lmcgill
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Posts posted by lmcgill
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I can't find any information on this natural leaf extract product for allergies. Has anyone heard or used it and had any success?
Lenny
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I believe Kids Calm has worked for us. We have had our eight year old on it for about six months and he does not tic that much now. We give him about half a teaspoon at night, he is only fifty lbs. He does get a little loose, but it is not a big deal. They say to start with a little less until their stool firms up and then give a little more.
This site has helped me get my sons life as well as mine back to almost normal. Of course I believe I didn't just stumble on it either. Now I feel strong enough to try and help others. We also have our son on b12 as well as L carnitine and taurine. I am not sure if they are all necessary, but he is doing so good now, putting on weight, happy etc.
Lenny
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Imcgill,
In your last couple of posts you indicated that he was doing pretty well--did the eye blink just start up again recently? Is it both or oney eye? Just curious. Did you feel the kids calm was having beneficial effect on that previously? Doing anything different recently? Sometimes when we see an improvement for a time, we tend to get a little sloppy
without realizing it. Have you added anything that may not agree with him? I know its hard to pay so close attention, but ......we have dealt with that eye blinking and it does seem to wane after a few weeks. Maybe you could give a little extra magnesium during these times? Also, has he ever been to a pediatric opthomologist (to rule out)? I've tried over the counter drops just to see, but I can't really correlate any improvement due to that. I just tried it for the heck of it.
Its good to compare notes with each other. Thanks
Faith
His blinking is in both eyes, he allways does a little more then usual eye blinking but this morning it was a little heavier. He had a some asian sauce on noodles that had MSG as well as some soy sauce that may have helped. I also have had him on L-carnitine (sp) the last couple days since he saw the naturalpath Dr. From all that I have read, this is a good supp. to be on, with little adverse side effects. I am wandering if his dark circles at times just bugs his eyes. I am going to try a good eye drop or allegy product to see if it helps out with the circles and the blinking. I just don't want to use any product that will make it worse.
Lenny
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I took our son to the Naturalpath Dr this week and she noticed the dark areas under his eyes is usually from allergies. He is doing some heavy blinking now followed by the occasional eye rolling and was hoping to find someone with a similar condition and if there had been success with a certain brand or type of eye drops or allergy medicine. The Icg tests should be back next week which will hopefully tell us a bit more regarding any suspect food allergies.
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Update:
I finally have an appointment with a Naturapath Dr today. When I first called the Dr I am taking my son too asked some good questions. She also wants me to bring in the current supp. he is taking. I am going to ask for a in depth alergy test as well as heavy metal. Any other tests that I should ask for?
Thanks in advance
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How is he doing in spite of the abnormalities in his test results? I would sugest 1/2 tsp of Kids Calm. I honestly believe it works.
Thanks for the update
Lenny
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Our twins were both on Soy, our daughter can take milk now, but our son still complains of abdominal pain when he has milk. He does have soy, mostly just with his breakfast cereal. When breast milk was not an option, regular formula made the kids cry in pain, we were glad there was soy as an option. Not sure what we could have done differently, but if soy is the focul point of any problems with regards to ticcing, how can the damage be controlled or reversed? It seems to be that journey thing again, right now, with the supps he is on, he is eating better and sleeping better and finally putting on some weight. He is doing well in school and is very bright.
Lenny
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Hi Teresa,
I'm one mom who can really relate to your anxiety. I'm a fix it mom too, and when I realized I had no control over this situation I was more anxious. Every feeling you have are ones I also felt. I also felt like a bad mom, but I found it helped me to leave the room. I came to see that I was getting mad at him a lot. Sometimes his actions were wrong, and others were me just not dealing with the TS. I can tell he is happier now that I do find ways to escape the noise. I don't snap at him like I did before. It is hard when they are teenagers, and I have to remember these are tough years anyway.
I sometimes would think he would not love me anymore. I was nervous that he would think I didn't love him because I had to leave the room or listen to music. It just took time, and I would rather remove myself then be upset with him for something he didn't do, and all I was doing was taking my frustration out on him. (lesser of the two evils was my thinking)
It is very natural to be irratated, and you being aware of that is good. If I had told people it didn't bother me I would be dishonest with myself, and don't think I would have ever healed.
I know there are people who can deal with troubles that come their way much easier, I'm just not one of them, but my husband is one of them, and I do draw strength through him.
I do believe the best thing you could do for yourself, and your son is fine natural ways to help him.
It will give you such a good feeling to know you are the one who is helping him. And for us fix-it-moms that is good therapy. I now see that is what I needed was a little control back, and things don't bother me like they did.
I do have to pray a lot, and ask God to forgive me that I did not trust He would take care of my son. Beg forgiveness that I only felt better when I saw the TS symptoms were getting better.
Thank you for being honest, it helps all to know our feeling are not just confined to oneself.
And I like that carolyn can give us moms a sense of how our children deal with TS, she would not be able to give that advise unless someone spoke up. THANK YOU!
C.P.
Don't forget about us "fix it dads too"! It seems C.P. that I could have written your post in some paragraphs word for word. My wife is the strong one that tells me to stop obsessing about him. I was away this last week and she told me I was not allowed to ask her if he was twitching. Of course I had to ask! Our son seems to know I am upset when he tics and that bothers him and perhaps does make them worse. He is doing good now, I wish I could just accept that and relax, and perhaps it is a little better now, but I keep looking at him and expecting and preparing myself for a tic and he does nothing right now.
I have even rationalized that perhaps this is how God is trying to tell me to rely on him more, because I pray about my children and that I have strength and wisdom to be a good parent more then I ever have. But I am not sure God works that way, I have to keep telling myself that I am doing everything I can to help my son and the rest is not up to me.
Thanks for you inspirational comments.
Lenny
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My pain ends up turning to anxiety. I actually talked to a tharapist friend and told me what I was feeling was normal. Doesn't make me feel a whole lot better. I just try to be strong for him and not to let him see me look anxious. I keep searching and praying, we are doing pretty good for awhile now, I am trying to focus on that part and not the part that wonders if it will come back as bad as it was before. I feel the Calm, Super B, the limiting of X-box has helped. Time will tell. I plan on taking our son to a naturapath for some tests and see what comes of that. Keep your head up and remeber God will never give us more then we can handle.
Lenny
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Hi,
We use 1/2 tsp of Kids Calm for our 52lb 8yr old. It has Vit C where the adult product does not. He likes it, I add the boiling water to it, drop in an icecube and he sucks it down. I believe it has worked in his case.
Lenny
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Nice to see the Natural Calm works with your child as well. I firmly believe in the product. We have had our 8 yr old on it since December, and although we still notice the odd shoulder shrug or abdominal twitch, it is very rare. I have recently added Taurine, he does not like many veggies and he is mostly vegitarian. He is also gaining weight, at only 52lbs and slightly tall, he could afford a little bulk.
Lenny
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Update:
We went away for Easter to our inlaws. He started the eye rolling as well as the shoulder shrugging. I am (almost) convinced it is eggs. He seems to have increased tics on the weekend, and he only gets eggs on the weekends.
I got him some Taurine tabs Friday, I am curious as to if they will help. Otherwise, I am going to try no eggs for a week.
I am also going to make an appointment for a Naturalist Dr. I want some more in depth test done for food/enviroment alergies. Here in BC Canada, we have to pay for that kind of DR!
Lenny
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I thought it might be a good idea to take a quick survey to gauge when the symptoms started to become a problem. Many people on here, including myself are not sure what to expect for our sons and daughters and so i thought this may be helpful. For me (having TS) the worst time was at 13 yrs old. Please join in.
Thanks.
It would also be nice to know when the ticcing started? If it peaked at 13, what age did the tics start.
Lenny
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Imcqil,
I agree, all that talk about tics or TS get worse between 10 to 12 is a bit unnerving.
I have a mantra that i say to myself everyday and it keeps me focus.
"I will not worry or fear what tomorrow will bring. I will trust my faith in God and do the best i can today to lay the foundation for tomorrow." I know everyday my son's immune system is getting better because we eat healthy, excercise, used alternative treatments and take supplements. As Laurensmom point out, tics & TS can be outgrow.
Patty
My mantra is claiming Gods promise that "He will never give us more then we are individualy allowed to bare"
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Imcgill,
Here is the link to Bonnie's site.
Both of my boys use the Bontech vits. and we have found them to be very helpful.
I see her site, but can you get her products at any local Vitamin stores? I did email the site on the weekend and have not had a response yet.
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What you are decribing is almost exactly what we are experiencing with my 8 year old daughter. So far very mild, most days hardly noticable. Mostly now only shoulder shrugs and grimacing. I don't know what to make of this whole thing either. Its the not knowing whats going to happen with this that is the worst. If this is all that ever comes of it then no big deal, but how do you really know eh?
We have been making sure our daughter gets some magnesium each day. Mainly, she has been eating broccoli (fortunetly she loves it) and purified water enhanced with magnesium sulfate. Not sure if this appropriate levels of magnesium but I do know that tics have not worsened since her onset about 5 weeks ago. In fact, we they first appeared they seemed to be at their worst.
Although I have a brother with TS and clearly a genetic link, I'm clinging to the statistics that as many as 20% of children experience transient tics in their early school years.
Hoping for the best for all of us!
aj
I am thinking the same thing! He has had them on and off for about 9 months and they have not been bad compared to others on this forum. I do not think he has TS, we have no history in our family and he has never had any vocal tics. As of this morning, he was still doing the shoulder shrugs and some eye rolling.
What really had me sick inside is not knowing if it will turn into TS, or more importantly, if it will get worse!
Somtimes reading too much on the web can be a bad thing. I keep hearing that the tics can peak at 11 or 12. I am not too sure how to prepare. They do go away for months at a time, and the last time he had them before this weekend was first of March and they were very mild and only lasted for a couple days. Please send a personal PM if you would like, I am thinking about trying "Bontech" supps, just need to find out where to get them??
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Well yesterday he started a bit with the shoulder shrugs, this has to be transient. He was playing on some grass, not sure if it was the fertilizer, he had Pizza as well, then he has a jacket that has been bugging him, it seems to keep falling off his shoulders. Once again, I wish I knew. They are mild, hopefully they will not get worse. It just makes me feel sick inside, tomorrow is another day!
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Hi,
Our son is 8 and only 50+ pounds and we have him Kids Calm. It only comes in one flavor, lemon and he likes it. It also has some C in it. I give him a large 1/2 teaspoon in hot water with a ice cube in it. He actually asks for it every night! I believe in the product, I take the lemon rasberry regular calm and find it helps me sleep a little better.
Lenny
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I have noticed when I have changed our sons supps the tics start again. Although I am tempted to experiment with taking him off, I probably am too scared to try. He is doing so good right now with the combination we are giving him
Lenny
Lenny,
What type of supp's are you giving your child? And how long has he been on them, if you don't mind me asking.
Loren
Sure, I had (and have) him on Natural Factors Hi Potency B 50mg dose. When we switched to Kirkland (Costco) B Complex he seemed to increas tics mildly. The main difference is dosage I.E B1 in Costco was 15mg and NF was 50mg. The Costco B1 used was from Mononitrate and the NF was Hydrochloride. Otherwise, thinking about it now, I should have increased the amount of the Costco, but they are quite large and the NF is the same size. We also give him chidrens Natural Calm in the evening, and along with his B-complex in the morning I give him 1 Attentive child by Source Naturals and 1 Learning Factors by Natural Factors. Maybe it is the right combination for now, but like I mentioned in a previous response, was it the Almonds or Cheezies he was on??
He seems to be tic free this weekend, and sleeping much better.
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We had a very similar onset with my son, which you can see on my posts. I am stil sure he does not have TS, no vocal tics as well as no history in our family. I did find that suplementing a mag supp called Natural Calm seemed to help out.
Lenny
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I have noticed when I have changed our sons supps the tics start again. Although I am tempted to experiment with taking him off, I probably am too scared to try. He is doing so good right now with the combination we are giving him
Lenny
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Our son is about 50lbs and tall. Not sure his exact height, but he is slight. He has been on the Calm since the middle of December 06. I am sure it has helped, he had loose stools at first, now he takes about 1.5 tsp at night and still seems to be fine. I am just trying to make a decision on the Calcium now, he is doing very good with our current setup, I don't have him on a calcium supp. and didn't want to jinx anything! I am just a little concerned about the long term effects of not making sure he is on a proper ratio.
Lenny
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That is good to hear. I have increased our son Lawson, to one heaping 1/2 teaspoon in the evening. His bowels seem to be fine and I will probably increase it to two teaspoons over the next couple months. I don't know if this is what is causing his tics to practically go away, and I am hesitant to experiment and stop the Calm, but do I wish I could figure this out! As I mentioned earlier, we took him to the alergy specialist and nothing they pricked him with showed any reaction. I was thinking wheat, since my mother is an extreme Celiac, but wheat was tested, and showed neg. I was still curious to my question about calcium, do you think I should be giving some in tablet form? He doesn't drink milk, some soy and cheese, not sure if he is getting enough
Lenny
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Hi Patty, any update? I was curious since my son is on Kids Calm as well.
without realizing it. Have you added anything that may not agree with him? I know its hard to pay so close attention, but ......
New Here. 6 Year old ds with tics
in Tourette Syndrome and Tics
Posted
Your story is very very close to ours. You can see it on other posts. Our son started off with the eye blinking, but after a few weeks of that, he stopped, then had a shoulder tic, leg tic and abdominal tics. I am not sugesting your son is going down the same path, but even if he does progress to other tics, there is hope. We are going on close to 5 months with very minor tics. His eyes are blinking a little now, but I do think the allergies are bothering him. He has the classic dark circles under his eyes and minor sniffles. Currenlty we are waiting on tests from his Igc blood work to see if that shows up anything. The standard prick test revealed nothing. I believe the best thing we did was to cut way back on TV and video games. Even though he just turned 8, he seems to know they are a problem and maybe plays 1/2 hour a week in short intervals and watches about 2 hours of TV on a large (50in) DLP TV. We also put him on Natural Calm magnesium and B-12 complex. We also try very hard to eliminate artificial flavours and colors and just trying to eat healthy. This forum is very helpful and has been the source of most of my findings.
Lenny