PANDAS_Denmark

Hi Stephanie - You are quite right : This disorder is really, really crazy in every aspect ! It is possible, yes, that you infect your son, that is : Maybe you don´t actually infect him but "only" expose him. Exposing af child with PANDAS with streptococcus is in many cases enought to start a PANDASepisode in the child. If I were you I would get testet for strep, and have the test cultured. This should give you an answer wether you should stay on zithromax or not. Regarding your question about your major depressions when your son goes into an exacerbation : Being the mother of a 9year old boy with PANDAS, I know, that there is reason to be depressed every time your child is having an exacerbation ! However it IS possible, that you are reacting yourself, when having or even being exposed to strep, too. I myself has had neurological MSlike symptoms in years. Infections (and especially strepinfections) resulted in a new attack, resulting in new neurologial symptoms. Before my son had his first PANDASepisode, I used to explain these (infections leading to attacks leading to) new neurological symptoms as stress due to work. Untill my son was diagnosed with PANDAS (but having several PANDASepisodes), I used to explain my (infections leading to attacks leading to) new neurological symptoms as stress - due to my sons PANDASepisodes. However : When my son was diagnosed with PANDAS, that is when I realized, that there is a connection between (strep)infections and neuropsychological diseases, I started wondering and examining wether there might be another explanation than stress. As part of my examination I had blod tests run by Dr. Cunningham ! To make a long story short : I have been diagnosed with MDEM (Multiphasic Disseminated EncephaloMyelitis), that is : Autoimmune reactions to strep (and other bacterias and vira) results in encephalomyelitis, causing new neurological symptoms ! All the best wishes and regards -

Hi ) My son is complaining about floaters during PANDASepisodes too - and I do remember, that someone else here was posting, that their PANDASchild was seing floaters too during PANDASepisodes - Best wishes to you all - PANDAS_Denmark

Hi Kim ) GBS can for sure be caused by strep - and any other bacteria and vira :-(. Please refer to my PM too -

Hi Kim - I am confused too - but VERY interested ! Who has symptoms of Guillain-Barre ? The parent ? or the child ? Guillain-Barre can for sure be caused by strep - as can Guillain-Barre-like and MS-like symptoms Best wishes -

Hi - My 9 year old son tells his classmates and friends, that his tics (and there are all kinds of them) are just like hiccups, only in different muscles and places in the body. The friends and classmates can relate to that, as they experience hiccups themselves from time to time, and as such they know, that there ain´t much to do about it, than to wait for it to stop itself. And all the kids can agree, that hiccups (including that kind of "hiccups", that are called tics as well, that is no matter where in the body the "hiccups" are) are irritating. PANDAS_Denmark

Hi Pixiesmommy - I´ve just asked my almost 9 year old son if he was interesting in "talking" (that is writing since we life in Denmark) with your daughter - and he is more than willing ;-). As he put it : "I will do whatever I can to help any kid with PANDAS !" My son experienced his first PANDASepisode when 5 years old. Every time he is infected or even exposed to strep or other bacterias/vira he has a symptom flare up, that is both OCD and tics. I think he is amazingly good at both telling how he experience the PANDAS - and how he is fighting the PANDAS. You are VERY wellcome to contact me, if your daughter is interested ! Wishing you and your daughter all the best ! Best regards - PANDAS_Denmark He is homeschooled very often, either due to "too many strep in the school" or due to his physical and/or psychological reactions when exposed

Hi all ) Does any of you have any thoughts or knowledge of how to cope with the swineflu/Influenza A (H1N1) epidemic in relation to your PANDASchildren ? My concerns in relation to the flu (epidemic) is two : 1) According to the experts (see for example Centers for Disease Control : http://www.cdc.gov/flu/professionals/fluga...in_medical.htm) people with immunological and/or neurological diseases are at greater risk of severe complications if infected with the influenza A (H1N1). I assume - but has not been able to verify this in details - that this i partly due to the cytokine storm, an (auto)immune reaction, that the flu is able to provoke/start. As such our PANDASchildren is at higher risk than other - healthy - people if infected, due to the flu itself. 2) On top of that, it must be reasonable to expect/fear, that the flu - as it is the case for many PANDASchildren when infected (and often also when just exposed) with other bacteria and/or vira) - might cause an explosion in PANDASsymptoms as well. I have only had the opportunity to discuss my concerns with my sons doctor very briefly. The conclusion was, that I was right, that my 9 year old PANDAS son was both at greater risk of severe complications if infected with the influenza A (H1N1) AND it was reasonable to expect/fear, that the flu might cause another explosion in PANDASsymptoms as well ! Based on these conclusions we briefly discussed, if it was/is wise/safe to send my son to school, knowing that : * the flu experts recommend to "limit contact with crowds and avoid crowded places" in an attempt not to get infected * it is well known that schools are "perfect places" for bacterias and vira to spread * several states/contries have decided - or still discuss whether - to close the schools for the very same reasons However we didn´t reach a conclusion. Stated briefly the doctor on one hand stated, that he thought it would be wise to hometeach my son to try to avoid him from getting infected/exposed - on the other hand, that it is not a sustainable situation. Does any of you have any thoughts or knowledge of how to cope with the swineflu/Influenza A (H1N1) epidemic in relation to your PANDASchildren ? And has any of you had the opportunity to discuss it with your PANDASexperts ? Best regards PANDAS_Denmark - a concerned mother to a 9 year old boy with PANDAS

Hi all ) For the sake of my PANDASsøn I have decided to invest in a STREP homwtest kit. It appears that there are many producers of such test kits. Are there any of you who have experience with one or more test kits? - And can recommend one kit over others? Best regards - PANDAS_Denmark

Dear Linda - I can tell you for sure, that my son (PANDAS) has flare-ups of tics and OCD every time he´s around a strep carrier - even though he is on Azithromycin. I have noticed, that several of the parents on this forum have reported the same, and I think "Buster" was the one to give a possible explanation. I have searched the PANDASlitterature, but haven´t had any success this far, to find these flare-ups when exposed to (but not infected with) streptococcus confirmed. Best wishes - PANDAS_Denmark

Hi - Pmoreno writes in one of the latest posts, that the daughter "is complaining of seeing floaters (little things floating around in her visual field). This is something that she had complained of last year when her PANDA symptoms were at their worst." My 8years old PANDASson is complaining of seeing floaters as well when his PANDASsymptoms are at their worst. Is any one else experienceing this ?? And : I have tried to find an explanation, but with no success. Have any of you come across such an explanation ?? Best regards - and all of the best wishes for you all and your children PANDAS_Denmark

Hi Buster, Thanks a lot for this post of yours, explaining why PANDASkids (seems to) have a reaction when exposed to strep even when on antibiotics. It made it all very clear to me, as to why my son (and other PANDASkids as well it seems) have a PANDASreaction every time he is exposed to strep (but not necessarily infected with strep to an ”extent” where a culture will show it) ! My son had his first PANDASepisode 3 years ago - and several episodes since then. At the time he was diagnosed PANDAS, he was diagnosed with vasculitis as well - and autoimmune disease that in my sons case causes inflamation of the blood vessels. As a "result" of or sign on the vasculitis, he "reacts" with petechias every time he has an infection (no matter what kind) and every time he is exposed to streptococcus (but not other bacterias/viruses it seems). As a result of the PANDAS he "reacts" with OCD and/or tics too every time he has and infection (no matter what kind but especially when due to streptococcus) AND every time he is exposed to streptococcus (but no other bacterias/viruses it seems). Because of the vasculitis it is very clear to see when my son has an infection or has been exposed to streptococcus : I only have to look at his skin. If he has petechias, he is infected or has been exposed to streptococcus. He even "reacts" with a scarlatiniform rash sometimes – and based on my own studies and observations, I have come to the conclusion, that the the scarlatiniform rash indicates/proves, that he has been infected with streptococcus, as streptococcus seems to be the only bacteria being able to cause this sort of rash. For a year now my son has been treated profylactical with Azithromycin – and it seems as if it makes his reactions to exposure much milder. However it doesn´t (as I had hoped to) prevent his immunesystem to react when exposed (and not neccesarily infected). The doctors keep telling me, that it is imposible, that he has a PANDASreaction at all, when exposed (when/if not infected), when he is on Azithromycin. They keep telling me, that his OCD and/or tics reactions are something not measurable and to some extent they tell me, that it is only something a worried mother makes up in her mind, even though also his teachers at school a very good at pinpointing too, when he has a reaction. However : They agree that he reacts with petechias – not only when he is infected but also when he is exposed to bacteria/virusses. This makes me puzzled : How can the doctors on one hand claim, that (in the very same child) one autoimmune disease is not ”capable” of reacting and another autoimmune disease is ”capable” of reacting, when treated the very same way and exposed to the very same trigger ?? The vasculitis is not a very big issue for my son - but the PANDAS surely is. As such I am very interested in finding a scientific paper (or more) proving (or to some extent proving), that PANDASkids DO have a reaction when exposed to streptococcus (and/or other bacterias/virusses). Have you ever come across such a paper ??? The reason that I am so very interested in such a paper is as follows : IF it is scientifically known, proven or even made probably, that PANDASkids DO react when exposed, even when treated profylactically (with macrolides or penicillin), one has to consider to what extend it is secure and justifiable to let a PANDASchild go to kindergarten or school every day. As stated by Mandell´s ”Principles and Practice of Infectious Diseases” streptococcus are VERY common in these environments. Kind regards - PANDAS_Denmark

Dear Michele - Oh yes – it is very possible, that the two could be connected ! And maybe you can use that in your argumentation, that Andrew should be on a daily antibiotic !!! (and that it IS PANDAS, if some of the doctors still have their doubts ???) I asume that you refer to reumatic fever, writing RF ?? And reumatic fever is caused by streptococcus. In fact the very same streptococcus that causes PANDAS ! PANDAS and RF is – as such – to different autoimmunological reactions to streptococcus ! - And some doctors argues, that there might be a genetical connection between these (and other) autoimmunological reactions to streptococcus ! I´ll try to answer your questions below : Yes – I do take ”daily” antibiotics too. That is : I don´t take them daily now, because Zithromax is not to be taken daily but only a few days a week. But at first I – as my son – tried Penicillin V, and later Amoxicillin. Both Penicillin V and Amoxicillin was to be taken daily. Unfortunately Penicillin V didn´t work for us at all – and after only a few month Amoxillin didn´t work either. I had to struggle for a long time to prove, that it didn´t work out for us – and succeeded at last. The doctors DIDN´T make the connection :-(. I did ! (Thank God for the Internet !!). Our story – and how I made the connection – in short : My mother was sick with reumatic fever, when I was a kid and had to have removed one of her kidneys too, due to an autoimmonological reaction to strepinfections. Ever since I was a kid I have had several strepinfections – and tourettelike symptoms, but very mild, so noone cared. As a young teenager I began having different periodical neurological symptoms : 2-3 months of dizziness, 2-3 months not being able to walk more than a few hundred meters, 2-3 months not being able to hold my head ... etc.. Plus – periodically – swallen and hurting joints. Everytime I – and/or my mother – was told that it might be psycological ... and I was never examined as such. No one mentioned or suspected, that it could be an immunological reaction to streptococcus. My mother never insisted on a thorough examination, as the doctors was right in that way, that the symptoms disappeared after a few months, and everything was back to normal (untill the next strepinfection). My son was born in 2000. A fine and healthy boy, except for the fact that he was having infections all of the time, and among them several strepinfections and scarlatina several times. Summer 2005 we both had strepinfections several times – and autumn 2005 all of a sudden – that is over night - my son ”developed” severe OCD and tics. The doctors told me, that it might be Tourette Syndrom. A month later – again after another strepinfection ! - my son got what was thought to be meningitis (but later turned out to be ADEM : Acute Disseminated Encephalomyelitis). He was hospitalized and treated with antibiotica directly in the veins. All of a sudden his OCD and tics (allmost) disappeared. Again : Over night. I found that very strange. I would have believed, that a child with severe OCD and tics that was being hospitalized was to react in a ”negative” manner : That is with more OCD and tics. So : I started my search of a possible explanation. My wish for finding a possible explanation became even bigger, as my son kept (and still keeps) getting petecchias (and a scarlatini form rash) with every infection and especially strepinfections – and was/is hospitalized every time, because of the danger of that being a sign of a new meningitis(/ADEM). I came across this site :-) and NIMHs site as well – and confronted the doctors : Could it be PANDAS that my son was suffering from ? And could the meningitis in fact have been an attack of ADEM ? They had never heard of it !! :-(. After a while I was lucky to find a doctor, that was willing to listen – and to test my son with the help from a specialist in immunoneurological issues. The tests (and among them the Anti Basal Ganglia Test) showed, that I was right : It was PANDAS ! - And the ”meningitis” – they agreed – could very well have been an attack of ADEM and not meningitis at all. Autumn 2005 – at the very same time, that my son first ”developed” OCD and tics – I again got neurological symptoms. Only this time they didn´t seem to go away. The doctors – again – told me, that it had to be psycological. A reaction to the stress that my sons disease did put me in. For a while I accepted that explanation, allthough I didn´t feel stressed – and allthough the doctors agreed with me, that stress couldn´t possible be the cause ALL of my symptoms. After allmost a year I succeeded in having some neurological testings done. The suspicion was, that it might be multiple sclerosis. The results however showed, that it was not MS. The doctors told me, that they didn´t have a clue, what I was suffering from – and I just had to life with it. (At that time I could barely walk, was constantly dizzy, even when laying down, had to spend 20 hours a day in bed – resting, had problems sinking and talking ... ) When my son was diagnosed I started my second round of searching and reading. I wanted to know all about PANDAS, that I could possible find and understand. And I started to wonder : Could there – possible – be a (genetic ??) link between the facts that both my mother and my son had a stated autoimmunological disease and my symptoms ? My neurologist did find it interesting – but had never heard of PANDAS or the like, and didn´t know where to begin and where to end, testing me. I then decided to contact the specialist that had helped testing my son. (A specialist that normally only the hospitals may contact, not ordinary people). It was my luck, that he found both my sons and my case interesting – and was a very, very kind man and highly respected doctor too. The tests was done and all my journalpapers thoroughly examined too trying to see if there was a connection between the strepinfections I had had and the neurological symptoms I had had. This leading to the conclusion that I suffer from MDEM, that is Multiphasic Disseminated Encephalomyelitis (several attacks of ADEM), caused by ... streptococcus !! As mentioned before I have had several discussions with the doctors about which antibiotic to use. I have found good help in the book ”Mandell´s Principles and Practice of Infectious Diseases”, that the doctors themselves often refer to. I sincerely hope that my story can help your son – and you ! Best wishes - PANDAS_Denmark

Hi :-) I agree that it could simply be a ASO and AntiDNAase B titer test. But maybe it could also be a test of the levels of CAMkinase II activity ? You can find a description of the test here - as well as the argumentation of using that test : http://www.csus.edu/bios/faculty/Kirvan/Ki...JNI_article.pdf. My son (PANDAS) had that test a year ago (on several blodtests taken over the past two years), showing remarkable high levels of CAMkinase II activity at the times when he had had PANDASbursts. I know that this test can be done only at very few laboratories in the world. As such my sons blodtests was tested/analyzed in US (we live in Denmark). Best wishes to you all !

Hi bmom - I will try to answer your questions as good as I can. My son was treated with IVIG april last year, that is two month after he was diagnosed. In my sons case it was not an easy procedure, but COULD have been, was it not he was having some kind of infection at the time the treatment was started. It did take 5 days to treat him, because they had to stop the treatment every time his fever was rising, and start it again when it was falling. It was ment to be only 2 days. But he had no sideeffects of the treatment itself, and if you ask him today, whether he will ever have this kind of treatment again or deal with the PANDASstuff, his answer is clear : "IVIG for sure !" In Denmark most of us don´t have insurances as such, but if a treatment is necessary in a/the doctors opion(s), one will be treated for free; taxpaid. In my sons case the doctors found that it was worth trying the IVIGtreatment. As such I didn´t have to pay. My son hasn´t been symptomfree since the IVIG :-(. The IVIGtreatment DID have GOOD results, but the prophylactic antibiotic treatment he was given at the time wasn´t effective (enough) (Penicillin V) and only a few weeks after the treatment he was having another strepinfection and with it : New symptoms :-(. I have been told that IVIG only has an effect on the symptoms that are present at the time of the treatment. When/if the child is having another strepinfection AFTER the IVIGtreatment another PANDASepisode will occur. Since then I have been discussing with the doctors, if and when we should "try" the IVIG again, and only recently I succeded in convincing the doctors, that it should/will be tried again, if my son gets as many symptoms as he had when he was treated the last/first time. And I won´t hesitate ! Since then I have been discussing with the doctors too, which prophylactic treatment he should be given. We have tried Spectramox (with SOME result, mostly in the beginning), and since august : Zithromox. Zithromox with the best result. From august to january my son didn´t attend school. I was too afraid to send him, given the fact that streptococcus are VERY common among children in this age. In this - long - period my son had no strepinfections - and no PANDASsymptoms ! As soon as he started school again : Infections (of ALL kinds) and new symptoms ... but mostly mild. Best wishes - PANDAS_Denmark

Hi evie - SO sorry to hear what your son - and family - are going through ! I am the mother of a 7 year old boy, diagnosed with PANDAS a year ago (being sick for 2 and a half year), so I know of the troubles you´re all having :-(. My son has had the best results with Zithromax, in that he has tried Penicillin and Spectramox as well. Have you considered IVIG ?? NIMH don´t RECOMMEND it, but have had GOOD results with that treatmentprotocol. My son too has been treated with IVIG, and benefited from it !! All the best wishes for your son, you and your family ! PANDAS_Denmark

Hi Michele - I have seen only few recommendations to run blood work after negative cultures, but I have seen some. These recommendations are based on the fact, that 1) the strep quick test can give a false result - and 2) strep infections can be others than strep sore throat (impetigo among others - and VERY common among children), and as such not neccesarily can be detected with a strep quick test or strep culture. I have shown these - few recommendations - to the doctors, and have been very insisting; as they started and for a long time kept telling me, that if he was on antibiotics and the strep culture was negative, he had no strep infection. But he did :-(. I guess, that what help me in the process of convincing the doctors to run blood work - except of being very insistant and handing out the above mentioned recommendations - is the fact, that my son suffers from vasculitis too and that as a result of that gets petechias every time he has an strepinfection. I agree with you, that it is quite alarming that kids can have strep while on long term antibiotics !!!! Sincerely - PANDAS_Mom

Hi - Just wanted to add that my son (now 7 years old, diagnosed with PANDAS a year ago) has been on antibiotic for a year. As with reumatic fever it is assumed, that he will have to be on antibiotic untill he´s about 18 or 21. My son has been on Penicillin V, Amoxicillin and latest on Zithromax/Azithromycin -- and has had strepinfections with them all. That is : The strep throat tests hasn´t been positive, but it has been possible to see that and when he has had strepinfections in the blodtests. As such it seems that no antibiotics is completely safe ... :-(´ I have talked to several doctors about this. They admit, that the blodtests tell, he has had strepinfections. However they keep telling themselves and me, that it shouldn´t be possible. That leaves us with three still ongoig questions and discussions with the doctors : 1) Knowing that my son keeps getting strepinfections while on Penicillin V, Amoxicillin and latest on Zithromax/Azithromycin : Is there another and better antibiotic, that should be tried ? 2) Knowing that my son keeps getting strepinfections while on antibiotics : Should he be hometeached, trying to minimize the risk to get infected ? 3) Knowing that my son keeps getting strepinfections while on antibiotics, and knowing how this affects him every time with (several months with tics and massive OCD) : Should one try to minimize the damage the infection can do/does, by giving him IVIGtreatments and/or stereoidtreatments ?

Hi Sunflower - My 7years old boy have bad these painfull stomachtics too. We found that massage helped him to relax, as did a "trick" : Bending and stretching his feets, when he did feel the urge to do the stomachtic. As a matter of fact, he often (but not allways) has been able to use that trick as a "substitute" for other tics as well, that was painfull or bothered him in other ways. Best wishes -

Hi emma1 - It is for sure possible to get a strepinfection while on Pen VK. My son was on Pen VK in 6 months, and kept getting strepinfections : strep throat, impetigo ... We went to the doctors every time, and they kept claiming, that this wasn´t possible, and that he was supposed to be protected while being on this antibiotic. It wasn´t untill, I found an article on the national pharmaceutical institute about antibiotics, that I was able to convince them, that it was common, that Penicillin VK isn´t enough to kill the streps. Unfortunately this article is in danish, so it won´t help you much, but it should be possible to find an article in english too ? The article stated, that the first choise of antibiotics, when someone has a strepinfection is Penicillin V (among other things because of the fear of resistence), but if that doesn´t cure the patient, one has to consider (and try) something else, that is for example Amoxicillin or Azithromycin. Best wishes -

Hi kallik - Yes, 2 years ago my now 7years old PANDASson did have a spitting tic for a few month :-(. Since then he has had this tic on and off - but only a few day at a time. I don´t know how to treat this tic other than to treat it like all other tics ... Best regards - PANDAS_Denmark

Dear Kelly/ - My son was treated with IVIG six months ago, with amazing results. However : Shortly after the treatment my son (at that time treated with Pencillin V) was having numerous infections, and his tics and OCD was back as strong as ever :-(. I have been told, that IVIG/immunoglobulin can help only on an ongoing autoimmune proces, and that is why my son reacted the way he did : With a new autoimmune proces leading to new symptoms, when he was infected again. Since then my sons penicillinprofylaxis is changed (from Penicillin V to Amoxicillin – and latest to Azithromycin), as Penicillin V no longer prevented strepinfections. When my son was treated with IVIG/immunoglobulin, the doctors told me, that I was to expect, that the treatment was to be repeated with 6-8 weeks interval. Since the first treatment however it has been impossible for me to get the doctors to repeat the treatment. As such I am now looking for another doctor/clinic/hospital willing and qualified to treat my son. Have you ever read this article about IVIGtreatment of PANDASchildren : http://intramural.nimh.nih.gov/pdn/pub-5.pdf ?? I you have found other articles, I am very interested in these. Sincerely - PANDAS_Denmark

Hi - I am the mother of a 7year old boy, diagnosed with PANDAS. My son was treated with IVIG/immunoglobulin half a year ago. The result was amazing – both his tics and OCD improving dramatically. However : Shortly after the treatment my son (at that time treated with Pencillin V) was having numerous infections, and his tics and OCD was back as strong as ever :-(. I have been told, that IVIG/immunoglobulin can help only on an ongoing autoimmune proces, and that is why my son reacted the way he did : With a new autoimmune proces leading to new symptoms, when he was infected again. Since then my sons penicillinprofylaxis is changed (from Penicillin V to Amoxicillin – and latest to Azithromycin). When my son was treated with IVIG/immunoglobulin, the doctors told me, that I was to expect, that the treatment was to be repeated with 6-8 weeks interval. Since the first treatment however it has been impossible for me to get the doctors to repeat the treatment. All of a sudden they say, that there is no evidence, that this treatment help on PANDASchildren. I believe, that is not a question of evidence, but a question of money ! I am told to, that I will simply have to accept, that my son is having a cronical (and evolving) disease. I know that my son is having PANDAS, and that PANDAS is a cronical disease. But I cannot accept, that my son isn´t getting the treatment, that might help him. As such I am trying to find a doctor/a hospical/a clinic, that is willing and qualified to treat my son with IVIG (very well knowing, that this is very expensive, and that I will have to pay myself). Does any of you know such a doctor/hospital/clinic, I would be so very thankfull, if you would share this knowledge with me. I life with my son in Denmark (Scandinavia), but I am willing to travel around the world, if this might help my son in any way. Sincerely - PANDAS_Denmark

Hi Michele - So sorry to hear about your troubles ! My 6 year old son with PANDAS has been on penicillin V prophylaxis for half a year, too - with no results at all. He kept getting strep.infections of all kinds, "even though" the doctors kept telling, that it shouldn´t be possible. Not till he was really sick with both strep throat and impetigo at once, they were willing to realise, that it is indeed possible (because of betalactamase) ! After that he has been on Amoxicillin-/Spectramoxprophylaxis for a few month. The first month it seemed with good result, but after that it seemed it didn´t work anymore. Now he is on Azithromycin, based on the good experiences described on this forum. I hope and pray, it will work. Concerning school articles : I´ve find a lot of the materials found here very, very good : http://www.tourettesyndrome.net/education.htm. As you write yourself, many people just see the behaviour/problems of our kids as poor discipline, and will treat them according to this. That´s why I have chosen myself, to tell the "school", that is both teachers and parents, about my sons disease and symptoms. In this connection I have found it usefull to explain PANDAS as "a modern variant of rheumatic fever", that most people know about, "only" with other and more complex symptoms : Tics and OCD. My son has told his classmates himself about "his PANDAS", that "teases him sometimes" : "making me tic or even do things, I don´t even want to do". Everybody has reacted with great concern, and do their best to help my son. Best wishes - PANDAS_Denmark

Every time my 6 year old "PANDASchild" gets an strep-infection he gets a scarlatiniform rash and petechias as well. Has anyone else experienced this connection between strep-infections, PANDAS and scarlatiniform rashes and petechias ??? And/or do any of you have a possible explanation ?? I know that scarlatiniform rashes can be caused by streptococcus - but petechias ? I have talked to several doctors about this, but gets no answers :-( Yours sincerely - PANDAS_Denmark