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Darla

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Darla last won the day on August 28 2014

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About Darla

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  1. Nice to see you here

  2. Thanks for the info on the bread and cheese. The bread is at whole foods so thats good, but when I tried to locate the cheese it didn't show up. I will still check though next time Im there. Those two items are big ones to know about, thank you. I spent a lot of money yesterday at whole foods buying food. If the package says GF, does that mean it's CF too? I guess I shouldn't assume anything, i mean I know dairy is obvious but i'm still new to this whole thing. Processed meats and cold cuts etc.. but would the GF food have any? I would'nt think so. I am trying to get my husband on board, h
  3. Hi, Here's an update. On casien free for over a month now. I've seen some improvement with my son willing to comply with me more than usual. No major explosions in behavior with the exception of yesterday I believe that it may have been due to him eating pizza the day before at a pool party. He also snuck ice cream at my mothers house today. He paid for it with diarerra and was dizzy not feeling well out of sorts with a lot of anxiety tonight. So all in all no miracle but improvement. I was hoping that his anxiety ocd and explosiveness would go away. So far the only good thing is there
  4. Okay so im desperate this weekend. Having a meltdown over the constant struggles here at home. I feel so beat up. The casien elimination isn't solving any behavior issues. Thinking of going GFCF. I am overwhelmed at cooking things from scratch (im not a great cook by any means) so learning about the ingredients and all that comes with the diet is overwhelming at the moment. Where do I start? What staples of food should I have on hand. Are there any specific stores in massachusetts that sell only GFCF? That would make it sooooo much easier for me than hunting down foods that I don't know exsis
  5. Hi, Curious if anyone has tried the SDC diet or has read the book Breaking the vicious cycle: Intestinal Health through diet by Elaine Gotschall? thanks
  6. Hi, So my 9 yr old son got back lab work and has a casein intolerance and takes digestive enzymes. He also has very low amino acid levels and his dctr is giving suppliments for that but suggested he take a liquid protein suppliment (that has no casein) . He is not metabolizing protein and it is causing major problems with his amino acid levels. I have tried giving him whey (dairy free/casein free) protein shakes, they are just to much drink for hiim. He needs a shot of it or a liquid dropper of it. The closest thing i've found is by a company called Protica that has a product called Profe
  7. My son had a QEEG done last year along with some nuerofeedback. Now the feedback didn't show any great improvement, however the QEEG proved to be very beneficial to us for our son. I had attended a conference that a man named Dr. Greenblatt ran on biological causes of disease and illness. From here I made an appointment with him to have some labs run and had him look at my sons medical file which included the QEEG. We had an amino acid, oat, hair test done. The things that show up were that all of his amino acids were very low and it a casein allegry from peptides in his urine. So casein in d
  8. Hi, I haven't been here in a while. My son was diagnosed with PANDAS last year. I did not put him on antibiotics daily ( just not there yet) I felt that the diagnosis came very easily and did not expect it. It was just said as a matter of fact and here's a script for bactrim. Although I figured it out before they did, for some reason I just can't think that having PANDAS and taking antibotics is the end all of it. I just keep pursuing why. He is was recently sick with a virus where he ran a fever and vomited. He is now having major ocd symptoms and developed a tic of clearing his thro
  9. I was told that liquid form magnesium is the best form to be absorbed, however, it tastes horrible. Does anyone have any suggestions to get my son who is nine to take it? Also, I am trying Betaine HCI tablets (hydrochloric acid) to help his digestive system, but the form of tablet is to tough for him to swallow. Do they sell these for kids to take, maybe I'll purchase them if so?? thanks
  10. Hi Nancy, My son has ocd/anxiety and they are horrible after strep soooo i guess Pandas too. He too has the need to "confess" silly things to me, which I let him do. It bothers him and he hates the feeling of having to tell me something. I don't know if you have tried inositol. It really helps him with his anxiety /ocd. I give him about 1 1/2 grams a day. Hope this helps. Oh btw hes nine yrs old.
  11. I know it's been a few months since i posted this, but im coming across this yet again, and after reading all the benefits of this mushroom, i am going to try it myself, and possibly give it to my son. It is helpful against viruses and with the swine flu scare, it would be worth while. It should be taken with vitamin c so that the body absorbs it.
  12. Hi, Wondering if anyone has used St. Johns Wart, either for themselves or given it to your child? I'm curious about the results good or bad.
  13. Hello, I was researching autoimmune disease treatments last night, and came across this link which spawned a whole lot of reading and learing about this method called MP (Marshall Protocol). I have posted a link to the info that gives some basic information. It looks very interesting and promising for people who suffer from autoimmune disease. It's focus is on inflammation caused by TH1 inflammatory disease. Interestly it revolves around vitamin D and that people with autoimmune disease should not take it as it makes the situation in the body worse. It envolves a theraputic probe to see if
  14. thanks- my pedi did mention that there have been some studies regarding Vitamin D deficiency and anxiety related disorders. He's willing to do a thyroid test as well.
  15. Dr. Alcy Torres Pediatric Medicine Neurologist, MD 300 Longwood Ave Children's Hospital Boston Boston, MA I had read that he specializes in PANDAS- appts are a few months out to get him. We made an appointment but ended up seeing another neurologist b/c our pedi wanted our son seen sooner. I found the neurologist we eneded up seeing to be some what unhelpful. I think a lot of people in this forum don't get far with the neuro's. not sure if hes into the IVIG or Plasmas exchange. The neuro I ened up taking my son to wanted to put him on Bactrim which isn't the most effective antibiotic
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