from the WA doc as they are the closest, and I left an email with the newest one I discovered today in NY to see if he is willing to work with anyone local. The other three as I understand it are not willing to work with other doctors for various reasons. I just thought if I posted here, I might hear from others who have tried this (either successfully or not, it would be helpful to hear your story), and also if you have any ideas of how to get this information out there, as creating "demand" might help spark interest in more and more docs across the nation. Thank you to Sheila who has sent information on the Seattle doc and also on a trial going on, and to Bigal for sharing your story.

Thank you Sheila!

Thank you again for all the helpful information, I know the story you shared will help many, many people!

Hello justkeeptrying! Thank you for your post, first I've heard of this, I just sent in for sample, but same question as person above, do you know what exactly this is or what it delivers into the body of the person wearing it? Their website doesn't have any information about that. Thank you!

Thanks so much for all the information Bigal, this brings me hope. Sheila forwarded a link to me for a doctor in Seattle who does this as well, and I've contacted several people here in Portland as well, waiting to hear back, but Seattle will probably be our best bet. Did you son have the MRI? I am wondering, without the MRI, how do they know for sure if there is TMJ/TMD? I actually just heard my daughter's jaw pop yesterday, although she doesn't complain of any pain in her jaw. Occasional ear pain though, which I understand is a sign. Her tics have been really bad the last week, we're desperately trying to find anything that will help. I so appreciate your responses and the initial post, as it was the first time I had even heard of this. It makes a lot of sense to me.

Hi Bigal, I am just checking in to see if you are still having success with this? Do you know, are the appliances we could get from a local doctor the same as the ones the guys in VA and MD use? I spoke to the VA office yesterday, and it's a huge, I mean like digging into our kid's college fund huge, to work with him because we are on the west coast. I really liked him, he was very kind and highly informative, but I'm hoping we can work with someone local. Do you know of others who have had success with this?

Hi there, I was wondering if you have any updates? I spoke to the same doctor in VA yesterday and we live on the west coast. To try this with this particular doctor will be a huge expense...huge. I too am searching for commentary from people on this and there was one great story but I'm looking for more... did you have any further success after a few days or weeks? Thank you for posting, it is helpful for everyone when information like this is shared.

Hi Rachel, we are just starting the same treatment with our almost-13-year-old daughter. She fought tooth and nail the day O took her to meet the therapist, but I think she's on board now. We're scheduling apts. around school so she doesn't have to tell her friends what she's doing if she doesn't want to. Our second apt. is coming up, where I'm hoping we will get to work on her OCD. Please check back in to comment on your daughter's progression, would love to hear how it goes for you. Best of luck.