[Observation of why son has had recent burst of tics]

We have used the Bonnies' vits along with diet changes in our son with good results.

After a couple weeks off school, I thought a few tics would surfice but there was not really anything.

He did have some minor vocals one night due to what I believe was a reaction to chocolate.

I honestly believe there is a direct reaction to chocolate, not sure what is in it, but he always reacts with tics after he has some.

I am still skeptical on the NAET. We have had about 10 appointments at a cost of over $1100 and I keep thinking they are working, but he still gets the dark circles under his eyes.

His last major explosion was just prior to him going into grade 3 this September. Since then, they have been very minor. My biggest issue is probably with myself! I keep bracing myself for another explosion instead of taking that one day at a time approach.

I understand that no one can really tell me if he will get worse. He is 9 and the tics started when he was 7. I hope and pray that he will, or is growing out of them, but I need to somehow accept the fact they could get worse when he reaches 11 or 12.

Like I said, I still need to take one day at a time!

[Brainchild Nutritionals or Bonnie's]

Our boy showed off the chart for Soy also, but I did read that soy lecithin is made from a different part of the bean, and those that show allergic to soy should be fine with the lecithin

[Son's progress]

Hi Lenny,

Glad your son has settle down again. What things did they treat for regarding the NAET, and have you challenged the things he was treated for to see if he shows any reaction like before? Or are you still not sure if it has any correlation?

 

Thanks

Faith

He has been treated for eggs (whites and yolks) dairy as well as the initial clearing. We have not challenged the treatments per say, since all his allergies were delayed, I am not totally sure how we would know unless we gave him more IgG tests next year or his tics got worse.

 

As to the previous question on Bonnies, I find them so much easier to use and feel safer with them. I still give him some calm and some pro biotic.

[Son's progress]

I am so glad i joined this group, i come one here and read stuff like this see there is other things out there then the MEDs i am sure it is hard to find out with it is that triggers the tic's but i am will to put my every waking moment into this!

i am so happy you son is doing well!

Ann

This has been over a year and a half for us on this "journey" to help our son. He has had a couple set backs, both major ones due to stress, one was over some bullying plus a terrible move for us, the last one was starting school in Gr 3. He had to deal with a new private school and a bus ride. We have done IgG, standard prick tests as well for allergy, changing his diet to reduce the problem foods, taking away all artificial colors, flavours etc. We also have him on Bonnies Vitamins and have had about 5 visits to a NAET Dr.

I don't know what the real reason is for his progress, he is doing very well right now. My biggest problem is having faith that all the prayers and tears I have shed for him are not in vain. I want so bad to believe that we have been led down the right path on our journey, but I still have way too much anxiety thinking the tics will come back. I know they probably will, but I am hoping to a much lesser extent. For today, I will just hug the little guy and tell him how much I love him and how proud I am of him and pray for myself first, to be a good father and caregiver, then pray for him.

If I didn't find this board, and spend time and money researching all these leads on what can help him, I feel I would not be doing my job as a parent.

Just don't get too obsessed, my biggest mistake/challenge. Let your child be a child. I now let him have a few pieces of "junk food" now and then. We let him watch TV and play his Nintendo on a limited basis, if he tics, so what, they go away and probably no one else knows but me anyways.

By the way, where to you live in Canada Ann? We are in Vancouver area.

[newbie]

We are doing the Bonnies vitamin as well as a bit of Kids Calm. We have had 4 sessions of NAET and are still skeptical. Time will tell if the expensive procedure works. The IgG test certainly showed up some interesting things, the prick test showed nothing. I will probably get him tested next year again with IgG and see if it the results are different. For now, he is doing great.

Lenny

[A challenge to Diet Changes - son w/no food allergies?]

Pat

Thanks for the note. Can you help me understand what the IGG test is and who would perform such a test? Did you decide to do that on your own, or was it recommended?

IgG is the one that tests for delayed responses to foods. We decided to do it on our own. Mostly because our GP as well as the Optomotrist noticed black rings below his eyes and said he had allergies. $400 later we had the results that showed what was bothering him. The black rings went away, he stopped sweating to point of soaking his pillow every night and he slept and ate so much better.

[A challenge to Diet Changes - son w/no food allergies?]

Our son showed no alergies on the prick test method either. But on the IgG he was off the charts on soy, eggs as well as some others. Our initial response from his Pediatric Neurologist was to be careful with diets and supplements, that they will not help. We are doing it anyway, he is doing better now and I am not going to stop trying anything as long as it is safe and may help.

[Tics and Celiac Disease (wheat allergy/intolerance)]

Lenny,

 

My son did show egg sensitivity with our NAET dr., and was treated egg once instead of breaking it down. Our office visit is $95. Luckily our insurance picks up some of it. We coded under allergies for insurance purpose.

 

I am glad to hear that your child is doing well. May i ask why you started him on Bonnie's vit, i thought he was doing well.

 

Pat

He had a major setback at the start of the new school year. I just felt it was more convenient using a proven system like Bonnie. It is so much easier to give him the Bonnie vits too. I don't have to go to different stores looking for different supplements. I still give him Kids Calm along with a Pro Biotic in the morning too.

[Tics and Celiac Disease (wheat allergy/intolerance)]

our son's tics are doing pretty good right now. We have started Bonnies Vits and he has had two NAET treatments. My mom is extreme Celiac.

The NEAT Dr is starting on egg whites first, which we know he is alergic to. We will have to wait on the rest

 

 

Lenny,

did you find out thru the NAET what he came up sensitive to? (can't remember if you posted that) And also, any reactions to the Bonnie vits, or so far so good? Please let us know what effects you feel are from NAET treatments.

 

Thanks

Faith

We had a heads up from an IgG test done ealier this summer. I did give the NAET Dr the test results, but her testing did show eggs as a problem. She did the egg whites this week ($78.00 just for that) and now we have to do a second treatment for yolks. I probably should have not given her his results prior to the testing, mainly because I am still skeptical, but I was trying to get her to treat his main alergies instead of starting from scratch. After she did his egg whites his eyes got very dark circles below them the following day. They are better today, so I am hoping that was a good sign. I am not sure how far I will take this NAET, it is so weird that I do question the procedure. I plan on spending about $1000.00 on it and then see. With the initial treatment/visit and one actual egg white procedure, we are already at $230!

As far as Bonnie vits, so far so good. He has no body or voice tics at all, just a few eye blinking now and then.

Lenny

[Tics and Celiac Disease (wheat allergy/intolerance)]

our son's tics are doing pretty good right now. We have started Bonnies Vits and he has had two NAET treatments. My mom is extreme Celiac.

The NEAT Dr is starting on egg whites first, which we know he is alergic to. We will have to wait on the rest

[food allergies]

My 12 year old son has a lot of delayed food allergies. These were determined through IgG testing. An allergist would most likely test for allergies which cause an immediate reaction and are IGE allergies. Here is a link to a table that explains the difference well http://www.optimumhealthresource.com/validation/delimm.html

 

My son was initially very nauseous following treatment for Lyme Disease. We learned he was gluten intolerant. He became quite healthy after removing gluten from his diet. Then 3 years later he started with a lot of GI symptoms again. We did delayed food allergy testing (there are a lot of labs where you can self order this test) and learned he had allergies to dairy, soy, eggs, legumes, citrus, and nuts. After removing these foods from his diet he did well for another year. Then the vocal tics and anxiety started.

 

--Judy

How is he now? We have many of the same problems. We have started NAET treatments this week, we will see how that goes.

[GIT-Brain Connection]

Thanks Chemar,

 

Love those encouraging stories!! We've experienced alot of the same as we changed the diet (and supplemented) with our kids.

[/quote

Are you on a Gluten Free diet with your son? Also, I have started the Bontech supps this weekend, did you start off slow? I am not sure if I need to, he has been on a lot of the supps on a higher dosage then her amounts and was going to start off at 8 per day.

Lenny

[Bontech Supplements]

Hi Everyone,

 

We have been using Bontech supps for almost a year with very good success. Like most parents on here although i am quite happy about the success) my real concern is the comming years - he is only 5 yrs old.

 

My question is has anyone using bontech sups (and having good success with them) seen a big increase in tics months or years after using the product. I spoke with the person who sells these sups and she said she has never heard of the "big increase" as time went by. And so I'm just looking for more input. Thanks to evryone who responds.

Good question, I would be interested as well. I just got my first shipment of Bontech and have wandered about the effects of long term usage.

[Dr for Son in Seattle WA or Vancouver BC area]

Our son still is having some minor facial tics as well as a few neck and some very minor vocals. I have been using this site for basing most of my supps and diet, along with getting him IgG tested. I would like to know if anyone has had experience with a clinic and or Dr that has experience with tics and does NOT use prescription drugs. I am willing to travel to find the right place, but was hoping some members may have had a good experience in the Seattle WA Portland OR or Vancouver BC area. We live in Vancouver, and I do have a appointment with a Ped Neurologist sometime this year (hopefully) but would like to use a program that involves diet and supplements that would be tailored more for him. I can appreciate the success so many people have had with these types of programs, but also appreciate it is not a one size fits all program.

[My child update]

After almost of a year of no tics.

My son is getting a slight nodding head tic.

It occurs about 4 times a day. Not a lot.

 

Triggers?

 

Lots of cheese in summer time(eaten with digestive enzymes but 1/2 the dosage)

Lots of arcade/video games.

To top it all it was the disney world that triggered it.

 

Then it subsided.

Then slight allergy, much better as each year he ages.

He wash his noses twice a day with saline solution for about 2 1/2 years now.

 

Then new strict/mean piano teacher.

Then chinese school in the weekend for the first time.

Then new PE teacher. He told me he got nervous. Got couple of head tics and took a deep breath and it went away.

That day I saw no tics.

 

However he is a happier kid then before. Still takes a little longer to warm up in new crowd and events.

 

So with this regiment of Magnesium/probiotic/flax oil/Epsom salt bath and creme they are helping.

 

Take care!

How old is your son? I know our son starting a new school in Gr 3 was the trigger. He has calmed way down now, with only the nose twitch and some strange eye movements. His shoulder tics are gone now.

Do you give you son any fish oil?

[Need more help as tics return]

I'm going to end my short story here Lenny, but I hope I this was helpful in pointing out, that our kids are not alone with their differences, that tics at home, may be much less in school (I used to get the same thing from friends parents and teachers...they had never seen him tic when it was SO noticable to me at home) that the alternative methods, that many here are usiing, have been remarkably helpful for my sons, and so far puberty has not been a nightmare!

 

 

 

 

.

 

I thank you so much for your reply. Yesterday evening I could tell his tics were getting less. I think if I can even get use to a pattern I would feel less anxious. I am going to try Bontech, it sounds like many people have had success with them.

[Need more help as tics return]

Has anyone notice the tics/symptoms are better in the morning? I have noticed with my son his eye blinking/twiching is alot better in the morning than evening.

 

 

Yes, we have noticed that with our son. Some days, I don't see any eye blinks at all until a couple hours away from bedtime.

Same here, last two mornings, he his tics have been very minor, after school it gets worse and then he seems to calm down by bedtime.

[Need more help as tics return]

mblack & imcqill,

 

 

On a more positive note, there is a fairly high percentage of people outgrow TS and experience much decrease as you entered into adulthood.

 

Pat

 

Thanks for the positive note, we all seem to take turns with encouragment and now it seems as if it is my time to need some!

On your comment about "outgrowing". I am curious as to how some people have observed their childs tics from the onset of around 7-8 and if they progressed through the 10-12 years. Did the tics get worse, better, the same leading up to that time and continuing perhaps past. I know there are so many variables, but there must be a few constants. I am probably more curious as to what to expect if you even can know what to expect.

Lenny

[Need more help as tics return]

I just do not understand. We have followed a very strict diet, kept our son away from video games, and basically done everything we know to do and still we have tic issues. One tic will disappear while something else starts. He is now starting the funny eye blinking episodes again and now a sort of head shrugging while he pull his fist up to his chest, and puckering his mouth or lips out. Does nerves, stress, and anxiety play a hugh role in tics. I noticed a real bad episode of tics when I carried my son to the hospital for pre-admitting to get his tonsels taken out. The surgery is not until this Thursday but he is really worried about it. It also has been lightning real bad the last couple of evening and he does not like that as well. What can a parent do to sooth a childs nerves and reassure them that everything is going to be okay? I can't help it but I cry most everyday and wonder why God is punishing my child. Any help is very much appreciated.

 

I have many of the same thoughts as you, mblack. We have followed a fairly strict diet, give him the supps, and now with school starting he has kind of exploded with tics. He has a neck jerk, a nose twitch, and a slight gasping sound.

I have asked myself too if all the supps and the diet has been useless. He has not really had any tics since November last year. He has had a few eyeblinking episodes but nothing more. The only two things that have happened is he was on Pennicilen for a staph infection and was done those on August 26, allmost immediately he had a slight humming tic and when we were coming back from the long weekend (Sept 3rd) he started shoulder and stomach jerking along with some other tics we had never seen. The fact that he was going to a new school for gr 3, has caused him great stress. I am just not sure what to do to help him now? Perhaps Chemar has some good advice, he has not been dx with Tourettes at this time. I am just not sure if the stress induced the tics to that extent, or what? He has no other problems (ADD OCD) except some food allergies we are aware of.

[Help with my daughter's tics]

Well, today was my daughter's first day of grade 1. She had a wonderful time seeing all her friends again Prior to dropping her at school this morning she had some tics, but fewer and less pronounced than the day before, which was pretty bad. Still doing her eye rolls/head jerk and finger twitch. Anyway, when we picked her up from school I spoke with her teacher and told her that she had developed some tics in the past couple of weeks and asked if she noticed anything during the day. She said she didn't, so that was a good sign I thought. On the drive home she was ticcing like crazy! Very bad. They seem to have reduced a bit as the evening has worn on, but she's very tired so I'm not sure how much that is contributing to things.

 

Does darkness under the eyes indicate allergies? She sleeps through the night with no problems, but she does grind her teeth a lot. She seems well rested in the morning, so I don't think it's fatigue causing the blackness under her eyes. Any ideas?

When our son got home yesterday after school he seemed not to bad. Then he watched some TV and started the neck twitch. He was very tired and fell asleep in fairly short time.

He had the dark circles as well, we had him tested with the IgG method and he was very alergic to Soy and Eggs. After 3 months with barely any of these products, we have noticed the circles are gone, and he doesn't sweat at nights anymore.

Today I am going to keep him away from the TV and computer and see how he does. This morning he was very good, hardly anything. I know now that stress is a main trigger with the tics, we were hoping that diet would eliminate them, but that has not yet happened. However, he is a little healthier, which is good.

[New School, new tics]

Imcgill,

My vote is for the penecilin being finished as you say humming started shortly after that? How long was he on that?

 

He was on it for two weeks, as I mentioned earlier, it was for a minor staff infection he got from his cousin. We did give him some probiotic yogurt, but I am not sure if ending the penicillan would have anything to do with the new tics. He seemed better this morning, the first day of a new school took a toll on him. I don't think he has ever had strep, but perhaps it would be a good idea to get him tested.

[son's tics have stopped]

Update August 27. 2007

 

Dylan it still doing well. However after about a month of being completely tic free I noticed a new very small tic he is doing with his arm where he pounds his fist lightly up and down on the table. While this new tic is no where near the intensity of his old tics it lets me know the problem is not totally gone. We have bee on Summer break and are headed back to school this week I am currious to see if the increased stress of being back in school will bring greater intensity to this new tic or possibly see the new ones emerge. Overall he is still doing much better.

 

We have done very little NAET over the summer. We did treat Serotonin, Dopamine, and Norepinephrine. He still has on his list Cortisol, Adrenal and Heavy Metals.

I will try to keep you posted on any improvements or declines.

 

Dylan is not on any special diets and is seeing no other doctors at this time. He does take Solaray Children's Chewable multivitamin.

 

Dylan's Mom

I have contacted a Naet Dr in our area, there is a 2 month waiting list. How was the first day of school?

[Help with my daughter's tics]

Hi Everyone,

 

I just thought I'd give you an update on my daughter's condition. It's been roughly two weeks since we first noticed her tics starting up, and after the first week my wife took the kids to her parent's beach property a couple hours away. The day after they arrived she noticed the tics subsiding, and the day after that they were practically gone. My daughter enjoyed playing with her cousin and swimming in the ocean, generally having a great time. They returned to town this past Thursday afternoon, where I was delighted to see only one eye tic the entire evening. The next day I noticed a couple of tics, but still nothing like what she was. Fast forward to today, four days after she returned home and the tics are as bad as they ever were, almost worse. Her eyes and fingers are rolling roughly ever eight seconds, with some bursts more pronounced than others.

 

Her eyes look particularly dark underneath, and she's been rubbing at them in addition to the rolling. Needless to say, it's worrying and depressing to see them return so strongly, yet her mother and I are both puzzled as to what could be causing it. Sounds environmental, as it gradually improved as she was away and gradually worsened when she returned. We picked up some Reactin today and gave her a dose, but apparently that takes a couple days to kick in so I guess we won't know if that does any good for a bit.

 

When her eye tics began last summer it was towards the beginning/middle of summer, whereas this year it's been towards the end of summer. As for her soccer field, well she played roughly the same time last year and we didn't notice any tics then, although I'm not sure if they're doing anything differently with the field this year.

 

Oh, we had her tested for a bladder infection as she's constantly asking to go to the bathroom, with half the time resulting in her not getting anything out. Another tic? Anyway, the test results came back negative.

 

We have an appointment scheduled for a pediatrician on October 5th, but it'll be interesting to see how her tics react to the beginning of school this Wednesday. If it's truly a stress-related tic I'm hoping that starting school will allay any fears she may have and the tics will start to decrease. If not, then I don't know what to do.

 

Oh, one other thing - we noticed that she's done her finger tic in her sleep occasionally. What does that mean, if anything?

 

Thanks again for any help or advice you send our way.

See my post, sounds familiar, what grade is she going in to? Our son seems to have a hard time dealing with stress, I am afraid this is how he lets it out.

[New School, new tics]

Hi, an update on our son.

He has had a great summer, practically tic free save a couple eye blinks once in awhile. About a week ago he started a little humming, then we were away the long weekend and he was great, until we were heading back yesterday. He had a little louder vocal humming, a new nose twitch, some body tics and his eye blinks. It all happened in ONE day! He started a new school today and is going into grade 3. I know he is worried about it, but he seems to have a hard time talking about it. I hope he calms down and doesn't have his tics in class, but we are going to talk to the teacher anyway.

Here is my question: The diet, the supps. all seemed to work well, was it all in vain? These tics seem very "stress induced" and I am wandering still if he has TS or just transient tics that get worse with stress. Once again, I will reiterate, he is very bright with no OCD or AD and no history of TS in our family.

The only other thing that seems to have happened lately is that he was on Penecillin for a staff infection and was done his treatment the day before he started the humming. Any thoughts from members on this board?

[Need help with my sons tics]

Our son is 8.5 yrs old as well, this time last year his tics were much worse. We have virtually taken away Xbox and DS close to a year ago, as well as put him on Kids Calm as well as a few other supps. I can say that is tics are so minor that most would never notice. He still does the eye blink sometimes, and lately he has been doing a little humming, but somtimes I think I am a little to blame since I probably stare at him too much and ask him how he feels etc. We just moved this week, and he starts a new school this year, so if that doesn't increase his tics then I think I can perhaps settle down and realize it might just be Transient Tics and he will grow out of them. He has been on Penicillen for staph infection and that ends this week.

We have no history of TS in our family and he is very bright with no AD or OC problems. Among other things, we did get the IGG testing done and found Soy and Eggs were off the charts. Now that we have practically taken those away he seems to be sleeping better and does not sweat at night like he use to?? Sorry to ramble on, it is nice to here other people with similar stories and what has worked and what didn't.

Lenny